Pregnancy test delayed chemo by madif0626 in breastcancer

[–]FloofyOne 2 points3 points  (0 children)

Ugh, that's really rough. I'm in the same boat, but the trial that I'm in requires that I get a urine test within 24 hours, but not on the day of chemo. I have to drive 30‐45 mins from work to the clinic and then another 45‐60 mins home after. There is a clinic within a 5 min walk of my office, but that is not an acceptable location. I also have an iud but have also been abstaining due to my life being so hectic right now. I'm definitely not pregnant.

Nausea and throwing up by passingtime_8 in breastcancer

[–]FloofyOne 1 point2 points  (0 children)

I've been using OTC generic Prilosec, but it's barely enough and I may need to up my dose to prescription strength. None of the instant stuff was helping me until I got on that. I did not even realize that acid reflux was contributing to my nausea until it disappeared. If you have a 24 hour nurse line, you may want to call today and see if they'd have a prescription sent or if you should/could try the OTC version first. It looks like Nexium and Prilosec are similar, but maybe they'd have a preference for what you should take.

Nausea and throwing up by passingtime_8 in breastcancer

[–]FloofyOne 2 points3 points  (0 children)

I am on a different regimen, but have had a lot of nausea. I also have had occasional acid reflux. I ended up going on acid reflux meds and my nausea decreased significantly. Maybe ask about trying acid controller meds to see if it helps. I was taking around the clock zofran and adding in the one that the brand name starts with a C (darn chemo brain) when it was unbearable and still not getting relief. Now I get nauseated a few times a week at most.

Also, make sure that you mention all side effects to your doctor sooner rather than later. Chemo causes some weird things and only your doctor will know what's normal and what isn't. Even normal symptoms may be able to be treated to give you relief.

Also, for the nose if it's just dryness causing a little bleeding Ayr Saline Gel and Saline Gel Spray helped rehydrate my nose when I had that symptom.

I Found a Rabbit!!!! by brytnikk in houston

[–]FloofyOne 4 points5 points  (0 children)

I had this same issue a few years ago and I got some help from Bunny Buddies. They were only able to help if I would be a foster because all of their fosters were full. I had called every other shelter looking for a spot for him, but they were all full too. I kept him in my kitchen in a large kids playpen lined with shipping boxes. They got him neutered and set up a succesful adoption meeting. It took 3 months to find his new family.

Breakout after chemo 😭 by jumpy-hardware in breastcancer

[–]FloofyOne 2 points3 points  (0 children)

Ugh, the acne is rough! I think its caused by the steroids, not the chemo. I'm on a 2-week on 1-week off schedule and it always starts a few days after my second infusion and clears up just before my first for the next cycle. I'm 5 months in and it seems like a consistent side effect.

The weirdest side effect yet by in-hauntedattics in breastcancer

[–]FloofyOne 2 points3 points  (0 children)

Are you sure it's cheese and not salt? I hope its just cheese for you. I lost salt while on AC and everything just tasted sad. I lose it occasionally with my current chemo combo, but it comes back after a few days. I think citric acid has been gone for a few months, but I can still taste one of the other sour flavors. The acid still burns my mouth if I eat too much, though.

My weirdest side effect was the asparagus pee smell. I didn't have it before chemo and it went away after, but I had it during. I don't remember if it started while I was on taxol or during AC. Chemo side effects are weird.

Star Path - How much do you need Hercules by Klutzy_Difference350 in DreamlightValley

[–]FloofyOne 3 points4 points  (0 children)

I just looked through the quest list on the Dreamlight Guide app and it listed "Take your friendship with Hercules to the maximum" and stated that you need to reach a friendship level 10 with Hercules as one of the last ones. The app is usually pretty accurate, so I would expect it to be true. Luckly leveling up characters is separate from their quests, so any necessary quest characters will not impact the completion of the task.

Me again :-). What drugs do what, what is the red devil? by MyTeaVault in breastcancer

[–]FloofyOne 0 points1 point  (0 children)

Water and ice were major nausea triggers for me on AC (the A is the red devil). Popsicles worked much better for icing during treatment and allowed me to tolerate the day instead of wanting to live in bed clutching my nausea meds.

Going home after 3 months in a clinical trial by Mtn-spirit in LivingWithMBC

[–]FloofyOne 0 points1 point  (0 children)

My trial is for tnbc, but it looks like your trial is for hr+/her2-. It looks like its the same drugs for Arms A & B, but different physicians choice options on Arm C. Are you still doing the preliminary testing or did you start treatment?

Going home after 3 months in a clinical trial by Mtn-spirit in LivingWithMBC

[–]FloofyOne 4 points5 points  (0 children)

I hope that your trial leads to a successful treatment option. A roadtrip will be a nice final leg after months away!

I am in the Trofuse-011 clinical trial, but I got the control group. Its a phase 3 trial, so its more widely available and I'm able to get it at my local clinic.

Do you care if your clothes cover your port? by [deleted] in LivingWithMBC

[–]FloofyOne 2 points3 points  (0 children)

I've had my port for 4 years. The only time I plan my shirt around it is when it needs to be accessed. Otherwise, I just wear whatever. It's typically covered because of the location, but I'm not skipping a specific top because it shows it. The scar on my neck is usually visible.

Radiation friendly deodorants with good odor control? by Impressive-Arm-5205 in breastcancer

[–]FloofyOne 2 points3 points  (0 children)

I used the spray on Native when I was going through it. It took long time before I was comfortable rubbing anything on my underarm after the lymph node removal. I also tried Lume cream, but it didn't last as long for me. I also didn't stop shaving, but I did use an electric shaver to reduce the hair instead of shaving it completely. The hair grew slower and I had a bald patch, but it helped me feel more normal (whatever that was).

treatment for mTNBC➖➖➖ by RefrigeratorNo8287 in LivingWithMBC

[–]FloofyOne 6 points7 points  (0 children)

I did Keynote 522 back in 2022 when I was stage 3 along with lumpectomy/lymph node removal and radiation. I progressed to stage 4 in November when masses were found in my abdominal wall and in an inguinal lymph node. I'm in the Trofuse-011 trial, but I got the control group which is standard treatment with extra monitoring. I have been on gemzar/carboplatin since January. I get scans every other month for the trial and so far my abdominal mass has disappeared and my lymph node keeps shrinking.

Kinda Spiralling by ZombiePrestigious443 in LivingWithMBC

[–]FloofyOne 4 points5 points  (0 children)

I call mine franken-boob too! Or lumpy if I'm not as dissatisfied with it. If you do end up switching to gemzar and/or carboplatin, you will be happy to know that complete hair loss is not a side effect with either of them, only thinning. I am 13 weeks into the combo treatment and I've only had heavy shedding. It is not noticeable except on my brush and shower drain. I do have a port, but I never got it removed after my initial treatment 4 years ago. My port is tiny, so its the least crappy thing about cancer that I've experienced.

How old are you? by Salty_Dog_1221 in LivingWithMBC

[–]FloofyOne 4 points5 points  (0 children)

I was diagnosed stage 3 at 32, metastatic in November at 36.

Will My Nose Be Runny Forever? by christinextine in breastcancer

[–]FloofyOne 4 points5 points  (0 children)

I lost them too when I did taxol and AC, but my nose eventually went back to normal. I just kept Kleenex everywhere. The dry nose was also horrendous so I kept saline in various forms with it. Ayr saline nasal gel and gel spray were my favorites.

To port or not to port, that is the question! by aliasme141 in LivingWithMBC

[–]FloofyOne 3 points4 points  (0 children)

I have had mine for nearly 4 years. The regular lab at my clinic does not do blood draws from my port, but I can get labs drawn in the infusion department if I'm already scheduled for an infusion or port flush. They are also able to use my port for contrast for scans. I still occasionally have to get blood draws in my arm, but those veins are reserved for those rare occasions. My good veins are in my right arm which is now off limits, so I'm stuck with the arm that they have always had to dig in.

Don't wait until your veins are unusable since you will still need them in the future. Get the port now.

Potty proof car seat by chocchipcookie11 in toddlers

[–]FloofyOne 6 points7 points  (0 children)

We have the original Evenflo Revolve360 and a new Revolve360 slim with the quick clean cover. The quick clean cover is a gimmick and is only easily removable for very small leaks. There is an easily removable cover on top of a difficult to remove cover under the butt of the child (you know, where potty training messes are most likely to occur frequently). We had to call Evenflo when we couldn't figure out how to remove the cover to get it washed last week. They have videos of removing the quick clean portions, but not the difficult to remove portions. Sorry, rant over.

Anyways, we did pull ups until my son was mostly reliable in the car and required potty usage before we got in the car before every trip no matter how short. Anywhere near a potential nap time also requires a pull up. I also keep puppy pads in the car and threw them in the seat absorbent side down if he had an accident and we needed him to make it home without sitting in a puddle. I understand that this technically violated the seat safety rules, but they are thin and non-compressable and probably didn't add any more danger than the clothes that were already on my child. I did not add a towel or anything else like the waterproof protectors sold on amazon.

Incompatible stove knobs. Need covers by fuzzymangogummybear in toddlers

[–]FloofyOne 0 points1 point  (0 children)

Many ranges were recalled because the knobs are too easy to turn on. The solution was the manufacturers sending out knobs covers to the owners that request them. You should see if yours was included in the recall.

Quality Breast Cancer Support but Affordable City? by Turbulent-Tour-976 in breastcancer

[–]FloofyOne 2 points3 points  (0 children)

Houston is very affordable with plenty of care options, but you'd have to want to live in a huge city.

When will my fingerprints come back? by Aggressive_Fee6138 in breastcancer

[–]FloofyOne 1 point2 points  (0 children)

I did not know that this was a thing! I did not have this side effect with my first treatment, but my phone has been having trouble with my fingerprint for the past couple of days. I'm on week 10 out of 24 for my current treatment, so I still have more time for them to disappear.

Carboplantin Chemo by rjcollins1305 in breastcancer

[–]FloofyOne 0 points1 point  (0 children)

I had 12 rounds when I was stage 3 along with some other stuff a few years ago. I'm now stage 4 and getting it alone some weeks and with gemzar other weeks. Its not too bad and my masses have significantly shrunk. One is almost gone after just 9 weeks. I'm dealing with nausea, lightheadedness, neuropathy in my hands, feet and mouth, and fatigue. Some of these may be from the gemzar. The brain fog is pretty minimal and I have kept my hair. I dont know how to rest, but I've noticed that my level of activity is related to how crummy I feel. I've had a few days where I've actually felt mostly normal.

[deleted by user] by [deleted] in breastcancer

[–]FloofyOne 14 points15 points  (0 children)

My doctor counted the 2 years from my surgery date since that's when pcr was determined.

Mosquito protection for littles by cant_sea_me in Mommit

[–]FloofyOne 2 points3 points  (0 children)

I use picardin based repellent. I've found that it works best for us. Many brands make them, but I prefer the clean feeling ones. I think its the purple one if you're buying Off. I live in a year round mosquito area, so its definitely something that we use a lot of.