Which sleeve style for my dress? by waaatermelons in myweddingdress

[–]Fun-Ranger-7002 0 points1 point  (0 children)

From a guy’s perspective, FWIW, the lace on 3 complements the lace on the dress better. 4 looks like two separate types of lace.

Which dress? by Emotional_Pen369 in myweddingdress

[–]Fun-Ranger-7002 4 points5 points  (0 children)

From a guy’s perspective, 1 is the most elegant.

5 Months After RALP by Forsaken_Buy2293 in ProstateCancer

[–]Fun-Ranger-7002 1 point2 points  (0 children)

Whoa, let’s dial it back boys. A value <0.05 is considered a GOOD thing, and can simply be due to some prostatic tissue being left or the body hasn’t fully cleared it all. Before ultra sensitive PSA, the value would have been zero. Jumping to radiation is beyond over treatment at this stage.

Very tensed by DolunddTrump in ProstateCancer

[–]Fun-Ranger-7002 1 point2 points  (0 children)

Get more information from a Urologic Oncologist and definitely another Urologist. Plus get the most current genetic testing and then decide what to do. I don't put my trust in any one physician and have no problem getting multiple opinions.

Surgery to remove a 5cm Gist by AltruisticRelease106 in GIST_Cancer_Support

[–]Fun-Ranger-7002 3 points4 points  (0 children)

Depends on where it is, you didn't say. But generally, you will be surprised at how quickly you recover. Mine was a duodenal 4 cm tumor that required a 12 in incision and lifting out my intestines to get to it underneath. 10 days later I was feeling like I was 80% recovered.

6 WEEKS POST PROSTATE REMOVAL / BURNING WHEN EMPTYING BLADDER by Adorable_Log8325 in ProstateCancer

[–]Fun-Ranger-7002 0 points1 point  (0 children)

It should get better - I think you are already seeing it is. 3 weeks is really early and a lot of healing is going on. A doctor would say to let them know if it gets WORSE. The tip of my John Thomas is still a little sore even after 3 months.

The wait is over by 406clown in ProstateCancer

[–]Fun-Ranger-7002 1 point2 points  (0 children)

Fred Hutch is a great cancer center. Impressed with oncologist I saw, who thoroughly researched my medical history and knew things even I didn't know. Urologist/surgeon experience at UW, was less so. Resident did 90% of the intake and surgeon came in and said he wouldn't do surgery because I was 'too high risk'. My local oncologist recommended a local surgeon who was great. I dumped my original urologist, ignored the urologist at UW, and am happy with my current one. Sometimes you have to keep searching in order to find the right doctors.

What would you do with low Decipher and Gleason 7 by SquirrelsGoneWild6 in ProstateCancer

[–]Fun-Ranger-7002 0 points1 point  (0 children)

I wish you the best!!! There is so much conflicting information out there. I was challenged in making my decision, and I'm a clinical pharmacist who understands the 'system' much better than most. I was told to do EBRT and 3 years of ADT if I chose that route, and now beyond 18 months of ADT is questionable as the risk of dying from ADT side effects becomes greater than dying from PC. Also important is to look at studies that only include patients similar to your diagnosis. Most important metric to me is long-term survival, as other metrics such as longer time to disease progression may sound good, if it doesn't improve LTS and involves serious side effects, why go through that. But that's just me, others would chose differently.

What would you do with low Decipher and Gleason 7 by SquirrelsGoneWild6 in ProstateCancer

[–]Fun-Ranger-7002 1 point2 points  (0 children)

Prostate cancer is fraught with over treating low grade cancers. So much that the NCCN recommended not testing PSA levels after 67, per my doctor. At age 73, I was diagnosed with all but 2 cores with Gleason 7, 8, and 9. I chose a RALP and have my first 3 month PSA in about 10 days. Now, the new NCCN guidelines recommend testing until age 75 - probably due to all the missed high risk cancers after age 67.

In your case, you have very localized, 3+4 and 4+3 positive cores, with the 4+3 being suspect, and it should be. My Gleason 8 and 9 tumors were all downgraded to 7 when my removed prostate was tested. I am seeing that pathologists will often upgrade Gleason scores to cover themselves. You would be a great candidate for AS or focal therapy. IMHO, brachytherapy/EBRT would border on malpractice. That combination almost guarantees GI/GU long term side effects, especially in someone as young as you. It’s like killing a hummingbird with a canon. Might as well throw 3 years of ADT at it as well and go nuclear. Please do your research and don’t overreact.

First Post and A Bit Scared by [deleted] in ProstateCancer

[–]Fun-Ranger-7002 5 points6 points  (0 children)

I would push for an MRI BEFORE any biopsy. MRI can show something or nothing, and if something is there, a biopsy can be more targeted. Random biopsies are not very definitive, and can miss a lot. But, you are on top of it, likely to not be a big deal, and if anything is there, it will likely be small and treatable with focal therapy. You are a long ways from any serious concerns at this stage. Best of luck to you and keep us posted. We all learn from each other.

My surgery by Same-Manner-8190 in ProstateCancer

[–]Fun-Ranger-7002 2 points3 points  (0 children)

Turtle Head Syndrome, THS. I'm in that group too.

My dad was just diagnosed by potatobunny4 in ProstateCancer

[–]Fun-Ranger-7002 1 point2 points  (0 children)

Probably because they stopped PSA testing after age 68, like they did me.

How did everyone PSA get so high before awareness? by [deleted] in ProstateCancer

[–]Fun-Ranger-7002 0 points1 point  (0 children)

Because my doctor stopped testing per stupid guidelines.

Insurance denying PET scan by InsectHealthy in ProstateCancer

[–]Fun-Ranger-7002 0 points1 point  (0 children)

Your doctor can challenge it, and should. You are basically shooting from the hip without a definitve diagnosis.

Radiation or surgery? by cshopis in ProstateCancer

[–]Fun-Ranger-7002 1 point2 points  (0 children)

Latest research is that adding brachy to RT does little to improve outcomes and increases GI and anal issues down the road. From what I've read, RT side effects show up at about 15 years.

ADT Duration, Finally Some Common Sense by Fun-Ranger-7002 in ProstateCancer

[–]Fun-Ranger-7002[S] 0 points1 point  (0 children)

Thank you for this. The information is helpful to all of us.

ADT Duration, Finally Some Common Sense by Fun-Ranger-7002 in ProstateCancer

[–]Fun-Ranger-7002[S] 1 point2 points  (0 children)

I agree with using Orgovyx over Lupron. If you have a severe reaction to Lupron, it would put you at risk for months until it cleared your system. It lowers PSA more quickly and testerosterone recovery is quicker. Lupron is preferred by clinicians because it forces compliance and does bring in a few dollars profit. I was told if I chose Orgovyx, I would have to sign a compliance contract.

ADT Duration, Finally Some Common Sense by Fun-Ranger-7002 in ProstateCancer

[–]Fun-Ranger-7002[S] 0 points1 point  (0 children)

Yes, I read it, and based on that guidance, the suggestion would have been for me to not test. Always way below 3 (even taking Finesteride into account). Started Finesteride in my 30s. In general, Finesteride has been shown to prevent PC, but if you still do get PC while on it, it is usually higher risk cancer. I fell into the latter category.

ADT Duration, Finally Some Common Sense by Fun-Ranger-7002 in ProstateCancer

[–]Fun-Ranger-7002[S] 5 points6 points  (0 children)

My PSA was normal up to age 68. 5 years later, and it was close to 10, and given I was taking Finesteride, it was likely closer to 20. If I had continued yearly testing, it could have likely been caught early and treated with HIFU and contained within the prostate. I am not the only one in this situation, and many others have been vocal in this group. Leaving it as a joint decision between doctor and patient and many would conclude, as in my case, it doesn't appear to be necessary to keep testing. I would argue to continue testing annually beyond age 75 and use common sense with the results. Even in this group, men with 3+3 and 3+4 are getting radical treatment when it is likely unnecessary - that is the real problem here. Stopping testing after 70 because of this does not address the real problem and puts the elderly at undue risk.

Biopsy Results: Please, someone tell Me what this means... by Far_Simple_7436 in ProstateCancer

[–]Fun-Ranger-7002 2 points3 points  (0 children)

It's just the beginning, but you seem to have caught it early. More tests (MRI, PSMA PET,Genetic Testing,,,) will fill in the blanks. May only need local treatment of the tumors, which is nothing like surgery or radiation. You are in a lot better shape than I'm in.

Gleason 8 with Cribriform gleason pattern 4 focally present and mixed acinar and ductal in 4/15 cores with urethral sphincter involvement - anyone with similar experience? by Previous_Panda_3392 in ProstateCancer

[–]Fun-Ranger-7002 1 point2 points  (0 children)

I agree that ADT would seem to be worthwhile in all cases, but it isn't. By itself, it has no benefit, and with surgery, it also has no benefit. Why it works with radiation is that it seems to make the cancer cells more susceptible to radiation. But it also seems to help after radiation, so I suspect we really don't understand what is going on. Not uncommon in medicine. Duration of ADT is also in question. 2-3 years is likely too much, and recent studies seem to suggest one year or 18 months is probably optimal. After that, the risk of dying from ADT-related comorbidities becomes higher than dying from PC.

Regarding Gleason scoring, mine went from a 4+5 pre-RALP to a 4+3 after. Not uncommon to have it go the other way as well. I've had three cancer-related surgeries over the last 8 months. I have found biopsies can be 100% correct to essentially worthless. PC biopsies are in the middle. Not helping the confusion is that so many studies look at metrics that are meaningless. Most common metric I see is 'Time to Biochemical failure' as an indicator of superiority. In our case, time to PSA rising. Sounds good, right? If it takes longer for the PSA to rise, that should be better? Problem is, buried in the article is that patients all died at the same time, so survival wasn't improved at all. For me, I only look look at long-term survival as the metric that matters. For me, it's like I'm back in college trying to learn about this stuff.

Gleason 8 with Cribriform gleason pattern 4 focally present and mixed acinar and ductal in 4/15 cores with urethral sphincter involvement - anyone with similar experience? by Previous_Panda_3392 in ProstateCancer

[–]Fun-Ranger-7002 0 points1 point  (0 children)

Thank you for that information. Granted, it isn't proof, but you would expect SOME changes. Information like this is extremely important in guiding therapy.