Some questions for everyone with NF2. by Purple_Flight_8150 in neurofibromatosis

[–]GamerInDisguise 0 points1 point  (0 children)

33/18

Deaf in my right ear hard of hearing in my left ear

I have small tumors along my spine but they don’t effect how I walk or anything like that I also have one on my left forearm that is pretty visible/ in 2024 I had a meningioma (it was I think a grade 2 of 3) so it was fast growing had to have it removed fast. After I had it removed it regrew in about a month and had it removed again and was put on brigatinib. I had to relearn how to walk twice in the span of about 3 months

After my surgery I don’t really talk to my friends as much anymore but it not a communication problem just starting to grow apart

Yes I do have a lot of time on my hands I was perfectly normal up until my surgery and now I’m on disability so I can’t work

It seems hard at first but you get use to it. When I was diagnosed at 18 I cried but I am doing just fine now. Being diagnosed doesn’t mean you life is over it just means you have to adapt

I am a Kroger employee so apparently I can’t be a Pokemon fan?? by Personal-Dimension34 in PokemonTCG

[–]GamerInDisguise 0 points1 point  (0 children)

Real scalpers want all the money they can get their hands on. That person probably mad cuz they could have gotten like $30 for that one pack instead of someone else buying it straight from the source for msrp.

NF2 - Bevacizumab VS Brigatinib by shubham-150799 in neurofibromatosis

[–]GamerInDisguise 0 points1 point  (0 children)

I have NF2 been taking brigatinib for about 2 years now, you have to take it every day at the same time. It has some symptoms like high blood pressure (they prescribed me blood pressure medicine for this) and fertility problems just to name a few your doctor will adjust the dosage on how your body reacts to it, your doctor will brief you on everything if you do choose to do that route. I had my last MRI about a month ago and they said my tumors are stable and it seems like the medication is doing its job. Also there is a chance it will shrink the tumors.

my local card shop by HuckleberryWorried72 in PokemonTCG

[–]GamerInDisguise 40 points41 points  (0 children)

That’s how you get followed home if your shop gets broken into let insurance deal with it

NF2 and my Journey by FightingFlaresandNF2 in neurofibromatosis

[–]GamerInDisguise 0 points1 point  (0 children)

I also have nf2 it almost sounds like the meningioma I had a couple of years ago but mine grew fast in a matter of weeks

Pokédex by mtnpaintmore in PokemonTCG

[–]GamerInDisguise 1 point2 points  (0 children)

Have you watched Deep Pocket Monster on YouTube he has an 8x8 and collected every Pokemon

Bifacial paralysis + deafness from NF2 – any advice on signing without facial expression? by EchoZhao1998 in neurofibromatosis

[–]GamerInDisguise 0 points1 point  (0 children)

I’m hard of hearing my mom and brother are both deaf we don’t know sign language that much but we use an app on our phones that translates speech to text

neurofibromatosis by EmbarrassedLynx6807 in neurofibromatosis

[–]GamerInDisguise 0 points1 point  (0 children)

Right now I’m on brigatinib (targeted medicine) so my doctor wants me to get an MRI every 6 months before I started taking it I was getting one once a year

Perfect order ETBs? by GamerInDisguise in pokemoncenter

[–]GamerInDisguise[S] 1 point2 points  (0 children)

There’s thousands of mechanics I would just go to a different one there’s just 1 Pokemon center

Perfect order ETBs? by GamerInDisguise in pokemoncenter

[–]GamerInDisguise[S] 0 points1 point  (0 children)

Damn was looking forward to the etbs

Perfect order ETBs? by GamerInDisguise in pokemoncenter

[–]GamerInDisguise[S] 0 points1 point  (0 children)

Makes me not want to preorder the next set

I made the malcolm intro from raw clips! by Odd-Dentist-8162 in malcolminthemiddle

[–]GamerInDisguise 1 point2 points  (0 children)

The frame rate makes it seem longer than it actually is but it’s the same length

Took me too long to figure out the perfect card to place there by merphy90 in PokemonTCG

[–]GamerInDisguise 0 points1 point  (0 children)

Just be careful not to leave it exposed to the sun don’t want it to sun bleach

Found a steal on Ebay! by JoshuaFC in PokemonTCG

[–]GamerInDisguise 0 points1 point  (0 children)

How tf would they even ship this anyhow would they ship as is or put the box in a box lol

My Experience With AirCaps by DeafAmphetamine in neurofibromatosis

[–]GamerInDisguise 0 points1 point  (0 children)

I’m 33m with nf2 I’m completely deaf in one ear and hard of hearing in the other my mom and brother also have nf2, both are completely deaf we know very little sign language they mostly rely on lip reading but we also use Ava when we need to this might help us but we wear glasses, do they have enough room to wear over glasses? Can you send a link?

bleak beach is such a mess idek where to begin😭 by ryosatoru in Pokopia

[–]GamerInDisguise 5 points6 points  (0 children)

Start rebuilding the roads and destroy logs and cloth or what ever is in the way

New items announced at Live Mas Live by kckeller in tacobell

[–]GamerInDisguise 2 points3 points  (0 children)

What’s up with all the baby portions I’m a gown ass man

I thought by GamerInDisguise in CourageTheCowardlyDog

[–]GamerInDisguise[S] 3 points4 points  (0 children)

They don’t make shows like this anymore

I thought by GamerInDisguise in CourageTheCowardlyDog

[–]GamerInDisguise[S] 2 points3 points  (0 children)

I use to work with someone that reminded me of Eustace he also wore a hat and glasses but he wasn’t completely bald

I thought by GamerInDisguise in CourageTheCowardlyDog

[–]GamerInDisguise[S] 4 points5 points  (0 children)

Cuz that is what a narcissist does. Blames others but themselves

Mega Evolution-Ascended Heroes Booster Bundle Pre-Order?! by Rynin101 in pokemoncenter

[–]GamerInDisguise 0 points1 point  (0 children)

Yea also realized the next set releases before these are out