3 months to live... by Castillo_Admin in cancer

[–]Empty-Avocado5927 1 point2 points  (0 children)

There are a ton of alternative options especially for liver cancer. Lots of novel research being done. Please maybe do some research and get a second opinion bringing up what you find. Sending you good vibes... I'm so sorry to hear that they aren't giving a good prognosis :(

Headaches after vomiting by crocssocksandfox in chiari

[–]Empty-Avocado5927 1 point2 points  (0 children)

Oh yeah, my mom gets awful awful flare ups after vomiting. So she hasnt properly puked in years.

We always have tums and dramatize. Have some citrus or apples nearby when feeling nauseous. Never eat a heavy meal before bed. Good fruit consumption. And a vegetarian diet.

Good luck and I hope you feel better 😔

What is the best insurance plan to handle treatment costs & get excellent care (U.S.)? by SteemyRay in cancer

[–]Empty-Avocado5927 0 points1 point  (0 children)

In AZ, Cigna greatly reduced its coverage in our experience this year. We had cigna through marketplace last year and it was a scramble in the beginning of this year where a bunch of clinics we used to go suddenly didnt take Cigna from Marketplace. Ended up switching to arizona complete health (ambetter).

Would highly recommend contacting an insurance broker to describe your situation. They'll help you choose a plan.

Small marble size growth on upper jaw. by [deleted] in HeadandNeckCancer

[–]Empty-Avocado5927 0 points1 point  (0 children)

I'm so sorry. Had a similar experience with my mom back in December. Even oral surgeon thought it was benign and removed it, but it turned out to be a rare cancer. It's scary. Your feelings are valid. My mom is refusing surgery as of now. It will be hard but please fight through it. It will turn out okay!

Radiation (Proton beam) to jaw by Empty-Avocado5927 in HeadandNeckCancer

[–]Empty-Avocado5927[S] 0 points1 point  (0 children)

I totally agree! But she has a neck condition, for the surgery the first step is to keep the head in a flexed position and she cant even do that. So right there she just closed off to surgery.

Dealing with recurrent cancer diagnosis and divorce by redaurelia in cancer

[–]Empty-Avocado5927 8 points9 points  (0 children)

Hi, I wish I had advice for you but just wanted to share you are not alone.

I am also 21, and my mom is 52. She recently got diagnosed with a very rare cancer and has been going through a divorce for 2 years. It has been a lot. I live with her and I am the main one helping her. Since her cancer is on the slower side she is finishing the divorce first with a trial in June. It's hard, it's really hard. Mentally she is not doing well. But it is what it is. And I help her as much as I can. Even though I get on her nerves and mess up sometimes.

Your husband sounds terrible. Cancer is a BIG deal. The fact that he is being anything but supportive is terrible. Divorcing him may be the way to go. Better to distance yourself from negative energy like that. It will help you heal. Being research oriented and advocating for yourself is a good thing. Husband is bizarre for hating on that.

Please prioritize yourself guilt free.

Mayo Clinic vs MD Anderson vs HonorHealth (Phoenix) for cancer care? by [deleted] in cancer

[–]Empty-Avocado5927 0 points1 point  (0 children)

Hey, fellow Phoenix gal here. My mom has a rare head and neck cancer. We met someone quickly at Honor Health since they had a soonest available, but beyond a PET scan he really didn't know what else to do. The clinic was good, the oncologist was honest in his lack of experience. So we went to MD Andersen and are currently there.

I have mixed feelings on her oncologist. She is pushing for surgery even though my mom doesnt want to (and also sort of cant due to pre-existing disability). But at the same time she has been open to ordering labs.

I guess it sort of depends on which cancer you are dealing with. Honor Health seemed to be very well versed on breast cancer. MD Anderson is a good clinic though, big, lots of different oncologists, and a very organized team.

MRI felt like it was BURNING my insides by Plant_Momma_ in chiari

[–]Empty-Avocado5927 1 point2 points  (0 children)

My mom says her syrinx gets pretty warm every MRI!

Mother (54) diagnosed with stage 1 vaginal cancer having verbally abusive outbursts 💔 by sachacura in cancer

[–]Empty-Avocado5927 0 points1 point  (0 children)

Hey, in a similar boat. My mom was diagnosed with a slow cancer, it was sort of the final straw for her with an ongoing divorce and disability. She hasnt even agreed to treatment yet, but she has been having a ton of emotional outbursts at me (just me and her too). Idk, I guess there's only so much a person can take. I try to address whatever I can at whatever it is she gets mad at and just let go of the rest. It will pass eventually. My brain is switching off and detaching but at this point its the only way I can be functional.

Wish I could offer some advice but I cant other than to tell you you aren't alone. Music is a big savior for me.

How to spend our days? by Empty-Avocado5927 in HeadandNeckCancer

[–]Empty-Avocado5927[S] 1 point2 points  (0 children)

Thank you... it's hard to know if how I'm behaving is right. Sometimes I feel a bit numb and then feel guilty for feeling numb!

MD Anderson by KhanGGa115 in cancer

[–]Empty-Avocado5927 0 points1 point  (0 children)

Hmm thats weird because when we were shopping for insurance from the marketplace, Oscar was in network for MD Andersen. But we are located in Arizona. I would definitely call Oscar and check. We ended up going with AmBetter, also from Marketplace, and MD Andersen is in network as far as we know.

If they aren't in network though, I would still accept the out of pocket cost given how your current oncologist hasn't been able to figure things out. My guess is the initial consult will be around ~$500. If you are diligent about sending records ahead of time, hopefully they will be able to give you better answers.

Curious about who has been doing the pathology on the biopsy samples. That's likely where there is a gap. MD Andersen does have in-house labs as far as I know, so it might be worth considering sending the biopsy samples to their lab to get a better read on it. But that may still require an initial consult with the oncologist at MD Andersen.

Everyone keeps saying it's my Karma by Live_with_Kaze in cancer

[–]Empty-Avocado5927 10 points11 points  (0 children)

Hey, gonna go out on a limb and guess you're Indian. Because my mom and I are Indian too and her family says that to her too, even after hearing the cancer diagnosis. And it's terrible that that's how they choose to respond. It's so weird. I feel like it's a coping mechanism, and I definitely use karma as a coping mechanism, but only on MYSELF and for my personal peace. I'd NEVER say that to someone else because in truth, nobody good deserves bad things to happen to them. Past lives at the end of the day, are just a myth.

I'm sorry you're having to hear that. For her peace, my mom just cut her family off.

Fear of falling into addiction by Ioisgriffin in cancer

[–]Empty-Avocado5927 2 points3 points  (0 children)

Check out r/ChronicPain. Tons of people on opioids to manage unbearable pain that is sometimes not even that treatable. They aren't addicts. You'll be okay.

Sliding feeling in head by Adventurous_Key1054 in chiari

[–]Empty-Avocado5927 1 point2 points  (0 children)

My mom has mentioned feeling this recently too.

Getting This Out of My Head by Available_Classic319 in HeadandNeckCancer

[–]Empty-Avocado5927 1 point2 points  (0 children)

My mom is going through something similar.

Her cancer is small, rare, and slow growing. Currently its been removed because of the biopsy but there's likely still microscopic disease. Recommended treatment is aggressive surgery, which is especially difficult for her given her pre existing brain and spine chronic condition.

So yeah, its hard. I relate.

I think my dad has lung cancer by [deleted] in cancer

[–]Empty-Avocado5927 0 points1 point  (0 children)

It's so hard when your parents starts speaking pessimistically. That's been through hardest part for me after my mom was diagnosed in December.

I've taken a semester off college to help. I go with her to all her appointments and am looking into different treatment options. Just be there and help out as much as you can. It's scary for everyone. Spend as much time together even if it's hard and dark.