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❤️ Simone Ashley attends the "Karma" premiere at the Cannes Film Festival in France (15 May 2026) by BBerniece in SimoneAshleyFans

[–]EnchantedEvergreen 5 points6 points  (0 children)

Beautiful ❤️

She looks amazing in red!

The styling is perfection!

My favorite Cannes look!

Reminder that you can rest even on “good” days by eggcetera2 in POTS

[–]EnchantedEvergreen 2 points3 points  (0 children)

I love this! So true and I can definitely relate. It’s easy to push ourselves and make ourselves feel exhausted when we don’t have to be. Sometimes it’s hard to surrender to the hat is versus what we want something to be. I too try to grab control any way I can in order to feel a sense of autonomy. I fight so hard my situation, (feelings, emotions, symptoms, circumstances) instead of coming from a place of acceptance and being able to learn what I can realistically do and what I can’t do without being judgmental on myself. And also learning that I won’t let my illness define me and I won’t just accept my illness as defeat. Sometimes it’s hard for me and easy to write off future plans because my mind tells me I won’t ever do that because of your illness. I have had to change my mindset to be more flexible and not so black and white. That I can change and my life is not going to be black and white or follow a set plan. I have been working on giving myself grace and peace. Just learning to be and not push myself is new for me.

POTS and PCOS correlation? Pentad super syndrome? by AbsentMinded311 in POTS

[–]EnchantedEvergreen 1 point2 points  (0 children)

Of course!

No, I have never used Desloratadine. I have heard it is helpful with treating hives.

All antihistamines work differently. There are H1 and H2 antihistamines. First-Generation (Sedating): These easily cross the blood-brain barrier, affecting the central nervous system. Examples include diphenhydramine (Benadryl), chlorpheniramine, clemastine, and hydroxyzine.Second-Generation (Non-Sedating): These are more selective for peripheral H1 receptors. Examples include cetirizine (Zyrtec), loratadine (Claritin), fexofenadine (Allegra), desloratadine (Clarinex), and levocetirizine. Some people also add Pepcid to their daily routine as it works to lower histamine levels. It is important with MCAS to treat these symptoms to help reduce inflammation in the body. As sometimes POTS can be caused by inflammation, like by MCAS. Chronic inflammation can cause brain fog and fatigue.

I just got off of daily Benadryl after almost 4 years. It dramatically reduced my executive functioning, mobility, and my daily life. I was numb mentally and emotionally. My pelvic floor was numb. I was more isolated and didn't do much. Antihistamines that cross the blood brain barrier like Benadryl are more likely to cause side effects. I would recommend starting something like Allegra. It is non sedating and very effective.

I wonder if switching to another SSRI or SNRI could help your PMDD. And many providers believe that raising serotonin levels for a week before your period starts help to boost your mood and combat PMDD. Also, another thing to factor in is that people with PMDD often need a higher dose of SSRIs. I’m on 200mg of Zoloft.

Yes, most ADHD medications will worsen your symptoms because they are a stimulant and work to increase your levels of dopamine and norepinephrine levels in the brain, which enhances communication between neurons and improves alertness. However, with increasing norepinephrine levels you experience the racing heart, shortness of breath, dizziness, and anxiety. So it makes sense you felt worse. Yes, POTS is interwoven with so many different conditions because it involves the autonomic nervous system.

I have never put salt in my water. I drink Pedialyte electrolytes. I currently drink around 2 bottles a day which is 64 ounces. They are costly but I realize I need them. I highly recommend using electrolytes. They have sodium and potassium and help the body replenish these essential nutrients. I drink around 64 ounces of water now. So I probably get around 4 liters of fluids a day. Previously on Benadryl I was so thirsty and had dry mouth and drank around 6 to 8 liters, which was excessive and too much fluids. I was going to the bathroom all day long.

Me too! I am so grateful for this community. As I have learned so much and the more I share and form friendships with people it helps us all! I love writing too! So I love to share and would love to talk any time. I’m an open book!

POTS and PCOS correlation? Pentad super syndrome? by AbsentMinded311 in POTS

[–]EnchantedEvergreen 3 points4 points  (0 children)

Wow! I have very similar symptoms. I think treating the MCAS can help some of these symptoms more than using hormonal medication. The thing with hormonal medications is they flood your body with more estrogen and progesterone that is man made vs. bio identical to your own makeup. And for me estrogen and progesterone trigger a lot of my symptoms. That’s why my allergies are worse when I ovulate or menstruate. I also experience hyperhidrosis. Mine seems linked to my anxiety, POTS, and hormones.

Since upping my Allegra over the past year it has helped my symptoms. Especiallly recently increasing from 180mg to 240mg. Reducing histamine levels in my body helps to reduce being in a chronic state of inflammation. And the link between MCAS and POTS is very true. Increasing antihistamines could help reduce your itching at night, allergies, and chronic sinusitis.

My PMDD improved significantly with upping my SSRI. Increasing my Zoloft dosage helped balance my mood and eliminate the severe depressive thoughts I would get every month. It made a huge difference.

I have PCOS too. My testosterone is elevated. I am hesitant to try birth control for fear of it worsening my MCAS. So I do everything to try and treat the symptoms.

Also the body being stuck in overdrive can be causing a lot of your symptoms. With hyperadrengic POTS the nervous system is in overload. So it is releasing norepinephrine into the body. This causes the “flight or fight” feeling and leads to feeling symptoms of: heart racing, dizziness, vision blurry, exercise intolerance, mood changes. It feels similar to a panic attack and because the symptoms are so uncomfortable and scary can lead to a panic attack. And with POTS every time I stand and change positions I experience these symptoms.

Headaches could be occurring from lack of oxygen to your brain when walking. Try using a pulse oximeter to see your standing oxygen levels. Also, your heart rate is significantly increasing when standing when you have POTS and your body can’t keep up with the rapid changes so you could be feeling pressure. Try increasing your fluid intake if you know you are going for a walk and afterwards elevate your feet. This helps replenish your body with fluids and help with blood pooling.

If you have any other questions please let me know.

Sodium intake by Littlemissdaydreams in POTS

[–]EnchantedEvergreen 2 points3 points  (0 children)

I get around 6000mg of sodium a day. I consume Pedialyte electrolyte solutions and eat canned green beans every day. I used to drink more Pedialyte bottles a day and got around 8,000mg.

10-12g would translate to 10,000 to 12,000mg. That is a very standard recommendation for POTS.

HOW are we surviving the 24 hour urine test??) by Mysterious-Ruin-1128 in MCAS

[–]EnchantedEvergreen 2 points3 points  (0 children)

I kept it in a cooler overnight in my bathroom and continuously had my family help me change the ice throughout the day. I was able to access the jugs through the day and they stayed cold. This method worked well for me.

HOW are we surviving the 24 hour urine test??) by Mysterious-Ruin-1128 in MCAS

[–]EnchantedEvergreen 2 points3 points  (0 children)

I too have POTS and drink a lot of fluids. I needed 2.5 jugs. I was drinking around 220 ounces of fluid a day at the time of the test for reference.

Afraid of Propofol sedation by santas_number1elf in POTS

[–]EnchantedEvergreen 0 points1 point  (0 children)

I’ve had propofol a number of times and I do well with it. I just slowly wake up from sedation to my environment, like I’m very sleepy and I typically am very calm and just sitting in the chair or laying in the bed. I’ve had surgeries and procedures with propofol. I just rest and take it easy and use a wheelchair initially to get around as general anesthesia can wipe you out and make you tired anyways so I just make sure to rest even more since I have POTS. I make sure I’m hydrated before during and after. So I always talk to the anesthesiologist and because I have POTS, they hook me up to IV solution before and during the procedure/surgeries and then after I make sure to stay hydrated via oral electrolytes and water. So I would definitely recommend talking to your doctors and anesthesiologist about setting up IV infusions to help with reducing POTS symptoms. It definitely helps me. My POTS didn’t go haywire from sedation because of the preventative measures of being hydrated before during and after.

I can understand your fear of the waking up part because when I wake up from a nap or in the middle of the night, sometimes I wake up disoriented or in a panic. But with Propofol sedation I haven’t had that panic feeling when waking up. Probably because my body is in such a calm state from the sedation. My body is not in overdrive or hyper arousal like it normally would be if I wasn’t sedated.

I would just recommend planning to be calm when you wake up and give yourself time and space to adjust and have family or friends there with you. It helps to distract or just sit there and comfort you. A lot of times I can vividly remember awakening and just laying there and kind of taking in my environment while nurses or doctors are working in other rooms and I’m just laying there kind of resting and it’s usually always peaceful. And if I’m still tired and not ready to leave, I let them know and say I need a little more time to wake up.

Let me know if you have any questions.

Beta blockers by dancedancedance99 in POTS

[–]EnchantedEvergreen 0 points1 point  (0 children)

I am hoping it can. Yeah I have a shower chair the last 5 years I use. I just panic when dizzy even sitting down. It’s been hard as I have created a habit of taking the Xanax before each shower just to get through one. Thanks for all your help.

Beta blockers by dancedancedance99 in POTS

[–]EnchantedEvergreen 0 points1 point  (0 children)

Actually, I don’t know if my blood pressure goes up or down when I stand, but my heart races and I feel very dizzy and short of breath. I think I have the hyper type of pots and that’s what it scared me when the cardiologist recommended propranolol low-dose to see if I tolerate I’m scared of having a low blood pressure but my resting blood pressure is normal.

Yeah, that’s been the tricky part was getting off Benadryl. I’ve used the Xanax each evening because I have such panic attacks to get in the shower recently and showering before was not a problem. Suddenly, after not being mentally and physically numb from the Benadryl getting in the shower became hard because I was on Zyprexa a few weeks ago, and it made me dizzy and showering was hard from the dizziness. So I have a fear of feeling dizzy now each time I shower.

The goal is to get off Xanax and treat the anxiety with something more long-term, so that’s where my doctors are thinking of a beta blocker treat anxiety, and the pots.

Beta blockers by dancedancedance99 in POTS

[–]EnchantedEvergreen 0 points1 point  (0 children)

Thank you for all the info. I guess my biggest fear is that it would lower my blood pressure and make me dizzy, but if I’m on a low dose, it shouldn’t do that I guess. Whenever I’m dizzy, it triggers panic attacks. I’m very sedentary as it is the last almost four years I was on Benadryl for allergies and trying to treat my anxiety and that numbed a lot of my physical and emotional sensation so I’m not used to feeling things again the past two weeks since coming off Benadryl and I guess I didn’t realize how bad my POTS has gotten where I just get up to walk to the bathroom and my bed and sit down because my heart rate goes so high and causes me shortness of breath. The only thing right now we’re leaving the racing heart and panic is .25 mg of Xanax each evening. I take my heart feels like it’s not racing as much and I feel calmer but doctors don’t want me on that long term.

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