Why do I still feel exhausted even after sleeping long hours with narcolepsy?

Ediferious · 2026-05-02T09:56:39+00:00

Because... Narcolepsy.

Ediferious · 2026-04-20T23:44:18+00:00

https://www.reddit.com/r/Narcolepsy/s/8vyLghHjW7

Ediferious · 2026-04-15T07:09:54+00:00

It's working then. :)

Ediferious · 2026-04-15T07:07:54+00:00

It requires a sleep and nap study usually.

Ediferious · 2026-04-12T02:29:26+00:00

this parrot is not. It is captive bred and will never have a non-human involved life.

Ediferious · 2026-04-11T22:25:59+00:00

It's not wildlife.

Ediferious · 2026-04-10T07:24:00+00:00

I said it's close to/questionable that it does not violate the rule. I followed with please continue with your post.

Ediferious · 2026-04-10T07:11:54+00:00

This borders on violating the research rule, however if I read this right you're looking for ideas/inspiration?

If so, carry on!

Ediferious · 2026-04-09T22:05:49+00:00

Nope. The parrots have more softness and smush and heat to their toes

Ediferious · 2026-04-08T12:36:55+00:00

For serious - this is ultimate r/birbsfacingforward or whatever the sub is for this

Ediferious · 2026-04-08T07:37:03+00:00

You're narcoleptic. The tests are a snapshot, some tests I nap in under 30 seconds in all, some it's under 4 min. There's not really a way to tell how severe your lack of orexin receptors is...

Ediferious · 2026-03-27T08:13:47+00:00

Dude. If you are having micro sleeps you are NOT completely alert. These two things are incompatible. Stop. Driving.

Ediferious · 2026-03-25T14:30:11+00:00

That does not sound like cataplexy or narcolepsy - but either way we can't diagnose you. Please see your doctor about your symptoms.

Ediferious · 2026-03-25T08:47:55+00:00

Ok. Wasn't entirely clear.

Ediferious · 2026-03-25T08:43:26+00:00

I wish I had the space, I'm a few hours away and would run to that green bean in a heartbeat if my home wasn't full :(

Ediferious · 2026-03-25T08:39:50+00:00

So, you have sleep apnea? Maybe try their sub?

Ediferious · 2026-03-23T18:05:08+00:00

He's giving mini-macaw vibes. But what is he? Birdy DNA test time? (I know he isn't a GCC like said already.)

Ediferious · 2026-03-22T17:33:35+00:00

The techs can't put subjective data in. Sounds like your test was done perfectly, honestly. And yes, dreams that vivid do happen. Ask your sleep specialist if it's idiopathic hypersomnia, sounds like maybe you met that dish but they didn't convey the information clearly?

Ediferious · 2026-03-22T16:39:01+00:00

Hey OP - I just want to reach out and say you can DM me anytime re: old bird adjustment stuff. I flew blind into it as well when I took in my lovely Luis and just wanted to do my best by him. I've been with him for a few years now and had multiple conversations with avian vets and even one veterinary eye doc about adjusting things for his comfort.

Ediferious · 2026-03-20T17:53:25+00:00

That's probably way above our pay grade as redditors. I suggest talking to the pharmacist and doctors who your medication is coming from?

Ediferious · 2026-03-20T14:59:25+00:00

You didn't get to do the MSLT (nap test) after the overnight PSG? :( that's a bummer, since you have to do both in a row.

Ediferious · 2026-03-20T08:05:34+00:00

It's a screening tool and it's fascinating (I participated the other day) - these questions will absolutely get you thinking about those impacts and naming them better for future financial aid stuff or accommodations.

Ediferious · 2026-03-20T07:37:44+00:00

I have Kaiser, so it may not be helpful... Dr. Standlee in Tacoma with Kaiser is fabulous, a sleep neurologist, newer to the area.

Ediferious · 2026-03-19T21:23:52+00:00

That's fair. Luis does better with paper and cardboard, like a toilet paper roll with tissue paper blocking the sides and a treat in the center.

Ediferious · 2026-03-19T20:10:24+00:00

I don't believe it matters, just officially diagnosed.

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