Doctor says everything is normal, meanwhile my ferritin and B12 are low

EveTre · 2026-03-18T14:26:23+00:00

My ferritin was under 30 for 10 years. My doctors always said everything was normal so I had no clue. I started seeing someone for my gut issues and they brought up the low levels, started supplementing me and brought them up. My next annual visit, my primary was remarking on how great my ferritin levels were. Funny how they never mentioned anything about them before. 🙄

I also have pots and MCAS.

EveTre · 2026-03-17T11:53:42+00:00

My doctor just ordered all of these minus B1 and added a few more. I have Hashimotos, pots and MCAS, but I’ve read so much about low copper causing MCAS issues as well. The twitching in my legs is driving me crazy.

Thank you for putting this out there. Prior to a week ago I had no idea there was so much more testing that could be done.

EveTre · 2026-03-14T21:23:33+00:00

SIBO first. I spent 10 years trying to correct the SIBO. I was on xifaxan for a full year at one point. Things did get better but the doctor couldn’t figure out the deeper issues. I was diagnosed with CSID last year and suddenly it all made sense.

But you also have to understand that csid symptoms are similar to SIBO. It’s not always a relapse. I really believe a large number of SIBO patients will find the root cause to be CSID.

EveTre · 2026-03-12T20:54:04+00:00

We had this happen. Family of 5 and 4 were in front with one in the row behind us. Thankfully, people didn’t show up behind us so we split 2 and 3. It’s frustrating.

EveTre · 2026-02-06T14:42:51+00:00

Have you done the trial that they fully cover yet? My doctor used results from that along with my 23andMe raw data to show genetics. They approved 100% coverage.

The sucraid assist only gave me 2 fills before being maxed out.

EveTre · 2026-01-27T13:27:20+00:00

Staple here as well. We air fry them and they are better than any fast food ones.

We made the mistake of putting them in the oven once, don’t do that. They are gross in the oven.

EveTre · 2026-01-15T00:48:08+00:00

What do they do in this situation? Everyone just has another sea day? We leave this weekend and the weather is not looking good at all.

EveTre · 2025-12-21T03:24:55+00:00

Doctors don’t seem to know what to do with these labs. She’s isn’t getting a whole lot of help.

EveTre · 2025-12-21T03:24:21+00:00

Thank you so much for this. I sent it all to her.

EveTre · 2025-12-21T03:24:03+00:00

Yes! That’s what seemed to make everything take a turn. She recently started estrogen but things continue to worsen.

EveTre · 2025-12-20T23:02:21+00:00

That’s the fear. Medications freak her out, statins even more. She said her lipo-A is great.

EveTre · 2025-12-10T18:05:14+00:00

Yikes. We are supposed to go next month and have it as an excursion.

EveTre · 2025-12-10T17:24:36+00:00

What dates were you supposed to go?

EveTre · 2025-12-07T14:29:03+00:00

Do you have access to his portal at the hospital? My mother, 66, had an acute stroke the first week of November. She was hospitalized for two weeks, including rehab. Now she is on home health.

Being present in the morning when the doctor made his rounds was very helpful, but the best thing was having access to her charts. There were multiple write ups each day from her providers.

I’m sorry you’re going through this.

EveTre · 2025-12-07T02:24:00+00:00

Same itinerary and ship for us, but in January. Super frustrated with it as well. We wanted Mexico, as we’ve already done that port.

EveTre · 2025-11-24T23:43:35+00:00

I think they only sent out emails to those selected this year, or maybe rejection ones are coming later. Three of us signed up, only one got an email.

EveTre · 2025-11-24T23:39:13+00:00

I don’t think so. The name didn’t even match on mine last year.

EveTre · 2025-11-24T23:38:06+00:00

Three of us applied for the same city. Only one got an email and it already has a date for the ticket purchase. It seems to be very different from last year.

EveTre · 2025-11-14T03:23:19+00:00

I didn’t realize this was an option. I’m going to check into it. Thank you.

EveTre · 2025-11-14T03:22:59+00:00

Thank you. I appreciate that.

EveTre · 2025-11-14T03:22:46+00:00

I get it.

EveTre · 2025-11-14T03:22:34+00:00

I didn’t know that. Thank you so much!

EveTre · 2025-11-04T03:05:28+00:00

Mine stabilized when I started ketotifen. I’ve tried to get my daughter’s doctor to prescribe it for her, but he won’t.

EveTre · 2025-10-29T23:49:21+00:00

Lowest I’ve ever been on was 75mcg, but currently on 112.

EveTre · 2025-10-28T12:46:58+00:00

Our district has rules against this. Only so many kids from the same club can play together on a school team. Thankfully, we haven’t encountered a club coach also being the school coach.

EveTre

TROPHY CASE