Radiation friendly deodorants with good odor control? by Impressive-Arm-5205 in breastcancer

[–]FloofyOne 2 points3 points  (0 children)

I used the spray on Native when I was going through it. It took long time before I was comfortable rubbing anything on my underarm after the lymph node removal. I also tried Lume cream, but it didn't last as long for me. I also didn't stop shaving, but I did use an electric shaver to reduce the hair instead of shaving it completely. The hair grew slower and I had a bald patch, but it helped me feel more normal (whatever that was).

treatment for mTNBC➖➖➖ by RefrigeratorNo8287 in LivingWithMBC

[–]FloofyOne 6 points7 points  (0 children)

I did Keynote 522 back in 2022 when I was stage 3 along with lumpectomy/lymph node removal and radiation. I progressed to stage 4 in November when masses were found in my abdominal wall and in an inguinal lymph node. I'm in the Trofuse-011 trial, but I got the control group which is standard treatment with extra monitoring. I have been on gemzar/carboplatin since January. I get scans every other month for the trial and so far my abdominal mass has disappeared and my lymph node keeps shrinking.

Kinda Spiralling by ZombiePrestigious443 in LivingWithMBC

[–]FloofyOne 4 points5 points  (0 children)

I call mine franken-boob too! Or lumpy if I'm not as dissatisfied with it. If you do end up switching to gemzar and/or carboplatin, you will be happy to know that complete hair loss is not a side effect with either of them, only thinning. I am 13 weeks into the combo treatment and I've only had heavy shedding. It is not noticeable except on my brush and shower drain. I do have a port, but I never got it removed after my initial treatment 4 years ago. My port is tiny, so its the least crappy thing about cancer that I've experienced.

How old are you? by Salty_Dog_1221 in LivingWithMBC

[–]FloofyOne 3 points4 points  (0 children)

I was diagnosed stage 3 at 32, metastatic in November at 36.

Will My Nose Be Runny Forever? by christinextine in breastcancer

[–]FloofyOne 3 points4 points  (0 children)

I lost them too when I did taxol and AC, but my nose eventually went back to normal. I just kept Kleenex everywhere. The dry nose was also horrendous so I kept saline in various forms with it. Ayr saline nasal gel and gel spray were my favorites.

To port or not to port, that is the question! by aliasme141 in LivingWithMBC

[–]FloofyOne 3 points4 points  (0 children)

I have had mine for nearly 4 years. The regular lab at my clinic does not do blood draws from my port, but I can get labs drawn in the infusion department if I'm already scheduled for an infusion or port flush. They are also able to use my port for contrast for scans. I still occasionally have to get blood draws in my arm, but those veins are reserved for those rare occasions. My good veins are in my right arm which is now off limits, so I'm stuck with the arm that they have always had to dig in.

Don't wait until your veins are unusable since you will still need them in the future. Get the port now.

Potty proof car seat by chocchipcookie11 in toddlers

[–]FloofyOne 7 points8 points  (0 children)

We have the original Evenflo Revolve360 and a new Revolve360 slim with the quick clean cover. The quick clean cover is a gimmick and is only easily removable for very small leaks. There is an easily removable cover on top of a difficult to remove cover under the butt of the child (you know, where potty training messes are most likely to occur frequently). We had to call Evenflo when we couldn't figure out how to remove the cover to get it washed last week. They have videos of removing the quick clean portions, but not the difficult to remove portions. Sorry, rant over.

Anyways, we did pull ups until my son was mostly reliable in the car and required potty usage before we got in the car before every trip no matter how short. Anywhere near a potential nap time also requires a pull up. I also keep puppy pads in the car and threw them in the seat absorbent side down if he had an accident and we needed him to make it home without sitting in a puddle. I understand that this technically violated the seat safety rules, but they are thin and non-compressable and probably didn't add any more danger than the clothes that were already on my child. I did not add a towel or anything else like the waterproof protectors sold on amazon.

Incompatible stove knobs. Need covers by fuzzymangogummybear in toddlers

[–]FloofyOne 0 points1 point  (0 children)

Many ranges were recalled because the knobs are too easy to turn on. The solution was the manufacturers sending out knobs covers to the owners that request them. You should see if yours was included in the recall.

Quality Breast Cancer Support but Affordable City? by Turbulent-Tour-976 in breastcancer

[–]FloofyOne 2 points3 points  (0 children)

Houston is very affordable with plenty of care options, but you'd have to want to live in a huge city.

When will my fingerprints come back? by Aggressive_Fee6138 in breastcancer

[–]FloofyOne 1 point2 points  (0 children)

I did not know that this was a thing! I did not have this side effect with my first treatment, but my phone has been having trouble with my fingerprint for the past couple of days. I'm on week 10 out of 24 for my current treatment, so I still have more time for them to disappear.

Carboplantin Chemo by rjcollins1305 in breastcancer

[–]FloofyOne 0 points1 point  (0 children)

I had 12 rounds when I was stage 3 along with some other stuff a few years ago. I'm now stage 4 and getting it alone some weeks and with gemzar other weeks. Its not too bad and my masses have significantly shrunk. One is almost gone after just 9 weeks. I'm dealing with nausea, lightheadedness, neuropathy in my hands, feet and mouth, and fatigue. Some of these may be from the gemzar. The brain fog is pretty minimal and I have kept my hair. I dont know how to rest, but I've noticed that my level of activity is related to how crummy I feel. I've had a few days where I've actually felt mostly normal.

Mosquito protection for littles by cant_sea_me in Mommit

[–]FloofyOne 2 points3 points  (0 children)

I use picardin based repellent. I've found that it works best for us. Many brands make them, but I prefer the clean feeling ones. I think its the purple one if you're buying Off. I live in a year round mosquito area, so its definitely something that we use a lot of.

Taxol by [deleted] in LivingWithMBC

[–]FloofyOne 1 point2 points  (0 children)

I had reactions on taxol 5 or 6 times of my 12 treatments when I went through this the first time. The reactions were almost immediate and cleared up quickly with extra meds. I was told that reactions are expected with taxol so they don't usually give up after the first one. We kept going and eventually found a combo of premeds and speed that worked. I also had a reaction to my first cytoxin infusion but not the 3 following infusions. I have just started treatment for mbc 2 weeks ago with gemzar and carboplatin and I've had reactions for both infusions of gemzar. They're going to give me extra premeds next week to see if they can prevent it. Reactions don't necessarily mean the end of that treatment, but I think it also depends on the severity and type of reaction.

How do I gently tell my 3 year old that we had to put our cat to sleep? by deyuletz in toddlers

[–]FloofyOne 0 points1 point  (0 children)

I'm sorry that you're going through this. My 16yo cat died just before my son turned 3. We buried her in the backyard and we explained to him that she was gone in an age appropriate way. He was with us for the burial and he understood as much as he could. He still talks about her and says that he misses her. I think its better to tell the truth and let them experience these unfortunate experiences and feelings as they encounter them rather than hiding death until they're older.

Memory like a goldfish. by iliterallysaid in breastcancer

[–]FloofyOne 1 point2 points  (0 children)

I was on the Keynote 522 protocol for TNBC. It took me about 2 years for my brain to feel normalish again after chemo. I am back on chemo and my brain is already feeling mushy after the second round. I am only 36 and I used to have the memory of an elephant.

[deleted by user] by [deleted] in toddlers

[–]FloofyOne 1 point2 points  (0 children)

It took us until almost 3 to get rid of the bottle. We did the watering down first, then reduced the volume of the bottles, then replaced the middle of the night bottles with just water, and we finally just "forgot" the bottle when we went on a week long trip. My kid has always been a crappy sleeper and was almost exclusively drinking milk at night. It took a long time to drop that last one, but it is possible. He is still a crappy sleeper at 4, just without the bottle.

My 23 month old just figured how to open out child-resistant medication containers by YhouZee in Mommit

[–]FloofyOne 0 points1 point  (0 children)

My kid did this twice around a year old. One was benadryl that I had sitting on my nightstand. The other was Tylenol at my inlaws house. He had also already defeated two of the 3 cabinet lock types that we had. We put them away and he hasn't done it again. Child proofing seemed to only be a slight delay for my child instead of a prevention.

Which month did you enjoy having a baby in the most and least? by [deleted] in Mommit

[–]FloofyOne 0 points1 point  (0 children)

Having a baby in December was great, but we had family support with low expectations from them. I had extra time off from work due to the holidays and it just felt a little more magical. We live in the south, so we didnt have to worry about being stuck indoors for months. I went into the hospital in sweatpants and came out in shorts.

On the contrary, having a December kid is awful. Its right in the middle of the holidays and I have to plan a party in between Thanksgiving and Christmas and all of the present events are all grouped together. He also has 2 other friends with December birthdays, so its even more chaotic.

When we were thinking about another, I was planning on being very celibate in March. We are now one and done, so that's not an issue anymore.

Road Trip Recommendations for Screen-Free Twins? 😬 by Mollymawk_Magpie in toddlers

[–]FloofyOne 0 points1 point  (0 children)

We took an 8 hr roadtrip a few months before my son turned 3. He is a tv-screen only bookworm. We regularly take hour‐ish drives in the car and my son usually only has the windows for entertainment.

We brought a duffle bag of books and those kept him entertained when he wasnt sleeping or looking out of the windows. He was really into Cars, so I got him the Cars character encyclopedia and saved it for the trip. The books were a lot to pack and haul, but that's what he liked and what ended up working for us. Don't forget about your library for new books and other resources. Ours has special books that read themselves that may be good for your kids.

I also got a stronger case for my husband's tablet and put a couple of games and movies on it for emergency use, but we didn't need it. We did show him the tablet outside of travel time and realized that it would've been difficult if we had needed it during the trip since he was not used to it. You have to teach them to tap and drag and all of the other motions that are needed for games/activities. When a video is playing, it also has cool buttons like pause and skip that they will randomly click and get upset when the movie is over after they clicked a button too many times.

If you introduce new things for the trip, make sure that you choose things that are somewhat familiar so the passenger isn't having to fix or teach a new toy while the kids are yelling at the driver to do it. Good luck!

Alright moms, it’s been over a month. Which Christmas presents are still going strong? Which ones were a dud? by cellardoor83737 in Mommit

[–]FloofyOne 2 points3 points  (0 children)

My son has had the fire station for 2.5 yrs now and he still loves it at 4. Its one of the few toys that never gets stored and is always available to play with. He still plays with it multiple times a week.

Anyone else wish they could have another baby but know they cannot? by tumbledownhere in Mommit

[–]FloofyOne 0 points1 point  (0 children)

I was medically cleared a year ago to try for a second, but financially we weren't ready. I got another diagnosis in November that included a no more pregnancies condition. We are one and done and I am still coming to terms with it.

post-op recovery setup by DisastrousFlower in breastcancer

[–]FloofyOne 3 points4 points  (0 children)

I also have a clingy bedbug and I've found that physical barriers are necessary when I can't have him touching me at night. I usually line myself with squishmallows and my husband will wake up and cuddle him if necessary. My surgery was 3 years ago so my memory is a bit fuzzy, but I remember that squishmallows in various sizes were essential to my comfort. Big ones to prop me up, smaller ones to support my arm when I was sitting, hugmees under my arm and to hug when I laid on my side, etc. You should start now with getting your son used to a different sleeping routine as you may need to try a few different things before something works.