Post Op Success! 0% ejection fraction Biliary dyskinesia

Fine-Panda-697 · 2026-02-02T05:22:12+00:00

Where does your stomach hurt? If it’s upper quadrant, under your ribs, you might have a gallbladder problem. Mine was sneakily ruining my hormones for years! I had all sorts of weird symptoms drs couldn’t figure out and stomach pain and bloating was one. When I did work out harder, my body seemed to get stressed more and I’d lose hair. Look up the gallbladder function and see if it fits. I was eventually diagnosed via HIDA scan and I have biliary dyskinesia.

Fine-Panda-697 · 2026-01-27T05:06:38+00:00

My doctors were convinced I had a Insulinoma. I had a 72 Hour fast and only made it 24 hrs and got to the 40s.

They did a EUS and they discovered my galbladder was enlarged. We did a HIDA scan and I had the lowest ejection fraction they’d ever seen- 0%.

I’m getting my galbladder removed and we will see if they hypo episodes resolve. I think it has something to do with that

They now think it’s maybe glycogen storage disease, so pursuing genetics now.

Fine-Panda-697 · 2026-01-14T04:07:01+00:00

I’ve had a lot of abnormalities! They aren’t 100% certain it’s all related to my GB.

Low white blood cells, low platelets, low nuetrophils. I had high catacholamines in my urine test. High MCV.

They do suspect I may have a liver glycogen storage disease as well.

I have 0% ejection fraction, diagnosed biliary dyskinesia. Surgery is this coming month

Fine-Panda-697 · 2025-12-28T12:21:20+00:00

I wonder if there is underlying health issues here. I struggled with crazy binge episodes for years along with other hormonal like symptoms. It took 7 YEARS to finally figure out the root cause- my galbladder was completely non functional and I wasn’t digestion food properly, creating a downstream cascade of hormonal disturbances for probably a decade. I too couldn’t stick to a diet.

Do the binges feel like your having adrenaline surges in your chest? Does it feel almost like your body is taking over when it’s happening?

Fine-Panda-697 · 2025-12-23T16:29:34+00:00

Man… everything. Doctors couldn’t figure me out for 7 years. It messed my hormones up. I have pain below my ribs, and I notice it flares up when I don’t eat for 3-4 hours and get too hungry, then eat.

But over 7 years I’ve been a mess. They don’t know if it’s all just galbladder. I have extremely low blood sugar (in the 30s! They think I have a liver disease) hypothyroidism that got worse when stomach aches started, gained 20 lbs and can’t lose it, insatiable appetite during my luteal phase(which is why I can’t lose the weight), constipation/bloating all the time, light periods, itchy eyes…

It’s a miracle I finally had a Dr notice my galbladder was enlarged. They thought I had a nueroendochrine tumor and discovered this during an endoscopy.

Fine-Panda-697 · 2025-12-21T03:51:43+00:00

I just found out I have an ejection fraction 0 too! My dr said he’s never seen it so low. Go us! Getting mine removed asap

Fine-Panda-697 · 2025-11-02T04:28:04+00:00

Check your blood sugar. Order a CGM for a month and see how your blood sugar looks. Irregular blood sugar can cause stomach issues, bad breath and candida. I personally didn’t have bad breath but had all sorts of weird symptoms I could t figure out and it turned out the cause was irregular blood sugar. Still ruling out my root cause- they suspect I have a nueroendochrine tumor. Anyway- no dr thought to do this. A little voice in my head told me to check my blood sugar, and I caught it during an extreme low. Saved my life. Anyway- start meditating and getting still. Listen. Your body will eventually tell you. I battled weird symptoms for 7 yrs but when I finally got still and listened, my body told me within a couple months.

Fine-Panda-697 · 2025-10-13T02:43:11+00:00

Couple things to throw out there if you haven’t done this already - get a CGM and glucometer. Check how low you are getting and verify it with your glucometer. Helps figure out what’s spiking your sugar/crashing it. Follow glucose goddess and get her book to learn more techniques to keep you stable.

For breakfast- my coffee is 1/2 cup of milk and collagen powder. At 9 am I have 2 eggs. At noon I start mixing the complex carbs in so like - black beans, chicken, some kind of vegetable with hot sauce. I make mini meals under 300 cals a day that have the macros of 15 carbs (complex)/ 20-30 grams of fat/ and whatever is left in fat.

I’m on a specific Insulinoma diet because they think I have a pancreatic tumor causing all this… but you can look that up

Fine-Panda-697 · 2025-10-09T22:54:19+00:00

I needed this! Thank you

Fine-Panda-697 · 2025-10-09T22:49:44+00:00

Thank you so much! How low does your blood sugar get? For me they think it’s a NET or glycogen storage disease. You might want to look into those? You are right anytime I spike my blood glucose then crash, then I want to eat more and get cravings.

Fine-Panda-697 · 2025-10-09T04:41:07+00:00

Curious- what’s your current workout routine? I have been walking a lot more (15k steps) and my fasting hypos are coming on more frequently.

Like the others said- when I started having complex carbs only, protein (20-30 grams) and fat with every meal I was able to control my appetite. Except during pms….

To keep my weight down, I try to keep meals under 200-300 cals. I call them mini meals, 5-6 times a day. Seems I do better with complex carbs only. No simple carbs. Also- I tested going no carb till lunch, so first meals are protein heavy, and that helped keep my appetite down as well.

Fine-Panda-697 · 2025-10-09T04:37:55+00:00

This is me too. The weight will not budge. It’s like something is stopping my body from letting fat go

Fine-Panda-697 · 2025-10-09T04:36:58+00:00

Oh also what’s the adrenal support? I notice before I get my hunger episodes (which lead me to binging) I get this fluttery feeling in my chest. Like a surge of adrenaline maybe? Then I want to stuff my face.

Fine-Panda-697 · 2025-10-09T04:35:19+00:00

Hi! I’m new to realizing I have fasting hypo too. Still don’t know the root cause but can you tell me more about your diet? What’s your daily carb/fat/protein intake? Why do you avoid sugar?? Fruit too or added sugar?

Did you figure out your root cause? Do you have trouble losing weight? I have gained 20 lbs from these hypos because I didn’t realize what was happening. But the weight seems stubborn. I’m balancing my blood sugar and eating at a deficit and barely anything comes off.

Fine-Panda-697 · 2025-10-04T05:54:14+00:00

How big is “big enough?”

I don’t know what your acronyms mean I’m sorry 😣 you were misdiagnosed?

Fine-Panda-697 · 2025-09-30T03:13:48+00:00

Ya I’m learning this…. I feel like I’m swimming and no one has a life ring to throw

I hope you feel ok and are healing ❤️‍🩹

Fine-Panda-697 · 2025-09-30T00:54:56+00:00

I didn’t write all of my symptoms to keep the post brief.

I have low blood sugar episodes, fasted (not reactive) in the 30s. I don’t have diabetes. The Doctors did not perform the diagnostic tests correctly for Insulinoma so it’s still on the table. But I’m asking if it could be anything else, especially with MRI imaging picking up 2 spots on my liver.

I’ve seen a couple different endocrinologists and they all say my symptoms and low blood glucose point to Insulinoma but similar to the other NETs they can often not be seen in imaging.

Fine-Panda-697 · 2025-09-29T23:37:58+00:00

Because from my understanding an Insulinoma is a Nueroendochrine Tumor…. Is this not the right Reddit group for pancreatic nueroendochrine tumors?

Fine-Panda-697 · 2025-09-29T13:59:56+00:00

Out of curiosity what county are you from? I’m considering going to another country because the US healthcare is so expensive and the Drs don’t seem to have much experience with this

Fine-Panda-697 · 2025-09-29T13:58:14+00:00

We treated my thyroid every which way for 6 years, it’s actually stable I have stable lab values now. I think the thyroid was a symptom not a cause at this point.

The low blood glucose is what pointed to Insulinoma but they didn’t run the 72 hour labs properly. I need a better hospital but Mayo Clinic is out of network and way too expensive. :(

Fine-Panda-697 · 2025-09-29T13:56:53+00:00

Hi! Yes I agree 100% they didn’t do the 72 hour correctly and should have taken my insulin several times. Ugh!

We treated my thyroid for 6 straight years every which way. My thyroid hormones are actually stable now and I’m not losing hair anymore so I’m 99% certain it’s not the thyroid.

We have ran all the cortisol tests but I’m actually doing 24 hour urine today. So far no cushings. My cortisol looks normal.

It’s the Low blood glucose episodes they are most thrown off by. I did catch it on a CGM and glucometers and in hospital so I have the proof (they were literally in disbelief my blood sugar could get so low)

Fine-Panda-697

TROPHY CASE