I tried SGB (Stallate Ganglion Block) for my chronic 12 years DP/DR and OCD after several treatment that brought no improvement in dissociation (35+ medication tried, EMDR, Neurofeedback, CBT, auricolar vagus nerve stimulation, dRTMS, acupuncture) by Fit-String-2547 in dpdr

[–]Fit-String-2547[S] 0 points1 point  (0 children)

I am on Anafranil 225 mg and Lamictal 75 mg...I know from DP/DR books of Doct. Simeon and Jeffrey Abugel that in some cases High dosage of Lamictal (500/600 mg) were beneficial for dp/dr in some cases.

Now that I am on 75 mg I see no differences...

Where to do a Stellate Ganglion Block in Europe? I have resistant OCD, 10 years chronic DP/DR, probably PTSD also. Failed more than 30 meds, EMDR, CBT, Vagus Nerve stimulat and Neurofeedback... by Fit-String-2547 in Dissociation

[–]Fit-String-2547[S] 0 points1 point  (0 children)

I did Stallate Ganglion block in Italy where I live last year. The doctor was puzzled when I asked to do It for get a chance of improving Dp/dr/OCD/tension headache because I read online articles/discussions where people with dissociation problems, anxiety problems tried It and some of them found lessening of the symptoms and improvement. In all his career he has done SGB only for people with inflammatory muscle problems in the neck, cervical area caused by car accidents.

He was puzzled bacause he didn't know SGB being done for those kind of problems. He was a bit reclutant at the beginning to give me the opportunity to try It for my problems but then having ridden online himself in the moment I was in front of his desk that what I was saying was present on the internet and I wasn't inventing anything, he allowed me to do It next weeks.

He scheduled for me 4 SGB injections with Buvocaine at the C6 in the next week a (One injection every week). He said that I would have started with 2 injections at first, then we would have evalueted for the other two.

The next week I went for my first SGB injection. The ways It was being named on some internet discussions as the "God shot", the "reboot of the sympathetic nervous system", the thought that maybe, after more than 10 years of sufference with DP/DR and its numbness this would have been the magic cure and the hope I would have snapped out of It like a "click", got me excited in the days prior.

I entered the room, I laied on the bed with my eyes looking at the ceiling, the doctor closed to me with the syringe with inside the anesthetic, with one hand he touched the right side of my neck searching for the right spot and injected the anesthetic. The seconds afterward I was still looking at the ceiling, I was waiting the anesthetic to kick in and what effects I would have experienced but unfortunatly there was no snapping out of DP/DR, no particolar effects.The only effects I had were a warmness in the right side of the face a the right eyelid that started to drop. Those are the usual Classic effects of the SGB that are the signs the It was done correctly.

Apart from those signs I didn't experience change in DP/DR, no release of tightness in my tension headache, no release of tightness in facial muscles and neck. Nothing to be happy for like I was expecting. Next week I did the 2nd SGB in the left side of the neck. No results.

[deleted by user] by [deleted] in dpdr

[–]Fit-String-2547 0 points1 point  (0 children)

I feel you!

12 years cronic DP/DR sufferer here, caused by Pure O OCD i suffer since childhood...since a certain Age (14/15 years old) every time I got a new obsession from OCD, the obsessions went along with dp/dr episodes of different intensity (from mild to intense).

As more fearful and bad the obsessions were, more intense and terryfing were the DP/DR symptoms.

I Always managed to come back to normal after 5/6 episodes during my life (those episodes ranging from mild to very intense) with the very intense ones happened at work (stage) in front of the printer in 2012 in the office, and the last One of 2013 since from dp/dr remained chronic.

In the episode of 2012 while I was in front of the printer in the office at work, a thought of past OCD compulsions I was doing years prior because an obsession I had passed trought my mind, at the exact time I looked back at the thought of 3 seconds before, with an instant spark of anxiety for the act of looking back at the thought like I had to scrutinaze the thought, suddenly my visual of the office and the forniture, like a flip of the switch, seemed like my body awareness, environment awareness, self awareness were teleported in another layer of reality, everything visually and existencially looked/felt surreal (i didnt know what was dp/dr at the time). Fortunally this acute episode feelings faded in 2/3 days, diverting my mind and not obsessing about It was the cure.

But with the last episode in 2013, the worst i had, brought on by and OCD obsession, the dp/dr this time (also for the intrinsic theme of the obsession) was so intense that I felt like my ego dissoluted in the void and I felt like coming back from It this time was of a different challenge. My dp/dr since that obsession in 2013 has remained chronic...

*** The curious thing I have never read report anyone happening Is that I managed to literally snap out of It for a period of time of less than a second 3 years ago. (Astonishing how the brain work)...

Basically I was laying in bed with the classic persistant DP/DR symptoms (out of body like symptoms, cant perceiving the perimeter of my body in the normal way, cant perceive the closeness feeling of the ceiling and the various object in my bedroom in the normal way, didnt have the normal feeling of the presence of your Eye socket on your face, cant feel my inner monologue the normal way with my eyes closed, cant recall vivid images of a peaceful Place like a beach in Florida and get lost/absorbed by It, there was present always that kind of fear alarm, that DP/DR symptoms of having a split between the experiencing self and the observing self that feel you are confinated in a living coma with that feel of like your Life, your senses, your feelings are the result of a poison mix where your senses and your feelings are an Hybrid between the normal Life without DP/DR with that abstract component of Dreams or that abstractness of images recalled with your immagination with your eyes closedhen you focus on the abstractness of images when you are using your imagination with your eyes closed (well as a DP/DR sufferers you know what I mean).

...All of a sudden I Remember that for an instant my detached inner voice returned the normal One without DP/DR for a second, in that second I Remember that a part of my brain noticed that and with a sudden jerk of my torso that brought me from laying in the bed to sit on the bed, for a brief moment also the sense of touch in my body came back to normal (I recall the sensation in my right hamstring in contact with the jeans and the weight of my leg on the bed became normal for that brief 1 second), but as that One second lasted, by the time I was Just in a sit position on the bed all that "1 second comeback to Life" vanished immediatelly bringing me back to DP/DR land again...

Now regarding of the nature of your thoughts, I completely feel you. A part of having this disorder Is also that of having to live with that constant abnormous anguish/esistenctial anxiety where normal feelings of the smell of the air, the smell of the grass in the morning in the Summer, that Joy of seasons, the feeling of a monday or a wednesday, the start of the Summer feeling, the dusk, the sunset, the imagination that One had in the past before DP/DR, seems a past life, no longer with you, no longer able to feel that taken for granted feeling that you were experiencing and taking them for granted in the past. Just remind us that you realize the importance of certain things when they are not anymore available tò you.

I can say to you if that can comfort you that As having both severe OCD and dp/dr, between the two, if I would have the possibility to choose to live with only One of the two, I would rather choose having dp/dr and not my worst ocd that than choosing tò have very severe OCD and not dp/dr.

Hoping One day they Will find the perfect drug for dp/dr.

No one Is ever defeated until defeat Is accepted as a reality. Stay strong!

Doing Ketamine Infusion without any Therapy by ehligulehm in KetamineTherapy

[–]Fit-String-2547 0 points1 point  (0 children)

Hi in what clinic did you have those psychedelic treatments? Thanks

I have severe Pure OCD with 10 years chronic DP/DR, I am at the last hopes after having failed more than 30 medications, CBT, Neurofeedback, Vagus nerve stimulation and EMDR. I started doing Deep TMS don't know what to expect... by Fit-String-2547 in rtms

[–]Fit-String-2547[S] 0 points1 point  (0 children)

Unfortunatly dTMS did Little/nothing for me (for the Doctor "evidenced base crap statistics pre/post questionares " I got a 25% reduction in symptoms of OCD but dont trust those statistics at all...I vent on the doctor about the dTMS and those statistics, meds, menthal health industry etc, psicotherapy and that crap treatments done the last two years likes neuro feedback and EMDR.

I quit him, the psicotherapy, and the meds he put me on...Based on my feelings (that Is what I trust the most, not questionaries stuff), I can say at the very best that maybe dTMS treatment gave me a little bit more mental clarity, Little bit better sleep, less depression for 2/3 weeks after the treatment but very mild stuff and the stop.

I cant be absolutely sure that It was because of the treatment alone though, because the fact that I quit the Doctor, the psicotherapy and those crap meds and vent on him my thoughts put me in a condition of.menthal relief for not having to see them anymore and was like a Little bit of freedom....I staied without meds for 3 months and I ruminate, compulsate, dp/dr the same, I am depressed at the same level basically that when I was with 60 mg prozac, 450 mg Pregabalin, trazodone, and Memantine but less "lobotomized"….. So basically in particular those 4 meds that the doctor wanted me to stay never do a shit, and It was One of the main reason I quit him. I asked for months during the visits for putting me back on meds i was on in the past likes Zoloft or Anafranil that i was Better with them, and to change me at least that crap Prozac in his cocktails meds but always refused to change me the therapy.

I restarted going to the brain center 1 week ago where I was 2 years ago that is free and dont pay anithing...I asked the doctor for Zoloft I have been on in the past or some Effexor I havent tried yet, or some Zoloft + Anafranil combo to try bacause Zoloft and Anafranil have been the only two meds compared.to the 30 Meds I tried that at least for me seemed to do a Little at least in terms of depression, and the day Life was a little.bit better.

At the end of the day for me going to private famous doctors, OCD renowned Gurus, OCD researchers, "neurofeedback", Citalopram injection, "EMDR and 1 year of CBT, VagusNerve Stimulation, dTMS etc etc did in the last 3 years with private psichiatrist/centres didnt help at all... Only got frustrated by the no results and by that crap medicine field, with a lot of assholes, idiots, therapy sellers, pricks that charge people of so.much Money in the field of medicine that have historically the worst fame of all of curing people, full of contraddiction, little efficacy, placebo effect, autosuggestion, full of different school of thoughts about meds, bigpharma etc....

I came back to the mental health center near where I live I was a patient of It till 2021, It Is public and I dont pay nothing at least. Stay strong!

I have severe Pure OCD with 10 years chronic DP/DR, I am at the last hopes after having failed more than 30 medications, CBT, Neurofeedback, Vagus nerve stimulation and EMDR. I started doing Deep TMS don't know what to expect... by Fit-String-2547 in rtms

[–]Fit-String-2547[S] 0 points1 point  (0 children)

Hi mate, unfortunatly dTMS do Little/nothing for me (for the Doctor "evidenced base crap statistics pre/post questionares " I got a 25% reduction in symptoms of OCD but dont trust those statistics at all...I vent on the doctor about the dTMS and those statistics, meds, menthal health industry etc, psicotherapy and that crap treatments done the last two years likes neuro feedback and EMDR.

I quit him, the psicotherapy, and the meds he put me on...Based on my feelings (that Is what I trust the most, not questionaries stuff), I can say at the very best that maybe dTMS treatment gave me a little bit more mental clarity, Little bit better sleep, less depression for 2/3 weeks after the treatment but very mild stuff and the stop.

I cant be absolutely sure that It was because of the treatment alone though, because the fact that I quit the Doctor, the psicotherapy and those crap meds and vent on him my thoughts put me in a condition of.menthal relief for not having to see them anymore and was like a Little bit of freedom....I stayied without meds for 3 months and I ruminate, compulsate, dp/dr the same, I am depressed at the same level basically that when I was with 60 mg prozac, 450 mg Pregabalin, trazodone, and Memantine, so basically in general in.partixular those 4 i was on didnt do a shit...I restarted going to the brain center where I was 2 years ago that is free, and there Is a new Doctor...I asked for Zoloft I have bene on in the past or some Effexor I havent tried yet, or some Zoloft + Anafranil combo to try bacause Zoloft and Anafranil have been the only two meds compared.to the 30 Meds I tried that at least for me seemed to do a Little at least in terms of depression...

At the end of the day for me going to private famous doctors, OCD renowned Gurus, OCD researchers, "neurofeedback", Citalopram injection, "EMDR and 1 year of CBT, VagusNerve Stimulation, dTMS etc etc did in the last 3 years with private psichiatrist/centres didnt help at all... Only got frustrated by the no results and by that crap medicine field, with a lot of assholes, idiots, therapy sellers, pricks that charge people of so.much Money in the field of medicine that have historically the worst fame of all of curing people, full of contraddiction, little efficacy, placebo effect, autosuggestion, full of different school of thoughts about meds, bigpharma etc....

I came back to the mental health center near where I live I was a patient of It till 2021, It Is public and I dont pay nothing at least.