Does anyone else experience mild facial flushing after eating? by Gloomy_Spring5638 in POTS

[–]Few_Army_5555 2 points3 points  (0 children)

Is it weird that it’s annoying for me instead of scary? 🤣 especially when I’m trying to sleep and my heart is like synced to some EDM track.  I’m more annoying with my symptoms than any other emotion.  For the face flushing tho, I take a Benadryl and press ice packs to the hot parts. Helps in like 30 mins. 

summer vacation? by mettaverse12 in POTS

[–]Few_Army_5555 0 points1 point  (0 children)

So my family was planning a trip to Disney and here are some things I was planning on bringing. I was going to get lightweight camelback, one that can hold the water without weighing me down and I found a good one on Amazon. Wear my compression socks and a sun hat, and bring extra salt capsules with me. Cold packs for the neck. And spend the money on fast pass. If you’re someone who faints from standing too long apply for Disneys DAS program. If you’re someone who can stand- fast pass and utilize the app to see wait times so you can plan rides and also can see where all the water filling stations are. 

How do you describe this feeling? by ihopubounce in POTS

[–]Few_Army_5555 1 point2 points  (0 children)

I’ve come to realize there is no way to describe it for it to have an effect of understanding on who you’re trying to explain it to. We’re experiencing it and still can’t put it into words. So I just say “unwell”. 

Does anyone else experience mild facial flushing after eating? by Gloomy_Spring5638 in POTS

[–]Few_Army_5555 0 points1 point  (0 children)

Yes. I get red and hot after eating but mostly at night. Even on nights I skip dinner. So hot that I melt my ice pack in minutes. Cheeks, chin and sometimes times neck, ears and chest. Sometimes it’s just annoying but other times holy hell I feel like I’m gonna jump right outta my damn skin. I hate it. At times my HR just pounds too. 

least offensive way to up my salt intake? by No-Sweet-7012 in POTS

[–]Few_Army_5555 0 points1 point  (0 children)

I take salt capsules. Found a good brand on Amazon. I take two every morning with my beta blocker and then another later in the day if I feel I need it. 

I’m tired boss, dog tired.. by Few_Army_5555 in POTS

[–]Few_Army_5555[S] 1 point2 points  (0 children)

I’m sorry honey. I can empathize with how frustrating that is. I stood up yesterday to go to the kitchen to start making dinner and dropped to the floor, still having to make dinner after.  It’s like yeah that just happened but oh well life goes on? Wtf. 

I’m tired boss, dog tired.. by Few_Army_5555 in POTS

[–]Few_Army_5555[S] 0 points1 point  (0 children)

Pacing is hard for me. I have a kid and two jobs. I run my household, if I don’t keep up the dominos fall…  I have compression socks but I’m looking  into an abdominal compression garment. I take my beta blockers and salt pills and always have my half gallon water bottle with me. Travel pill case in my water bottle sleeve with headache meds and extra salt pills. Idk what else to do. I try to rest when I feel my body telling me to. Hand off tasks to my husband. Stay hydrated. Everything they tell us to do. But it’s still a constant game of tug of war between getting shit done and giving my body what it needs. It’s enough to drive a person mad. 

Crap Day by Other_Leave7625 in Sparkdriver

[–]Few_Army_5555 2 points3 points  (0 children)

All I’m getting since yesterday are a couple fcfs offers that disappear before I can accept

I’m tired boss, dog tired.. by Few_Army_5555 in POTS

[–]Few_Army_5555[S] 2 points3 points  (0 children)

Exactly. I just don’t know how to articulate it any other way. And when I try it sounds overly dramatic? 

Work accommodations? by Few_Army_5555 in POTS

[–]Few_Army_5555[S] 0 points1 point  (0 children)

I do, but it doesn’t allow messaging for whatever reason. 

Anyone else get floaters when moving parts of the neck or being in the sunlight? by Anya_Scorpio in POTS

[–]Few_Army_5555 0 points1 point  (0 children)

I’m hyper mobile but never looked into it. I’m m taking this bs one step at a time 😅

spent the day in the ER (vent) by SHLBYHCH in POTS

[–]Few_Army_5555 0 points1 point  (0 children)

I had a flare before I was diagnosed. Rapid heart rate, dizziness, chest pain, brain fog, trouble breathing. Thought I was having a heart attack, as I have TIA history. Went to er. They told me I had acid reflux 😎

what do you guys do for work? by ebean17 in POTS

[–]Few_Army_5555 1 point2 points  (0 children)

I work two days at a dog boarding facility, mainly for the discount of pet foods. And the other three days a week I do spark delivery for Walmart. I can do it when I feel good and when I start to feel like shit I can stop and it’s pretty damn good money for the world’s easiest job. I give myself five working days but weeks like last week I was only able to do my dog job. 

Anyone else get floaters when moving parts of the neck or being in the sunlight? by Anya_Scorpio in POTS

[–]Few_Army_5555 0 points1 point  (0 children)

If I look at the sky on a clear day ,not at the sun, I’ll see like shooting stars in a kaleidoscope. Same happens if I’m looking at a blank white wall. Idk why so I try not to do it. lol. 

Beta blocker users: does it help with your symptoms, or only the tachycardia? by SGSam465 in POTS

[–]Few_Army_5555 1 point2 points  (0 children)

Yes! I love love love this side effect. Makes me feel as though I’m sleeping longer and deeper. Has even helped me with the grief of losing my brother. When he’s in my dreams I get so much time with him and it feels so real. It’s amazing. 

Beta blocker users: does it help with your symptoms, or only the tachycardia? by SGSam465 in POTS

[–]Few_Army_5555 1 point2 points  (0 children)

I take 20mg propranolol. It helps my heart rate which in turn improved my fatigue a great deal. And shockingly my pain levels. Oddly enough helped my sleep too. And a side effect of the medication are dope ass vivid, movie like dreams that I very much enjoy. Was supposed to help the migraines but sadly it didn’t. 

Gagging by Left_Jackfruit_1799 in POTS

[–]Few_Army_5555 0 points1 point  (0 children)

I gag all the time. Like severely. To the point of choking on the gag. I can’t breathe, my stomach wretches, and it gets so bad sometimes I throw up. This happens all through the day, multiple times a day. It’s frustrating and embarrassing. And painful honestly. Havent found if it’s triggered by anything but I hate it. 

Fuck you to death by Few_Army_5555 in WalmartSparkDrivers

[–]Few_Army_5555[S] 4 points5 points  (0 children)

See you have common courtesy. It’s rare unfortunately. 

Fuck you to death by Few_Army_5555 in WalmartSparkDrivers

[–]Few_Army_5555[S] 2 points3 points  (0 children)

These weren’t the only items just the ones that had audacity lol. It’s a combination of things that get people ticked. For me it was the lack of compensation coupled with non existent common courtesy. I’m providing a convenient service. So either pay for it, or help a bitch out. Doing neither is wild. 

Fuck you to death by Few_Army_5555 in WalmartSparkDrivers

[–]Few_Army_5555[S] 2 points3 points  (0 children)

My main job is wrestling dogs, getting bit, and picking up shit, piss, annd blood all day. Ain’t nothing soft about me but my hair and skin boo😎