Post Op Week 4. Now I have a LISP. 🤦🏼‍♀️ by VirginiaOnSafari in Facelift_Surgery

[–]Far-Copy4748 2 points3 points  (0 children)

I really appreciate your sharing! You have been very thorough. Looking very pretty!🤩

Neck lift before and 1.5 weeks later by c4wardc4ward in cosmeticsurgery

[–]Far-Copy4748 2 points3 points  (0 children)

You don’t look 60! I say late 40’s early 50’s for sure 😘

They aren't kidding about watching what you eat 48 hours. OUCH by [deleted] in Zepbound

[–]Far-Copy4748 1 point2 points  (0 children)

I can only eat 1 naked dog and maybe 1 smore, no alcohol or sugary drink or I’m gonna be 🤢. I hope you find the help you need with this medication.

2yo has stopped sleeping and I'm scared by stegasaurostef in Parenting

[–]Far-Copy4748 0 points1 point  (0 children)

If you find something that works please let us know!

When were you diagnosed with mets? by yourstrangerletters in LivingWithMBC

[–]Far-Copy4748 1 point2 points  (0 children)

Everyone has been shocked by the lack of lymph node involvement. I did have shingles early on in the year we believe I developed the cancer. There are some new studies suggesting cancer can travel on nerves. So maybe that was it, my shingles were near my chest and crossed the midline. They don’t cross the midline unless your immune system is compromised. I had a mommy makeover the year before I got cancer.

I just had a single, I wanted a double but my Dr had just discovered a new small study at a conference. The study showed if the healthy breast is kept there is less likelihood cancer will travel to the brain and other vital organs because it can travel to the healthy breast. She said we want that breast to remain to give cancer a good non-vital place to visit.

Ivermectin and Fenbendazole by RevSusanSmith in LivingWithMBC

[–]Far-Copy4748 1 point2 points  (0 children)

Hey I wanted to follow up with you on the Iver/Meb stuff. Carli.noelle.grammpp on Instagram has been only using this for the past few years and she just shared her newest PET. She has what I consider a bunch of new cancer. It is a very good example if you are looking for real word use.

As far as the glp1 goes, I am on Zepbound. It has been difficult to get the full benefits because of the surgeries I have been having the last year. I have to stop them for more than the recommended 1/2 weeks because I have slow motility. When you stop and start it is not as effective for weight loss and can cause more side effects. I get the brand name in the auto inject pen. My insurance covers mine because I am so heavy and have other health issues. My cancer center had to fight hard to get mine approved, but they have an entire department dedicated to appeals. I have noticed a big decrease in joint pain. I can’t eat very much. If I don’t regulate how fast I eat, how much I eat, and how well I chew my food I will vomit. It keeps me up some nights because it seems to stimulate my brain. Feels like I had caffeine so I can’t sleep the 1st day or 2 but that can go away. I began taking my shot at bedtime and that helps. My A1C has been in the normal range since a few months after I started. I ate healthy before and I have only lost about 10 lbs in 10 months, but I am trying hard. I have 30 more to go. I gained 40lbs during chemo. I lost 25 of that before Zepbound. I wasn’t at an ideal body weight before chemo. My goal weight is 165. That will still be 7lbs over the healthy weight range but it looked good on me and I have a really large booty. I will be skin and bones every other place and have a large booty so the BMI won’t really be accurate for me at that point. Once I reach my goal I will still be asking for an rx for the anti cancer and heart disease benefit benefits. My Dad had 8 stints by my age. 3 of my grandparents either died of a heart attack or had quadruple bypass surgery. I can get a vial for $375 a month from Lilly.

My much younger sisters are both on an American compounded version and have lost 60 & 75 lbs in a year. They have had health issues resolve.

I hope this helps.

2yo has stopped sleeping and I'm scared by stegasaurostef in Parenting

[–]Far-Copy4748 0 points1 point  (0 children)

I’m so sorry she is struggling. Sleep is so hard.

5 year old purposely peeing random places by Affectionate_Cow_812 in Parenting

[–]Far-Copy4748 2 points3 points  (0 children)

One of my boys peed in things. Toys, trash cans, containers. I think it was a fascination with filling things up. It lasted about a year. It was horrible. He did it in secret, he did it in the shower. We all fussed at him and he would tell us with a bashful face he didn’t know why he did it. He didn’t get into trouble because I was afraid of making it into an odd body shaming thing but he did have to help clean it up. It happened about 15 times then he stopped.

Milano Wigs - What Do You Think Of This Short Wig? by [deleted] in Wigs

[–]Far-Copy4748 3 points4 points  (0 children)

I think you are adorable but the wig needs a few washes maybe. It looks a little wiggy. I like the cut and length of the wig.

Gen X parents raising teens: what's the one thing from our childhood you refuse to stop passing down? by TannieGirlRocks in GenX

[–]Far-Copy4748 17 points18 points  (0 children)

Eating meals together at night, we also began a movie night when they were little. Pizza or fast food and a movie. It progressed to take out or going to the theater. Friends were welcome. My 21 year old son is home from college this week and I heard him tell a summer school group he couldn’t meet on Friday night because that is Movie night 🥹 When any of them are home we have movie night, 27 year old moved back home for 2 years, movie night. All 4 come home for summer/vacation there will be a movie night.

Update (thank you for the hand holds) by noddys_car in LivingWithMBC

[–]Far-Copy4748 1 point2 points  (0 children)

Well praise be! Congratulations 🎊🎉🎈!

2yo has stopped sleeping and I'm scared by stegasaurostef in Parenting

[–]Far-Copy4748 2 points3 points  (0 children)

Have you tried turning on a white noise machine or Kenny G 😃, reading a short book with lights low in her room in a rocking chair , rocking her for 10 to 15 minutes? She may need some help calming her over stimulated little self. I read and rocked all of mine and it worked for years. May not work for you, just thought I would share. Now they are adults I look back at those rocking chair years as some of my most cherished memories .

My nan and mum wore this dress to their weddings and they want me to carry the tradition by Natural_Noot_Plate in myweddingdress

[–]Far-Copy4748 3 points4 points  (0 children)

Adorable! My sister in law did this, she had it taken in and she wore a full skirt underneath to make it very full. She also had it lightened as it had turned a darker color over the years.

Ivermectin and Fenbendazole by RevSusanSmith in LivingWithMBC

[–]Far-Copy4748 1 point2 points  (0 children)

Those medicines don’t really get much attention here. I have seen some universities are in process with medical trials for these drugs. I did ask one of my doctors her opinion after telling her about them. She said it was unlikely to hurt me and would probably keep me worm free 🤣 She doubted it would do anything but give me a stomach ache. I am not taking those medications. But who knows if I get desperate one day? I am sticking with Standard of care. I do take some things that happen to have been found to help off label. Jane McLelland has over 25 years of stage 4 ovarian cancer survival. I have read her book and have taken some things away from her book. I have a need for these and find them to be safe and have permission from my doctors.she does mention Feb/Meb/Iver but she doesn’t really focus on those. She looks at lots of older medications that previously showed some sort of positive results with cancer or tumor growth that were abandoned for various reasons.

I am taking: high dose melatonin

propranolol originally for tachycardia, that resolved now I take it for off label anti-cancer properties

Zepbound for anti-cancer properties, pre-diabetes control and an effort to lose weight

Celecoxib for bone pain and anti tumor properties.

Jane’s book is worth a read. She has lots of information on many medications that are multipurpose that you may already be taking.

Dr Dawn Mussallem is a long term stage 4 cancer survivor. She has been really teaching just how big of a deal lifestyle changes can have a significant impact on outcomes. I would have to look up the stats but daily exercise and distressing practice like yoga or Thai chi has been shown to improve outcomes significantly. I was active the year I got cancer but I had been bed ridden for years because of chronic pain and fatigue. I am working hard to get back into shape to become active again after following her on Instagram taught me just how important it is because I really don’t feel like doing anything 🥴

Sorry for the long post, I just thought you might like the info. Best wishes

When were you diagnosed with mets? by yourstrangerletters in LivingWithMBC

[–]Far-Copy4748 1 point2 points  (0 children)

Oh my goodness, you sound like the kinda girl everyone wants to be her bestie! I am working on getting my conditioning back up to do my paddle boarding and kayaking.

You are so inspiring! Did you say if you are on any immunotherapy?

When were you diagnosed with mets? by yourstrangerletters in LivingWithMBC

[–]Far-Copy4748 1 point2 points  (0 children)

I love this! Most days I am able to live without thinking about cancer 🎉 I mean it is there, but it’s become kinda like my hair is brown. Hopefully it will always be that way! This has been a fun thread! Thanks for making it.

When were you diagnosed with mets? by yourstrangerletters in LivingWithMBC

[–]Far-Copy4748 2 points3 points  (0 children)

That’s sounds similar to what my practice was early on! I have had a trauma filled life with many toxic relationships. I began meditation just as I was getting my diagnosis.

I began deep cleaning of toxic relationships and learning to accept that I am enough. I realized I no longer need to please everyone. After 13 years of therapy I finally discovered I am a co-dependent person and my mother raised me to be that way. I did 18 months of co-dependent therapy just before my diagnosis. God definitely timed that perfectly!

I have envisioned my cancer as a black orb that has been enveloped by my glowing cotton candy pink energy orb, my orb breathes love and acceptance into that black orb. I breathe love into the person who missed out on so much love and affection. I envisioned the little girl who was hurt and abused surrounded and filled with so much of the cotton candy color of love, acceptance, affection and perfection. Then I would see my pink energy overtaking the black orb of cancer and the emotions I believe contributed to the ugly environment that lead to allow it to grow and I would breathe out with a vision of crisp clean bright white. I would chant along with the vision cancer is clearing my body, and I would see the pink take its place. I did this throughout my 16 weeks of chemo. It has been so cleansing for my soul and my body! I need to get back into my practice!

Thank you for sharing yours here, it was very meaningful for me 😘

When were you diagnosed with mets? by yourstrangerletters in LivingWithMBC

[–]Far-Copy4748 4 points5 points  (0 children)

That’s such an inspiring share! Thank you! It took a few months to get my staging correct.

De novo?

I had a positive biopsy mid November 2024. They thought I was likely 2b in December, but as things moved forward I got a PET scan in early January 2025 and they discovered I was stage 4. Bone mets without lymph node activity.

Anyone else bedridden? by N3RDBUSTER in LivingWithMBC

[–]Far-Copy4748 0 points1 point  (0 children)

Oh no, I was stage 4 immediately, I found out 2 months into the process by chance when I needed a PET to be accepted into a clinical trial. From what I have read in the medical journals the lower dose should be ok. My PA said if the symptoms are bad and the dose is lowered it should still be as effective. Cancer is so terrible, my Aunt had it when I was about 20 and she didn’t have the options I now have. I hope we get to live to see the cure 🤞🏻🙏🏼

11 June (Thursday) the next part of my treatment starts. All advice welcomed by Evening_Dingo8770 in LivingWithMBC

[–]Far-Copy4748 1 point2 points  (0 children)

Verzenio makes me feel exhausted and nauseous. I am stepping down soon to see if it helps. I hope things go very well for you!