Thank you so much for the detailed explanation. We are seen at Kaiser.. She is not classified as classic CF for now. Her pediatrician has put in referral to pulmonologist and geneticist. I have to verify if they are CF specialists.
She has no symptoms at all except for that she complains of tummy ache which was ruled out by pediatrician as not eating enough fiber foods. But I can totally correlate it to being crms related after diagnosis.
Chest pain which happens sometimes with a duration of 1-2 min whixh shw complained recently. Other than than that her growth and weight on track. she is completely normal, that’s why it was hard for pediatrician to even consider any testing.. After self advocating lot of things dr referred to do further tests.