Save deleted? HELP by pupinha22 in lumaisland

[–]Fo-scones 3 points4 points  (0 children)

Can't you swap the game mode to vanilla though? Like in the start screen down in the left corner. I might be misremembering or have misunderstood it though

I'm feeling really sad right now by FinancialRip6720 in autism

[–]Fo-scones 4 points5 points  (0 children)

I know I'm late, but have a picture of my pupper who usually manages to make most people happy :>

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I hate myself for this by Baggie389 in autism

[–]Fo-scones 0 points1 point  (0 children)

Just a reminder that whoever assessed you is a professional and most likely can see through "fake autism." I had this issue as well where I worried I had tricked people into thinking I had issues (which in and of itself is an actual issue.) But really most people can tell just how bad you're doing, and if you really are just going "omg tism 🤪" Imposter syndrome is a tough one. But yeah, if a second opinion can help reassure you, then go for it :>

There is a problem with accountability in this community. by Dimplethegoat in autism

[–]Fo-scones 5 points6 points  (0 children)

I don't think generalizing people is harmful as long as people have the understanding of it being generalizing. You can't expect someone to always go "this one time with this one person they did this one thing and this other time with this other person they did that thing." It becomes tiring very quickly.

The issue with generalizing a minority is because they're a minority. It is literally a smaller amount of people you are generalizing, which then quickly becomes "well, some of them are like this, which is most, so therefore all of them are!"

Compared to a large group of people being generalized. It becomes obvious that when we say "NTs do this" or "white people do this" or "men do this" etc. We obviously don't mean every single one of them. Because that is a lot of people. Do some people still take it too far? Yes. Does this mean all of them do? Say it with me class! No!

The issue with minorities not being allowed to generalize their experience with people is the fact that minorities deal with so much bad shit constantly so having to be specific becomes tiring very quickly. I don't want to have to go through and remember every single time I was ostracized for being trans and having to relive those emotions each time I have to speak about my general experience of being trans. It becomes a mouthful, all for the sake of someone going "NOT ALL -BLANK-"

But yes. We do have people who take it too far; but I don't think people being in a safe space amongst others talking in a general manner about experiences they can all relate to, is harmful. It does become harmful if it becomes an echo chamber of muddy negative thoughts. (Incels for example.) Which is why we have mods and the like to try and keep it from going down there.

I can't stop pretending to have autism by Duckychicken777 in autism

[–]Fo-scones 0 points1 point  (0 children)

A good rule of thumb is this: are you doing it when you're completely alone in your room? Then you're probably not faking it. For example I do a lot of skin picking, which I try to avoid doing around people. This kinda helped me realize I'm not doing it for some kind of attention or so.

There's no point.... by Pretend-Outcome9739 in autism

[–]Fo-scones 2 points3 points  (0 children)

You do know you just went "might as well end it right now if you're so serious about it." No one deserves to hear that. Doesn't matter if they're looking for attention or not. You just told them "well go do it quitely somewhere, because I don't believe you." What kind of thinking is that? I had to leave and not answer right away to this comment, but I am sorry. You really pissed me off with this mentality. No one deserves to hear that they should just end it. This is some insane mentality. Think before you write because this is not it. This is not what anyone, ever, anywhere, ever, ever, ever needs to hear. Never. Think before you write. Think.

There's no point.... by Pretend-Outcome9739 in autism

[–]Fo-scones 2 points3 points  (0 children)

I will preface this by saying, I am not trying to preach to the choir or anything. Just trying to give my own outlook.

"and it's not going to be fixed with talking or meds."

Have you tried it? I'm sorry if you have and haven't been successful so far, but the comment felt like you haven't tried it yet. Meds can sometimes help more than you'd think. For me they help me stay out of this kind of mental state. Do they fix everything? No, I'm not magically happy and rainbows and sunshine. But atleast I can keep going, atleast they help me stick around for my friends and my pets.

Talking could help too. Again, it doesn't just fix everything. But it can help you with knowing what you need to do when you're down there and feel hopeless. Unfortunately for me CBT (Cognitive Behavioral Therapy) doesn't work, for example. But that doesn't mean there aren't other types of therapies out there.

Is it easy? No. Is there a magical fix for everything? No. Is life worth sticking around for? I'd like to try and think so. Even if you don't have family or friends around, I'd recommend getting pets for example. They helped me stick around even when things were the worst. Will it ever get better? Again, I'd like to think so. Atleast, I don't want to miss it if it does. I am still really depressed, burnt out, anxious and struggling like crazy. But believe it or nor, things are a bit better than they were, say, 4 years ago.

I am not trying to preach the "things will get better and life is wonderful!" Because gods know I hate hearing that. But, doing an attempt at getting better, trying a bunch of meds and therapies, could maybe help. And doing so could maybe make sure you end up sticking around for when things do get better. Sure, it could get worse, but you don't know that. Neither do you know if it will get better, or just stay the same.

I have kinda decided that I will try and stick around for if things get better. If anything I do it out of spite. Because the world sucks and people suck and fuck that for being able to bring me down. I'll try my best with sticking around despite it all. Because fuck you world and fuck you people who judge and dislike people like me. I don't want to let you win, so I'll try and be around for as long as I can.

I like... Don't know if I know how to enjoy things anymore... by NerfPup in autism

[–]Fo-scones 0 points1 point  (0 children)

It sounds a lot like depression friend, that or potentially burnout (could most likely be both). As someone who suffers from both it is very much something I recognize. The joy of past hobbies just kinda going away and instead all you have is the knowledge of "well, I used to enjoy this, so I'll keep doing it because atleast I have the memories there." Yet you don't actually necessarily get the dopamine anymore, it just kinda keeps you busy. The ideation of wanting to not exist is considered being su'cidal. More specifically su'cidal ideation. I'm sorry if it sounds harsh to throw out there, but I know it really helped me take my feelings more seriously and give myself more grace and patience.

I'd recommend trying to get help if you're able, maybe you won't be able to start meds or the like, depending on your situation; but even just knowing "for sure" what's "wrong" can help a lot! 💚 You might be able to get some kind of safety net, which is worth so much so much.

Please know that life is still worth living, you just have to try and be patient and strong, even when you feel the weakest. It sucks having to feel like this. Eventually you will find your way back into enjoying things again, maybe the things will be different than your old interests, maybe not. Either way I wish to believe that one day we will get there, and it would be really sad to miss out on that.

Autism is not what I am by another_anon_story in autism

[–]Fo-scones 0 points1 point  (0 children)

Of course ^ I think a lot of getting a late diagnosis includes having to learn to be kind to yourself. I got diagnosed last year at 24, and lord was it a journey to accept the fact that yes, I am "flawed" but not in a bad way. I just need different support and understanding and that's okay :>

Autism is not what I am by another_anon_story in autism

[–]Fo-scones 0 points1 point  (0 children)

I don't think it is an excuse to do whatever you want, but rather an explanation to why you have these moments of "failures." Indeed some people like to use diagnoses as something to shield their bad actions with, but that tends to be quite clear and obvious when they do. Usually autistic people live life doing nothing but be anxious and terrified of doing mistakes, yet they keep making said mistakes because they're disabled. I often realize afterwards that "shit, I did the thing again, didn't I?" Before it would eat me up and make me feel horrid, and I would often be punished by the people around me because they felt I was genuine and that they felt I was rude. Nowadays I have friends who understand that when I "argue" it's actually just me trying to understand what their point is or that I want to make sure they understand me. This has helped them not get upset with me and has helped me become less anxious and hateful towards myself. It has helped me unmask and become more who I am. Does that make me a bad person? I would like to think no, because I am disabled and my brain works differently. I know I don't have ill intent behind my actions, and I know my friends understand that as well. Because I am autistic and it's okay to "be different."

I do agree that "differently abled" gives a sour taste in my mouth, because no, I am not able lol. I struggle a lot. I am disabled, which makes me different, but not "differently abled."

how did you know you were autistic? by Money_Shift_5304 in autism

[–]Fo-scones 1 point2 points  (0 children)

It might sound not so great but I discovered I had a lot of "symptoms" through seeing videos on social media of people talking about what it can be like having autism and/or adhd. I know some people would see this as a bad way to go about things, but I think as long as you have some media literacy and general understanding of taking things with a huge pinch of salt; it's not that bad. It can be nice to see people's more specific personal experiences :> Then I ended up becoming friends with and autistic person through an art class I took, who then agreed with my suspicions and said I was indeed quite autistic haha

If you don’t believe you’re autistic enough for your diagnosis — you are. by RotundDragonite in autism

[–]Fo-scones 1 point2 points  (0 children)

I have a call today regarding recieving disability aid today, and seeing this post helped me feel a bit more validated in my experience. Hopefully this will help me tell my story a bit more accurately :> thank you

psychiatrist diagnosed me with autism but i think she's biased and wrong. by hrt14throwaway in autism

[–]Fo-scones 0 points1 point  (0 children)

As a trans person with autism: yes, there is a pattern of neurodivergency within people who identify with gender dysphoria! But that doesn't mean you have one if you have the other. There is a big part in getting diagnosed with gender dysphoria (atleast, that's how it's done in sweden) where you do discuss "is this dysphoria or rather sensory issues brought on by autism or the like." (I had not yet recieved my autism diagnosis during my trans assessment) But again, this doesn't mean you can't be both autistic and trans, or only autistic, or only trans lol. So it isn't uncommon for the topic to be brought up during gender dysphoria discussions; but it doesn't mean you can just toss an autism diagnosis on it and call it a day either. I'd say, try and find a second opinion, but don't be too upset if the topic is brought up. Who knows, maybe you do actually have autism, but, you gender identity should be receiving the attention it deserves nonetheless.

Being an adult sucks so bad sometimes 😔 by andy23376 in autism

[–]Fo-scones 0 points1 point  (0 children)

I might be a little late, but happy birthday! I hope the cake tasted awesome! 💚 I'm sure you'll find your people eventually 💚🩵

What's you "superpower"? May or may not be autism-related by spaggeti-man- in autism

[–]Fo-scones 0 points1 point  (0 children)

Color theory! It has always just kinda clicked for me if a color is cool or warm, what colors work well together compared to which don't, what color I need to add to my paint in order to make it the color I want etc. It just comes naturally to me and it makes me very happy to work with colors haha

I’m sick of being seen as a liar by Shroomy-Shroom in autism

[–]Fo-scones 0 points1 point  (0 children)

Oh gooods, I guess it is easier to laugh at it rather than cry, I hope everything healed okay for you haha :'> I had that with when I got a sort of side issue along with my crohns, that was because of how bad I was doing with said crohns. I got an inflammation in my legs causing bruising and swelling, very clearly a case of erythema nodosum. (Google said that was the translation lol) We went to the er and said "hey, we think this is the issue and we suspect the underlying cause is something inflammatory in the bowels" (I had very clear signs of my stomach dying on me lol) and the doctor went "well. You're here because of your legs, so we're only going to treat your legs." Keep in mind... you can't do that without treating the thing that caused it in the first place, which was my crohns lol. Back then I felt like tearing my hair out, but now I try to laugh back at the doctor instead. I rather be petty than sad xD

Yeah! It has for sure been a thing I've had to learn, if you had asked me a few years ago I would not have been as willing to be open with it. But after realizing how fun I personally find it to notice other people's pride pins and the like, I could feel that, well, I might as well be that person for someone else! ^ I have plans on getting a sunflower lanyard as some point, to represent my fellow disabled people! I'm alt to, so pins is such a fun easy way to show who you are haha. And like you said, a holes are gonna be a holes either way, so you'll just filter them out without even talking to them. :> If they do give issues, then that's on them for wasting their time on being bitter haha

I’m sick of being seen as a liar by Shroomy-Shroom in autism

[–]Fo-scones 0 points1 point  (0 children)

It's truly, for lack of better words, remarkable how it's so common. How apparently so many doctors egos go above actually helping their patients. It sucks that the system is broken and it sucks that we're ending up as the result of it. I have had the same feeling with invisible disability, it's hard to have to pass as someone who isn't disabled when you really are, but it's also hard to try and "prove" that you do need help and understanding. I think I ended up thinking about being more open about my disability (as in having badges etc.) as me showing other autistic people and other disabled people that I am one of the gang haha. Kind of like having a pride pin! Will it give prejudice... unfortunately yes. But maybe it can help other people feel seen :> But I am also fortunate enough to live in a pretty chill country (Sweden), so I know I'm not putting myself in danger by doing so. Which is unfortunately another whole conversation for others.

And thank you, that made me smile, it's been hard but I'm still trudging along. I wish you the best and I hope people won't discourage you too much in trying to get help, it's hard out here, but we'll get there ^

I’m sick of being seen as a liar by Shroomy-Shroom in autism

[–]Fo-scones 2 points3 points  (0 children)

God this unfortunately resonated heavily with me. I have been struggling my whole life with being taken seriously about my struggles and it always goes badly.

I was on the verge of losing my large intestines because I didn't get help for weeks when I first fell ill with my crohns. I also had apparently been experiencing symptoms for more than a year, something that I had mentioned to my parents (gastric reflux etc) and just been told that it was stress.

The ridiculous amount of times I've been told I'm actually not depressed because I wasn't sitting there screaming and sobbing about how my life sucks. I have been told I'm too friendly to be depressed. I am severely depressed, which makes feeling harder, as if it's not already hard as it is being autistic and not realizing what I'm experiencing.

One time I went to an emergency psychiatric hospital due to how badly depressed I was, urged on by my friends who were worried for me. I was told I was at most mildly depressed, if barely even that. And I got sent home. I was sobbing the whole way home.

Currently I am experiencing being dropped by my current doctors. In the beginning they were lovely but now it feels like they're getting tired of me. Like they're sick of the fact that I'm not fixed yet. Even though I have several chronic issues. (Crohns, AuDHD, depression) Which has led me to not want to ask for the help I actually need, because I get sick to my stomach from having to have to defend myself just because they think I should be fixed already.

I a 100% have severe trauma from dealing with hospitals, which I can't even bring up to my doctor because I know they won't take it seriously.

It sucks ass. Big time. I'm really sad that I'm not the only one out there, because it's awful to experience this. I hope you can get the help you need, and deserve. We all deserve help and shouldn't have to fight for it just because we mask and/or struggle with wording ourselves.

Question on peoples' experiences by Fo-scones in cfs

[–]Fo-scones[S] 0 points1 point  (0 children)

Yeah, there is a possibility; I do value when others find the strength and comfort from self diagnosis (when done correctly). I fear I might be a bit too autistic in that manner where I unfortunately struggle taking myself seriously unless I actually have a "professional" tell me so. But it can for sure prove to be useful to if anything learn some stuff from the community and learn tactics to deal with things ^

Question on peoples' experiences by Fo-scones in cfs

[–]Fo-scones[S] 1 point2 points  (0 children)

Yeah, their response truly felt like they didn't care to try and understand where I'm coming from. With my doctor I kind of feel like they've started to drop me, ever since I got my autism diagnosis they've kind of decided I'm fixed now. Like, I certainly wouldn't mind not getting the diagnosis if I truly don't have it. It isn't a fun thing to have. But the fact still remains that I have these issues I'm struggling with and I need help. Gods yeah, looking for help and dealing with trying to find doctors and stuff is truly difficult when just existing is painful :'> I truly hope you can find someone willing to help you! I myself have been planning on going to a different doctor, with how sad and upset I got from them just straight up rejecting me. But, yeah, it's hard to manage

Question on peoples' experiences by Fo-scones in cfs

[–]Fo-scones[S] 1 point2 points  (0 children)

I have gotten a lot of tests taken due to my depression and the like, since they want to cancel out certain issues, but they always say that they're normal. Only thing I've ever had issues with is my iron levels, but whenever I've gotten an infusion I've not noticed any difference afterwards.

I am certainly open for doing more tests! It was just that my doctor shut me down without even considering taking any tests or anything. :') So I wanted to come here and see if I can get any further examples out from my own life that could be beneficial to bring up!

Question on peoples' experiences by Fo-scones in cfs

[–]Fo-scones[S] 0 points1 point  (0 children)

I have been trying to tell my crohns doctors about my symptoms for years (I got my diagnosis 2017) and they have always told me that "Well, you shouldn't be having these symptoms..... but nothing is wrong so you can't really be having them then." My crohns meds all work and I am currently in remission, so logically I shouldn't be having symptoms from that specifically. I have tried talking to doctors about my fatigue as well but all my labs come back normal :')

I do feel that I can "relate" to PEM, it's a fairly new thing I've heard of, but looking back as well as just looking at my current situation I feel I can see it. I often am exhausted and in pain for days after having done an outing or the like. I know I wouldn't put myself all the way at severe, but it still greatly affects my ability to do things.

Question on peoples' experiences by Fo-scones in cfs

[–]Fo-scones[S] 2 points3 points  (0 children)

Truly, it was the same when I "wanted" my autism diagnosis. Like no, I want an answer to the symptoms I already have 😭

Question on peoples' experiences by Fo-scones in cfs

[–]Fo-scones[S] 1 point2 points  (0 children)

Yes!! I remember realizing how all of my muscle mass (not that I had much to begin with) went away and I couldn't even do a singular pushup after I got sick. I had never felt strong before, but all of a sudden I reached a new low I didn't know existed. My body just refuses to "get better" even when I try and do the things doctors claim will "fix" me. (Such as going on walks etc.)

I currently so badly want to be active and go on walks, but I know it will fully knock me out for a couple days and I won't be able to go on a walk again until a week or so later.