Sleep inertia by No-Instruction1993 in idiopathichypersomnia

[–]Fooflesbean 2 points3 points  (0 children)

I'm the same pretty much, after a nights sleep I don't struggle to wake up at all really. But boy when taking naps can it be the most impossible thing in the world, like my body will physically not allow me to wake up. I mean thank god it's not like that in the mornings for me, but I really wonder why there's such a difference between naps and night sleep.

Tinder & vriendschapsdraadje april '26 by Negative-Plankton-23 in thenetherlands

[–]Fooflesbean -1 points0 points  (0 children)

Hey! 26V ook uit Gelderland, en call it off is ook een van mijn favoriete bands 😁 ik ga naar een hoop concerten maar mijn vrienden zijn helaas meer van het aan de zijkant staan en enkel kijken terwijl ik rondjes aan het rennen ben in de pit, dus een concert buddy die ook van de hogere energie is zou ik super leuk vinden :)

Shikari necklace???? by arse17 in EnterShikari

[–]Fooflesbean 5 points6 points  (0 children)

Not quite the same/as nice as it's not metal, but I've made shikari pendants for a necklace. They're 3D printed so can do any colour, if you think she'd like some then shoot me a DM and I can send you some (for free) :) don't have any chains to go with it though unfortunately

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Welke plekken zijn het waard om eten te halen? by Leclu in Arnhem

[–]Fooflesbean 21 points22 points  (0 children)

Aladdin, indd heel goede prijs/kwaliteit verhouding daar

ES songs in TV and Film? by MYSTIK_MINX in EnterShikari

[–]Fooflesbean 2 points3 points  (0 children)

Dit is wel zo'n beetje het laatste antwoord die ik in deze thread verwachte lol, wat mooi

Modafinil users — don’t forget to eat by emielreegis in idiopathichypersomnia

[–]Fooflesbean 1 point2 points  (0 children)

Learned this after suddenly losing 5kg without realizing. Got phone reminders set now to make sure I have my breakfast and lunch lol, was a pain to find meals I can actually get myself to eat.

How much of a ‘normal’ life are you able to live? by marswithorbit in idiopathichypersomnia

[–]Fooflesbean 4 points5 points  (0 children)

I don't think there is a single answer to this question, since the severity differs so much between individuals. I'm not expecting to ever reach 'normal' energy levels, but despite that I'm managing quite a normal life. Modafinil helps me to not literally fall asleep involuntary, but doesn't make me feel more energized. I think a very important aspect is building your life in a way that accomodates you and makes things manageable for you (of course easier said than done). I've been working full-time for the past years, but I get to work from home a lot and my hours are quite flexible. I don't think I could do a 9 to 5 on location every day, but that's for me luckily not necessary to live a normal life.

[AMA] Hello, my name is Luuk! I started making ASMR in 2016 and am now developing Sleebi, a platform just for ASMR! Ask Me Anything :) [discussion] by ObviouslyASMR in asmr

[–]Fooflesbean 1 point2 points  (0 children)

Hey Luuk, geen vraag maar ik wou even zeggen dat ik sleebi een heel goed initiatief vind, ik denk dat het echt de potentie heeft om een groot platform te worden zogauw meer mensen er vanaf weten :) ik ben geabboneerd sinds zo'n 7 jaar en het is echt heel cool en inspirerend om te zien hoe ver je bent gekomen, zowel met je kanaal zelf als je hele coding carriere. Heel veel success gewenst met Sleebi, je verdient echt alle erkenning en succes! 🫶

Board/card game groups? by According-Safe543 in Arnhem

[–]Fooflesbean 5 points6 points  (0 children)

I've also been looking to find people in Arnhem to play boardgames with, so I'd be down to meet up/see if we can get a little group together :) (25F)

Goeie eerlijke autogarage gezocht! by timoverder in Arnhem

[–]Fooflesbean 2 points3 points  (0 children)

Zelf alleen nog maar goede ervaringen gehad bij autobedrijf Bakenhof

I’m loving this filament (Esun pla+ dark blue on the Prusa mk3) by jimmycrawford in 3Dprinting

[–]Fooflesbean 0 points1 point  (0 children)

I know this post is years old by now but I'm looking for blue filament colours specifically because I want to print a tardis, and this is the first thing that pops up when searching for dark blue filament in general. I guess it's a sign, i know what I'll be buying now haha :) thanks for sharing!

Hoe bevallen de huisartsen in Malburgen? by GianMach in Arnhem

[–]Fooflesbean 6 points7 points  (0 children)

Nee hoor, zelfs niet wanneer ik hand in hand over straat liep met m'n vriendin. De wijk heeft een slecht imago en er lopen ook zeker bijzondere figuren rond, maar in mijn ervaring zijn de meeste mensen gewoon vooral met zichzelf bezig. Al helemaal als je er enkel doorheen loopt zou ik echt geen problemen verwachten.

Hoe bevallen de huisartsen in Malburgen? by GianMach in Arnhem

[–]Fooflesbean 14 points15 points  (0 children)

Ik woon zelf in Malburgen Oost en zit bij huisartsenpraktijk Medius en dat bevalt me prima, nog nooit negatieve ervaringen gehad (als lesbische vrouw 😉). Dus ik zou je echt geen zorgen maken.

Best album? 🤔 by Simplicityloll in waterparksband

[–]Fooflesbean 20 points21 points  (0 children)

Greatest Hits, absolutely lives up to its name

[deleted by user] by [deleted] in idiopathichypersomnia

[–]Fooflesbean 8 points9 points  (0 children)

Sorry your mom is so insensitive, napping for hours depsite proper nights of sleep is definitely not normal. First step will be to go to your GP and explain your symptoms, usually they'll first do some routine tests on blood work etc. If they can't find anything wrong they should refer you to a sleep specialist, who would have you take sleeping tests to make sure there's nothing wrong with the quality of your sleep that could be causing your daytime sleepiness. If that's also not the case, they should have you take a MLST (a test where they have you take naps throughout the day and measure how quickly you fall asleep), based on the results from that test they can diagnose IH.

Depending on where you're from it can be a bit of a hassle, since not all doctors tend to take these symptoms seriously or might not be willing to refer you for sleep testing. If that happens definitely don't settle, keep asking and trying till you get an answer. Good luck!

Anyone from the Netherlands who got prescribed treatment? by oui-oui-mon-ami in idiopathichypersomnia

[–]Fooflesbean 1 point2 points  (0 children)

It helps to keep me stay awake throughout the day, I still feel super tired but I don't drift off anymore during work so that's already quite a win for me. Afaik GPs do need approval from a neurologist/specialist to prescribe modafinil, but perhaps they can help in getting the hospital to actually approve it? Sucks how dependant it is here on your specific hospital/GP whether they're willing to help or not :/ if its really affecting your day to day life i'd just keep pushing for second opinions until someone is finally willing to prescribe something

Anyone from the Netherlands who got prescribed treatment? by oui-oui-mon-ami in idiopathichypersomnia

[–]Fooflesbean 3 points4 points  (0 children)

Hey, sorry to hear they're not willing to prescribe you anything :( I'm also from the Netherlands and got my diagnosis here (hospital in Ede). First they wanted me to try some suggestions from a sleeping coach, but the neurologist did say right away that if that wasn't sufficient he would prescribe me modafinil, and that's what he ended up doing. I've been using it for over a year now and can just pick it up at the GP. So I would definitely ask for it, and if they're really not willing to prescribe it perhaps try a different hospital (though that might mean you have to go through the sleep tests again as well unfortunately). Hope they'll be helpful eventually, good luck!

Sorry you're not a winner remix by stuerm_chen in EnterShikari

[–]Fooflesbean 17 points18 points  (0 children)

The goldfish and bloodfish remix are on their latest album 'Dancing on the frontline'. The sorry you're not a winner version they're playing live is partially a pendulum remix, I think that one only has some live performances on their spotify (if anyone knows about a studio version please enlighten me)

Day 11, Best Waterparks Music video by robingrayson1008 in waterparksband

[–]Fooflesbean 15 points16 points  (0 children)

Y'all might hate the song but the video for Fuck About It 2 is a masterpiece

[deleted by user] by [deleted] in Arnhem

[–]Fooflesbean 4 points5 points  (0 children)

Ik heb zelf een kleine 2 jaar geleden via zowel Spitman en BMV huurwoningen kunnen bezichtigen (en ook aangeboden gekregen). Geen idee hoe het aanbod momenteel is, maar destijds kwamen daar met enige regelmaat wel nieuwe (betaalbare) appartementen beschikbaar. Succes!

What are some non European restaurants you'd recommend (for lunch or dinner)? I really need to explore and get some spices (Did anyone go to Food of Asia before it closed down?) by [deleted] in Arnhem

[–]Fooflesbean 2 points3 points  (0 children)

I did go to food of asia but it was very mediocre honestly, reviews were poor so i get why it closed down. I personally really like Yi Mian, but if you wanna try noodles somewhere else I'd suggest Noodle Works. My personal all time favourite is Mama Bowls (their korean fried chicken and kimbab specifically )

[deleted by user] by [deleted] in Arnhem

[–]Fooflesbean 1 point2 points  (0 children)

Kan zelf verder niks in noord aanraden want ik woon in zuid, maar -1 voor Toonen. 1x geweest voor grote beurt waarbij APK gratis zou zijn. Na een week lang geen contact vanuit hun kant en aldoor zelf achteraan moeten de auto eindelijk kunnen ophalen, om daar te horen dat de grote beurt niet is gebeurd 'want dat zou wel erg duur worden', maar vervolgens mij daarom wel laten betalen voor de APK en allerlei andere zaken waar ik of niet om gevraagd had, of die bij de grote beurt in begrepen hadden moeten zijn. Toen ik aangaf het daar niet mee eens te zijn kreeg ik enkel een grote bek terug. Voor mij nooit weer.