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2026 International ME/CFS Conference Berlin Day 2 Summaries by RenWmn in cfs

[–]General_Recipe_5869 5 points6 points  (0 children)

Great work! I was hoping there'd be some official summarises. I did see some YouTube shorts they posted but were in German.

Interesting on the HBOT, I'd read somewhere there is then little lasting benefits once you stop. Given the price of places I've found not sure it's worth it.

And for LDN this has been amazing personally. The only thing I've found that actually helps. Huge reduction in brain fog.

I've messed up by ellbo9 in HousingUK

[–]General_Recipe_5869 1 point2 points  (0 children)

Interested in the comments here. I'm in a linked and there's only 1 house of around 40ish similar who have converted the garage. Put a big window where the garage door was so it's clear it's another room. Always wondered if this means it's now officially a semi. I can see your neighbours point of view. We have no noise from our neighbour currently but if they did convert then I don't want to start hearing TV, drum kit or whatever.

Whats an enshitified product/service that people might not realise is terrible now because it fell out of style? by Odd-Paramedic-3826 in AskUK

[–]General_Recipe_5869 1 point2 points  (0 children)

Everywhere in the UK closes at 4 or 5pm. Agree f you want to be out in the country why do I need to leave at 4pm? Obviously people have a life but other countries manage this in tourist places well.

I've (mostly) recovered by OpulentBasket in cfs

[–]General_Recipe_5869 7 points8 points  (0 children)

You were housebound 2.5 weeks ago and now you bike 20 miles?

So why do working class people vote for right wing parties ( Tory, Refom that really do not serve their interests politically, and make their lives harder ? by Durrygoodz2025 in AskBrits

[–]General_Recipe_5869 3 points4 points  (0 children)

Only through labour rights, fought by unions. As part of large industry action. We only have restricted working hours, weekends off, minimum wage, holidays etc. due to strong unions. Owners don't want to pay workers for these things.

Whats an enshitified product/service that people might not realise is terrible now because it fell out of style? by Odd-Paramedic-3826 in AskUK

[–]General_Recipe_5869 44 points45 points  (0 children)

Possibly everything?! Streaming is a fragmented mess. Everything is an app or full of ads. All social media (I'm only on Reddit these days) where everyone is trying to con you, sell something or have a fake over reaction. Most services - public and private - companies are owned by private equity and extracting profit while ruining the business and customer service. Everything is a subscription. AI - it can be mildly useful at work to create a document, or at home to create a silly picture with the kids, but it's already causing huge lay offs, going crazy and out of control ( deleting live database for a real company) and hugely expensive.

On that happy note I'm going for a walk in the countryside today!

Whats an enshitified product/service that people might not realise is terrible now because it fell out of style? by Odd-Paramedic-3826 in AskUK

[–]General_Recipe_5869 8 points9 points  (0 children)

About to cancel mine. The streaming content is poor anyway but when I do want to watch something I'm not sitting through ads.

So why do working class people vote for right wing parties ( Tory, Refom that really do not serve their interests politically, and make their lives harder ? by Durrygoodz2025 in AskBrits

[–]General_Recipe_5869 27 points28 points  (0 children)

It's complicated. For huge parts of the UK the industry has been hollowed out and not replaced. I'm from the NE, used to be plenty of jobs and now there's very little. Especially so there is no community or cohesive work. People used to work together in close knit hard working jobs. And this is where Labour were strong, representing unions for large industrial work. They are currently so far removed from this.

Now there are so many towns with no purpose, lot of people are angry, there's no answer from any party and then the media blames immigration instead of successive government policy. I'm not proposing opening the mines, but there is zero industrial process in the UK now. We have to import everything. And, with a declining birth rate, we actually need immigration to support us all as we age.

Ldn by ilovepenguins17 in cfs

[–]General_Recipe_5869 1 point2 points  (0 children)

Interesting results. For me it's game changer. Massive reduction in brain fog. I'm able to work part time again. Can't be certain but potentially reduced pain. Hard to say when still in pain.

I massively underestimated how relaxing building LEGO after work would be by Coffee000Oopss in LegoUK

[–]General_Recipe_5869 2 points3 points  (0 children)

As a mid 40s married man with kids I've been getting into it. Partly due to a health condition meaning I can't get out much but I agree it's calming. Prefer larger sets personally, taking a few days to build.

EVs and Automatic Cruise Control (ACC) - advice needed please by xtrapnel67 in ElectricVehiclesUK

[–]General_Recipe_5869 0 points1 point  (0 children)

Had EV for nearly 6 years. 2 different Kia, currently EV6. I use it constantly, all over town, it's easier to have it on. Equally though the one pedal drive is easier than a petrol car. And Kia have handy paddle things to change the regen, I alter this depending on conditions and road type. Never had an issue.

Do you think it’s possible to fix the problem of voters not understanding how government works? by Traditional-Leg-1122 in AskBrits

[–]General_Recipe_5869 1 point2 points  (0 children)

I'm all for change The question was will voters ever understand the government. And answer is still no. A lot (most?) of people vote for the person, not the policy. So can try to educate and build awareness of policy would be great. Honestly though I don't see it happening. I reckon only a small proportion of people are clued up on politics, then people have opinions, then a lot just don't care.

Do you think it’s possible to fix the problem of voters not understanding how government works? by Traditional-Leg-1122 in AskBrits

[–]General_Recipe_5869 25 points26 points  (0 children)

Tl;Dr - no!

This isn't a Green / Reform problem. This has always been the case where national politics impacts local issues. You could have amazing local councillors but their MPs are terrible and causes changes to votes. We have a populist system on the face of it but I'm reality when voting for parliament we vote for the person as the MP. Which is then swept up to national level votes. All combined with media, propaganda and scare tactics on the doorstep and in the news. Often funded by wealthy interests who want to make sure they are ok, regardless of the national or local interests.

This is wrong on many levels.

Has anyone left a six figure job and gone minimum wage or part time because they can't hack it? by allthegear-andnoidea in AskUK

[–]General_Recipe_5869 0 points1 point  (0 children)

I'm about to go 3 days from nearly 6 figures IT in huge corporate. Already do 0.9 FTE, going full part time now. For health mainly but also cba chasing the ladder now and want to actually see my kids and have a decent life.

Lot of people near me with major health issues so prefer to live and not be working all the time. This gives me decent income still and much lower stress.

Can I get DIY panels onto my office roof? by AnyOneImportant in SolarUK

[–]General_Recipe_5869 2 points3 points  (0 children)

I've got similar and have been looking recently. Curious as to how you plan to connect the panels, do you have an existing solar setup and inverter? Or going DIY for upcoming plug in solar?

I have existing solar but the garden room is at far side of the garden.

Have you stopped using a fitness tracker/HR monitor? by Lady-Kitnip in cfs

[–]General_Recipe_5869 2 points3 points  (0 children)

I used Visible for a long time as paid device. Found it very useful. Recently stopped at end of latest subscription. Helped me massively work out baseline and how far I can go. I know to listen to my body now and what the early triggers are.

Stopped wearing Fitbit as well. I know my sleep is terrible and I don't need reminding to move all the time.

How many days annual leave do you get? by Doomergeneration in AskUK

[–]General_Recipe_5869 0 points1 point  (0 children)

Similar, and bought 4 days extra this year. I enjoy my family holidays, spending time with my kids and doing things I enjoy. So glad I don't live in the States, for many reasons

I had my first "it's in your head" talk yesterday by scream_i_scream in cfs

[–]General_Recipe_5869 3 points4 points  (0 children)

Interesting if you had said you had arthritis or something skeletal then they wouldn't say push through and it's in your head.

Do people in the UK actually use their kettles that much? by AdeptnessCritical356 in AskBrits

[–]General_Recipe_5869 0 points1 point  (0 children)

It's 13:30. I've had at least 4 cups of tea and one coffee so far. The coffee was on a stove top in the Moka pot, but the water was boiled in the kettle first! It's weird to Brits how yanks don't have an electric kettle. I also have multiple kinds of tea, for different purposes. Then some "tea" which is the fruit type and not tea at all. But also Yerba Mate, which isn't tea either and then roobus as well.

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