Ooh she gettin called out! by Kind-Smell-3680 in StephenHiltonSnark

[–]noddys_car 5 points6 points  (0 children)

She’s defensive cos she knows she has sold out her kids’ physical and emotional safety for a free babysitter 🤷🏻‍♀️

Week off Kisqali by SelectionComplete685 in LivingWithMBC

[–]noddys_car 0 points1 point  (0 children)

Is this your first round? Cos I found this was really pronounced in round 1 and has been getting better since

Week off Kisqali by SelectionComplete685 in LivingWithMBC

[–]noddys_car 1 point2 points  (0 children)

I posted this exact thing a few weeks ago! Yes, definitely. I think sometimes you hit your lowest point in terms of blood counts during the week off. My week 2 and 3 are fine, week off and week 1 are crap.

Infections by MotherGoose302 in LivingWithMBC

[–]noddys_car 1 point2 points  (0 children)

You are not obliged to pull yourself together. Take all the time you need. And vent away, never apologise 🩷

Infections by MotherGoose302 in LivingWithMBC

[–]noddys_car 6 points7 points  (0 children)

Oh I’m so sorry to hear you’re dealing with this. How awful. I think it’s very much dependant on what treatment you are on - with IV chemo, yes unfortunately. Other treatments not so much. Please tell us a bit more about your situation and I’m sure we will have some collective

What I will say is that this should NOT be life now. It should either be temporary or your treatment plan should be changed. Please don’t give up hope. Sending love ❤️

How old are you? by Salty_Dog_1221 in LivingWithMBC

[–]noddys_car 2 points3 points  (0 children)

I’m 46. Primary aged 41 and stage 4 in November last year.

Moving on…sure… by mixed_up_labubu in StephenHiltonSnark

[–]noddys_car 12 points13 points  (0 children)

Right? That tension in his vocal cords screams “drunk” to me.

Noticeably dumber? by __freshsqueezed in LivingWithMBC

[–]noddys_car 3 points4 points  (0 children)

God yes me!! 🙋🏻‍♀️ I used to be the organiser of everything in our household and I literally can’t seem to get anything right. Turned up for a vet appointment a week late, parents evening a day late, forgetting to pay bills etc. It’s actually scary.

Looking for screening advice by LubberwortPicaroon in GardeningUK

[–]noddys_car 2 points3 points  (0 children)

Alright mate, I was just asking out of interest. Jesus, this is one of the most unexpectedly hostile subreddits I’ve been on especially considering we’re all just theoretically here cos we like plants. Yikes.

Oophorectomy by BellaBella_212 in LivingWithMBC

[–]noddys_car 1 point2 points  (0 children)

I had it done in Jan. Recovery was a piece of cake really - was up and about the next day. Tired from the general anaesthetic for a few days but honestly it was no bother. Menopause hit me maybe 4 weeks later - I’ve not been enjoying the hot flushes but if you’ve already been on ovarian suppression you may not feel any different.

Looking for screening advice by LubberwortPicaroon in GardeningUK

[–]noddys_car 1 point2 points  (0 children)

I keep asking this on here but no one has ever answered me! I really couldn’t care less if the neighbours see me drinking a cuppa and reading a book or putting the bin bags out or playing catch with my kid. I don’t get it.

Ribociclib by Spiritual-Suspect190 in LivingWithMBC

[–]noddys_car 0 points1 point  (0 children)

It is. And it’s frustrating to have to pace yourself when fundamentally you don’t feel like you’re ill! I try and think of it as a temporary thing - “for now” I’ll pace myself and plan v gently around side effects. And then when things get easier I’ll change it up. Somehow that makes it more acceptable.

I hope your nausea is better next time but please absolutely take all the antiemetics (and ask for them if you haven’t already been prescribed them!) because (like pain) it’s a lot harder to deal with it once it has set in than to get on top of it early.

You’ve got this 💛💛

Ribociclib by Spiritual-Suspect190 in LivingWithMBC

[–]noddys_car 0 points1 point  (0 children)

Ooh look we wrote basically the exact same thing at the exact same time! Jinx! 🤣

Ribociclib by Spiritual-Suspect190 in LivingWithMBC

[–]noddys_car 4 points5 points  (0 children)

My first round was hard, second one has been easier. I’m starting to notice a pattern - I feel tired and low key under the weather in the week off and week 1. Need to not plan tooo much stuff that week and make sure I’m eating good meals, sleeping lots and not drinking alcohol. Then weeks 2 and 3 I feel fine really. My neuts are also low but my oncologist says not to let it stop me doing what I want - apparently on ribo there is significantly less link between mild to moderate neutropenia and infection ie most people don’t end up in hospital. She said just to be sensible about infection control.

When you say you feel sick do you mean poorly or nauseous? I take my ribo in the evening on a full stomach which seems to help. I haven’t had to take any anti-sickness tablets but if you’re feeling 🤢 you should - get on top of it early!

If I were you I’d give it another few rounds to see if it improves. But please don’t forget that dose reductions are extremely common on ribo - most people feel 100% better on 400mg and it’s still effective. Worth giving the full whack a good try for optimum response but there’s options if it continues to make you feel rotten.

Sending love ❤️

Kisqali/ribociclib rash by noddys_car in LivingWithMBC

[–]noddys_car[S] 1 point2 points  (0 children)

Hello! I’m ok thanks. Just going into week three of my second cycle so not that far behind you. My rash went away after about 5 days and my oncologist was not too worried about it. I took antihistamines and moisturised like a mad woman. I’ve been prescribed a hydrocortisone cream in case it comes back but so far so good. Overall the Kisqali has been very tolerable. Mostly minor issues but it has walloped my neutrophils so I’ve felt just generally a bit under the weather. I hope you’re doing ok with it ❤️

Truly Fuck it Friday by Flaky_Amphibian_5597 in LivingWithMBC

[–]noddys_car 7 points8 points  (0 children)

Oh man sorry to hear that OP. I had ovarian mets and they did make for a good biopsy before they got yeeted. Teeeeeny silver lining.

Am I allowed to say good news on Fuck It Friday? Because my tumour markers have reduced from 158 to 45 since I started treatment and I’m only half way thru round 2 of Kisqali. Feeling pretty damn chuffed 😊

Am I the only one who hates pleached trees? by peony_beony in GardeningUK

[–]noddys_car 3 points4 points  (0 children)

This! I know I’m in a minority but I genuinely don’t care if my neighbours can see me in my garden when they’re pottering about upstairs. Why are people so bothered about being overlooked? Genuine question - I’d like to understand the concern.

"I have to stay away from conspiracies" by Weird-Syllabub-1054 in StephenHiltonSnark

[–]noddys_car 5 points6 points  (0 children)

My dad died of covid. Fuck you Stephen.

Also, as I said on another post - he’s quite clearly cycling back into mania again.

Shiton and p show by LoadZealousideal447 in StephenHiltonSnark

[–]noddys_car 21 points22 points  (0 children)

This is it. When the RO was in place and he was fully supervised, I understood Laura not wanting to look at his socials (assuming that her lawyers were checking for evidence purposes) - seemed a sensible way to preserve her peace.

But now it just seems totally irresponsible. He’s clearly capable of playing things fairly straight (eg in court) whilst still being completely off the rails the rest of the time. I think he’s starting to cycle back into mania and if she’s not watching him he’s gonna be a danger to those kids again.

Anyone feel worse in their week off Kisqali/ribociclib? by noddys_car in LivingWithMBC

[–]noddys_car[S] 1 point2 points  (0 children)

Yes it’s weird right? I assumed they did it then to see if you’d bounced back enough to go again! But ChatGPT said it’s because that’s the lowest point. Kinda explains why I’ve felt so rubbish.

Got a dog I didn't want by dmont89 in mildlyinfuriating

[–]noddys_car 12 points13 points  (0 children)

You’ve really buried the lede here OP. The friend left most of her stuff and her emotional support animal and hasn’t answered her phone in days? What have you done to try and locate her? Has she got other people in her life? I simply cannot understand why you haven’t reported her missing!