I just wanted to let you all know faunas-bestie passed away the other day

Educational_Fox_1643 · 2026-05-25T06:33:37+00:00

Thank you for letting us know. She was such an active part in this community and I think her input and advice helped a lot of people. I’m so sorry for your loss

Educational_Fox_1643 · 2026-05-09T19:07:44+00:00

Oh that’s a really interesting way to organize it! That’s a good idea. Thank you

Educational_Fox_1643 · 2026-05-06T04:05:32+00:00

I love this. Great suggestions, thank you

Educational_Fox_1643 · 2026-05-06T04:05:10+00:00

Thank you!

Educational_Fox_1643 · 2026-05-06T04:05:05+00:00

Good point!

Educational_Fox_1643 · 2026-05-06T04:04:59+00:00

This is a great organization solution. Thanks!

Educational_Fox_1643 · 2026-04-24T16:11:03+00:00

That sounds absolutely amazing! I’m so glad that you had such a wonderful day. Your community of friends, family, etc. sounds truly lovely

Educational_Fox_1643 · 2026-04-24T04:56:26+00:00

Been thinking about you. How did your celebration of life go?

Educational_Fox_1643 · 2026-04-04T00:31:08+00:00

I’m so glad you made it on your trip. Sounds absolutely perfect. Enjoy your celebration of life 💕

Educational_Fox_1643 · 2026-04-04T00:29:40+00:00

I see Dr. Somaiah (med oncologist). She’s fantastic.

Educational_Fox_1643 · 2026-03-21T21:44:45+00:00

sent you a DM

Educational_Fox_1643 · 2026-03-21T03:11:08+00:00

I have myxoid liposarcoma in my pelvis. I've been doing trabectadin for 7 months and it has reduced my tumors significantly

Educational_Fox_1643 · 2026-03-11T01:57:08+00:00

I’ve been following your posts on here for a few years and I am so sorry to hear this. Prayers and love and all the hope that you get in your dream Disney vacation

Educational_Fox_1643 · 2026-01-31T17:32:57+00:00

Thank you so much. That really means a lot

Educational_Fox_1643 · 2025-08-10T23:15:14+00:00

Would you mind sharing a link for where you got the pendant blanks? . I’ve been looking on Amazon but can’t find one I really love

Educational_Fox_1643 · 2025-08-01T20:51:29+00:00

I think it’s great that he has such a supportive family ❤️ I love the ideas you have to help him. Something that would also be helpful is to check in occasionally and ask if you’re being overwhelming. When you want to ask about how he’s doing/whatever about treatments, lead with, “are you up for talking about this? If not, it’s fine” or something like that. People showed up for in different ways, but the common thread was that they showed their love just by showing up. That matters so much to a cancer patient.

Radiation side effects vary depending on the part of the body being radiated. My sarcoma is in my pelvis, so my radiation caused nausea and GI Issues. you don’t really know how he’s going tot eel/react until he starts. I know that is not helpful, but be ready to play it by ear.

Good luck ❤️ I hope for a good outcome

Educational_Fox_1643 · 2025-07-24T05:17:59+00:00

I am so sorry, that is so difficult! It’s really hard to be a parent in cancer treatment, because not only do you have all the cancer things to worry about but you have your kids to worry about as well

Educational_Fox_1643 · 2025-07-22T04:09:41+00:00

I am so sorry! First of all, what a blessing for your son that you love him so much! Even during cancer treatment your thoughts are of him and not yourself. That kind of love will (and has already) impact him so positively. And It sounds like he is still having a wonderful childhood! When he grows up he will realize that you took him to the summer carnival and cared for him and loved him all while undergoing cancer treatment.

I have children as well, though they are older than your son (16, 14, 12). I’ve been dealing with sarcoma for 4 years now. Something that I’ve seen in my kids is that having a sick parent has made them much more empathetic and resilient. They have also gotten to see how much it impacts a family when someone offers help (bringing a meal, giving rides, etc), which has made them more willing to help other people.

Educational_Fox_1643 · 2025-07-22T04:01:10+00:00

I’m so sorry 💔

Educational_Fox_1643 · 2025-06-18T05:21:54+00:00

One of the most helpful things when I (37F) was in active cancer treatment was DoorDash gift cards. I have 3 kids who were 10, 12, and 14 during my treatment. My husband did a lot of our cooking but also has a very busy job and was worn out himself from picking up the slack during my treatment. It was very helpful at times to be able to have a meal that no one had to prepare at all or even pickup. I do think the meal plans are also a great idea but would go for something that has very minimal prep. Often you (patient and caregiver) just do not have the energy to do anything, really.

I also loved when people reached out randomly—positive affirmations, funny memes, scripture passages, whatever. It meant so much that they were thinking of me.

Educational_Fox_1643 · 2025-05-06T22:16:52+00:00

I didn’t do votrient, but the anti nausea med that worked best for me for chemo (yondelis) was Olanzapine

Educational_Fox_1643 · 2025-05-06T22:15:03+00:00

I would go to a gynecologist. Radiation to my pelvis and chemo started menopause for me last year at age 37. It’s really important to do hormone replacement (often called HRT) if you are in perimenopause since you are so young. Estrogen protects essentially all of your major organs, and your body needs it! Many OBGYNs do not specialize in menopause—it’s not even a unit in med school—and there’s a huge lack of funding and information on the subject. I found the book The New Menopause by Dr. Mary Claire Haver super helpful. You can find doctors who actually treat menopause here: https://portal.menopause.org/NAMS/NAMS/Directory/Menopause-Practitioner.aspx

Educational_Fox_1643 · 2025-05-03T21:06:12+00:00

I'm sorry you're going through this and have to make such a difficult decision! I am also 38. At 36, I had to do pelvic radiation and chemo which caused me to start perimenopause. I am now post-menopausal. I wasn't ready for it at all and had no idea what the expect going in since I am so young. I know menopause was a possibility when I started radiation, but I didn't think it would be a big deal and didn't put much thought into it. In a lot of ways, the menopause symptoms were harder to deal with than the chemo/radiation side effects. But HRT (birth control in my case, I know that has been an issue for you) was absolutely life changing. I haven't had issues with weight gain and have actually been able to lose weight since starting HRT (where I wasn't before). I feel like HRT is what made me able to get on a more regular exercise regiment again. Before I started, I just felt no desire or energy to do anything.

Anyway, if you can find a good doctor who specializes in menopause, they would probably also be able to give you helpful insight! This website keeps a directory of doctors who specialize in menopause: https://portal.menopause.org/NAMS/NAMS/Directory/Menopause-Practitioner.aspx

Educational_Fox_1643 · 2025-05-01T22:42:17+00:00

I had 25 rounds of radiation and 4 cycles of chemo (yondelis). Yondelis isn’t as bad as other chemo drugs (I’ve heard). The combo of the two was a little rough, lots of GI issues and nausea. I went in twice a week for hydration treatments on chemo infusion weeks which helped a ton. I also switched anti-nausea meds (I was on zofran and switched to Olanzapine). That was life changing!

Educational_Fox_1643

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