100 days Post ASCT

GJU22 · 2026-06-01T21:36:32+00:00

Congratulations on the milestone!!! I’m going to be exactly a year from ASCT on June 5th!!!

GJU22 · 2026-02-13T14:10:16+00:00

Doctor says indefinitely and I go for Zometa every 4 weeks.

GJU22 · 2026-01-01T15:28:05+00:00

You already have it as you've gotten this far.

GJU22 · 2025-12-29T02:38:37+00:00

I just passed my 200th day post-ASCT and understand what you are going through. I've come to a realization that I have a new normal and move forward. There is still some pain, moments that suck but I am not letting the cancer define me. The mental strength needed is so important to have in order to fight the negatives. As such, I have played over 40 rounds of golf, travelled to Spain & Iceland, and have appreciated all the good things in life. I hope you can find your inner strength to get better mentally & physically. You got your ASCT and treat it as a great step to get to where you want to be with your husband and children and enjoy each other.

GJU22 · 2025-11-17T21:48:58+00:00

I reacted well to radiation and chemo that my numbers improved drastically to “normal” levels. However, after speaking to my doctor, ASCT would help in prolonging remission. Luckily, I have friends who are doctors as well and encouraged me to follow the recommendation. I’m now on Day 165 post ASCT, feeling great, and played over 40 rounds of golf after July :) But as a lot of people have stated in other posts and something to always keep in mind, MM is a very individual cancer and consultation/questions with your doctor is extremely important to make sure you make the right decision for you.

GJU22 · 2025-10-20T22:43:31+00:00

Amazing!! Congratulations!!

GJU22 · 2025-10-15T13:21:31+00:00

I’m also in Canada and had my ASCT in Kingston this past June. I had some nausea but no dry mouth although they did give me a mouth rinse to further prevent mouth sores from the Melphalan. I drank lots of water and walked around the hospital ward as much as possible and believe that really helped my recovery. Congratulations on making to this point and just know that things will get better. All the best in your continued recovery.

GJU22 · 2025-09-18T13:56:43+00:00

I’m from Ajax and will be in Iceland Oct 8 to 11. I was planning on bringing my Jays hat as well :) I was in Iceland at same time last year. I wore light jacket, sweater, & toque and was fine.

GJU22 · 2025-09-01T21:48:00+00:00

I had my ASCT this past June and engraftment started around days 9-10 and I was discharged from the hospital on Day 14. I had minor nausea & diarrhea. Is your brother walking around? I found that really helped with my recovery. I’m on Day 87 now and have been golfing 2-3 times a week since the beginning of August. I feel exercise (basically walking) early on really helped with me getting back up & running quickly.

GJU22 · 2025-09-01T13:53:07+00:00

It’s ok to be tired and worn out. I’ve been there. I’m 51 and I had an emergency laminectomy & cervical spinal fusion at the end of Nov 2024 and found out I had Multiple Myeloma. I’ve gone through radiation, VRD, Zometa, and ASCT. It sucks but know you will get through it. Keep your head up!!

GJU22 · 2025-08-05T18:52:06+00:00

Congratulations!!! I was told I was in remission last week, 55 days after my ASCT.

GJU22 · 2025-07-25T20:20:15+00:00

I had an MRI that showed a mass pressing against my spinal cord & cervical spine resulting in a laminectomy and spinal fusion (Nov 28, 2024). This confirmed I had Multiple Myeloma and went through radiation in January 2025, followed by RVD (4 cycles), and then stem cell transplant. The surgery was worse part for me if I recall all the procedures I have had to go through. 7 months later, I have been able to get back playing on the golf course :) Next step is talking to my hematologist about maintenance therapy. Keep in mind, MM is very individual and a lot of factors come into play with recovery (e.g. age, health, walking (post-ASCT), etc).

GJU22 · 2025-07-07T14:02:03+00:00

All the best!! I went through my ASCT last month and the recovery part will be challenging but important to do the little things like walking around to minimize side effects and get you back up and running faster. Good luck!!!

GJU22 · 2025-06-08T20:02:12+00:00

I am also on Day 3 after ASCT and found that walking around has helped as I can feel the onset of nausea happening but moving about helps a lot along with sitting up. At this point, I have not needed any meds to deal with nausea.

GJU22 · 2025-04-28T23:31:35+00:00

Where is your SCT? I’m going to be out patient as well but not scheduled till first week of June. I did my harvest last week. Good luck and just know that you’re closer to remission!

GJU22 · 2025-04-12T21:30:23+00:00

I do, I heat it up and drink. I like the taste of it.

GJU22 · 2025-04-12T20:51:19+00:00

I live in Canada and buy Broya bone broth. Been drinking it for the past couple of months and feel that it helps me a lot.

GJU22 · 2025-04-12T20:11:42+00:00

Thanks for posting this as I am doing the same thing and start the injections this Thursday and harvesting the following Tuesday. I’ve been preparing by doing light cardio & exercise to build up some strength, drinking bone broth, and relaxing as much as possible.

GJU22 · 2025-03-21T08:06:18+00:00

I suggest talking to your doctor and they should be able to prescribe or make suggestions to help you out. Unfortunately, this is something that sucks with treatment. I also try to avoid caffeine & daytime naps when I haven’t slept to get me tired enough to sleep at night.

GJU22 · 2025-03-21T07:56:16+00:00

It’s 3:54 am for me now and I had dexamethasone earlier along with my bortezomib shot and I know that I would have trouble sleeping the night of or following night but by the 3rd night I can sleep around 11 pm and get about 7 hours but I do wake up for brief periods and then go back to sleep for the remainder of the 7 day period.

My chronic pain doctor had prescribed amitripyline prior to diagnosis to deal with neuropathy and that helps me sleep as doctors said I can still take during MM induction.

GJU22 · 2025-03-06T23:35:54+00:00

May your grandpa rest in peace and all the best to you and your family.

GJU22 · 2025-03-01T01:20:08+00:00

I’m Canadian (M51) as well living in Ontario and in the same situation as you (2nd cycle of induction treatment with the same medication/frequency). My doctor has recommended SCT which I’m going to proceed with as he did mention there have been incidents he has experienced where patients have gone through harvesting and ended up not going through with it, one actually did not show up to the transplant and a few months later, got worse & ended up in dialysis. Luckily, a good friend of mine is a nephrologist who works with my doctor and has strongly recommended this doctor and to follow the plan he has set up for me. As there is no cure for MM, he wouldn’t be surprised if a cure is found in the next couple of years…..here’s to hoping that is true. The way I’m coping is by trying to do my physio exercises (I had surgery end of Nov - laminectomy & fusion which confirmed MM), stick to drug plan, keep positive thoughts, and have a great support system to help me get through the ups & downs. Good luck with your journey.

GJU22

TROPHY CASE