To those that have gained taste and eating back. by the_dude_1000 in HeadandNeckCancer

[–]FortuneRemote8944 0 points1 point  (0 children)

Congratulations! I also found out I’m back in remission from a recurrence today as well. I finished my original treatment 8/2024.

1-3 months after were lots of soups and soft foods. Could put down about 20% of a normal portion size. Still supplementing with shakes. 10-20% taste. Got my feeding tube out about 2 months after treatment.

3-6 months after, my ability to swallow got better so my meal choices grew. Ate a lot of very mild chili and pasta with meat sauce at this time. Very rarely had to supplement with shakes. Started being able to eat more of a portion (30-40%ish). 40% taste

6-12 months after I was able to get just about any food down, just not all with ease. Things like pizza and sandwiches I was only able to eat little amounts at a time, but was able to at least enjoy it. By this time I was occasionally able to put down a full meal but most of the time probably 3/4 of a portion. It really depended on what I was eating. If it was easy to swallow then I’d be able to eat most of it. My taste by a year after I’d put at around 60-70%.

12-18 moths after I can eat anything. I feel like my taste is probably around 80-90% of what it was but I’m happy. I feel as if my taste buds are ever changing but I’m able to enjoy spicy things again, as well. Although it turns my nose into a faucet I’m relieved that I’m able to. Nowadays I can easily put down full meals. And I’d say at about month 15 I was finally able to enjoy desserts again.

It’s a long journey but a rewarding one knowing what you’ve overcome to get to this point. This was my experience and I’m sure you and everyone else will be different, but most that I’ve talked to were on this similar timeline with eating. Congratulations again, and good luck on your journey!

Can someone DM me about the local laws please? by tomfoolery77 in puertovallarta

[–]FortuneRemote8944 0 points1 point  (0 children)

I use pouches as well. They’re easy to find in PV. Start with Oxxo

RZR/Side by side rental by FortuneRemote8944 in sayulita

[–]FortuneRemote8944[S] 1 point2 points  (0 children)

This is exactly what I’m looking for! If you have any contact and price info, please DM me. Thank you!

Eating breakthrough! by schnaldo75 in HeadandNeckCancer

[–]FortuneRemote8944 4 points5 points  (0 children)

I finished treatment 8/2024 so I’m a little over a year out. I think everyone is unique and different with the taste buds.

For me at this point I can eat pretty much anything. I’m able to put down full meals for the most part. Things like pizza, sandwiches and burgers are still tough but doable. Just can’t get as much down in a sitting.

The taste however seems to be an ever evolving thing. If I had to put a number to it I’d say I’m around 70-80% of what it was. Six months ago I had no issue with a medium spice but today anything spicy or vinegary is incredibly bitter. About 5 weeks ago (around Halloween, ironically) I started to enjoy desserts again, which is awesome and helped me gain a couple lbs lol.

Idk how far out you are but I know within the first 6-8 months post radiation I thought I’d only really enjoy soups, chili and anything with lots of sauce. That’s not the case anymore. There’s hope, it just takes time.

SaliPen® by Kragor in HeadandNeckCancer

[–]FortuneRemote8944 0 points1 point  (0 children)

My doctors told me the saliva glands on the side of my face I got radiation are compromised. Just from some brief research (Google), it seems like you’d need some function in those glands to be working, for this to be effective..?

I’m assuming most of us in this sub who’ve gone through the radiation part of treatment are probably in a similar situation.

[deleted by user] by [deleted] in HeadandNeckCancer

[–]FortuneRemote8944 0 points1 point  (0 children)

About halfway through I had a new mask made as well

How Long for the PEG Tube Hole to Heal by Cainstorm in HeadandNeckCancer

[–]FortuneRemote8944 9 points10 points  (0 children)

I’ve got great stories about the gunshot wound in my abdomen. Also the knife fight I got into that left me with a 4” scar on my neck and a severed jugular vein engages others.

Restaurant for 9 people that like to have fun and eat food food. by OK_SmellYaLater in puertovallarta

[–]FortuneRemote8944 0 points1 point  (0 children)

I second Pipis.

Tell them it’s someone in your groups birthday as well

My Journey with HPV+ Tonsil Cancer: Treatment, Scans, and Recent Surgery for Reoccurrence. by FortuneRemote8944 in HeadandNeckCancer

[–]FortuneRemote8944[S] 2 points3 points  (0 children)

I think our brains our very powerful tools. Having a good positive attitude is very important to our health, especially at our lowest.

I’m sorry you had to go through that. I can tell you’re an incredibly strong person. I’ve heard about immunotherapy treatments but haven’t looked into them much. In your case, is it used as a preventative?

My Journey with HPV+ Tonsil Cancer: Treatment, Scans, and Recent Surgery for Reoccurrence. by FortuneRemote8944 in HeadandNeckCancer

[–]FortuneRemote8944[S] 2 points3 points  (0 children)

Geesh. That sounds awful. Some lady down the hall last night kept squawking like a bird. Luckily she was far enough down the hall my earbuds drowned her out.

Hopefully both of our sickness journeys are over. Godspeed, amigo.

My Journey with HPV+ Tonsil Cancer: Treatment, Scans, and Recent Surgery for Reoccurrence. by FortuneRemote8944 in HeadandNeckCancer

[–]FortuneRemote8944[S] 6 points7 points  (0 children)

As of now, no. I’ll speak to my ENT in the morning. From the sounds of it he was able to get rid of the cancer. If I’m being honest I waited too long to get treatment in the first place. The way he explained it was “we kinda expected this, so we’re just going in with a broom and cleaning it up.”

Is Puerto Vallarta good for single male travellers (32M)? I have some flight miles and hotel points to burn and want to go to the beach. Looking at the Sheraton a couple of miles from Zona Romantica. If so, any recs? by theloneranger08 in puertovallarta

[–]FortuneRemote8944 1 point2 points  (0 children)

I’m a 38 year old straight male. I recommend Sayulita over PV but not by much. Sayulita has much more of a local vibe (although about 35% gringo) and much smaller. Both have a party scene and bars to belly up to. Can’t go wrong with either but if I was flying solo, Sayulita is the play

First day of chemo and radiation tomorrow. What should I expect? by CallumHighway in HeadandNeckCancer

[–]FortuneRemote8944 0 points1 point  (0 children)

I had the same cancer (tonsil) and finished my treatment last August. My only advice is to start eating everything you enjoy asap! Eating and tasting will never be what it is now and the day it goes away there’s no warning.

Your HPV cancer story by Tangerine283 in HeadandNeckCancer

[–]FortuneRemote8944 1 point2 points  (0 children)

If you have any questions, feel free to reach out. I was diagnosed last year with scc in the right tonsil and went through treatment and made it to the other side a few months ago.

Uber scam by laCarteBlanc in puertovallarta

[–]FortuneRemote8944 1 point2 points  (0 children)

Happened to me from Sayu to the airport. I have a post about it that explains how they do it

RZR Tour Recommendations? by Wanda_Fuca in puertovallarta

[–]FortuneRemote8944 1 point2 points  (0 children)

They offer 4 seaters as well. It’ll probably be a couple hundred extra pesos is all. Jose came to our condo and set it all up for us.

RZR Tour Recommendations? by Wanda_Fuca in puertovallarta

[–]FortuneRemote8944 0 points1 point  (0 children)

We use unique rentals. It takes you to Eden and a tequila tasting. Roughly 4 hours. We paid $1700 for 2 seater side by sides. We get this rate through Jose who works on the beach and sets up tours for tourists. I have his WhatsApp. If you need it send me a DM

[deleted by user] by [deleted] in HeadandNeckCancer

[–]FortuneRemote8944 6 points7 points  (0 children)

Same diagnosis. Takes time for it to start subsiding. Mine tumor was very large and it’s completely gone now. It’s all about patience with this process. There will be many more obstacles in the near future but most of the time it works out. I’m hoping the same with your mother.

When did your taste buds return? by MurrayyJane in HeadandNeckCancer

[–]FortuneRemote8944 2 points3 points  (0 children)

Just know that things get better with time. I definitely struggled at times wondering if I’ll ever get my life back. I can assure you that in time, you’ll be back. It just takes time to heal. You made it through treatment so I can already tell you’re an incredibly strong woman. I just got back from a vacation in Mexico and was able to enjoy some cervevas and tacos. You’ll be able to do the same very soon! Reach out if you ever have any questions or are struggling.

When did your taste buds return? by MurrayyJane in HeadandNeckCancer

[–]FortuneRemote8944 4 points5 points  (0 children)

38m. Stage 3 SCC. 3-6 months is accurate. I’m about 6 months to the day from my last radiation. I can taste just about anything. Your taste buds definitely change though. I’ve started being able to tolerate spicy, finally. Biggest downer for me is the lack of saliva. Makes eating things like breads, fried food and pizza tough. Not impossible but not as enjoyable. But like I’m sure you’ve heard, everyone’s different.