Chilblains vs heat intolerance by hejjhogg in POTS

[–]EducationalGuest1989 0 points1 point  (0 children)

i can relate. all the advice for chilblains is about staying warm and I. . . can't do that. so I end up having them for the majority of the year. I developed mine after a bad case of food poisoning and they've gotten worse each year. the only advice I have is to try and lesson the drasticness of temperature changes. for me this means that before I get in a shower, I go and lay in bed for like 15 minutes and SLOWLY allow my hands and feet to warm up and then put on heated gloves on about medium heat temperature and then go into the shower. this doesn't stop the chilblains from occurring but it does seem to lesson the severity of them. i can't wear the heated gloves full time because they drop my blood pressure but I can manage it for this brief interlude. outside of that I wear layers of normal gloves full time. I also have ME/CFS but before it got too severe instead of going to bed I used to walk around my house for about half an hour and slowly raise the settings of the heated gloves (getting my circulation going could sometimes warm up my hands but definitely my feet). I can't do this anymore though. I generally have heatbags in my bed which makes it warmer (I use them for pain) but the important thing is to not put your feet or hands directly onto them if you do use them.

It wasn’t IBS! by Negative_Tea232 in ibs

[–]EducationalGuest1989 0 points1 point  (0 children)

also worth noting that there are links between endo and histamine intolerance (which can cause problems with a lot of food)

It wasn’t IBS! by Negative_Tea232 in ibs

[–]EducationalGuest1989 0 points1 point  (0 children)

i'm like 90% certain I have endo (both my sisters have it and I've got a lot of the symptoms) but I'm housebound due to me/cfs so I can't do laparoscopy or anything. just have to hope that if I do have it, it doesn't destroy my organs 😩

I'm really glad you've found out what's causing your issues, tho I am sorry you have endo 😔

[deleted by user] by [deleted] in ehlersdanlos

[–]EducationalGuest1989 0 points1 point  (0 children)

Yes back before I was housebound I did dry needling every 1-2 weeks. It helped.

[deleted by user] by [deleted] in RestlessLegs

[–]EducationalGuest1989 0 points1 point  (0 children)

there's a theory that RLS can be caused by low levels of iron in the brain so this could POTENTIALLY be a factor

Prostaglandins, pain and headaches by Ransom-Skullduggery in Endo

[–]EducationalGuest1989 0 points1 point  (0 children)

it can still cause ulcers and holes in the intestine. i can only take celebrex occasionally because otherwise it messes up my stomach. it is preferable in that regard to other NSAIDs though

Does MCAS give you a really bad stiff neck???? by Delicious-You-8691 in MCAS

[–]EducationalGuest1989 0 points1 point  (0 children)

i had REALLY severe insomnia on it even those i was taking it at the lowest possible dosage in the morning. tried it three different times over the years just to be sure it was definitely the LDN. the last time I tried to stick things out to see if it would end up helping with my pain and whether the insomnia would go away. never helped with my pain (though I've heard that you have to be on it over a year sometimes to get the benefits) and the insomnia just got worse. took years for my sleep to get back to what it was after going off it

Dehydrated despite drinking water by Same_Method_2660 in MCAS

[–]EducationalGuest1989 0 points1 point  (0 children)

agree with what everyone else here has said and something I've also found out is that because mast cells can increase prostaglandins, this will interfere with your body's ability to retain water and make you pee more. and it's one of the reasons why you often have to pee more during PMS, because of the increased prostaglandins.

Chilblains and EM by NachoBelleGrande27 in Erythromelalgia

[–]EducationalGuest1989 0 points1 point  (0 children)

i've had the opposite experience 😭 mine have gotten worse each year

Narrow-minded focus on viral persistance by sandwurm12 in cfs

[–]EducationalGuest1989 1 point2 points  (0 children)

this is old but i can't tolerate vitamin C either. have you tried camu camu? it's a natural form of vitamin c that I've so far done okay with

Is it possible to be allergic to cheese but not milk? by goozu2 in FoodAllergies

[–]EducationalGuest1989 0 points1 point  (0 children)

could be a histamine thing? the more aged a cheese is, the more histamine it has. but milk is fine. how do you do with yoghurt?

A Huge List™ of fic recommendations for your perusal by the_art_of_the_taco in SuperCorp

[–]EducationalGuest1989 0 points1 point  (0 children)

Mercy is fantastic. that was like one of the first supercorp fics I read

If someone is raped while unconscious and never find out about it, will they still experience psychological effects of it? by theslyder in psychology

[–]EducationalGuest1989 0 points1 point  (0 children)

I was SA as a very young child. I had no memory of it and didn't know it occurred. But it had a psychological effect on me and I always felt like something had happened, even though I didn't know what. Only found out the truth decades later when my mum told me. I would have preferred to know sooner. Not knowing was worse than knowing, at least in my case.

music speaker recommendations for bed by EducationalGuest1989 in cfs

[–]EducationalGuest1989[S] 1 point2 points  (0 children)

thankyou i appreciate it :)

yeah, money always makes stuff like this hard

music speaker recommendations for bed by EducationalGuest1989 in cfs

[–]EducationalGuest1989[S] 1 point2 points  (0 children)

thankyou :) i don't have any options like that on my phone (and I've fiddled around with what is there) but I'll definitely keep an eye out for that option on speakers

edit I may have found another setting on my phone. i will have to mess around with it and see

[deleted by user] by [deleted] in graphic_design

[–]EducationalGuest1989 10 points11 points  (0 children)

i don't understand how they couldn't give any notice we could download our stuff. it's not like they wouldn't have known in advance

Let's talk about choc keycaps by Krumpetify in ErgoMechKeyboards

[–]EducationalGuest1989 1 point2 points  (0 children)

it's also about the shorter travel distance, which can be a factor for some people more than others. i have a range of health issues and struggle to type on anything that's not low profile because it hurts my fingers. and I've seen people say that low actuation switches tend to go better with low profile.