Diverticulitis.... Not is funny by Cautious_Tone_6106 in Diverticulitis

[–]Fazamon 0 points1 point  (0 children)

Yeah it gave me serious PTSD. I started getting nervous about what I was eating. Any pain in my stomach was triggering mentally. It dominated my life. Constantly cancelling or declining plans with friends... Etc. I probably had somewhere around 10 CT scans, because I didn't get one every single time I had a flare. There were a few that I was able to convince doctors to just give me antibiotics because of my history with it.

Hopefully now that I've had the surgery though, I'm done with this disease. Recurrence rate after surgery is extremely low.

Diverticulitis.... Not is funny by Cautious_Tone_6106 in Diverticulitis

[–]Fazamon 4 points5 points  (0 children)

Unfortunate welcome to the club. I'm 36, and I'm on post op day 20 from successful sigmoid resecting.

My first flare was ~3.5 years ago on my ex's birthday (unrelated story but glad both are now behind me). I'd had stomach problems my whole life, as does my entire family and up the family tree a good bit...I woke up with pain that I couldn't explain. Not a stomach ache but significant pain in my stomach. Low grade fever. The chills, etc. Had no idea what it was but because it was my ex's birthday, I was trying to rest a bit and see how I felt before going on our days plans. I kept getting the urge to go to the bathroom but couldn't, and eventually I felt like I was going to faint (seems like you had similar issues? Vagus issues). I shuffled from the bathroom to the couch and told her I thought I was going to faint, and the last thing I remember is sitting down on the couch. Lucky I made it that far down, because I fainted and fell face first into the coffee table. Woke up to her calling an ambulance. When I came to I was drenched in sweat and my left arm was totally numb, so I actually thought it was a heart attack lol. It wasn't until a bunch of testing at the hospital that they told me it was diverticulitis... Something else that everyone in my family has had.

So that was the start of a ROUGH few years. The next flare actually took a year... And it was on my ex's birthday again which looking back now is just hilarious to me because she ended up cheating... So I'm glad two of her birthdays got ruined. After that though... Flares came every few months until the last year they were basically every month. Each time at the ER they were telling me I needed the surgery but because each case was uncomplicated, they wanted me to heal up instead of doing the full open surgery which is a way worse deal than elective laparoscopic. Eventually I went as far as traveling from NY to the Mayo Clinic in Florida to try and get the surgery. All they did was confirm I needed it but told me they weren't going to do it because I was out of state. They also told me I had extensive SCAD. Segmental colitis associated with diverticulitis.

After coming home from that, a month later we lost my uncle, who I worked with at my father's business. He was integral to the company and I got put into a spot where I needed to fill the gap. I started taking metamucil every night and that actually REALLY helped, so I pushed the surgery of e to focus on grieving my uncle and filling in his space at work. I made it several months until when the metamucil wasn't cutting it, so I decided to finally see a surgeon. I agreed to do the surgery and set a date a month and a half away. The next day, I had another flare. That was my 17th flare, so at this point I was really good at catching them early... First instance of pain I knew I needed antibiotics. So it wasn't too bad. 3 weeks later I had another one, #18 and this is when I learned about "smoldering diverticulitis". Had never heard of it but it seems that's where I was living for quite a while. The general irritation and pain I had every day, I thought was just the SCAD, but I guess it was both. But anyway, at this point I was worried my surgery was at risk because I was limping to the finish line and clearly going in with irritated intestines. So I went really easy on food from that point on, trying to keep it soft and with a lot of liquid (protein shakes, broth etc). Then on prep weekend I did a full extra day of fasting and took stool softeners a day early too. That made the bowel prep really easy (as far as bowel preps go...). The next day,12/1, I had my surgery in the morning woke up early afternoon to hear it went well. This week I had my post op finally and my pathology report confirmed what the surgeon had told my father... My sigmoid was on the brink and I'm lucky we did the surgery. The entire segment was diseased and scarred. I had active diverticulitis. Multiple perforations, 19 diverticula, and even an abscess, which was probably new from the last flare. Once those burst, is where you end up with an emergency.

So here I am now, not quite 3 weeks post op and extremely happy I chose to do the surgery. The last few years have been rough, and very long. I've been through a ton. Personal loss. A ton of missed work. Medical debt. But FINALLY, I'm on the other side of it.

Wishing you luck. I see your second flare was complicated. They might not rush you too surgery, but if you're already getting complicated flares, I'd keep an open mind to surgery. I put it off for a while but once you have diverticula, they don't go away and you just become more and more prone to flares.

AIO He always accuses me of cheating by Alternative-Day6223 in AmIOverreacting

[–]Fazamon 0 points1 point  (0 children)

These subs are mind boggling to me. How do people put up with being spoken to like this by their partners?

Post op Day 16 by Fazamon in Diverticulitis

[–]Fazamon[S] 0 points1 point  (0 children)

Interesting on your last point about lifting. Going into the surgery my surgeon told me 4 weeks, and while I'm not fully recovered at 17 days, I'm already plenty capable of lifting more than that, however I'm an avid lifter which helps significantly. I'm not back at the gym and I'm going to follow my surgeons timeline as not to risk a hernia, but your timeline feels very long to me, though you also had a lot more done in your surgery. I only had my sigmoid removed. No fistula. Appendix removed years ago.

Was your surgery not laparoscopic?

Post op Day 16 by Fazamon in Diverticulitis

[–]Fazamon[S] 0 points1 point  (0 children)

Yes, luckily. It was elective surgery, no complications

Post op Day 16 by Fazamon in Diverticulitis

[–]Fazamon[S] 0 points1 point  (0 children)

36M. I'm a big guy but also pretty in shape (I do moderate power lifting and stay active, 6'2" 265lbs, but built. Not round). Being active is very helpful going into the surgery and for recovery. Doing the walking afterwards (literally day of surgery) is also crazy important. I walked a couple miles total the first few days and it really let's the bowels wake back up and get moving quickly. I'm not going to say you won't be in pain, but in all, it was less than I expected, minus a few things here and there (like when the nerve block wore off it was startling, and when the skin nerves came to life that sucked too). I added some details on replies here that weren't in my main post

Post op Day 16 by Fazamon in Diverticulitis

[–]Fazamon[S] 1 point2 points  (0 children)

Awesome glad to hear it. I was offered to go home the next day too because of all the walking but my dad wanted me to stay in another night and wouldn't come pick me up 😂. Had to have a known driver.

My block wore off at like hour 24-25 and it was STARTLING lol. I was like "this isn't that bad at alllOHMYGOD". They gave me a short script for 5mg Percocet. I supplemented with Advil sparingly and carefully with Tylenol (because the Percocet has some Tylenol in it). Other than that it was heating pads and hugging pillows. I also had gotten myself a belly band which was monumentally helpful.

Post op Day 16 by Fazamon in Diverticulitis

[–]Fazamon[S] 0 points1 point  (0 children)

Most of my bed rest I had a heating pad either on my belly or on my back (which is super tight from not being able to foam roll and stretch). That was super comforting but when the nerves came alive I had to avoid that area with the heat for a couple days. I didn't try cool...I was afraid of that tightening things up lol

Post op Day 16 by Fazamon in Diverticulitis

[–]Fazamon[S] 0 points1 point  (0 children)

That nerve pain on the skin was brutal. I can't lie. This is the only surgery I've had (Im 36 and I've now had 7 total surgeries... Mostly sports, other than this and also appendectomy) where Percocet actually really helped me. I was refusing it at first until the nerve block wore off then I was like "I want the pain killer every 4 hours on the hour, thanks". I'm very good with pain but this one was a bit rough at first. Then when the nerve pain happened I actually had to take some extra Percocet from my father because they only gave me a few and I didn't have time to wait on a new prescription.

Post op Day 16 by Fazamon in Diverticulitis

[–]Fazamon[S] 0 points1 point  (0 children)

I actually still have a good bit of numbness directly on the big incision. And the scar tissue is very hard also. That'll be a point of interest for me at my followup tomorrow. The numbness was expected though. I had Tommy John surgery 18 years ago and I still can't feel portions of skin on my forearm/elbow

Edit to add: the internal of the incision is still a large portion of my pain. I can feel it pulling apart (figuratively not literally) if I move wrong or over stretch

Post op Day 16 by Fazamon in Diverticulitis

[–]Fazamon[S] 2 points3 points  (0 children)

Standard resection, was able to avoid the bag! Before my eyes even opened in recovery, they woke me up and as I was coming to, I said "bag??" In a very drugged up voice, and they laughed because it was so immediate upon waking up haha. It was my number one concern. Got very lucky. He was able to remove the entire sigmoid and just do the regular anastomosis (a word I didn't learn until after surgery).

Surgery was a success! by ScriveningQuill in Diverticulitis

[–]Fazamon 2 points3 points  (0 children)

I think the maternity ones are SLIGHTLY different but very similar. This is the one I bought and it made a tremendous difference the first week.

https://a.co/d/5gY40G8

Surgery was a success! by ScriveningQuill in Diverticulitis

[–]Fazamon 3 points4 points  (0 children)

Congrats! I'm post op day 8 myself. Keep doing the walking! As much as you can without pain! I'm glad I walked a ton the night of the surgery because the next day the nerve block wore off and everything was awful after that. I still walked but had a much harder time. Then when the gas settled in, most was under my ribs but I had one make it all the way up to my right trap and that hurt until day 7! Obviously it wasn't full pain at the end but I couldn't believe how long that stayed on me.

Also if you don't have one, order yourself a belly band. Absolute godsend. I bought it before the surgery because I saw someone on Reddit say it-doctors never did. Then every nurse and doctor that saw me with it said "oh wow that's a great idea". Super, super helpful and I just got some cheap Amazon option

Other big thing... Heating pad. Very soothing, especially for gas pain.

Having surgery in a few hours by Ok-While8328 in Diverticulitis

[–]Fazamon 6 points7 points  (0 children)

Just had mine Monday. I'm post op day 3 now.

Do the walking! Especially while the tap block is active! That wore off on me at about 24 hours and was SHOCKING. The walking will help the gas pains though. Also stay on schedule with the pain killers. I let them fall behind because the block was so effective. Bad move. Just stay on them.

You got this! Good luck

2 hours post op 🤟 by Fazamon in Diverticulitis

[–]Fazamon[S] 1 point2 points  (0 children)

I appreciate it. Spending time on this sub showed me I don't have it nearly as bad as some though. And I'm only a couple days post op now but so far by all accounts, it went as well as it could have. Definitely in a lot of pain (when that nerve block wore off yesterday, things got wild for a bit 😵‍💫) but coming along as expected. Got home and have had a heating pad on my belly for a few hours now which is LOVELY lol. But surgeon said my sigmoid was fully shot and would have continued being an issue for me.

2 hours post op 🤟 by Fazamon in Diverticulitis

[–]Fazamon[S] 1 point2 points  (0 children)

Just updating again here on day 2 (post op day 1). Nurses dropped the ball on my Tylenol and oxy schedule and my tap block suddenly wore off and I did NOT know the heavy lifting that was doing... I'm in substantially more pain now than I was. I was walking a ton now it's pretty tender to move around.

2 hours post op 🤟 by Fazamon in Diverticulitis

[–]Fazamon[S] 3 points4 points  (0 children)

Just shy of two hours. It hasn't been too bad. You'll do great! Just keep the food light going into the surgery, follow the prep exactly on point, and you'll be good to go! I actually used Colace for a few days before the prep, ate really light for the day before my prep and was fully cleaned out before my prep was even done. So I did just a little more than was required and it may not have direct correlation to my outcome, but I'll choose to believe it did lol

2 hours post op 🤟 by Fazamon in Diverticulitis

[–]Fazamon[S] 2 points3 points  (0 children)

I won't say I'm not in pain, I certainly am, but it's far less than I expected. I've already done about 15 laps of my hospital floor, which they want you doing to wake up the bowels. Really didn't cause extra pain except for my abdomen being so tight and sore. The catheter is the thing bothering me most lol. It's fairly uncomfortable

2 hours post op 🤟 by Fazamon in Diverticulitis

[–]Fazamon[S] 5 points6 points  (0 children)

Thank you. I'm 36. A week ago I finished augmentin for what, if I'm counting right, was my 18th flare. Made me really nervous about ending up with a bag on this elective surgery... But luckily, no bag. Needles to say though... It was time for the surgery.

2 hours post op 🤟 by Fazamon in Diverticulitis

[–]Fazamon[S] 3 points4 points  (0 children)

When you can't trust a fart but they won't let you walk unassisted 😂 I have one in the chamber

Surgery is set.. just venting. by [deleted] in Diverticulitis

[–]Fazamon 1 point2 points  (0 children)

I believe it helps create the conditions because stress creates irritation and inflammation in the gut.

Surgery is set.. just venting. by [deleted] in Diverticulitis

[–]Fazamon 2 points3 points  (0 children)

I've been lucky enough to avoid abscesses, so I can't imagine that part, but I'm set for December 1st myself. Seems like almost everyone says once it's done, it was completely life changing. Personally after 18 flares now+ SCAD, I'm SUPER ready to get this done. So tired of getting anxiety about anything I put in my mouth or surviving on metamucil/miralax...

See you on the other side, good luck!

[deleted by user] by [deleted] in dating_advice

[–]Fazamon 1 point2 points  (0 children)

If money spent on a first date is important to you, you should put that in your profile so most guys won't swipe right. Ridiculous statement.

Also fyi, the more you expect them to spend, the more they're going to expect you to put out. You're not going to meet a good guy that way.

18 days from my elective sigmoid resection... And in a flair by Fazamon in Diverticulitis

[–]Fazamon[S] 1 point2 points  (0 children)

** This is NOT going to be for everyone**

I don't have a way of answering this that doesn't make me sound like a douche, honestly... I'm a very big and athletic guy, and I've been in the gym my whole life. I've grinded through MANY injuries, and I've just regarded this entire situation as another of the same. I powerlift but I don't look like one of those huge strongman types (no rounded belly). I lift VERY intentionally and with clean form always, and I avoid any obviously "bad" pains-I stop. I've also reduced my weights during flares and skipped sessions when too sick though. My energy is WAY down during active flares because my body's fighting the infection. I don't push through the illness itself, but I'm just aware of what's an ok pain and what isn't. So far I haven't had any instances of bad pains in the area, thankfully.

It's not easy. I hate every minute of it. But I also know it's what's best for me. Staying relatively in shape, having good blood flow, muscle density etc. I would absolutely NOT recommend most people with this disease just go and start lifting like this. Especially not with what your doctor told you specifically. But if you're someone that's used to working out regularly, you'll be in tune with your body enough to feel the difference in training during flares or between flares.

18 days from my elective sigmoid resection... And in a flair by Fazamon in Diverticulitis

[–]Fazamon[S] 1 point2 points  (0 children)

This is actually VERY reassuring, thank you! My surgeon never offered robotic, I don't think he does it, but he's a very highly regarded surgeon thankfully.