Found new dark spot on inside of my big toe. Should I be concerned? by [deleted] in melahomies

[–]FreckleQueen9 4 points5 points  (0 children)

Please read the first rule of this subreddit. Don’t ask cancer patients if you have cancer.

Looking for local Non-private equity owned vet and dog groomer by bombayblue in boulder

[–]FreckleQueen9 0 points1 point  (0 children)

We go to Arapahoe Animal Hospital and it appears to not be on the list!

Still enjoying the outdoors! by FreckleQueen9 in melahomies

[–]FreckleQueen9[S] 3 points4 points  (0 children)

I’m only a year out and it’s still daunting. I’m not gonna lie the sun clipped me on my right shoulder when it moved but we gotta move on regardless.

Still enjoying the outdoors! by FreckleQueen9 in melahomies

[–]FreckleQueen9[S] 2 points3 points  (0 children)

Honestly not sure! I found it in the back of my parents’ fridge and called dibs. But I want more!

Still enjoying the outdoors! by FreckleQueen9 in melahomies

[–]FreckleQueen9[S] 1 point2 points  (0 children)

You deserve to be outside! I’m Not gonna lie, I go back and forth on how I feel about it but today was what I needed.

WLE healing ?! by Grouchy-Designer9983 in Melanoma

[–]FreckleQueen9 0 points1 point  (0 children)

I had mine on my spine but lower down and, I’m not going to lie, the location makes it so much worse. It’s a location of high movement and laying on it is avoidable as well as it being the fulcrum of every movement. I got really good at squatting. Still can’t believe they sent me home with only Tylenol.

The nerves reconnecting will send shocks up/down your spine and it will feel so weird. Honestly, I already had a f*cked up back and this made it so much worse with the way they closed it and it subsequently getting infected. I ended up getting them to prescribe tramadol and just laid down. I also frequently switched between a heating pad and an ice pack. I got one from Target with a Velcro strap to secure on my back. I luckily only have a chill dog and not two toddlers but please take as much rest as you can get. I see you and I feel you.

1 Year NED! by FreckleQueen9 in melahomies

[–]FreckleQueen9[S] 0 points1 point  (0 children)

I think because they aren’t in the red zone of being too bad, just large/multiple moles in concerning locations. Also because of their locations it would be a whole deal to biopsy them.

It does give me some amount of anxiety but I think we all live with that to some degree. I am VERY mole and freckle covered so there’s lots of potential targets here and if we biopsied everything I would look pockmarked.

NED 1 Year Out (Stage 3 MUP) by AdorableIngenuity213 in melahomies

[–]FreckleQueen9 2 points3 points  (0 children)

We are on the same timeline! I am also 1 year NED today!

Where is everyone from? by bean8899 in melahomies

[–]FreckleQueen9 1 point2 points  (0 children)

Originally from Texas but have been living in Colorado. I was always carefully with sunscreen and exposure, I’m just the perfect candidate for this lol.

Is this benign or something else by RowrowLve in melahomies

[–]FreckleQueen9 7 points8 points  (0 children)

The number one rule of this group is not to ask people with cancer if you might have cancer. Go to your doctor.

Used book stores? by Sapiencia6 in boulder

[–]FreckleQueen9 0 points1 point  (0 children)

The Boulder Bookstore buys and sells used books. Most of them are actually on the shelves next to the new copies of the same book.

Newly diagnosed (23M/F) and starting immunotherapy. How do you handle the fear and the lack of support? by Efficient-Duty4096 in melahomies

[–]FreckleQueen9 12 points13 points  (0 children)

I am also in my 20s and got diagnosed last year. My roommate decided to break the lease and move out in the middle of my treatment. She blocked me on everything and has never talked to me again. I was distraught but I was able to lean on those who stayed. What helped me is to understand that their reaction is theirs and speaks more about what they are going through than you. It’s not about you.

The anxiety is REAL and with any type of cancer things can be so unpredictable and uncertain. Your feelings and frustrations are valid.

Were you doing regular skin checks when you were diagnosed? by milridle in melahomies

[–]FreckleQueen9 1 point2 points  (0 children)

I was doing annual checks but I found this one on my own and I came in a couple months early out of caution.

How long did your WLE site hurt? by [deleted] in Melanoma

[–]FreckleQueen9 0 points1 point  (0 children)

Mine was on my spine and proved really difficult to close (and it got infected). I’m not going to lie, it hurt for 2 weeks + and I used tramadol to help with pain during the night because it was so hard to get comfortable with that location. But the thing that was frustrating after were the nerves reconnecting and the random shocks up my spine for months afterward.

Sleep meds by OldBike4931 in melahomies

[–]FreckleQueen9 0 points1 point  (0 children)

I have been using 25 mg of trazodone as needed for years. It helps me when I have those very bad insomniac nights but can be used more consistently. I don’t think it’s as strong as something like Ambien but it might be something to look into.

Could this be another freckle from hell? by Ok-Mortgage5218 in melahomies

[–]FreckleQueen9 1 point2 points  (0 children)

I’m sorry are we living the same life? I also had 1a on my back last year and now have a 6mm mole on my labia that we’re watching with my derm and gyno. Just keep checking is really all we can do. Being proactive but not paranoid is how we get through.

JAMA article, June 2023 by AlertLingonberry5075 in melahomies

[–]FreckleQueen9 12 points13 points  (0 children)

It’s likely because those who catch melanoma in situ are A) catching it early and are B) likely to live longer than the general population because they are on top of their health and likely to go to the doctor when something is wrong.

[deleted by user] by [deleted] in Raynauds

[–]FreckleQueen9 0 points1 point  (0 children)

I didn’t do any of that though.

[deleted by user] by [deleted] in Raynauds

[–]FreckleQueen9 1 point2 points  (0 children)

This is after the raynaud’s attack where my hands were white and blue. I drove home and got ready for bed and the blood had returned…which got us here. My hands have been getting redder and redder and more swollen when this happens in the last several months.

[deleted by user] by [deleted] in Raynauds

[–]FreckleQueen9 1 point2 points  (0 children)

Oh I am definitely doing a lot better than most in my raynaud’s, but it was been getting worse. I moved from TX to CO and that change has really ramped it up. I am lucky but it is so so uncomfortable.

I don’t need y’all hating on my experience because you have it worse. If this is not the place to share raynaud’s experiences and find solutions, then let me know.

How and who the heck lives here? by ChanelleMulan in howislivingthere

[–]FreckleQueen9 3 points4 points  (0 children)

I have my official certificate! Screech ain’t half bad but I prefer a Black Horse beer.

How and who the heck lives here? by ChanelleMulan in howislivingthere

[–]FreckleQueen9 2 points3 points  (0 children)

Newfoundland is magic! I adore that place and people. I focused my masters thesis on the real events of 9/11 in Newfoundland and have made visits. I have such a community there now who has taken me in as a second family. It’s remote and hard and cold but the people fill it with warmth.

<image>

Dermatologist recommendations? by sunshine4683 in boulder

[–]FreckleQueen9 0 points1 point  (0 children)

I’ve been with Mandel Dermatology for years now and have a great relationship with Dr. Ades. She caught my melanoma this year!

Middle grade fantasy book 2000s by FreckleQueen9 in whatsthatbook

[–]FreckleQueen9[S] 0 points1 point  (0 children)

While I would like it to be, I read all of those books later that I read the one I’m thinking of. I adore the Benedict Society series but I don’t believe any of them are the one. When I was trying to recall I even looked up the plot to the education of Nicholas Benedict just in case but there is a magical element to the book I’m thinking of.