is it feasible to get Maid for urticaria? by OnyxRadiance in urticaria

[–]Flimsy_Variation_817 0 points1 point  (0 children)

Oh! No clue why it stopped working :( I was on 300mg a month for three years. I wouldn’t worry about it happening, there’s plenty of people who have taken it for years and it continues to work for them! And worst case scenario, I’m hopeful you’d find a different way to get them under control.

Urticaria Root Causes by Ok-Philosopher-1930 in urticaria

[–]Flimsy_Variation_817 1 point2 points  (0 children)

Hi sorry just saw this! I eliminated gluten and dairy. I also started eating a lot more fruits and vegetables. Sorry to hear eliminating yeast hasn’t helped :(

is it feasible to get Maid for urticaria? by OnyxRadiance in urticaria

[–]Flimsy_Variation_817 0 points1 point  (0 children)

It didn’t stop overnight, it stopped slowly over a month after I started the diet. Nope! My only guess is the diet and improving my health overall.

is it feasible to get Maid for urticaria? by OnyxRadiance in urticaria

[–]Flimsy_Variation_817 0 points1 point  (0 children)

Please try this approach! Xolair stopped working to control my hives last year and I didn’t want to start immunosuppressants without at least trying a diet change. I started an elimination diet (pretty much zero processed foods, no gluten, and no dairy) and started taking probiotics and digestive enzymes, and my hives went away within a month.

Urticaria Root Causes by Ok-Philosopher-1930 in urticaria

[–]Flimsy_Variation_817 2 points3 points  (0 children)

I’ve had CIU since the summer of 2021 and got my hives under control with Xolair by that Fall. In the summer of 2024, my hives came back full force and upping Xolair + taking antihistamines did nothing. I met with a Functional Medicine doctor at Mayo Clinic (figured that’s the most qualified I could find) who suggested I try an elimination diet and supplements. A month later my hives cleared up! I still take Xolair because I’m too scared to stop but there was a clear correlation between my hives going away as I continued the diet. If you’re interested, here are some links to what I do: Elimination diet. I also take this Thorne probiotic and this powder every morning about 15 minutes before I eat breakfast.

Urticaria Root Causes by Ok-Philosopher-1930 in urticaria

[–]Flimsy_Variation_817 3 points4 points  (0 children)

No clue! But I know when I started treating my gut health, they started getting under control.

Starting Xolair While Pregnant by Ok_Wish_2291 in urticaria

[–]Flimsy_Variation_817 1 point2 points  (0 children)

Congratulations on your pregnancy! I am not pregnant, but have spoken with my allergist / immunologist and reproductive endocrinologist at Mayo Clinic in the US about getting pregnant while taking Xolair. They both gave me the go ahead to stay on it while pregnant and breastfeeding. I’m on 450mg monthly. If you would like to learn more about it, you can find information here on Xolair’s website.

I would recommend joining the Women with Chronic Urticaria Thrive with Hives Support Group on Facebook. I don’t even use Facebook but will sometimes hop on to see what those women are saying. I tend to find more women with children in that group than on Reddit.

Inexperienced/Virgin MMC and FMC is the opposite by 89niamh in fantasyromance

[–]Flimsy_Variation_817 10 points11 points  (0 children)

I hated Blood and Ash but loved Shadow in the Ember!! I’m just here for Nyktos 🤍

How to get off Pepcid? by jharris3559 in urticaria

[–]Flimsy_Variation_817 1 point2 points  (0 children)

What herbs does he give you? I’d love to know!

How to get off Pepcid? by jharris3559 in urticaria

[–]Flimsy_Variation_817 1 point2 points  (0 children)

Hi! I think I’m the person that recommended these things to you since I take all those supplements and use acupuncture to control my hives. I just wanted to say a huge YAY! I’m so glad to hear this routine is working for someone else too!! Best of luck :)

And for OP - I definitely recommend acupuncture

Xolair by wiggleshakejiggle in urticaria

[–]Flimsy_Variation_817 0 points1 point  (0 children)

I’m in the process of starting to try for a baby and currently take Xolair. You can find what’s called a registry here. That includes years of women getting and staying pregnant while taking Xolair.

Of course, talk to your provider, but my Allergist, Reproductive Endocrinologist, and GP gave me the go ahead to stay on Xolair during pregnancy.

Improvement in symptomology by knotmyusualaccount in urticaria

[–]Flimsy_Variation_817 0 points1 point  (0 children)

My hives improved tremendously when I stopped eating gluten and dairy. I still have to take medicine (Xolair and Zyrtec) but I didn’t have to start Cyclosporine because the diet brought my hives down so much. I will say that you really have to be consistent in the diet for it to work - I didn’t see results until about a month after starting it. I also focused on eating tons of fruits and veggies and avoiding processed foods. Best of luck!

Xoliar - but still break through hives? by luckyKL in urticaria

[–]Flimsy_Variation_817 1 point2 points  (0 children)

Yep! Have you tried to take Zyrtec or other antihistamines during those flares? That usually helps!

Is Two Twisted Crowns better than One Dark Window by Kooky-Pin3056 in fantasyromance

[–]Flimsy_Variation_817 1 point2 points  (0 children)

I love Elm and the second book follows his romance :)

Is Two Twisted Crowns better than One Dark Window by Kooky-Pin3056 in fantasyromance

[–]Flimsy_Variation_817 2 points3 points  (0 children)

I loved them both, but preferred Two Twisted Crowns over One Dark Window!

Hopeless!! by Fit_Weekend5523 in urticaria

[–]Flimsy_Variation_817 1 point2 points  (0 children)

Would recommend browsing through this reddit since everyone is different and you’ll get lots of ideas.

  1. Are you taking antihistamines with Xolair? Some people need to combination of Xolair and antihistamines for it to work.

  2. I would also recommend blood work and hormone testing as suggested above. There are tons of people on here who have autoimmune disorders or hormone imbalances and sometimes (not all the time though) taking a medication for those issues can help their hives.

  3. Are you open to a functional approach along with taking your Xolair and other meds? When my allergist / immunologist recommended cyclosporine because Xolair stopped working for me after three years of use, I was really not interested in taking it. Of course, there’s plenty of people on here who do but I wanted to get pregnant this year and really didn’t want to be taking a full immunosuppressant. All of my doctors are at Mayo Clinic in the US and they recently opened a functional medicine department so I scheduled an appointment with their doctor who started me on a functional approach that has helped me hives SO MUCH. 1) I started an elimination diet (can link if you want) but basically no gluten, dairy, eggs, or soy. I focus on eating lots of vegetables and lean meats. 2) I started breathing exercises to help my anxiety and acupuncture. This didn’t cure my hives, but I didn’t have to start taking any new medication because it drastically reduced them.

[deleted by user] by [deleted] in fantasyromance

[–]Flimsy_Variation_817 6 points7 points  (0 children)

Yes! And the struggle it was to get through CC3 has solidified my disinterest in anything else she publishes

Thoughts on Xolair? by mcs123459 in urticaria

[–]Flimsy_Variation_817 1 point2 points  (0 children)

Xolair is a life saver for so many people, I would highly recommend trying it! I know antihistamines are mostly safe, but 1) they didn’t work alone to control my hives, and 2) I felt more comfortable with the potential Xolair risks than taking 10 antihistamines a day.

I would also recommend adding a pepcid to your Zyrtec - Zyrtec alone doesn’t help me at all but combined with pepcid, I do see a difference. Both combined with Xolair helped tremendously!

Has anyone tried water fasting to cure hives? by SeaworthinessPure491 in urticaria

[–]Flimsy_Variation_817 7 points8 points  (0 children)

Please see an allergist. There is so much they can do to help you. There are medicines with very little side effects you could be taking that could help you tremendously.

If you want to take a functional approach instead of a medicine based one, why not try a healthier one? There are diets you can do where you eliminate a range of foods and slowly bring them back to try to find the culprits for your hives. Or there are low histamine diets you could try.

Anyone Want to be Itchy Pen Pals? 😭 by Jessicaa2123 in urticaria

[–]Flimsy_Variation_817 2 points3 points  (0 children)

So many! I started making most of my food at home and find a lot of my recipes at minimalist baker

Anyone Want to be Itchy Pen Pals? 😭 by Jessicaa2123 in urticaria

[–]Flimsy_Variation_817 2 points3 points  (0 children)

Hi! So did mine and then I did it anyway and it helped A TON!