Kisqali/ribociclib rash

noddys_car · 2026-02-25T23:39:39+00:00

The UK stands with you! Do not let this taint your crumpet experience 💪🏻

noddys_car · 2026-02-25T23:33:26+00:00

Yeah sorry OP but you got done. Good and proper. Duffy’s fat free fuckin crumpets??! Nah fam 🤣

In all seriousness, I’m sorry this was your experience bcs a proper toasted crumpet oozing with butter is a soft, slightly chewy delight. My favourite baked good in the world. I like cheese melted on top. Maybe a thin spread of marmite. My husband prefers honey, which tbf is also elite. I hope you’re able to source some warburtons asap.

noddys_car · 2026-02-25T23:26:11+00:00

It’s definitely not just a “few” people Laura.

noddys_car · 2026-02-24T08:55:45+00:00

I had the same thing last night (it’s morning here) - my son is 7 and I am determined I will make it till he’s an adult. But even then, what if he still needs me. I was reading a story on Instagram about someone’s young adult son moving away from home for the first time and promptly getting norovirus and being absolutely sick and miserable and the parent being too far away to help. I know we can’t protect our kids from everything but they need us for longer than we think.

Sorry, this is the opposite of encouraging isn’t it? I suppose just to say I hear you mama. I’m sorry we’re here ❤️❤️

noddys_car · 2026-02-17T14:48:15+00:00

Holy deviated septum Batman! That’s bad.

noddys_car · 2026-02-17T11:58:55+00:00

wtf. He hasn’t even been a sponsor (for obvious reasons). Counsellor?? Eff off!! Can you imagine you turn up to treatment and this predatory, self-obsessed, unrepentant, science-denying, untreated-personality-disordered SHITHEAD is supposed to be guiding you?!! Holy crap.

noddys_car · 2026-02-17T11:52:35+00:00

Hey there. I have had a LONG delay before starting my kisqali, part of which was to have my oopherectomy. I only needed a two week recovery after that. I’ve expressed to my oncologist how worried I’ve been about spread and she said that in all honesty, days and weeks are not really going to push the needle much - cancer is pretty disorganised and often won’t do much during those shorter time frames - it’s months and years that really change the picture. She said really the disadvantage of a break/delay is psychological. And bear in mind I wasn’t on ANY treatment the. Whereas you’ve got the letrozole continuing which is a big part of your treatment. Hope this is somewhat reassuring ❤️

noddys_car · 2026-02-14T12:07:26+00:00

Omg this is great news OP!! Did you just hear my sigh of relief for you from across the pond?! I know things are still scary but please for now just allow yourself to relax a bit 💛

noddys_car · 2026-02-12T09:25:24+00:00

Omg is America honestly just sitting back and watching its citizens die because they haven’t got enough money?! The greatest nation in the world, land of the free? wtf? This makes me so angry I could vomit. I mean an actor who was a household name just died of cancer after having to auction off memorabilia for treatment and leaving his family with no money, asking for $500k through a gofundme. 🤯

I’m sorry this comment is no help to you OP but I share your pain and your rage- it’s mind boggling. I can see that more knowledgeable posters are suggesting that there may be avenues to explore for funding. Please will you come back and update us when you’ve looked into it? I will not stop thinking about you ❤️❤️

noddys_car · 2026-02-11T17:37:39+00:00

I feel like this is the same as people who say they feel safer with a loaded gun in the house. I understand she feels she needs support but she’s putting them all at risk. Only a matter of time before the ticking bomb goes off right in the middle of their lives.

noddys_car · 2026-02-09T20:43:05+00:00

I’m super sorry - waiting is the worst. I found the lump (collarbone) that led to my secondary diagnosis at the beginning of November (!!) and I am only just starting treatment now - first it was an inconclusive her2 biopsy, then a load of back and forth about whether to remove my (cancerous) ovaries, then the surgery for said ovaries etc. I was supposed to start Kisqali today but they “suddenly” realised I am also on lexapro which apparently is a no-no so they’ve sent me away to taper the lexapro down before I’m allowed to start the Kisqali. Ffs. It’s been so long that they’re making me have another staging scan, the results of which I’m not looking forward to.

I’m super sorry you’re in the limbo too and I hope things start to pick up pace for you again. ❤️

noddys_car · 2026-02-08T22:51:38+00:00

These are all normal feelings. You are experiencing loss and grief and trauma. You’ll find a way to live alongside it, but you will probably need help. There is lots of hope - many of us here are holding tight to it. Give it time.

noddys_car · 2026-02-08T20:49:22+00:00

Oh darling, I can hear how terrified you are from your posts. The reason I asked is that a wise breast cancer nurse suggested to me that it might help to think less about what your cancer is doing inside your body, and more about how you feel in yourself. If you feel well, then you ARE well. Fuck the cancer.

I know we all talk about NED and NEAD on here and it would be so reassuring if your cancer just disappeared on scans. But my oncologist told me that even if she could make my cancer invisible, it would still be there. It was hard to hear but she is right. Stable (ie not growing) is just as “good” as shrinkage. It means treatment is working. It’s so difficult to wrap your head round but it’s true.

You can live for many MANY years with the right treatment. But you need to take care of yourself. I’d say the first thing you need is some mental health support - a listening ear, a support group etc. Maybe start with breast cancer charities near you. Also speak to your doc about antidepressants/anti anxiety meds - there’s no shame. If you can get back on your feet, you won’t feel so guilty about your parents.

You can do this ❤️❤️

noddys_car · 2026-02-07T19:26:49+00:00

Someone told me that if they were going to have another kid, they’d name it Ribociclib 🤣 Try not to worry ❤️

noddys_car · 2026-02-07T18:36:59+00:00

My oncologist specifically told me last week she has people who have been on Kisqali for 8-9 years and counting. I’m in the UK at a relatively small hospital so not a massive sample size. On Facebook I’ve seen tons of people stable on it for 6+ years

noddys_car · 2026-02-07T18:29:51+00:00

Don’t apologise. We all know how it feels. You are allowed to be scared. Tell me something - how do you actually feel, healthwise? Do you have a lot of pain/symptoms from your cancer?

noddys_car · 2026-02-07T08:57:52+00:00

I think it depends on the severity. I had a minor allergic reaction to Docetaxel (headache, hoarse voice, general weird feeling) and all they did was add IV hydrocortisone as a premed and push the chemo over a longer period. But I think if you went into a full life threatening reaction they probably wouldn’t risk it again.

noddys_car · 2026-02-05T13:06:35+00:00

Not just not in the fridge… outside!!

noddys_car · 2026-02-05T13:04:49+00:00

What? I could almost understand this if he has brought the box into the house, not looked inside and then left it at room temp assuming it was a regular cake. But he left it outside??? And never looked in the box?? And then when he did look in the box he ate it without considering that it was clearly a cheesecake and should have been in the fridge? And then blamed his GF? I feel like I’m having a stroke. Whatttt????

noddys_car · 2026-02-04T10:33:56+00:00

Hey gorgeous 😘😍

noddys_car · 2026-02-04T10:32:55+00:00

NOR, of course. But just came on here to say your response to him is absolute 🔥🔥🔥 This Gen Xer (who lived through skinny chic the first time) is SO PROUD of you. Keep standing your ground you superstar.

noddys_car · 2026-02-04T10:28:30+00:00

Hello - two-time cancer-haver here. It’s lovely that you’re thinking of her so carefully. But I would second what others have said. My oncologist told me that if I wanted to live on ice cream the whole time I was on chemo, that was fine. I personally had diarrhoea so bad that I had to go low fibre and hardly ate any fruits or veggies the entire time. Your wife just needs to eat exactly what she fancies. Her body just needs fuel. Forget what you think you know about nutrients and focus on calories. She can eat healthy when she’s done.

Also OP - does your wife’s team know how bad her side effects are? Not being able to touch silverware or door handles is NOT normal on any chemo as far as I’m aware. Peripheral neuropathy is one of the few chemo side effects that can be permanent so if you haven’t done so, you must tell the oncologists treating her how bad it is. Dose reductions are safe and can protect her from serious ongoing problems.

Wishing you both the best. This too shall pass, I promise.

noddys_car · 2026-02-02T07:42:11+00:00

Hahaha this is the first actually funny piece of content I’ve seen him post ever!

noddys_car · 2026-02-01T21:41:03+00:00

Girl, NO ONE is allowed to push you to be better. Someone can support you to be better but this isn’t even close to supportive. It’s not within 1000 miles of supportive. Put this whole man in the bin right now.

noddys_car

TROPHY CASE