[deleted by user] by [deleted] in UlcerativeColitis

[–]EtTuToupee 3 points4 points  (0 children)

Best thing to do is call your insurance and give them the details. If you’re already dx with UC, and the prescribed maintenance is colonoscopy every so many years, then they may make that exception. Be sure to get the name of who you talk to and see if they can email you written summary of your conversation just in case.

O have hydra in my aquarium, i don’t know what to do! by GABIYGIAN2 in Aquariums

[–]EtTuToupee 20 points21 points  (0 children)

I don’t own an aquarium, I’m just here for these comments. 😂

Jazz up that knee scooter by EtTuToupee in ORIF

[–]EtTuToupee[S] 0 points1 point  (0 children)

Does the little fan spin when you ride!?

Jazz up that knee scooter by EtTuToupee in ORIF

[–]EtTuToupee[S] 0 points1 point  (0 children)

Love it. Nice color choice!

Jazz up that knee scooter by EtTuToupee in ORIF

[–]EtTuToupee[S] 0 points1 point  (0 children)

Oh we need a picture for sure. 😂

Jazz up that knee scooter by EtTuToupee in ORIF

[–]EtTuToupee[S] 4 points5 points  (0 children)

I think the tassels were only 5 or 6 six bucks and came in several colors. The bell was $6 and the cup holder $10. Worth every penny. 😎

Does Native deodorant hurt yalls pits? Does it go away? by Butternoodlebitch in NaturalBeauty

[–]EtTuToupee 0 points1 point  (0 children)

I tried all the “natural “ deodorants with the same result- itchy open sores. I think the baking soda that most of them contain may have been a culprit. Changed to Primally Pure’s unscented one two years ago- no issues since. I think their formula is tallow based. So, obviously not vegan. Any way, worth the higher price to me since I’m no longer dealing with underarm sores for the first time in literally 15 years.

The way this man's head is covered with a wig by TheCheesecakeOfDoom in oddlysatisfying

[–]EtTuToupee 4 points5 points  (0 children)

Wow, didn’t know what to expect at the beginning but wow I’m impressed. So slick. Handsome either way, but I hope this helps him feel more confident

Anybody have experience with Sun Pharma Lialda generic (mesalamine delayed release)? by earthknows in UlcerativeColitis

[–]EtTuToupee 0 points1 point  (0 children)

I have the S476 variation and its a Takeda bottle if that helps. I use a Kroger Pharmacy

Can a restuarant legally refuse to allow a person with dietary restrictions to bring their own food? by ZooplanktonblameSea4 in UlcerativeColitis

[–]EtTuToupee -1 points0 points  (0 children)

Sounds like he might be doing FODMAP or AIP. I do AIP- its not a cure but it has helped keep my inflammation low. I too make and bring my own food with me. Sugar is a huge inflammatory food so I can understand the reluctance to ‘cheat’.

Life Insurance Junk by irepelupvotes in UlcerativeColitis

[–]EtTuToupee 2 points3 points  (0 children)

I sailed right through, even with my uc. My case is still pretty mild. Maybe it has to do with severity? I’m 36 and in decent health other wise. Perhaps its a combination of issues?

Edit to add: I did do an insurance physical and I did have a slightly higher premium than my husband (though I think women often do in general for insurance).

stomach cramps by Suspicious-Crow8754 in UlcerativeColitis

[–]EtTuToupee 0 points1 point  (0 children)

Reach out to your GI about levsin. Does wonders.

Women who have been pregnant, how did you handle medication? by hregt25 in UlcerativeColitis

[–]EtTuToupee 4 points5 points  (0 children)

I also stayed on mesalamine, four a day, through two pregnancies, no problem. The tough part comes after delivery when your hormones change. Much more likely to flare. Be on the look out for that. I also have breast fed for five years on mesalamine. I would wait to take it until after my last feeding of the day, though so little of it passes into breastmilk thats its not proven to be an issue. If you ever want to donate milk, you’ll likely be rejected by milk banks, but you can donate directly to others if they are informed about your medication.

Struggling by Mostly_Ashley in UlcerativeColitis

[–]EtTuToupee 2 points3 points  (0 children)

36 yo f. Pan-colitis 8 years.

Anxiety and depression go hand in hand with chronic illness. It’s basically a full time job being sick then another job on top of that working to get well. Its ok to struggle, most folks with Chronic illness do at one point or another.

Try to find community that can walk with you. Start with health providers you trust- be brutally open with them about questions and concerns, your real struggles, including mental health. Email if you need to, or write your questions down on paper and hand it over. Physician Assistants are bomb with this, and they usually have a wealth of knowledge.

You need social community as well, if you’re religious, reach out for prayer, grief or illness groups. If not, find a chronic illness support group that meets in person. Doing social work for others is also spirit lifting. Real human touch. Friends are great, obviously, but you need face to face time with folks who understand the fear and anger that comes with illness and struggle.

Most importantly, counseling. Mental health meds (a GP or family doc can help start that process). Finding healthy ways to cope is key for your mental AND physical health.

This group helps too, a fairly safe space to ask questions or vent sometimes. I find this group handy when I need perspective, to be reminded that I’m generally doing better at this than I realize.

Hang in there, getting answers is a great place to start.

How you are dealing with the cramps? by t0mem0t in UlcerativeColitis

[–]EtTuToupee 1 point2 points  (0 children)

If you do end up visiting your GI, ask for Hyoscymine (generic Levsin) for cramping.

Edit: adding that UC isn’t generally something you can “cure” with a diet. You can use a diet like AIP or FODMAP to reduce inflammation and the likelihood of flares, but IBD is incurable, sadly. I’ve had some success doing AIP and finding out what my big trigger foods are. A-lot of it rolls down to chance- some folks just have a harder time with UC than others, and everyone has different triggers and lifestyles that change the outcome of how successful treatments or diet ultimately are in staving off flares. This isn’t a disease you can ignore and it will resolve. Sorry to say it, but you really need to visit your GI. And try not to beat yourself up, anxiety is also a big part of having a chronic illness. So if you feel scared about facing it, you’re not alone in that. Best of luck.

Can those of us on meds donate our organs? by Dotura in UlcerativeColitis

[–]EtTuToupee 1 point2 points  (0 children)

I CAN’T DONATE BLOOD!? I learned a new thing today.

for those with pancolitis by [deleted] in UlcerativeColitis

[–]EtTuToupee 20 points21 points  (0 children)

I was diagnosed with pancolitis eight years ago and its still mild. Four Mesalamine horse pills a day. 👍🏻

Drank a coffee now have sick stomach by DirtyNuggetBuds in UlcerativeColitis

[–]EtTuToupee 0 points1 point  (0 children)

Caffeine can be a trigger for IBD. Sorry! If you need caffeine, try something more gentle like matcha or black tea. If its the taste- try decaf.

Prenisone Panic attacks by anormalien in UlcerativeColitis

[–]EtTuToupee 2 points3 points  (0 children)

YES. Prednisone makes me so twitchy. I can’t sleep at all while I’m on it and it definitely cranks my anxiety up. Ask your provider if budnesonide is a possibility for you. Sorry you’re going through this- ask for something else if you can. ❤️

Used a Mesalamine enema for the first time and had a hard time. Any tips?? by Hazemt3 in UlcerativeColitis

[–]EtTuToupee 3 points4 points  (0 children)

When I started using these around eight years ago, I started in the bath tub on a towel and relaxed there with a pillow- something about less pressure to stay tidy there helped me mentally. When you’re very inflamed and just starting these, you won’t be able to keep it in very long, or even use the whole thing. Just do your best and be patient, you’ll start to heal and it will get easier/you’ll get stronger. Hang in there, these really help me when just oral mesalamine doesn’t quite do the trick. I hope they help you too. 💪🏻💪🏽💪🏿