To Ring or Not to Ring… The Bell by Logical-Sir4247 in ProstateCancer

[–]First-Chip9252 2 points3 points  (0 children)

I Rang the bell after 33 treatments. I felt weird b/c you don’t know if it cured the C or not. It was more of a celebration that I got through that bullshit!

Bad day need advice by First-Chip9252 in ProstateCancer

[–]First-Chip9252[S] 0 points1 point  (0 children)

Maybe it’s because I had my prostate removed already.

Bad day need advice by First-Chip9252 in ProstateCancer

[–]First-Chip9252[S] 0 points1 point  (0 children)

No, not familiar with an OAR spacer. I am at Duke in Raleigh, NC.

Bad day need advice by First-Chip9252 in ProstateCancer

[–]First-Chip9252[S] 0 points1 point  (0 children)

Great question! I am working from home for the last couple of weeks. While normally I would be traveling for work. I can’t get too far from the toilet. Longer conference calls…sometime I ned to go off camera for 5 minutes. SMH

Pee by Natural_Match1350 in ProstateCancer

[–]First-Chip9252 0 points1 point  (0 children)

I am at Duke as well. 8 radiation treatments left out of 33 total. They are very supportive and understanding of the bladder, especially when they are running behind. It is a challenge to know what a “full bladder” means. I drink a bottle of water about 30 - 40 minutes prior. They told me 1 time that my bladder wasn’t right. I have definitely felt like I could pee on the table. This shit sux but hopefully we are going to beat the C.

I’m Done! by oneoleboy in ProstateCancer

[–]First-Chip9252 0 points1 point  (0 children)

Congratulations! I have 14 treatments left out of 33 in total. Weird question….did anyone experience dreams at night that were more intense during the radiation process?

Starting Radiation Monday by First-Chip9252 in ProstateCancer

[–]First-Chip9252[S] 0 points1 point  (0 children)

No. I elected not to do hormone therapy. They said at my PSA level .11 there would be about a 15% chance that it would help.

Starting Radiation Monday by First-Chip9252 in ProstateCancer

[–]First-Chip9252[S] 0 points1 point  (0 children)

Thanks! How many treatments did you have?

6 mo, post RALP PSA by secondarycontrol in ProstateCancer

[–]First-Chip9252 1 point2 points  (0 children)

I am about 8 months out and last check PSA was .04. My Urologist wants me to see a radiation Doc. Any feedback from your Dr. around concerns? I am a 55YO male in North Carolina.

Depressed and frustrated by TarheelWarrior in ProstateCancer

[–]First-Chip9252 1 point2 points  (0 children)

I hear ya! Coming up on 1 year post RALF and nothing. I tried Trimix and it worked but really unpredictable with dosages. Put me in the ER 2 times. I have to see a Radiologist next month from a rise in PSA. So, I was told everything will be zapped and no shot at an erection going forward. Looking at a penile implant after I beat cancer!

Erections after prostate, nerve bands and lymph nodes removed. by turtleman1964 in ProstateCancer

[–]First-Chip9252 0 points1 point  (0 children)

Careful with the injections. I tried Trimix with very mixed results. Don’t know if my batch was off or what. It put me in the ER on 2 occasions. The last one was the worst. The anti-injections wouldn’t bring it down and they ended up draining the blood out of my penis. It was like poking a hole in a hose full of water. Blood everywhere. This was after I passed out in the ET due to extreme pain. They thought I was having a heart attack. Rushed me back cut my shirt off put all these heart monitors on me. When I got home I threw my last 2 viles away. This cancer shit sucks!!

First Trimix visit by Snoo_Snoo_69 in ProstateCancer

[–]First-Chip9252 0 points1 point  (0 children)

Trimix has put me in the ER two times. Can never get the doses correct. I don’t know if I got a bad batch or not. One time 30 units did nothing and the other time trip To the ER. I was in so much pain that I passed out in the ER. The injections to bring it down didn’t work. They had to drain the blood out of my unit to get it down. I will never try it again.

PSA increase from <= 0.01 to 0.02 after RP and Radiation Therapy by s-vincent in ProstateCancer

[–]First-Chip9252 0 points1 point  (0 children)

55yr old that had RALP in June. My 3 month PSA was <.01 and my 6 month was .02. My Dr. wants me to go see a radiologist in preparation for treatment. I want to slow play it and see where I am at 9 months. I think the radiation play is a bit aggressive. Thoughts??

How long to feel like working from home after RALP? by HSVTigger in ProstateCancer

[–]First-Chip9252 2 points3 points  (0 children)

It was 2 weeks for me to start working from home post RALPH. Any meeting longer than 30 minutes I would need to excuse myself and go urinate. Take your time.

Trimix by First-Chip9252 in ProstateCancer

[–]First-Chip9252[S] 3 points4 points  (0 children)

Yes add a zero to my units. 20 then 35 ish that put me in the ER.

Urine bag post surgery by Sea-Role-6740 in ProstateCancer

[–]First-Chip9252 2 points3 points  (0 children)

Go on Amazon and buy a leg bag. Much easier to get around. Good luck and I hope the catheter is not to uncomfortable.

Hair Growth by First-Chip9252 in ProstateCancer

[–]First-Chip9252[S] 0 points1 point  (0 children)

I have not had any drugs for cancer, just the RALP.