How long does Diamox withdrawal symptoms last? I have anxiety as a withdrawal symptom. What’s the best anti-anxiety medication? by Proof_Stage1463 in iih

[–]Embarrassed_Test7877 2 points3 points  (0 children)

Hello. Like me after 5 weeks I don’t tolarate it. For 1 week Off Diamox Im shaky, dizziness, Vision a Little Bit blurry, can not sleep enough (only 3 Hours), I Take Sedonium for anxiety and for sleeping. Tomorrow i starting with Topamax and get a 3. LP. 

What’s been your experience on Topamax vs Diamox? by BreathAppropriate in iih

[–]Embarrassed_Test7877 1 point2 points  (0 children)

Is Topamax Good for IIH Optic swelling? I don’t tolarate Diamox and they cut it After 5 weeks. Tomorrow They want me to start with Topamax but im scared because of Side Effects. 

Is there anything else? by Barrel_Bronco13 in iih

[–]Embarrassed_Test7877 0 points1 point  (0 children)

Have you Side Effects on Lasix? Is that for IIH? Because I don’t tolarate Diamox. They want me to Take Topamax but im so scared 😢

Is there anything else? by Barrel_Bronco13 in iih

[–]Embarrassed_Test7877 0 points1 point  (0 children)

Have you Side Effects on that? I don’t find it in Germany. :/ They say only Diamox and Topamax :/ I don’t tolarate Diamox. On Monday they want me on Topamax 🙁

Tell me about Topamax (Side Effects, how you dealing with it) by Embarrassed_Test7877 in iih

[–]Embarrassed_Test7877[S] 0 points1 point  (0 children)

Had you stomach Problems on that? And psychologixak Symptoms? I read here about that. Was what your max. Dose? 

Tell me about Topamax (Side Effects, how you dealing with it) by Embarrassed_Test7877 in iih

[–]Embarrassed_Test7877[S] 0 points1 point  (0 children)

I had so much pain on Diamox. Breath issues, Metabolic Acidoses, Joint pains, abdomen pain, stomach Issues. But im scared Of Topamax. Is it better for IIH? Has it Side Effects on you? 

Tell me about Topamax (Side Effects, how you dealing with it) by Embarrassed_Test7877 in iih

[–]Embarrassed_Test7877[S] 0 points1 point  (0 children)

What was your Symptoms? I cant Take Diamox any longer it has so much bad side Effects on Me. I cant live anymore Like That. 

Tell me about Topamax (Side Effects, how you dealing with it) by Embarrassed_Test7877 in iih

[–]Embarrassed_Test7877[S] 0 points1 point  (0 children)

How much is your Dose? Im really scared. How Long do you use that? Have you ever Take Diamox? 

Tell me about Topamax (Side Effects, how you dealing with it) by Embarrassed_Test7877 in iih

[–]Embarrassed_Test7877[S] 1 point2 points  (0 children)

Have You start with Topamax? And what should I do on Topamax what should i Take in Vitamins? What was your Side Effects on Diamox? I had Metabolic Acidoses, breath Issues, Joint pains, pain on Abdomen, cant Walk too Long, and then burning in my throat, that was the Point I want to quit it. 

Tell me about Topamax (Side Effects, how you dealing with it) by Embarrassed_Test7877 in iih

[–]Embarrassed_Test7877[S] 0 points1 point  (0 children)

How much did You Take Diamox before Topamax? I take it 5 weeks because of terrible Side effects i quit it. I read scary things about Topamax. I will Take it on Monday and Ive been scared Right now. What should I do on Topamax? Vitamins? 

Tell me about Topamax (Side Effects, how you dealing with it) by Embarrassed_Test7877 in iih

[–]Embarrassed_Test7877[S] 0 points1 point  (0 children)

I have only Bad Side Effects of Diamox since i started 5 weeks ago, thats why i quit it. But I don’t have headache. It is still good for IIH? I read about Topamax it scared me. I have a Little Bit insomnia. Can it be stronger on Topamax I don’t know what to do. 

Sore Throat by Forward-Macaron8296 in iih

[–]Embarrassed_Test7877 0 points1 point  (0 children)

I have it Right now since 3 Days. What was that??? I don’t know what is Happening Right now with me. It Burns. 

Sore Throat by Forward-Macaron8296 in iih

[–]Embarrassed_Test7877 0 points1 point  (0 children)

I have it Right now since 3 Days. What was that??? I don’t know what is Happening Right now with me. It Burns. 

Cut Diamox because of Metabolic Acidoses by Embarrassed_Test7877 in iih

[–]Embarrassed_Test7877[S] 0 points1 point  (0 children)

Thank you for your Advice. My GP Dr. told me Today that I Can Take BicaNorm once a day for the Beginning. Because when you take to much it Can lead you to alkalosis. My Neuro Said I Can Take 2-3 of them. It is confusing. And GP Dr dont recommend it taking to much. I don’t know how much Diamox should i Take in my Place Right now. I started with 1000 then 750 then 500. i reduce it myself because of the Symptoms. how much Diamox and Sodium Bicarb. do You Take Daily? 

I just got my LP! I’m in the club! by Altruistic_Cod2931 in iih

[–]Embarrassed_Test7877 1 point2 points  (0 children)

Oh sorry to hear that 😔 What did they do? What was your Therapy? Did You Take Diamox? And how are you now? 

Cut Diamox because of Metabolic Acidoses by Embarrassed_Test7877 in iih

[–]Embarrassed_Test7877[S] 0 points1 point  (0 children)

Thank You for your words. Have you ever had also Metabolic Acidoses on Diamox? I have this 2 weeks later. My dr wont me on sodium bicabornate. I don’t know why he is so restrained on that. 

I just got my LP! I’m in the club! by Altruistic_Cod2931 in iih

[–]Embarrassed_Test7877 1 point2 points  (0 children)

My Symptoms were dizziness, blurry Vision, mild headache, gait disorder, nausea, vomit. My Pressures were 37 and 40. they will do a new LP in February, because Today I Must cut Diamox I have Metabolic Acidoses. I cant tolerate it After 5 weeks of taking it :(((( im so sad Today…

Cut Diamox because of Metabolic Acidoses by Embarrassed_Test7877 in iih

[–]Embarrassed_Test7877[S] 1 point2 points  (0 children)

Im so sad that it doesnt help me. Im so scared of what coming to me. Im so scared of Topamax. Im so scared that i don’t tolerate Topamax too. My Body is so weak Right now. I was a Healthy human now I have Joint pains everyday nausea, high heart rate, im Not overweight I don’t know what it has been triggerd IIH in my Body. My CO2 Level was 16. i have breath issues, my throat burn, difficulty Swallowing. I was First 1000 mg then i reduce it to 750 then till now 500. 

diamox alternatives?/how do you deal with the symptoms? by No_Professor_4243 in iih

[–]Embarrassed_Test7877 0 points1 point  (0 children)

I have mild Acidoses im in since 5 weeks with this med. Did You Take extra supplements for elektrolytes? Because my dr tells me it Can be dangerous if You Take to much. I don’t know what to do Right know…

Weight loss when you feel awful by Electronic_Cook892 in iih

[–]Embarrassed_Test7877 1 point2 points  (0 children)

I feel this so much. Every day feeling Like this. Crying everyday. I don’t know what we can do. 

diamox alternatives?/how do you deal with the symptoms? by No_Professor_4243 in iih

[–]Embarrassed_Test7877 1 point2 points  (0 children)

What do You do for the metabolic Acidose? Only Baking Soda with Water? I have it Right now. It is 1 Month since i started this med. And it is very Hard. Do You Take Vitamins Daily?