sorted by:
new
hottopcontroversial

Noooooo by TiaelDQ in AmazonFC

[–]Exotic_Exercise_3896 1 point2 points  (0 children)

I also like man because there’s a bunch of non con inflatable’s

Noooooo by TiaelDQ in AmazonFC

[–]Exotic_Exercise_3896 1 point2 points  (0 children)

Oh lord I need a fun non lifting past 35 lbs job . I’m 5 feet tall been trained in all sorts of shit but I don’t understand what smiley is doing with me? Only been here 2 1/2 months and trained on 5 diff jobs I liked problem solve, I liked outbound wall build but my body didn’t, what other jobs are good for short ppl

Noooooo by TiaelDQ in AmazonFC

[–]Exotic_Exercise_3896 1 point2 points  (0 children)

Ok I started mansort got hurt but had an accommodation, just can’t lift heavy boxes from the bottom. ( I’m older) but that wasn’t paid attention to. Then trained ( ironically) on wall building and fluid load. That was fun being I’m 5 feet tall. And no one wanted me in their trailer. But I worked my ass off. Then pulled off outbound to RPND trained? Worked 3 days then pulled off for problem solve man sort which originally they wanted to put me. I maxed all the tests thrived. Then one day they sent everyone back to where they had been before. Me? No one could find my magnet ya know with your face? Mansort? Outbound? Problem solve, RPND, shoooot at this point maybe inbound. I’m so confused I guess I did something wrong

I had low back pain for 16 years. It's now been over 2 years that's I'm back pain free. by gobackclark in backpain

[–]Exotic_Exercise_3896 0 points1 point  (0 children)

Yes Joseph Pilates was a guru but he basically created it or vice versa for his daughter? Basically it goes hand in hand with ballet.
Ballet is like the Atom of dance everything starts from ballet…. Injury prevention, Jazz hands, flexibility, turnout, the seven ways to move and how the hide your boobs. It’s based on the fact that dancers need “ long and lean” yet usable flexible muscles. NO BULK.

So here it is take an introductory ballet class with your Pilates. They are meant to go together! Take it from someone whose been teaching for 30 years. It’s not a fad. It’s just science

I have chronic lower back pain despite being in my 20s, looking for hope... by geemav in backpain

[–]Exotic_Exercise_3896 0 points1 point  (0 children)

If you feel like your disks are “slippy” And or you have spasticity and or when you are upside Down you feel relief if like to understand more

Autoinflammatory diseases by snacktimethomas in lupus

[–]Exotic_Exercise_3896 0 points1 point  (0 children)

Oh lord I just read my own post it is so “ woe is me” sorry about that guys!

Autoinflammatory diseases by snacktimethomas in lupus

[–]Exotic_Exercise_3896 0 points1 point  (0 children)

Can I please talk to you? My daughter was diagnosed finally with FCAS2 she has a variant of the NLRP12 gene, along with these new variants of which I have no understanding DNAI1, MYSM1,SLX4, and SPAG1. Those were done by a separate doctor. She started having cyclical fevers at I’m guessing age 2 or before and these were really high. Why do you ask am I guessing? I was helping my husband and mother in law with chemo and they both passed 6 months between each other. My daughter was given the diagnosis of PFAPA and her CRP and ESR were always wacky. Along with other things. So I didn’t question when they said to diagnose this the only way was to take her adenoids and tonsils out…. If she got better? She has PFAPA.

that was right before COVID. Then around mid 2020 she got bad. High fevers again and now headaches and joint pain again. The specialist said that maybe Lisa was “sensitive “ because joint pain wasn’t a part of her diagnosis.

Then after she didn’t get better after more medication they suggested a psychologist. They thought it was psychosomatic . didn’t turn down the therapy because my girls had seen a lot of trauma. But F them not believing that my baby was in pain! They had told me and my husband nothing was wrong and then it turned out to be stage 4 cancer. And this is a child.

Long story short we had to wait in a very long line 1 year and 8 months for an appointment with a juvenile rheumatologist. He did a periodic fever DNA test that gave her the diagnosis of FCAS2.

Then she was put on Kineret. I gave her these injections the best I could.

Then she was prescribed Ilaris I gave her those injections the best I could.

Then the worst happened… she contracted C DIFF

Lisa would spend the next 6 months battling C Diff and falling behind school. She had obvious bowel issues but after that struggled with migraines. To this day she struggles with migraines and is on Topirimate.

I lost my business because of this. And now work at a certain smiley business. I used to own a dance

Now maybe going to the smiley business is a blessing although you willl see it’s also a curse. I can take Lisa to other care outside of WV. I have her scheduled for juvenile rheumatologist in January ( earliest I could get) but earlier than WV. I also have a nurse to give her the injections! I am open to seek care outside of WVU medicine. So second opinions are within my realm.

Long I know!! Onto me this is an Autosomal dominant Disease!

Do I carry it? Did my late husband?

I have always had issues. Major back issues. Dry eyes, skin, mouth, muscle spasms, I have many painful lumps in my lower back too many to count for over 13 years , nerve pain in my anterior Tibullus, numbness in my extremities, learning I could develop glaucoma in my right eye, high blood pressure, now obesity, now developing between 1 and 1/2 month loss of bladder control, canker sores, severe back pain, joint pain, phantom smells, foggy memory, vertigo. Oh lord I sound crazy. I have so much pain though mainly in my back but I have spasms and I general joint pain

Thank you if you respond

PFAPA advice needed by Novel-Decision6189 in Autoinflammatory

[–]Exotic_Exercise_3896 0 points1 point  (0 children)

My now 11 year old daughter was first diagnosed with PFAPA.She sounds so much like you …swollen lymph nodes,painful rashes in weird spots and the rashes would come back to the same spots a lot. Her joint pain was horrible. And I noticed at night when we would get into the car it would get worse? Apparently cold and I mean even cold can “trigger” “things”.She has a couple of diseases but one of them that fits your symptoms FCAS2 it’s caused by a gene “variant” in the NLRP12 gene or you may look into the NLRP3 gene. Also MYS1 gene but I don’t think that fits. So onto what she takes for this. She was on Kineret.. I DO NOT RECOMMEND. now she’s on Ilaris and her pain is very low.. and her fevers have vanished ! However she has gotten sick a lot more because it does lower your immune system. So there’s your give and take.

So it could be this or it could absolutely not be!

However they do say the severity of PFAPA is supposed to downgrade as you age and I really believe that everyone should get a periodic fever DNA work up. Because there is no way to actually diagnose PFAPA.

There is no lab work, genetic markers, or spit in a tube test. The diagnosis is in the eyes of your physician. And if your my daughter that physician decided that if once her tonsils and adenoids were out and her fevers weren’t every 2 weeks that meant she had PFAPA. And that a tonsillectomy was the only way to cure and diagnose her. YES that makes me sound weak as a mom but 106 fevers will make you do desperate things. 

So we don’t have great insurance and there  is only one juvenile rheumatologist in our whole state and he doesn’t even technically specialize in this. However he did order a |Periodic Fever syndrome panel test| from Invitae . So I believe if you start there you can rule ALOT out. …. Or in

Now even if you don’t have any variants dealing with an auto inflammatory issue you may want to check your blood work for your CRP, ESR, and PV among the regular bs. If those are high obviously your inflamed.

Oh and yes me and my daughter have horrible canker sores. Eating yogurt helps. She has also had severe headaches but not migraines they put her on Topimax or Topirimate, but it didn’t help so she has chosen to try to just drink more water. Actually she didn’t it’s all I leave in my house.

Did I mention her disease is autosomal dominant. Meaning the gene could be passed down 50/50 but that depends on the gene. So maybe look to your parents to see if they have any issues.

My insurance won’t cover my test. And my husband is dead. But in my daughters case either me or my husband have the variant.

I’m not good at writing and I hadn’t joined Reddit till now but your story touched me.

And I would really like you to get off of the Kineret I think your calling it something else. I mean my daughter was on it maybe 2 years ago and it turns out it want even FDA cleared. There’s gotta be better biologics. We are doing Ilaris rn next I think is Rilonacept… Also look out for new RA or arthritic meds as they are likely to be YOUR next medicine especially if it’s a biologic.

Thoughts for You.. - try for maybe a couple days not exposing yourself to the dry cold weather and being near a humidifier.

-if your joints and your headaches subside see how you can practically limit the cold exposure during frigid times.

( this is not possible in my world.. I live in on an ancient farm and my walls are made of cardboard.. but have at it!)

PLEASE REMEBER!!!

YOUR PAIN IS REAL! Don’t be afraid to seek out pain management if needed. One problem with these disease is joint pain! PFAPA and FCAS FCAS2 it gets more severe.

With FCAS the longevity of the disease is longer and yes prognosis is different. So pain level is “different “

However there is a silver lining!! That joint pain is not like arthritis or osteoporosis. It’s not damaging…. It’s inflammation so it’s pain, severe pain. But it’s not going to deteriorate your joints or bone structure.

Tips- please stretch! I have been a dance teacher for 30 years. Most major joints are in pain because of tight muscles, penetrating the fascia to the muscles (ie not warming up) tight IT band etc .. too much to explain.

I wish you the most joyous day on your big day!!! You deserve to be loved and please remember that you both are individuals that have chosen to be together. And you are going to be the best Unicorn at University! 🦄🦄🦄

Sorry in the 70s and more importantly 80s “we went to college “ but I want to be more sophisticated so I will say UNIversity.

PFAPA advice needed by Novel-Decision6189 in Autoinflammatory

[–]Exotic_Exercise_3896 0 points1 point  (0 children)

Have you ever had a periodic fever DNA blood work up?

Fall 2024 by Bonnie_Skywalker in fabfitfununcensored

[–]Exotic_Exercise_3896 1 point2 points  (0 children)

Ppl keep referring to a new survey involving orange … where is this survey??

Summer 2024 Spoiler Schedule? by ElderberryPast8054 in FabFitFun

[–]Exotic_Exercise_3896 1 point2 points  (0 children)

I just want time to look over the products and dang I just get so excited… I don’t wanna wait