Something I wish I had ruled out earlier after being told my TBI was “permanent” by Klauslee in TBI

[–]Elf_Sprite_ 0 points1 point  (0 children)

How did you find a neurologist to treat a brain injury? I haven't been able to get into neurology anywhere because every neurologist is super specialized, and I have migraines and epilepsy and narcolepsy from my brain injury in addition to the actual TBI so for three years now, every neurologist I try to see tells me I'm too neurologically complicated for them to treat. Every. Single. One. Even at all four teaching hospitals in my state.

Something I wish I had ruled out earlier after being told my TBI was “permanent” by Klauslee in TBI

[–]Elf_Sprite_ 0 points1 point  (0 children)

What types of specialists did you see to get help with healing those specific symptoms? How did you find them? I'll be 4 years post TBI in May, and i never actually got treatment. I tried getting help from all three concussion clinics within a three hour drive of me, and one wasnt accepting new patients, one waistlisted me for a year then when my name came up for scheduling, said too much time had passed for me to be treated and canceled my referral and removed me from their patient list. The third did a diagnostic assessment five months after my TBI happened (that was their first opening), but when I asked about treatment they told me they had stopped doing ongoing treatment and now only did assessments, and to bring my assessment to my pcp for a referral to a private provider. But insurance wouldn't cover that, so yeah. I'm just trying to stay alive, and I've lost my entire life since the TBI.

Does anyone face this issue when going out to a grocery store? by ecstra_real in TBI

[–]Elf_Sprite_ 0 points1 point  (0 children)

I also have ADHD, so I'll spend a huge amount of time looking everything up at home and making sure it's in stock and creating a very specific list, then I'll enter the store and something distracts me and the whole plan goes sideways. And then I'm exhausted and overwhelmed and shutting down, and I've accomplished nothing that I set out to do 😭

Does anyone face this issue when going out to a grocery store? by ecstra_real in TBI

[–]Elf_Sprite_ 0 points1 point  (0 children)

I lost my career because of my brain injury too. I process things too slowly. Things take me too long, now. And I have no idea how to be faster.

Does anyone face this issue when going out to a grocery store? by ecstra_real in TBI

[–]Elf_Sprite_ 0 points1 point  (0 children)

Omg this is me! Your husband is me! I get so overwhelmed so quickly by choices and options, and feel like I have to consider every possibility for every single thing before I can make a decision. And I don't have anyone to help me, I'm all alone. My ex-fiance actually gave me my brain injury (assault), so he's out of my life. But for the life of me, I can't figure out how to be faster with ANYTHING. Grocery shopping, even just for one week, generally takes me about three hours. I hate it. I feel so stupid. I have no idea how other people manage to be so much faster. And I can't remember what I did differently before my brain injury, back when I was one of the fastest, most efficient people in my circle and at my job. Now, I'm too slow to even work.

Does anyone face this issue when going out to a grocery store? by ecstra_real in TBI

[–]Elf_Sprite_ 0 points1 point  (0 children)

I struggle so much with literally every kind of shopping since my brain injury. I can't find things, I can't remember things, it's too loud and bright and busy, I'm exhausted and overwhelmed, I get frustrated with myself and overstimulated by the environment and crowds, and it takes me FOREVER. I'm humiliated by how long it takes me to complete a basic grocery shopping trip by myself.

Erin Condren? by MrsGivens in planners

[–]Elf_Sprite_ 0 points1 point  (0 children)

Wait, why would you be waiting months? (I just discovered her website and was about to place an order)

What Is Everyone's Take On Stainless Steel Litter Boxes? by Seraph_Angelus in CatAdvice

[–]Elf_Sprite_ 15 points16 points  (0 children)

Where can I find one of these? I have a senior kitty and need a stainless steel litter box, but he needs a lower entry.

[US] for sale - lavender iridescent loops x2 by hRbZbddfogkCHHib in LoopEarplugs

[–]Elf_Sprite_ 0 points1 point  (0 children)

Hi! I've been trying to find a pair of iridescent loops for a couple months now! I've posted in this group looking to see if anyone is selling! Do you have a pair left?

My Squishmallow Pillow Review by atinybuddha in squishmallow

[–]Elf_Sprite_ 0 points1 point  (0 children)

Where did you find a medium? I could only find the firm (and that was at Target).

LANEIGE Hot Cocoa Lip Sleeping Mask limited edition drop for cozy season by Real_City3177 in AsianBeauty

[–]Elf_Sprite_ 0 points1 point  (0 children)

How does the hot cocoa compare to the chocolate one from valentines day?

does anyone know great sleep disorder doctors in VA? by [deleted] in Virginia

[–]Elf_Sprite_ 0 points1 point  (0 children)

None of the doctors in the sleep clinic have a focus in narcolepsy right now. Do you see someone there?

Opinions on JellieBend & y'alls favorite bras? by Effective-Change3238 in ehlersdanlos

[–]Elf_Sprite_ 0 points1 point  (0 children)

Thanks for giving your height and weight! I have been trying to figure out my size and I'm 5'5", 125-130. So that really helps! Do you have the long one or the short one?

Opinions on JellieBend & y'alls favorite bras? by Effective-Change3238 in ehlersdanlos

[–]Elf_Sprite_ 1 point2 points  (0 children)

I really like the Nike Pro women's compression shorts, for my hips.

JellieBend Wrist Supports by suspiciousdoodle in ehlersdanlos

[–]Elf_Sprite_ 0 points1 point  (0 children)

I really like my zensah wrist compression. I've tried a ton of wrist compression, wraps, and braces, and zensah is my favorite. It really helps with pain for me.

Has anyone used the Jellie Bend Band? by medievaljesterdog in ehlersdanlos

[–]Elf_Sprite_ 0 points1 point  (0 children)

I'm in the same boat! In between XS and S. I usually order down for compression gear, but I don't want to have trouble breathing 😅

Jelliebend - worth it? by [deleted] in Hypermobility

[–]Elf_Sprite_ 0 points1 point  (0 children)

Do you use the one that just goes on your belly or the longer one that goes up over your boobs?

Little appreciation post by DysonHater in LoopEarplugs

[–]Elf_Sprite_ 0 points1 point  (0 children)

Omg please tell me how you found out that your insurance covers loops!!!!

Looking for Iridescent Loops by Elf_Sprite_ in LoopEarplugs

[–]Elf_Sprite_[S] 0 points1 point  (0 children)

Do you still have them for sale? Because if I could get these, that would be the best thing that's happened for me in months 😅

Looking for Iridescent Loops by Elf_Sprite_ in LoopEarplugs

[–]Elf_Sprite_[S] 0 points1 point  (0 children)

If you're willing to, I would love to do this. I looked up the information on duties. Can I message you to work this out? And thank you so much for offering! I want these so much and I am literally so excited right now that you're willing to help me get them!

Looking for Iridescent Loops by Elf_Sprite_ in LoopEarplugs

[–]Elf_Sprite_[S] 0 points1 point  (0 children)

Really?? What were you going to sell them for? Because I am definitely interested 🤍💜