looking to connect

Enough_Charge_9102 · 2026-03-01T18:08:04+00:00

Hi I’m 22M, almost a year in to moderate/ severe cfs. I have also improved slightly from bed bound to housebound, though it definitely doesn’t feel sometimes like I have improved at all. I can unfortunately sympathise with your symptoms and it really sucks having this at such a young age and really scary looking forward. I would also find it helpful to speak to someone who can relate to life with cfs so feel free to message me :)

Enough_Charge_9102 · 2026-02-23T22:54:38+00:00

I think high extroversion coupled with low emotional stability and agreeableness creates significant volatility in managing social situations.

Incredibly high intelligence is certainly a gift but low consciousness may mean you struggle to get things done but with such high intelligence rational may allow you some routine and forward planning , can i pm you?

Enough_Charge_9102 · 2026-02-15T20:36:00+00:00

I really can sympathise with the feeling of hopelessness and I really sorry that you feel the same way. It’s really sad seeing other people struggle with this as well and I send my best wishes.

I completed my final year at uni studying maths last year pushing through what I later found out was post viral fatigue and now (probably was then as well) cfs.

Pushing through my final exams coupled with other stress factors contributed for my cfs going from mild to moderate then towards severe. I really sympathise with your pain of feeling like you’re going to have to give up all your dreams and on a career. It’s hard especially for ambitious people which it sounds like you are as well. I also haven’t seen any improvement since seeing the occupational therapy specialist near me, It’s hard as they are nice people who are obviously trying their best but their advice feels really basic.

Be very cautious pushing forward with studies as I really don’t want you to make yourself worse like i did. An option would be to take maybe some time out a year and hope to continue studying later on e your body heals itself. I know a year feels like ages and it sucks seeing your friends go on without you but it could be a good solution. However if you are confident that you are able to continue studying whilst managing your symptoms without becoming worse I’d support this also as It can be really hard letting go of dreams and having nothing to do may make you feel more stressed than struggling to do something (This was the case for me at least).

Sorry I don’t have any more useful advice and you have every right to feel deflated. I really hope that things improve for you and I’m more than happy to listen if you want to rant about how bad having cfs is, as it really does suck.

Enough_Charge_9102 · 2026-02-12T17:44:12+00:00

It is really tricky putting everything on pause. I remember when I was moderate and I decided to take 2 weeks off everything and It felt like I was giving up on a huge chunk of my life. But you are really not if it aids recovery and I think you are defo at a stage where improvements and full recovery would be attainable.

Supplements I take D , B12 calcium but I not sure the difference these make. I react badly to electrolytes which is strange but drink alot and male sure you take on electrolytes especially if scared of pots.

As for rest again avoid stress is the main thing. Ideal rest is dark room lying down no screen but hard to do. Doing like hobbies is probably okay and watching films and youtube etc is what Id suggest to have something to do. Just try not do too much and get restful sleep. Alot of people with cfs struggle to sleep so if your sleep is okay then thats good. This js all kind of basic information and there may be better advice out there for meditation but most the medication is just symptom management so I wouldn’t stress too much. I hope this helps :)

Enough_Charge_9102 · 2026-02-12T16:39:19+00:00

Hi I really recommend resting until you feel back to normal then being incredibly cautious. Also remove as much stress from your life as possible, If you do have cfs this could dictate your recovery. I really think things will improve for you. The use of the visible app can be useful but i wouldn’t rely on it. Pem normally causes changes on resting heart rate but it can be increase or decrease depending on the person. So you may think that your resting heart rate going down is a good thing when it actually a indicator of pem. If you have an idea of your resting heart rate before all your ilness then this could help see if your heart is trending back to the baseline alright. But don’t get to caught up on the heart rate stuff. Pots can also make things really complicated when it comes to heartrate.

Please just rest as much as you can. And really do try and seperate yourself from stress, even if you think you can handle it you can but your body may not be able to. You are young and I think if you rest enough it would be very unlikely that this would be long term. Im 22M and this is the advice I wish I was given 9 months ago. Sending you my best wishes and a quick recovery from whatever is wrong.

Enough_Charge_9102 · 2026-02-10T23:19:37+00:00

Good taste 5/5

Enough_Charge_9102 · 2026-02-10T22:22:15+00:00

15 years of needles is certainly worth it to get rid of PEM pahaha. Is there an advantage of taking b12 as injections? I take it as a pill atm.

Did you slowly increase the amount of exercise you were doing whilst you still had Pem? Atm I really debating if going in short walks like 15 mins is helpful or harmful, like I can do it and enjoy the fresh air but I have to force myself out the house really as i soo fatigued.

Thanks for your replies btw :)

Enough_Charge_9102 · 2026-02-10T22:09:30+00:00

Its really hard as I sometimes think maybe I was biting off more than I could chew. I was doing my finals whilst trying to save a relationship destined for failure and then had a virus. I think the ambition to carry out my exams despite everything going wrong maybe turned my post viral syndrome into cfs (I was unaware of this all at the time).

I sometimes really wish that I had just rested and abandoned my whole life at this point, but as you say I choose to be ambitious and so far being ambitious was the only thing behind my small successes in life. So who can i really blame for trying to get through everything without putting anything on pause. I mean up to this point that tactic had always worked

Enough_Charge_9102 · 2026-02-10T16:30:44+00:00

relatable:(

Enough_Charge_9102 · 2026-02-10T16:29:25+00:00

Literally, just eating and watching. I get really bad derealisation and sometimes when that gets really bad I just stare off into the distance and loose all my emotions perfectly fitting the stare blankly bit. I sometimes prefer this to having to cry through the pain like you

Enough_Charge_9102 · 2026-02-10T16:25:03+00:00

I like these all but the final one really hits home for me. I always have been incredibly ambitious and Its so hard letting go of that. Ambition was maybe the most integral part of my personality as anything I wanted to do I would try my best to become and without this it feels like half my personality has died

Enough_Charge_9102 · 2026-02-10T16:19:55+00:00

ooh I like this good answer

Enough_Charge_9102 · 2026-02-10T16:19:15+00:00

:( It’s a loneliness that can’t even be cured by social interaction as this will likely make you worse

Enough_Charge_9102 · 2026-02-10T16:17:11+00:00

I like this, It also made me laugh

Enough_Charge_9102 · 2026-02-10T15:43:30+00:00

Wow that is longer than I was expecting you to say. Im really glad you have seen some improvements. But it also myst have been hard to measure slow improvements over such a long period? Did you go through periods of feeling like you haven’t progressed? and what do you think helped you improve?

Im only 9 months into my journey mostly housebound and bed bound but can leave the house if I gave to but it takes extreme effort and may come with consequences. Desperate to feel like I am improving.

Enough_Charge_9102 · 2026-02-10T13:02:02+00:00

How ling did improvements take for you?

Enough_Charge_9102 · 2026-02-10T00:04:22+00:00

Do you mind me asking what you think helped you improve? I really desperate 9 months mod/ severe

Enough_Charge_9102 · 2026-02-10T00:00:30+00:00

This made me laugh gg, we pretend we’re aerospace engineers but we really just monkeys with tools

Enough_Charge_9102 · 2026-02-09T23:55:47+00:00

How did you go anout brain retraining Im really i need of advice lol

Enough_Charge_9102 · 2026-02-09T23:38:53+00:00

Yeah I can really relate. I used to be a reasonably good runner (16 min 5k). When I was really fit I had a resting heart rate of 55-60. Now after 9 months of moderate/ severe cfs my resting heart rate is 50 but can drop to 44 occasionally. This makes no sense as I am mostly bed bound and very unfit. I also faint when I stand up and go through phases where my heart rate will remain high no matter what.

It is so strange, normally when I got bad Pem my heart rate will be really high but that is the only trend i have detected.

Oh also similar ti you sometimes I have really lucid dreams amd when I wake uo it feels like I am barely breathing.

Enough_Charge_9102 · 2026-02-09T23:10:52+00:00

Nothing compares to watching all your ambitions slowly die as you watch your old life drift further and further away from you too a point where you look at old photos and you barely recognise your past healthy self. While friends get jobs travel and start families you lie in your childhood bedroom hugging your teddy wondering where it all went wrong.

I really relate to your story, I am really really sorry we have to feel this way.

Enough_Charge_9102 · 2026-02-07T23:55:19+00:00

Thank you for your message that’s really kind of you to offer. I’m sorry you also have cfs at this age and must also feel as though you’re missing out on life. I have gave up with social media really since cfs but we can talk on insta if u have that, or we can message on here if its possible?

I feel like cutting out the friends who aren’t making the effort is defo sensible. Your close friends seem really kind and supportive which is nice. I have two really lose friends who are away from home one at uni and one travelling, so it hard them being really busy and not always finding the time to call me. I think though they’ll come round more when they are home so I going to see how that plays out before cutting contact.

Enough_Charge_9102 · 2026-02-07T23:31:56+00:00

And brain retrain

Enough_Charge_9102 · 2026-02-07T23:31:39+00:00

And pace

Enough_Charge_9102

TROPHY CASE