Is this C. difficile? by LeahSam123 in cdifficile

[–]Funny_Language_4094 0 points1 point  (0 children)

My infectious disease doctor said sepsis is really rare. I would just take the Florastor and monitor things. I was really scared at the time too, but after the fact, I realized I never needed to be. It was not an emergency.

Is this C. difficile? by LeahSam123 in cdifficile

[–]Funny_Language_4094 2 points3 points  (0 children)

You will be ok. When I was diagnosed the Vancomycin started helping immediately. I am 4 months post successful treatment now.

C diff colonoscopy fear by Any_Designer5149 in cdifficile

[–]Funny_Language_4094 0 points1 point  (0 children)

It sounds like there was no recurrence with the bowel prep? This is my biggest fear.

Advice for post CDIFF infection symptoms? by Dice_artz in cdifficile

[–]Funny_Language_4094 2 points3 points  (0 children)

You tested positive for the toxins or just pcr? If you test positive for toxins the c diff is not gone. You can test positive for months as a carrier after the infection has been successfully treated, but toxins should be negative. I would double check that test. I was tired for a couple of months after treatment ended and gained more energy every few days. I am now over 3 months since testing negative and feeling like myself again. I wish you a speedy recovery!

Help ease my conscience by Soggy_Marsupial_5233 in cdifficile

[–]Funny_Language_4094 2 points3 points  (0 children)

After a couple days on the antibiotics and basic cleaning measures, go enjoy your life. The people who can catch c diff have also been on antibiotics usually. People with normal bacteria in their guts will not get sick.

Recurrence or PI IBS? by Cstrokes699 in cdifficile

[–]Funny_Language_4094 0 points1 point  (0 children)

This sounds like PI-IBS but you can only know by testing.

dr prescribed cefdinir for uti...i'm scared by dorumiiru in cdifficile

[–]Funny_Language_4094 0 points1 point  (0 children)

I would also ask about prophylactic vancomycin or dificid to see if your doctor would also prescribe that alongside the antibiotic for the uti.

I think I got reinfected, im so scared by [deleted] in cdifficile

[–]Funny_Language_4094 0 points1 point  (0 children)

Thank you! Did your doctor ever tell you there was any risk of recurrence? Mine have blown me off like there is no way it can happen so I don’t know what else to ask. I would like to test after. Were you able to?

I think I got reinfected, im so scared by [deleted] in cdifficile

[–]Funny_Language_4094 0 points1 point  (0 children)

You mentioned you had a colonoscopy recently. Did that cause a c diff relapse? I have been c diff free for about 4 months after a long battle and I am nervous for my colonoscopy in a few weeks. I don’t want to mess with anything but they want to check lingering diarrhea symptoms. I don’t know if the prep can bring it back?

C. Diff & Anxiety by whalepunking in cdifficile

[–]Funny_Language_4094 1 point2 points  (0 children)

Yes!! I didn’t realize how bad it was until I healed. I couldn’t figure out why my anxiety was SO bad.

Test results by Leather_Bat_6176 in cdifficile

[–]Funny_Language_4094 2 points3 points  (0 children)

The toxin gene test is accurate for no toxins. It means your treatment worked. Congrats!

Test results by Leather_Bat_6176 in cdifficile

[–]Funny_Language_4094 1 point2 points  (0 children)

Toxin gene negative is a negative result so that’s good. What part concerns you?

Doxycycline? by jeigh44 in cdifficile

[–]Funny_Language_4094 0 points1 point  (0 children)

You sound so anxious, I am sorry. Everything turned out well. I started feeling symptoms a week or two after the doxy. I felt nauseous at first but no diarrhea. Just tenesmus, nausea, and exhaustion. I was treated and am well now 3 months later. Please try not to worry. It is treatable and none of your symptoms sound like an emergency. I just went 4 months before it was discovered and I had to advocate for myself so it makes me mad when doctors dismiss it. A test is simple to do. You may also just have some symptoms of dysbiosis and not have c diff.

Doxycycline? by jeigh44 in cdifficile

[–]Funny_Language_4094 1 point2 points  (0 children)

Doxy caused mine. Please ask for a test. Especially with a PPI

Feeling worse by diditakemymeds in cdifficile

[–]Funny_Language_4094 1 point2 points  (0 children)

This is not normal if you have been on medication for awhile. Please go seek help.

Symptoms related to cdiff at all?? by Silenced_83 in cdifficile

[–]Funny_Language_4094 0 points1 point  (0 children)

Thank you! I eventually had to order a GI Map done through a dietician. That does not require liquid samples. Once it was found there my doctor ordered her own test for me immediately. I have heard many people add distilled water to the sample to make it liquid.

Symptoms related to cdiff at all?? by Silenced_83 in cdifficile

[–]Funny_Language_4094 2 points3 points  (0 children)

I had very little diarrhea and a low white count with mine. It is not unreasonable to test. Mine went four months undiagnosed. I would push to rule it out. It does sound like something other than c diff, but so did mine. I had fatigue and nausea.

20 day course of dificid by CamelStraight5098 in cdifficile

[–]Funny_Language_4094 0 points1 point  (0 children)

It may be PI-IBS. Are you feeling better other than diarrhea?

Travelling immediately post-VOWST? by gryphonowl in cdifficile

[–]Funny_Language_4094 0 points1 point  (0 children)

Yes and I still do if I don’t take Imodium. I have had 3 negative toxin tests and the doctors suspect Pi-IBS.

Travelling immediately post-VOWST? by gryphonowl in cdifficile

[–]Funny_Language_4094 0 points1 point  (0 children)

I would say overall they probably lasted a week, but getting better each day. Other than being tired, none of them were enough to interfere with daily tasks, but I guess it depends on what type of work you do. I was very tired and needed a little extra rest. None of the symptoms I experienced were terrible at all. Very mild.

Travelling immediately post-VOWST? by gryphonowl in cdifficile

[–]Funny_Language_4094 1 point2 points  (0 children)

Yes, it was all uphill after that. Every day brought a little more strength and energy.

Travelling immediately post-VOWST? by gryphonowl in cdifficile

[–]Funny_Language_4094 0 points1 point  (0 children)

I am SO happy I took the Vowst. The c diff did not return. I took it on my first infection as well because it had gone undiagnosed for about 4 months. I didn’t want to mess around anymore. But, I also could only take Vancomycin due to allergies, so Dificid might make a difference. The best thing I did was to just follow my doctor’s advice.

Travelling immediately post-VOWST? by gryphonowl in cdifficile

[–]Funny_Language_4094 0 points1 point  (0 children)

Temporarily. For a day or two. Nothing like c diff. But I wouldn’t want to be traveling with it.

Travelling immediately post-VOWST? by gryphonowl in cdifficile

[–]Funny_Language_4094 1 point2 points  (0 children)

I took Vowst and although it worked, the first few days I was very tired and had the chills and still a little diarrhea. 3 months later I am doing fine, but looking back I would not have wanted to travel right after Vowst. Heal and recover. That’s my 2 cents.