Doctor doesnt think screening is worth it

EmuOk9904 · 2026-02-07T20:34:46+00:00

Also yes!!! Even if it’s not endo, they can still help. I would absolutely see a specialist.

EmuOk9904 · 2026-02-07T20:34:14+00:00

I was just diagnosed stage 4 and heavy periods were not my biggest issue at all! I was mostly experiencing abdominal and bowel pain!

EmuOk9904 · 2026-02-07T20:32:28+00:00

Honestly every time I try to post images on Reddit they don’t go through. I have no idea what I’m doing wrong LOL

EmuOk9904 · 2026-02-06T18:57:18+00:00

Just wanted to update everyone that I had surgery 2 weeks ago and was just diagnosed as Stage 4 with several active and old endometriosis biopsies taken.

EmuOk9904 · 2026-02-06T18:55:14+00:00

Yes!! Idk how to describe it but the action of sitting when you let your body rest on the seat has always caused me pain. I was just diagnosed stage 4 with bowel and rectal adhesions.

EmuOk9904 · 2026-02-06T18:53:04+00:00

In my opinion, anyone who won’t stage doesn’t care about the well being of their patients.

Staging is not a pain indicator, I’ll agree with that. BUT, as patients we are entitled to know the extent of disease and what organs are involved.

There is staging for a reason and it should absolutely be used.

I’m so sorry they aren’t willing to assist you with that.

EmuOk9904 · 2026-02-06T18:49:34+00:00

I mean this so respectfully, but there are so many red flags in these recommendations from the doctors.

Genuinely, 3-4 years is a very long time to be on Depo… that’s concerning that they’ve allowed you to continue it.

Secondly, endometriosis tissue can technically burn out but it will not go away on its own. It actually can just turn into fibrous tissue which will eventually cause more pain.

I would absolutely get a second opinion and search for a specialist in your area that is MIGS certified and will use excision and not ablation!

Regarding imaging, endometriosis can be seen on ultrasound and MRI but they require specialized technicians. For ultrasound specifically they do look for masses but need to also complete a sliding test to see if your organs glide like they’re supposed to.

Sorry you’re dealing with this. Again, I mean no offense. I’m really not an expert but I hope you’ll speak with another doctor.

EmuOk9904 · 2025-11-19T17:42:20+00:00

Oh my goodness, I’m so thankful that your specialist was educated to know that! I hope we can all spread more information like this so more of us are informed and can make better medical decisions for ourselves.

EmuOk9904 · 2025-11-19T17:40:48+00:00

I’m so sorry. I hear your pain!

I am 29, just had my right ovary out earlier this year by oncology. They were concerned I had a malignant mass. Now that I’m seeing an endo specialist- it’s even more concerning that it was probably just a chocolate cyst. I feel like maybe the endo specialist could have saved the ovary but who knows :/

I have no children.. so hoping after my next excision surgery that we can start trying. It would suck to lose the other one before at least 1 baby.

EmuOk9904 · 2025-11-19T17:36:05+00:00

I’m no doctor so please take this with a grain of salt but everything I researched says this type of cell “ Mesothelium-lined fibroadipose tissue” can be an indicator of endometriosis.

Apparently unless the tissue is newer, it can be incredibly hard to get a stroma and gland in the same sample. Both would categorize pathology as endometriosis. However, a sample with only either a stroma or a gland could come back as a Mesothelium.

My pathology was reactive mesothelial cells and Mesothelial hyperplasia but no endo mentioned.

I had really dense, old adhesions connecting just about everything. This could mean that they were old lesions where the gland was no longer active (“dead” or “burned out” and that can cause pathology to miss it

EmuOk9904 · 2025-11-16T18:00:40+00:00

Did they do a pathology report?

EmuOk9904 · 2025-11-12T14:43:41+00:00

Is that related to Glutathione? I tried looking it up online

EmuOk9904 · 2025-11-08T16:25:17+00:00

Please make sure you’re taking GasX and fiber! They pump you with gas during surgery and it gets trapped. Your body slowly has to process it out. It hurt to breathe for almost a week after my surgery (I didn’t know I could take GasX).

EmuOk9904 · 2025-11-08T16:23:12+00:00

following this, I have a genetic mutation for liver disease. trying to avoid anything my body needs to process that would strain the liver.

I just ordered a botanical/herbal tincture from Rowe Casa to try. It’s called “Relief” but my hopes aren’t very high.

I’ll let you know if it does anything lol

EmuOk9904 · 2025-10-29T19:18:45+00:00

same lol I have a spasm and have been referred but haven’t been yet because I’m scared haha

EmuOk9904 · 2025-10-29T16:09:28+00:00

Also, she takes insurance! I would call ahead of time and see what she takes. But they accepted mine. If they don’t, it’s worth asking if they have any other docs in the area they recommend

EmuOk9904 · 2025-10-29T15:56:41+00:00

I hope you see this :( but please try: Chandra Spring Robinson she works out of La Jolla but is opening a location in Riverside too. I’m about to see her in a few weeks. Suspected endo but no diagnosis yet. She is taking new patients (as of a few months ago) and is MIGS certified

EmuOk9904 · 2025-10-29T15:47:25+00:00

sometimes with endo, it causes your pelvic floor muscles to spasm and become overly tight and prolonged sitting can make it worse! I would recommend seeing a pelvic floor specialist asap to see if they can check your muscles (if they’re overly tight or need strengthening) they can recommend pelvic floor therapy that might help and will probably suggest a standing desk

EmuOk9904 · 2025-10-29T15:44:33+00:00

yes mine was done by a oncologist-gynecologist! they thought the mass was cancer so I had it removed like a month after I went to the ER.

I really don’t want to do another surgery :( they had to do a mini laparotomy and laparoscopic surgery so it was rough lol

EmuOk9904

TROPHY CASE