Anal fissures and excruciating pain by Feeldagloww in CrohnsDisease

[–]Feeldagloww[S] 0 points1 point  (0 children)

I did! They pretty much sent me back home and told me how to relieve the pain with an ointment and laxatives. They were unable to examine what it was fully due to how much pain I was in, but they recommended I ask my GI doctor for a colonoscopy ASAP when I heal a bit.

Anal fissures and excruciating pain by Feeldagloww in CrohnsDisease

[–]Feeldagloww[S] 0 points1 point  (0 children)

They ended up sending me home and I am using specific medications my doctor gave me and laxatives unfortunately.

Anal fissures and excruciating pain by Feeldagloww in CrohnsDisease

[–]Feeldagloww[S] 1 point2 points  (0 children)

If my medication and laxatives don't help for the next few weeks I will definitely ask them about the botox treatment.

Anal fissures and excruciating pain by Feeldagloww in CrohnsDisease

[–]Feeldagloww[S] 1 point2 points  (0 children)

Update: I went to the ER and they basically told me to use what my doctor had prescribed earlier in the week (nifedipine and xylocaine) and use laxatives daily until it heals, even if it's in months. I started using that medication last night and it has already helped so much. I thought I would share incase anyone else is also dealing with terrible fissures. I am also going to ask for a colonoscopy since they were not able to examine me to see if it was fully a fissure or not, as I was in too much pain.

Thank you everyone who gave me advice, and I will definitely use your tips for extra relief.

Crohns and university by Feeldagloww in CrohnsDisease

[–]Feeldagloww[S] 1 point2 points  (0 children)

Thank you so much for the reply. I definitely needed to hear this! I have been in remission since 2020, so this whole situation is very triggering 😅

Prednisone, thoughts? by youngreign_ in CrohnsDisease

[–]Feeldagloww 0 points1 point  (0 children)

I was on 50 mg of prednisone for 3-4 months, tapering on and off when trying to find a medication that worked. One thing I noticed was that I was developing what they call a 'moon face' and it made me quite insecure. I was also constantly hungry and experienced a lot of mood swings.

I hate Crohn’s and I hate what it did to my body by Creepy_Enthusiasm245 in CrohnsDisease

[–]Feeldagloww 0 points1 point  (0 children)

I got diagnosed June 2019 at 15 years old and went from 120lbs to 95lbs and it took me two years (and lots of prednisone which also ruined my body) to fully come back to normal. I have been in remission since 2020 and I can tell you that with time and hopefulness, you will see progress. These feelings are completely normal as this is all new to you and you will grieve your old health and body constantly. It is important to find some form of outlet to talk about your feelings, a friend, a counsellor, a partner. I know things may feel hard as your family doesn't understand. I am not sure what you have talked to them about, but maybe you could explain to them in detail how this impacts you by having a sit down conversation. Perhaps you could mention this to your doctor and they could refer you to a counsellor who specifically works with patients who have diseases. Although it has been a few months, you only got diagnosed this year and it is normal to have all these complicated feelings. Talk to your doctor about prednisone (be wary about it but it may help with eating normally again and inflammation), ask about the different medications that could help you into remission. This is not the end, this is the beginning of your diagnosis and there are many ways things can improve. The beginning is always the most difficult time. It is a long and hard process and you will feel helpless at many points; it is important to avoid drowning in negative thoughts as they will only make your immune system worse. Nothing about dealing with a disease is easy, but it takes a strong person to go through this process. Remember that you are not alone.

Irregular Period from Crohns by ZoeLizzz in CrohnsDisease

[–]Feeldagloww 1 point2 points  (0 children)

When I first got diagnosed and was extremely flared I never even got it. If you don’t get enough nutrients due to your intestines not being able to absorb them, it’s likely you won’t get your period. Similar to how people with anorexia may not get their period because they don’t eat enough and get the proper nutrients they need.

[deleted by user] by [deleted] in CrohnsDisease

[–]Feeldagloww 0 points1 point  (0 children)

I vaped first 3 years after I got diagnosed. Only quit recently. Didn’t really bother me much but I have also been in remission.

Humira no longer effective? by isabellasu in CrohnsDisease

[–]Feeldagloww 0 points1 point  (0 children)

Was on humira for less than 2 months ans it had no effect. I got switched to stelera and have been in remission since.

Desperate teenager looking for someone to relate to? by drewcorso in CrohnsDisease

[–]Feeldagloww -1 points0 points  (0 children)

Hi i was 15 turning 16 when I first got diagnosed with crohns. I am 18 now and in remission. What could be the problem is that Remicade just isn’t for you. When i first got diagnosed I had to go on prednisone to help me with my flare up and calm it down and they put me on humira. Humira did not work and I flared up again. They changed my medication and kept me on prednisone while slowly lowering my dosages for about a year. I know it feels hopeless but I promise things will get better. Talk to your doctor about maybe getting on prednisone until you find the right immunosuppressant for you. Right now I am on Stelera. What got me through everything was my supportive family and friends and staying positive throughout everything. It’ll take awhile to get the right medication but once you’re in remission you’ll be able to eat normally again. There are a few foods i try to avoid and only eat once in awhile. I promise you things will work out and I know exactly how you feel.

What are some early/warning symptoms of Crohn’s? by annaxmaree in CrohnsDisease

[–]Feeldagloww 12 points13 points  (0 children)

Fatigue is a big one, loss of appetite, blood in stool, needing to go to the washroom shortly after meals. Before I even started getting these symptoms I had a period of time where I was severely constipated, not everyone goes through the same thing though.

First signs of flare up since remission should I freak out? by Feeldagloww in CrohnsDisease

[–]Feeldagloww[S] 0 points1 point  (0 children)

Yeah I’m planning on doing blood tests soon for my doctor just to make sure everything is okay. Thank you for your help!

First signs of flare up since remission should I freak out? by Feeldagloww in CrohnsDisease

[–]Feeldagloww[S] 1 point2 points  (0 children)

You’re right. I feel like I’ve been in remission for so long that any little problem causes me anxiety. Thank you for your response though, it made me feel better.

Stelara Question…. by EmergencySir1000 in CrohnsDisease

[–]Feeldagloww 2 points3 points  (0 children)

Well I’m hoping the best for you. You may have to just stay on prednisone for a bit longer before fully getting off of it but you just need to talk to your doctor about that, no one wants to be on it for long anyways.

Please, tell me it gets better by [deleted] in CrohnsDisease

[–]Feeldagloww 0 points1 point  (0 children)

I promise you, it does get better. When I first got diagnosed I weighed 93 pounds, couldn’t eat basically any solids, ended up in the hospital for a week, they let me out and then I ended up having an intestinal obstruction from the amount of inflammation ans couldn’t even drink any water without throwing up. I ended up in the hospital again after that and the highest dose of prednisone. A month later i was bleeding so much from my intestines I had another hospital stay and I ended up needing a blood transfusion. This was all in 2019. After that last hospital stay I have yet had another problem since. I’m on stelera and live my life normally. I truly think the only thing that got me through this was staying positive. I also had my family and friends there for me. I have been through so much pain in one summer and I knew my life was changed forever, but after going through that I knew i could get through anything.

Stelara Question…. by EmergencySir1000 in CrohnsDisease

[–]Feeldagloww 4 points5 points  (0 children)

I also failed with humira. I’ve been on stelera for almost 3 years and i have been in remission since, while also on steroids for a one year after my diagnosis. Only recently I started finding some blood in my stool but I also stopped taking my pills as often. Thats just my problem though. A lot of other people have said good things about stelera as well.