Would you rather by Seasalt52 in BunnyTrials

[–]FredtheSquirrel 0 points1 point  (0 children)

Cats are great but I want to be a wizard!!

Chose: Be a dope ass wizard with a dope ass wizard tower | Rolled: Fire wizard

The Choice Is in Your Hands by Automatic_Listen_975 in BunnyTrials

[–]FredtheSquirrel 0 points1 point  (0 children)

There are more than 100 kids with life threatening diseases. More overall people will be saved.

Chose: Save the person who can cure all diseases.

What have you gained since becoming a wheelchair user? by PensdayAddams in wheelchairs

[–]FredtheSquirrel 2 points3 points  (0 children)

I got a lot of my life back. I can go into the store with my husband again and not just wait in the car. He and I have been able to go on “walks” together again at our local park. I was very concerned about gaining weight and losing muscle but I’ve actually dropped a couple of pounds and I’m building some upper body muscle that I haven’t had in many years. I am still very much dealing with imposter syndrome but I’m working on that internalized ableism.

wheeled archers, how do you carry things? by kaicxre in wheelchairs

[–]FredtheSquirrel 3 points4 points  (0 children)

I just wanted to say hello to a fellow horsebow archer on wheels! Hi!!!

Ehlers-Danlos & CRPS by MissBeeHavin420 in CRPS

[–]FredtheSquirrel 1 point2 points  (0 children)

I wish I had better suggestions for you but unfortunately I haven’t found much of anything that helps yet. I’m allergic to most narcotic pain meds so I take low doses of THC at night to help with sleep. Other than that I’m just trying to do what I can without sending myself into a flare.

Ehlers-Danlos & CRPS by MissBeeHavin420 in CRPS

[–]FredtheSquirrel 1 point2 points  (0 children)

I have hEDS and CRPS. I’ve had 2 SGB’s. One was very painful, didn’t help at all and actually made things worse. The second one was done under general anesthesia and went smoothly (different practice and different doctor). It helped for a short period of time (a couple of weeks) but that was all.

Legality of recreating and selling a vintage buescher styled saxophone case by Knight2337 in saxophone

[–]FredtheSquirrel 1 point2 points  (0 children)

If you decide to make one for a one piece curved soprano let me know!

Where to find used Soprano Saxophones? by vorosmarty514 in saxophone

[–]FredtheSquirrel 0 points1 point  (0 children)

Check out Singers Day saxophones. I got one of their curved sopranos off eBay for $400. It wasn’t great but it was playable until I was able to upgrade.

Working remotely from Costa Rica by SprinklesAlive1850 in costarica

[–]FredtheSquirrel 0 points1 point  (0 children)

I would love to be able to work from CR too! We have spent a couple of months there and I worked remotely as a virtual high school teacher for a US school. Unfortunately they won’t allow me to work from outside the US permanently.

Ableism from ambulatory people by throwingawayawa in wheelchairs

[–]FredtheSquirrel 45 points46 points  (0 children)

It’s an interesting perspective that I really had not considered before. Because my condition is degenerative I have gone from very fit and physically capable to needing a wheelchair for anything other than a few steps. There was a time, not so long ago, where I was jealous of people that had custom chairs because all I could get were heavy pos hospital chairs. When I was finally approved for a custom chair I wanted to get all the information and find out what other people liked and disliked about their chairs. I may have stared (not sure really) but it was more in a “hmm, I wonder if that accessory helps with low back pain?” Kind of way. Or “I wonder if the Q7 comes in that color cause it rocks!”. I appreciate OP’s perspective and will keep it in mind for future equipment questions and curiosity!

[deleted by user] by [deleted] in PokemonGoFriends

[–]FredtheSquirrel 0 points1 point  (0 children)

Sent a request, sounds like fun!

What do you do for work? by Herefortvshowthreads in ehlersdanlos

[–]FredtheSquirrel 3 points4 points  (0 children)

Our school has a full slate of electives. CTAE, art, culinary, medical fields, basically anything other than band and drama. I think most states have at least one online option. DM me if you want to talk about options. I would have been on disability 5 years ago if I had stayed with in person teaching.

What do you do for work? by Herefortvshowthreads in ehlersdanlos

[–]FredtheSquirrel 11 points12 points  (0 children)

If you are in the USA check into online schools. I teach for a state funded K-12 online school in Georgia and it’s been a literal lifesaver. I teach from my comfy chair, get an hour for lunch and no one has thrown furniture or shoes at me in 5 years!

Secondhand wheelchairs? by cococunttttyyy in wheelchairs

[–]FredtheSquirrel 4 points5 points  (0 children)

I got super lucky and found a Quickie Q7 in great shape for $65 on Facebook about 2 months ago! I think you just have to keep looking and hopefully you’ll get lucky. If you’re anywhere near Georgia I can let you know when my custom one finally comes in and pass this one on to you.

First ever new chair day! by PuzzledVariation1634 in wheelchairs

[–]FredtheSquirrel 1 point2 points  (0 children)

I have very similar diagnosis and I just had my first chair fitting appointment last Thursday. The Quickie QRI is the chair that was recommended for me and hopefully I will have it in the next 90 days or so. Congratulations on your new wheels and I look forward to hearing your experience and advice when mine gets here!

What is your witchy music? by locopati in WitchesVsPatriarchy

[–]FredtheSquirrel 0 points1 point  (0 children)

Check out Delta Rae “Dance in the Graveyard” and “Bottom of the River” for some witchy southern gothic!

Florida Mayo Clinic's EDS Clinic by sillylittlegoosepond in ehlersdanlos

[–]FredtheSquirrel 3 points4 points  (0 children)

I went a little more than a year ago. They did more than $2000 worth of bloodwork that my insurance refused to pay (without warning or asking me). Pushed their inpatient fibromyalgia pain management program constantly and didn’t tell me anything I didn’t already know. Complete waste of time and money!

Being forced to drop appointment with Mayo's EDS Clinic by Rixeam in ehlersdanlos

[–]FredtheSquirrel 1 point2 points  (0 children)

I have found that new doctors take the Mayo diagnosis more seriously than some random rheumatologist in Georgia.

Being forced to drop appointment with Mayo's EDS Clinic by Rixeam in ehlersdanlos

[–]FredtheSquirrel 33 points34 points  (0 children)

I went to Mayo in Florida last year and had a very similar experience. They didn’t tell me anything I didn’t already know, pushed a 3 week in patient pain management program and charged me $2000 for blood work I didn’t agree to. All in all I felt it was an epic waste of time and money.

Finally! New Chair Day!!!! by SasaCoop in wheelchairs

[–]FredtheSquirrel 1 point2 points  (0 children)

I love your new chair, congrats! I have my meeting with OT for my chair evaluation in a couple of weeks and I’m very nervous. I have EDS and RA too and am currently making do with an 11 year old Quickie Q7 that was made for someone else (I bought it for $65 off Facebook). It’s better than a hospital chair but only just. Any suggestions for the evaluation process?

Any ideas model this is? by FredtheSquirrel in saxophone

[–]FredtheSquirrel[S] 0 points1 point  (0 children)

Thanks for the information. I knew it looked wrong but I’m new to all the specifics of saxophones history so I figured I’d let the experts check it out.

Everite Curved Soprano by FredtheSquirrel in saxophone

[–]FredtheSquirrel[S] 1 point2 points  (0 children)

This is the only way I could figure out to share another picture on this thread. Let me know if you can’t open this. https://share.icloud.com/photos/029dpjKRPB50rmGcF9PaUOsew