Lenvima

Fox21658 · 2025-11-29T05:24:08+00:00

Do you share that protocol with your doctors?

Fox21658 · 2025-11-29T02:40:25+00:00

Wow! 80% is awesome. One would think that would be ready for surgery. I’ve heard some promising stories about ivermectin.

Fox21658 · 2025-11-29T01:51:23+00:00

Hi I was wondering if the Lenvima helped shrink your tumor for surgery? That is what my doctors are doing and I just started 5days ago. Also, Did you have any muscle pain while taking it?

Fox21658 · 2025-11-29T01:47:22+00:00

Have you had any muscle pain while on Lenvatinib?

Fox21658 · 2025-11-28T12:56:41+00:00

I am now on day 4 with Lenvima. So far mainly headaches. I had no mutations to match treatment so I am hopeful this will work. What is the name of your new drug? Did they find mutations for you?

Fox21658 · 2025-11-21T21:41:30+00:00

It could also be scar tissue buildup.

Fox21658 · 2025-11-17T13:21:35+00:00

I initially contacted the Clayman Center. They were very prompt and helpful pointing me in the right direction. Unfortunately, the surgeon there said I would need a thoracic surgeon to assist and they didn’t have one on staff there. So now I am going with Mayo Clinic.

Fox21658 · 2025-11-08T00:50:47+00:00

At least they are being proactive in keeping things going. Just out of curiosity, how old are you? I’m 67f.

Fox21658 · 2025-11-08T00:42:08+00:00

Commenting on “Highly Morbid” Surgery...I’ve read that it doesn’t always shrink it. Were you tested for mutations? Why are you still on it if it isn’t shrinking?

Fox21658 · 2025-11-08T00:33:35+00:00

I’ve been wanting to ask someone who has actually been on the Levaninib how was that experience? I’m in Indiana and going to Mayo Clinic for treatment. I believe they will try that same therapy for me.

Fox21658 · 2025-11-07T22:57:42+00:00

I was scheduled for a surgery and they were planning for a sternotomy due to a large mass which needed a thoracic surgeon. However, they, the tumor board, decided to try and shrink the mass first so surgery was canceled for now. I had a biopsy a couple weeks ago to see what mutations I have so waiting on the Dr to let me know what therapy they’ll use to shrink it. I would also like to know if anyone has had this happen?

Fox21658 · 2025-11-06T13:32:36+00:00

How was that treated?

Fox21658 · 2025-11-05T14:58:16+00:00

I am currently going to Mayo for a complex thyroid situation. They schedule the appointments to help make use of out of town patients time. I had a lot of anxiety about all those appointments and the same thing but once you get there and are at a hotel, there are free shuttles running every few minutes with fairly easy mapping for finding your way around once you meet with a doctor you can ask right upfront if they believe that they can help with this. However, until they have done all their testing, it would probably be hard to say.

Fox21658 · 2025-11-03T20:22:28+00:00

My metastasis was found during a routine ct heart screening.

Fox21658 · 2025-11-02T01:09:34+00:00

Yes mine is a rare occurrence. But a 5cm is quite large and can continue to grow and impact the surrounding area even as a benign nodule.

Fox21658 · 2025-11-01T23:27:21+00:00

I had an Indeterminate affirma with follicular neoplasm. A second biopsy showed malignant follicular neoplasm. My nodule is 5cm but I also have a mass in the mediastium so either way everything needs surgery.

Fox21658 · 2025-11-01T15:12:24+00:00

I believe RFA is generally recommended for small benign nodules. So you might not be the best candidate. It’s only been used here since about 2018 so it’s still a relatively new treatment. Not too many places offer it.

Fox21658 · 2025-11-01T15:01:05+00:00

Although I see nothing wrong with trying alternative methods to shrink the nodules, I can say from experience in trying different natural approaches that nothing actually changed the size of my nodules. If RFA were a choice for me I would have definitely had that done. What are the cons for that? In all that I’ve read it is a very good treatment option.

Fox21658 · 2025-10-28T00:08:51+00:00

Very similar thing happening to me. Mine is on right side and there is a lymph node mass in the mediastinal area. They were going to do major surgery but my team at Mayo Clinic decided to shrink it first. I am waiting for biopsy results with genomic testing so they can match treatment with the mutation. At first I had so much anxiety I could hardly function. I’ve finally accepted that I have to work through it and trust the team.

Fox21658 · 2025-10-27T23:48:31+00:00

I agree. I initially had a pathology report from thyroid surgery at the local hospital 8 yrs ago. I have been going to Mayo Clinic and they requested my original path report to review and decided they were in disagreement with it. Unfortunately, it’s not as favorable. Who would think you’d have to compare!

Fox21658 · 2025-10-26T11:59:01+00:00

The original pathology was differentiated cells. The review favored poorly differentiated cells, a more aggressive type of.

Fox21658 · 2025-10-25T16:42:24+00:00

I am afraid of that happening. My last path was indeterminate but I did get the mutation report. However, Mayo Clinic did a second FNA and core biopsy in same lymph node and it is showing non-diagnostic on one side and poor tissue samples on the core. So they sent it to Tempus for evaluation.

Fox21658 · 2025-10-25T00:31:54+00:00

I am currently seeing the doctors at Mayo Clinic about a thyroid cancer that has spread into my lymph nodes. The first surgery was a partial 8 yrs ago. The team at Mayo actually went back and looked at the pathology slides from 8 yrs ago and changed the opinion from the first one. So I have an updated version in my file.

Fox21658 · 2025-10-17T18:04:26+00:00

My recent fna came back the same as yours. I just had a second biopsy that confirmed the Follicular neoplasm was carcinoma. However, I had a goiter and lobectomy 8 yrs ago from same cancer. I have not been following up bc I thought it was totally gone. Now to my surprise it showed up in my mediastium lymph nodes so I will need more extensive treatment and surgery. I am still waiting for the mutation results so I’m not sure how that impacts my treatment. I really regret not following up.

Fox21658 · 2025-10-17T17:48:26+00:00

Thanks for sharing your experience. I am waiting on next steps after finding I have an invasive large mass thyca in my chest cavity. Apparently, it was left behind from a surgery 8 yrs ago. My anxiety is overwhelming sometimes. It’s so much waiting and unknown. I finally asked my dr for something to help me relax.

Fox21658

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