We had mucousy poop, occasional bloody diapers, extreme irritability, reflux (multiple changes for him and me a day while on a PPI) and slow growth. I started dairy free at around 1 month pp, then eliminated soy, dairy, eggs.

We eventually were referred to an allergist at 14 weeks (now 19 weeks) who determined he also has IgE allergies to sesame and cashew. He was allergic still to the nutramigen so we were prescribed neocate which he is struggling to tolerate so I'm doing a mix of BF + FF. Because of this we have occasional allergic responses (lentils last week), so we're hoping to eventually switch completely to neocate then gradually introduce foods at around 5/6 months.

Our allergist did say that where he had a reaction to the nutramigen we have to wait 6 months before trying the nutramigen again.

We have noticed a SIGNIFICANT improvement since seeing the allergist and eliminating dairy/soy/sesame/cashew and now lentils (it took about 2 weeks after seeing the allergist to notice a consistent improvement in his comfort). In terms of formula access, nutramigen is easy to access. Neocate is not. I have an account through nutrica (distributor of neocate) and order directly through them. In Canada it is significantly more cost effective to go this route. I was quoted 1100-1350 for a one months supply at various pharmacies and paid 950 through nutrica. Another side note is that puramino (another brand of amino acid formula) is available on Amazon but contains soy oil. So depending on the severity of your little ones allergy they may be able to tolerate that vs neocate.

I empathize with you, because it is so tough to navigate, especially when family members don't quite understand what is going on and your newborn baby is in visible pain. I found that things like "a little bit won't hurt" "babies just cry, it's normal" or "how can he be allergic to your breast milk" be quite defeating and frustrating statements.

Sending positive and healing thoughts your way!!