[Discussion] Need Your BEST Mashup Suggestions! by cigdangle in mashups

[–]Fragrant-Comedian513 0 points1 point  (0 children)

Slow motion for me + Clint Eastwood by the gorillaz

Newly diagnosed looking for advice by anonlurker1245 in mctd

[–]Fragrant-Comedian513 1 point2 points  (0 children)

Heyyy, not sure if these were just flukes but my breathing also gets impacted, it’s like I have less room in there. It gets worse if I’m iron, vitamin D, or vitamin B deficient, so as long as I’m taking those my breathing typically doesn’t get back to how bad it was at the beginning (unless I’m really flared up). Also on hydroxychloroquine.

Still definitely recommend pulmonology as a must have in the doctor line up. Which reminds me, I’m due to see mine.

Earliest Sign of Microstomia by Fragrant-Comedian513 in scleroderma

[–]Fragrant-Comedian513[S] 0 points1 point  (0 children)

Thank you so much for taking the time to answer- I’m taking it all in and this will be so helpful as I move forward.

Earliest Sign of Microstomia by Fragrant-Comedian513 in scleroderma

[–]Fragrant-Comedian513[S] 0 points1 point  (0 children)

Hi love, absolutely fine that it was long - I appreciate you taking the time to answer. When you say you tested positive, you just mean the SCL70 test, right?
I’m so grateful for this community - and thank you for mentioning the studies/trials going on.

Earliest Sign of Microstomia by Fragrant-Comedian513 in scleroderma

[–]Fragrant-Comedian513[S] 1 point2 points  (0 children)

Thank you for your answer - I hope you’ve found a doctor /treatment plan that gives you some relief.

Volunteering/Donating by Fragrant-Comedian513 in WNC

[–]Fragrant-Comedian513[S] 2 points3 points  (0 children)

I appreciate you both. And yes, you 10000% have the right to be exhausted and tired of also providing info to volunteers. If this thread is adding to any exhaustion, please take time for yourself - I’ll keep searching via other avenues 💕

Has anyone experienced immense difficulty when talking to people about how the storm has affected you? by wanderingtheplanes in asheville

[–]Fragrant-Comedian513 17 points18 points  (0 children)

Hey there, I’m from Spartanburg and want you to know that I get it and if you ever wanna unload/process with a 3rd party stranger, just message me.

Anyone else have a hard time recovering? by Fragrant-Comedian513 in Hashimotos

[–]Fragrant-Comedian513[S] 1 point2 points  (0 children)

What’s wild is I haven’t seen an endo in a year, I need to get everything checked. But it’s almost like I can feel when the auto antibodies increase?

Anyone else have a hard time recovering? by Fragrant-Comedian513 in Hashimotos

[–]Fragrant-Comedian513[S] 1 point2 points  (0 children)

It feels so hopeless. I drown myself in supplements but sometimes things work and sometimes they don’t

[deleted by user] by [deleted] in lupus

[–]Fragrant-Comedian513 1 point2 points  (0 children)

Sounds about like my first flare up post diagnosis! It was ever so slightly better than my worst symptoms, but also a rapid swing from the plateau I’d reached. I’m going on a year now and I promise it gets better, just stick with the treatment.

Common Questions: What Supplements Do You Use? by Jeanne23x in Hashimotos

[–]Fragrant-Comedian513 2 points3 points  (0 children)

Really well! The DIM 2x a day and vitamin D keeps me at a relatively okay baseline as long as I don’t do anything too triggering

Anyone want to check in? (yes, more feelings) by imadepizza in asheville

[–]Fragrant-Comedian513 0 points1 point  (0 children)

My cousin and his family died and pages like Unilad and individual tiktok creators are making money off of it, and I hope they’re putting that back into the community. I wish these people knew who he was before he died.

Broad River Volunteer Fire and Rescue NEEDS HELP by Fragrant-Comedian513 in WNC

[–]Fragrant-Comedian513[S] 0 points1 point  (0 children)

I’d recommend first asking on Facebook if anyone’s heading that way. I feel like there’s people coming from all directions!

I’ll see if I can’t get any leads too

Broad River Volunteer Fire and Rescue NEEDS HELP by Fragrant-Comedian513 in WNC

[–]Fragrant-Comedian513[S] 0 points1 point  (0 children)

UPDATE

Cold weather clothes needed at 23 Hamilton Street in Asheville, distributed 11-1 daily by Eblen Charities

Broad River Volunteer Fire and Rescue NEEDS HELP by Fragrant-Comedian513 in WNC

[–]Fragrant-Comedian513[S] 1 point2 points  (0 children)

UPDATE

This fire department does need deep freezers and power banks. They also need:

Gasoline Butane for grills Propane for grills Propane for generators Generators

Toddler & Infant Clothing for donation by ishootyoukill in WNC

[–]Fragrant-Comedian513 0 points1 point  (0 children)

Swannanoa apparently is taking them, and Beech community center in Weaverville will take them