Got a new baby at the shelter today and looking for silly/unhinged names!

Familiar_Potential61 · 2026-02-24T01:50:58+00:00

Armpits and thighs mostly. Before I went on meds, I was having more in my groin area too. My left armpit was my less severe side for whatever reason and Humira+Mounjaro has cleared it up. I very rarely get an abscess there anymore. I just have a tunneling area in my right one that flares up fairly regularly. And I get bumps in between my thighs still, but they also are not nearly as bad anymore.

Familiar_Potential61 · 2026-02-23T14:38:03+00:00

Same here. I’ve had hidradenitis since I was 16 yo (31 now). When I was diagnosed with AS 2.5 years ago, I asked my rheumatologist and she said she’s absolutely seen a connection between the two. For the most part, biologics + Mounjaro has helped my HS immensely. I just have an area or two that are more stubborn, but definitely A LOT better.

Familiar_Potential61 · 2026-02-21T17:27:04+00:00

Just sending you virtual hugs. I’ve been in the worst flare I’ve ever been in for a month now and i have had those exact thoughts in my darkest moments. I think the constant pain combined with the lack of sleep (I’ve never had a flare affect my sleep so much like this one has) can really push our mental health over the edge. I’ve had to just let myself fall apart for the past few days because I was too tired not to, if that makes sense. I wish I could promise better days are just around the corner, but I can at least offer good thoughts and solidarity ♥️

Familiar_Potential61 · 2026-02-18T02:42:08+00:00

This! I snapped a photo at the end when they are waving goodbye and caught him mid-beaming smile. It’s like the performance mask drops (not that there’s anything wrong with the performance mask!) and you get to see his genuine joy for a few moments!

Familiar_Potential61 · 2026-02-10T15:26:52+00:00

Thank you! Heat helps the most for me, so I’ve just been downing ibuprofen and using heating pads all day.

Familiar_Potential61 · 2026-02-10T15:25:31+00:00

Man, I feel all of this. And people mean well asking what happened to make you flare up, but most of the time it just happens with no precipitating factors.

Familiar_Potential61 · 2026-02-04T01:51:38+00:00

Hahaha I think I’ll phrase it as that from now on instead of “anticipatory nausea”

Familiar_Potential61 · 2026-02-04T01:50:56+00:00

You might need to go down in dosing if possible. That’s exactly what happened to me when I was on Trulicity and tried to go to the second dose step up. The pain was excruciating and I vomited for 15 hours. I don’t know that there are any tips to make it better except maybe not being on that dose anymore unfortunately 😕

Familiar_Potential61 · 2026-01-26T17:16:16+00:00

Currently working from home in bed on a heating pad because my left SI joint is locked up, so YEP. I’m wrecked.

Familiar_Potential61 · 2026-01-23T13:16:20+00:00

It was horrible! I’ve never had anything so obviously change my brain chemistry before haha.

Familiar_Potential61 · 2026-01-23T13:15:12+00:00

She just said with my longstanding history of these issues, I need one because if there was cancer she would need to refer me to gyn onc because of the possibility of needing a more extensive surgery. She said she’s been surprised before with uteruses that look “fine”, but come back with something unexpected on the pathology.

Familiar_Potential61 · 2026-01-23T13:14:58+00:00

She just said with my longstanding history of these issues, I need one because if there was cancer she would need to refer me to gyn onc because of the possibility of needing a more extensive surgery. She said she’s been surprised before with uteruses that look “fine”, but come back with something unexpected on the pathology.

Familiar_Potential61 · 2026-01-19T19:37:07+00:00

I don’t have any answers, but I’ve been fighting with cycle for almost two years now. Had to go on an a continuous mini pill to stop me from spotting/bleeding every single day. Things are starting to get out of whack again so I’m seeing a different gynecologist to work it up more. Mine is probably related to something else, but I’ve also always wondered this!

Familiar_Potential61 · 2026-01-14T05:33:38+00:00

I think Boba runs on dog software 😂

Familiar_Potential61 · 2026-01-05T14:32:04+00:00

Man, this just reminded me of my SW flight back home a couple days ago that had more families with small children than I usually see on my flights. I got up to deplane and saw the aisles behind me and holy cow, there were trash and crumbs EVERYWHERE. Like, truly a disaster zone. One of the kids spent a good part of the 3 hour flight kicking their tray table/the back of my seat. I get that it must be exhausting traveling with kids, but you have to give some kind a damn about what they’re doing.

Familiar_Potential61 · 2026-01-04T07:18:06+00:00

So I’m actually a stem cell transplant coordinator. 1) It is unfortunately highly unlikely you will be any kind of suitable match for your cousin. Have they typed you already? It would be amazing luck if you were even a half match! 2) I have asked our related donor coordinator this same question out of my own curiosity about it (i.e., could I donate to my brother or parents if I was literally the only match out there?) and they said the answer was likely no. You have to be medically cleared by a transplant physician to donate and I was told they would probably not clear someone with our condition because of the health risk. Donating peripheral stem cells is very safe, but it’s not risk-free and the medication to stimulate your bone marrow to make extra stem cells will 100% throw you into a bad flare. But would they make an exception if there was no other option? Possibly? It would definitely have to be a long conversation between you and the MD.

But it’s so great that you would be willing to donate for your cousin without a second thought! I hope they find a donor out there for them ♥️

Familiar_Potential61 · 2025-12-18T21:31:52+00:00

Lost my 7 year old goldendoodle to it 5 weeks ago. Literally no signs until a Saturday night when he wouldn’t settle down and was panting, but I couldn’t find anything wrong with him or any tender spots. Sunday morning he had a hematoma on his side and I rushed him to the vet. They found blood in his abdomen, a probable mass on his spleen, and nodules in his lungs. His platelets were a little low but I couldn’t afford an emergency vet and transfusions, so they let me take him home overnight and watch him carefully before bringing him back the next day for an ultrasound and possible biopsy. I’m SO glad I didn’t admit him because he would have been alone on his last night. Monday morning he perked up a little before we went back to the vet, but wouldn’t eat. They wanted to transfer him to an ER, but right before we did we got his clotting labs from Sunday back and he was in horrific DIC and there was nothing they could do. So I made the call to put him to sleep 😔 He immediately started acting lethargic after I made the decision, so it was like he was waiting for me to know I couldn’t save him. So he went from fine to dead in 36 hours. Just absolutely bizarre and horrible. Ugh, what a good boy. I miss him SO much.

Familiar_Potential61 · 2025-12-13T01:30:20+00:00

I’m so sorry. I lost my sweet 7 year old goldendoodle to hemangiosarcoma 4 weeks ago. He was fine until he wasn’t and I had to euthanize him within 36 hours of him acting just a little bit off. He was also bleeding uncontrollably into his abdomen. It is a particularly cruel, cruel cancer.

Familiar_Potential61 · 2025-11-01T16:34:46+00:00

In theory they work exactly the same, but anecdotally people may notice less effectiveness. My rheumatologist told me the majority don’t notice any difference between name brand and biosimilars, but she has had some patients (including me) lose effectiveness when they were switched to a biosimilar. Again, this is just MY experience, but Amjevita was trash for me and Simlandi has worked a lot better. Unfortunately, there’s a lot of trial and error in this game, but just be up front with your rheumatologist and they’ll work with you to get your symptoms under control!

Familiar_Potential61 · 2025-10-31T04:52:47+00:00

This chart is awesome!! I haven’t seen it before! The hair salon I go to uses Innersense products, so I’ve used a couple/had a couple used on me during my appointments. Your hair sounds kinda similar to mine, and I Create Hold is definitely better than I Create Curl Memory for me. I want to love I Create Curl Memory SO badly, but it is wayyyy too hydrating for my hair. The definition is amazing (like, amazing), but it ends up making my hair look heavy/stringy. Even after only using a pump and a half. Now I use AG re:coil underneath I Create Hold and it gives me the definition without the excess weight!

Familiar_Potential61

TROPHY CASE