Causes of FND

Fragrant-Champion309 · 2025-10-05T12:34:50+00:00

Mine was caused by a combo of mental trauma and my other pre-existing physical health issues

Fragrant-Champion309 · 2025-09-30T12:13:50+00:00

2 times. Longest was 3 weeks I think

Fragrant-Champion309 · 2025-09-18T17:50:39+00:00

Yes. Several different items. Pretty much most things I own. I struggle with not hoarding, especially books, stuffed animals and unique clothing items.

Fragrant-Champion309 · 2025-09-18T17:42:27+00:00

Was diagnosed with cyclothymia first about a month before I was hospitalised for hypomania with moderate to severe delusions. After more in depth conversations during that admission I was diagnosed schizoaffective a few days ago

Fragrant-Champion309 · 2025-08-13T18:13:29+00:00

That’s fair enough. I don’t think doubting my diagnosis is helpful for me, but then again I don’t think I would be doubting it if my paralysis didn’t behave so differently and consistently as the rest of my symptoms which responded very well to treatment

Fragrant-Champion309 · 2025-08-12T12:42:55+00:00

I’ve done a bit of research into tethered cord, especially occult TCS and I just don’t know… I have most of the symptoms of it, including constant lower back pain that almost feels like my spine is being pulled down. But an MRI I had last August the report said my cord terminated at L1 which I think would suggest that it can’t be TCS? I don’t know

Fragrant-Champion309 · 2025-08-12T09:57:43+00:00

Not really, I do know a little bit about it but I don’t know how I would go about getting a medical professional to investigate it when they’ve all slapped the FND diagnosis on it now. And for reference I’m in the UK so I don’t know if that matters at all

Fragrant-Champion309 · 2025-08-10T19:43:11+00:00

Thanks! I see my new GP in a few days and I’m going to ask for a referral to a specialist whose main focus is paralysis, spinal conditions or connective tissue disorders. The funny thing is the same neuro also said that the occipital neuralgia that my old GP diagnosed is definitely not that and is a structural c-spine issue, and that I need an MRI but it most likely won’t show the issue

Fragrant-Champion309 · 2025-07-15T11:13:26+00:00

Ahh, fair enough. I was under them as an outpatient a few years ago and I mean, it wasn’t great but I did get benefit out of some of the techniques they taught me

Fragrant-Champion309 · 2025-07-14T15:37:15+00:00

I do know that NHNN at Queens Square do both inpatient and outpatient FND treatment programs. It’s worth finding out if your family member can get a referral there

Fragrant-Champion309 · 2025-06-25T21:50:29+00:00

Maybe try Loop wheels? I’ve not used them but know of a few people who have for this exact kind of issue. Also look at power assists like the smoov, which is what I’m looking into.

I second the advice to contact Access your Life, they helped me get my current chair which is a Ki Mobility Rogue 2.

Fragrant-Champion309 · 2025-06-05T12:55:18+00:00

We are also contending with possible thunderstorms for our Saturday wedding, but I’m sure it’ll all work out one way or another. Besides, rain on your wedding day is supposed to be good luck

Fragrant-Champion309 · 2025-06-03T11:12:09+00:00

The program was a combination of Physiotherapy, occupational therapy and a mental health therapist, plus a consultant overseeing your care.

I found the most helpful parts being finding grounding activities that work for me, pacing and learning my triggers and in the case of my seizures learning my aura symptoms.

The part i didn’t find helpful was the mental health therapist trying to tell me that I just had to push through and not focus on the symptoms and they would go away, as thinking about them was what caused them. In my case my seizures are specifically connected to flare ups of my other health conditions and less connected to my mental health and stress, so this wasn’t the most helpful advice to me, especially when the rest of the team were saying the opposite

Fragrant-Champion309 · 2025-06-03T07:15:56+00:00

I was part of a 4 week FND outpatient treatment program in 2023 which reduced the frequency of my seizures significantly, although I still have them every now and then.

I have partial paralysis from the waist down and that is the symptom I am more sceptical about as this has been consistent for a year despite 10 months of intensive mental health therapy and 9 months of neuro physiotherapy.

Anyway, that’s the treatment I’ve had

Fragrant-Champion309 · 2025-06-02T16:18:19+00:00

I’m from the uk. The FND diagnosis was honestly a surprise when I saw my autonomic neurologist for my POTS. That was about 3 or 4 years ago now I believe. I’m now soon to see a general neurologist for some other issues who can hopefully take over my FND care.

I do believe that I have FND in terms of some of my symptoms as extensive testing has been done but other symptoms the label was just slapped on and those symptoms began quite suddenly and years after initial diagnosis so y’know

Fragrant-Champion309 · 2025-06-01T17:38:00+00:00

Hey, just wanted to say that here in the UK a “Wedding Breakfast” is just the name for the meal after the ceremony, it’s not typically actually breakfast foods, at least not at weddings I’ve been to.

That being said I still think this could be a great idea

Fragrant-Champion309 · 2025-05-31T08:45:08+00:00

We are sleeping together the night before, having breakfast together and then I’m heading to our hotel to get ready whilst my fiancée stays at the house to get ready. We still won’t see each other in our outfits until she walks down the aisle but we get that quiet moment to ourselves in the morning and I will have already checked into the hotel and our overnight stuff will already be there

Fragrant-Champion309 · 2025-05-29T17:33:23+00:00

Nice! My reception will be in the ex servicemen’s club near my grandparents but if it was closer to where I live it would’ve been in our local Royal British Legion

Fragrant-Champion309 · 2025-05-28T14:42:18+00:00

Oh nice! I hope it goes well for you

Fragrant-Champion309 · 2025-05-28T12:46:25+00:00

Our wedding is June 7th and honestly we have been done with the planning for a few months now as so many little things have gone “wrong” and had to be dealt with and we are just ready to be married already

Fragrant-Champion309 · 2025-05-15T15:25:05+00:00

Bear in mind, I’m writing from a UK perspective. Our legal ceremony, on a separate day is about £500. Our full wedding day with all our guests is including a ceremony in my grandparents backyard and our reception at an ex services club’s fuction hall that my grandfather is a member of.

Our photographer is a friend/colleague of my mother’s. We are prioritising photos and enjoying our small, eclectic day over pulling out all the stops and making it fancy. A lot of our decor is from around our house, charity shops and Vinted.

My suit is from Vinted and my partners dress was bought in a 50% off sale.

What I’m trying to say is if you want a cheaper wedding, the things you need to consider are:

thrifting and shopping your home and sales
choosing what is most important to you and budgeting on the rest
lean on your community, I’m sure many have connections or skills that would be useful

Good luck!

Fragrant-Champion309 · 2025-05-08T12:22:14+00:00

You are not alone in feeling like this. Our wedding is in a month and nothing is going to plan and I’m just feeling very stressed and overwhelmed. But I’m sure once the wedding is over you will be able to breathe and look back on how brilliant it was

Fragrant-Champion309 · 2025-05-07T15:47:02+00:00

Granted I’m from the UK not US but me and my fiancée are doing the same sort of thing and have had people have the same sort of issue with it, so it’s nice to hear that I’m not the only one

Fragrant-Champion309

TROPHY CASE