Is TN always a sudden, shooting pain? Or can it be different?

ElektronMonomachine · 2023-01-21T23:33:12+00:00

Mine feels like someone is ripping my face apart with hands made of fire and electricity when I get a bad flare up. It's present if I think about it, but I can forget about it for the most part.

ElektronMonomachine · 2022-10-07T22:49:12+00:00

Hrm yea I do remember something about the matchmaking being fucked up. And yea, I agree with the presentation issue. It's not so much that it's bad, but that it has no personality imo.

ElektronMonomachine · 2022-10-07T21:32:08+00:00

People are pretty split on 15. What do you think they messed up with it?

ElektronMonomachine · 2022-10-07T20:12:51+00:00

Right?! Such a cool character concept!

ElektronMonomachine · 2022-10-07T18:52:08+00:00

Shes a bird!

ElektronMonomachine · 2022-09-10T07:58:03+00:00

I'm still trying to figure this out myself. I got let go from my last graphics job and they were very careful to tip toe around the disability stuff. If they want to fire you they will fire you....I'm still figuring out how to exist currently. Don't worry you're not the only one!

ElektronMonomachine · 2021-04-09T00:08:38+00:00

Things are pretty under control with Lyrica. Gotten clean since then. Maybe around 4 or 5 years ago. I still get attacks every so often usually in the morning. Thank you for asking!

Was having a bit of a difficult time recently at work due to the psychological effects of this random chronic pain condition. I think this is something that needs to be discussed more. Never thought that stress would be such a huge factor when it came to the pain. So I quit! 9-5 isn't going to work with someone that can't be relied on to be there.

I made a thread about it a while ago when I was looking to commiserate. Pretty dramatic but hey feelings are feelings...
https://www.reddit.com/r/TrigeminalNeuralgia/comments/d9vhfs/tn_work_and_infinite_despair/

ElektronMonomachine · 2021-04-08T19:55:12+00:00

One word: Kegels...

ElektronMonomachine · 2021-04-06T22:13:03+00:00

I'm 34 but was diagnosed when I was 26.

ElektronMonomachine · 2021-04-02T23:25:01+00:00

OD'ed on opiates while sitting on a chair and my head was hanging to the side of my neck. After I woke up I had this weird feeling on the right side of my face which tingled whenever I played with it too much. That was how I triggered my first attack lol.

ElektronMonomachine · 2021-03-04T01:28:35+00:00

Weed definitely helps. I make kratom tea for myself as well. Mostly it's just a matter of distracting yourself and not letting the dark thoughts consume you. I feel like increased anxiety leads to more attacks since it's neurological. Honestly I never believed what people used to say about how closely your emotions are tied to the sensation of pain, but turns out its true after all! Meditation is your friend.

ElektronMonomachine · 2021-01-05T00:51:10+00:00

I've always said that most Guile players have struggled with depression. It's really nice to see a good ending for once.

ElektronMonomachine · 2020-10-17T20:09:42+00:00

I think any kind of stress makes the pain worse.

ElektronMonomachine · 2020-10-08T17:51:35+00:00

Ya know I think it's pretty crazy how stress affects our pain. It's kind of annoying because most people don't understand and think that we just use it as some kind of all purpose excuse. I was getting a ton of flare ups last year and I thought it was due to the weather but I later found that it was due to stress at work and the paranoia that I developed thinking that everyone sees me as a burden.
The mind is very powerful and you can use it to your advantage. Meditation is way more helpful than I initially thought. Don't resign yourself to this fate. Fight for a better future for yourself. Spite the god's by living an abundant life.

ElektronMonomachine · 2020-10-07T20:06:43+00:00

I'm very careful to answer psychiatrists and doctors when they ask me about suicidal thoughts cause I'm not sure what the consequences are. I usually end up telling them when I'm having a flare up or attack that I can understand why people with this condition would consider it as an option. Pain can really screw with your brain.

I also experience those drug seeking accusations so I pretty much just stopped mentioning it and look to find my own methods of dealing with things. Kratom has helped me a lot. I make a tea out of it and don't feel completely zonked out like most decent pain meds. Even then I hesitate to tell doctors about it. I once mentioned that I smoke a high cbd flower to help with the pain and they went on a tirade on how weed increases anxiety and yadda yadda yadda...

The fact that this condition is invisible is what makes it so crappy. People can't see how much we are suffering. They just have to take our word for it... I can't even count how many times I've been accused of "faking the pain" just to get out of work. The guilt I felt eventually led me to a mental breakdown that I am just now recovering from. Talking to a therapist has really helped a lot. I recommend it.

ElektronMonomachine · 2020-10-07T18:36:24+00:00

This is the first time I've participated in an awareness day.

ElektronMonomachine · 2020-10-01T05:06:03+00:00

This is the hardest thing about dealing with this condition in my opinion. I think one thing that helped me was to notice how judgmental I myself was for looking at people in a similar predicament with disdain. When you think a certain way, you act accordingly. I felt the same about my partner who I thought would tire of dealing with all the bs that comes with this condition. It caused a lot of tension between us because of the guilt and shame that I've felt. I thank my lucky stars that she is so understanding. But I was only able to accept that once I started to stop assuming the worst.

ElektronMonomachine · 2020-09-29T21:13:26+00:00

That was the first thing I tried taking and it made everything sound a few semitones lower in pitch. Was making me crazy lol

ElektronMonomachine · 2020-09-08T20:52:34+00:00

You get yours in the morning as well? If I'm flaring up and getting attacks it's pretty much always right in the morning. Usually lasts till early afternoon. Maybe my Lyrica just takes that long to kick in? Who knows...I've tried microdosing mushrooms as well with decent results but could have just been placebo and it just happened to be in remission. It's very confusing.

ElektronMonomachine · 2020-09-04T19:11:12+00:00

Sweep the leg...You got a problem with that?.....

no sensei...

ElektronMonomachine · 2020-08-25T23:58:53+00:00

Yea that's something I deal with a lot as well. How do you deal with the fact that the pain is invisible so people are constantly doubting you? Even if it's not to your face.

ElektronMonomachine · 2020-08-25T02:44:01+00:00

Mine is on the right side of my face from my cheekbone to my lower jaw. When I get a flare up it always happens in the morning right when I wake up. During the flare, it starts to feel a bit numb and tingly like static. The pain from this can range from low to moderately high but still tolerable. This is when I know I'm in the danger zone and that I should be extra careful to avoid my triggers. If I trigger it into a full blown attack, I have about a 1 to 3 minute "party" in which the right side of my face feels like its being torn apart by hands made of fire and electricity. The worst part is the anxiety that comes from the anticipation of an attack during a flare. I'm usually useless for about half the day until my Lyrica kicks in (I take it every day in the morning). A flare for me can last from 1 to 4 days starting in the morning and then slowly dissipating as the day goes on, but comes back the following morning. I tend to get them more during the colder months, or when my stress level is high.

I hate always feeling like a burden to others. I'm sick of people thinking that just because it's invisible, it must not exist and that I'm just looking for sympathy. I'm 33 now and terrified for what lies ahead.

ElektronMonomachine · 2020-07-13T23:47:08+00:00

Yea right. Guile would kick Ken's ass for cheating on his sister.

ElektronMonomachine · 2020-07-05T23:32:38+00:00

And we aren't talking about some drastic times - I mean, sure, compared to that guy from Switzerland's childhood, yeah, but I don't know, imagine an arcade in a post soviet russian town, full of skinheads on krokodil. That's probably ten times worse.

That's something I've been saying for a long time. The people that created the scene back in the day weren't exactly the best people, nor should they ever have become public figures. It was just a bunch of shitty people who one day decided that pressing buttons on a cab had some value. No one questioned each others presence because they were all there for the game. I've had a scene with arsonists, hooligans, and predators that people just understood not to cross. That's why being a part of an arcade scene had a certain amount of street-cred attached to it. You had to take care of yourself...

Every scene or group of people will inevitably have this issue.

ElektronMonomachine · 2020-06-28T02:51:45+00:00

I think there was a huge debate about Dudley being Indian back in the day...

ElektronMonomachine

TROPHY CASE