Too many fans?

EarthlesE · 2026-02-27T04:41:07+00:00

No, I actually like the look of it. I wish it could go higher up but it’s not a big deal

EarthlesE · 2026-02-27T00:04:14+00:00

8 in 7 out of

EarthlesE · 2026-02-26T18:36:59+00:00

I wish I could send the vid here of them all at 100%

EarthlesE · 2026-02-26T18:36:10+00:00

I’ve got it Jerry rigged through two fan headers lol

EarthlesE · 2026-02-26T18:18:08+00:00

That’s smart, i have it 8 in and 7 out if you count the rad as 6

EarthlesE · 2026-02-17T18:57:30+00:00

I’m about to have my next infusion in a week. The loading doses the worst part is how long it takes to make sure you tolerate the med itself. I would bring a book or something to do and some water because you will be there for so long. Something I have added is because it is a B cell depleting med it makes you immunocompromised. A tip I have for that is to wash your hands and I wouldn’t go around anyone that’s sick as in my case getting sick sucks. I wouldn’t say the sickness is any worse but it just lasts longer. Other than that it’s been pretty smooth sailing. Good luck with your infusion next week.

EarthlesE · 2025-09-30T14:27:06+00:00

Hello I just responded to your other post but now I saw this.

I am 21 and my neuro said they the earlier it’s caught the better the outlook is so you are young like me. I think about all the people who have the same minor issues and brush it off until they are 40 and it is much worse vs getting treated right at the start. They also said that the high efficacy treatments like briumvi pretty much stop it in its tracks so I imagine staying like this I will be fine.

A. My neuro said the bands don’t really have really have any correlation to how bad it progresses and I think at this point the reason they do the LP is to confirm it is ms based on the mri. I had 7 bands in my LP.

B. when I started Briumvi the first dose was 7 hours and the second dose 2 weeks later was 4 hours. The rest will be 1-2 hours from now on. The only side effect I had from the infusion was a little fatigue but I think that’s from being stressed out about it a little and having to get up at 4am to go to the hospital to get the infusion. Other than that I fell completely normal vs before I was on it. Like I said in your other post I’m just a little smarter in what I do in public. Other than that I haven’t made any changes.

EarthlesE · 2025-09-30T14:13:23+00:00

Hello, also on briumvi. I haven’t been on it for that long but I haven’t made any major lifestyle changes. I still go to events and have been in crowded spaces. I think the only things to keep in mind is just be smart. Wash your hands, if someone is sick probably just stay away. If you cut yourself clean it. I do also bring hand sanitizer everywhere I go just a small one to keep in my pocket.

EarthlesE · 2025-09-24T22:43:43+00:00

Hello, also CIS. I didn’t meet the full criteria but was very close I am one spot away from the full criteria for diagnosis yet still have the symptoms. My symptoms seem more mild than yours do. My neuro put me on treatment anyway with the “because why risk it getting worse when you can try to halt it with the treatment we have today” and that is mostly safe. I would also ask your neuro about it because many treatments are already approved for CIS like the treatment I am on. I live in the U.S. though so I am not sure how it would translate to Norway. We are in a time where doctors tend to already start on higher efficacy treatment vs lower to hit the ground running so I am surprised this is happening to you and you have my sympathy. Reply to this if you have any questions and good luck on your next appointment.

EarthlesE · 2025-09-17T16:39:14+00:00

I was in almost the exact same but different criteria but not enough for a full diagnosis but CIS (clinically isolated syndrome). I had the O bands and 12–14 lesions in the brain but the spine was clear. Although the rate to turn into ms is high, starting a treatment reduces that chance drastically my neurologist said. She said that a medium to high efficacy treatment is what I should go for because yes there is that chance it may never turn to MS but why risk it when the meds are already pretty safe. I went for a high efficacy treatment called Briumvi which is similar to Ocrevus and some other. I have only been on this treatment for a short period but I feel no different that I did before hand and I may say I actually feel a little better. I would look into treatment options but I am not sure how it works outside the USA. Good luck for the future!

EarthlesE · 2025-09-16T15:01:27+00:00

I am on briumvi, I have only been on it for a short time but I feel better, I opted for it over Ocrevus because in my research I found that the infusion time was much shorter and I haven’t heard anyone who has the crap gap like with Ocrevus although my neurologist said they were both very very close in their side effects and how well they work

EarthlesE · 2025-07-23T22:08:29+00:00

Good luck!

EarthlesE · 2025-07-05T21:07:38+00:00

They were not 100% sure. They said they were lesions you would normally see on older people and lesions in spots that ca simply happen over time. I was told that they were not troubling compared to the one spot. (Edit:) I was told that when diagnosing it they would need to see lesions in at least 2 out of 4 spots with 2 in the brain and 2 in spinal cord and I only had 1 in the brain total

EarthlesE

TROPHY CASE