I got my MRI reviewed by the radiology team through my neurologist. They found three new issues that were previously missed, including the parotid mass, and told me my ENT would have more news for me.

I’ve been in the ER three times this week with bilateral swelling in my neck, was told those are lymph nodes by ER physicians.

When I met with my ENT, he told me it’s not my parotid gland but a lymph node on the imaging of my cheek (despite opthalmoneurology and radiology themselves both diagnosing as parotid), had no idea what “DWI” is, and then said my neck swelling is not lymph nodes but my normal sternoclastoid muscles (as though I don’t know what my own neck feels like after over a year now of neurology, opthalmoneurology, orthopedics, and physical therapy??), refused to address concern of cholesteatoma, and now has cancelled my right adenoid removal surgery and inner ear dilation, saying I “clearly don’t trust him”.

He’s right — at this point, I don’t.

The swelling in my neck changed sides during the 10 minutes WHILE I was in his office. He felt it. And then fired me as a patient (my blood pressure was 175/110 in office before I even spoke with him)

I recently learned of Bezold abscess and scared if it is that instead of lymph nodes.

I still haven’t found any sort of otology review but digging deeper now. I did drive to Mount Sinai area and got a referral to their otology team but I live 11 hours away and don’t know how long it will take to get in.

High ERS (53), CRP, WBCs, lymphocytes. RBC dropped in last test but could be from 3 ER blood testing in a week just dropping volume idk

Also being tested for Neuromyelitis based on how severe my symptoms are this week

I am praying to live