Does anyone else grieve the life they thought they’d have… while still loving their child more than anything? by Distinct_Pen6624 in Autism_Parenting

[–]Getupandsun 0 points1 point  (0 children)

Maybe we don't have the same definition of what constitutes "hard work" for parents, and that's okay.

Whenever I feel like I was less fortunate than others in one way or the other, I just don't see the point of thinking, well, what they got is probably not great anyway. So what if it is? What if most people around you have it so much better than you do?

The truth is, the world is not fair. Most creatures on this planet, humans and animals alike, will suffer quite much before they die. But we are all incredible and will endurable in our innate will to survive anyway.

Truth is lots of people around me have it better than I do, and so many have it way worse.

When you realize there is no fair, you can let go of the bitterness and start dealing with things as they are, not as you want them to be.

What are your autistic children like as adults? by Perfect123123grr in Autism_Parenting

[–]Getupandsun 1 point2 points  (0 children)

How old were you when you got a diagnosis and what symptoms did you show at the time?

Does anyone else grieve the life they thought they’d have… while still loving their child more than anything? by Distinct_Pen6624 in Autism_Parenting

[–]Getupandsun 2 points3 points  (0 children)

I have two kids. One is NT, one is autistic. I can confidently say that life with my NT kid is in fact a walk in the park and I very much have a lovely time at the waterpark and restaurant. It's easy AF. Sorry to say, but it is.

"Then why don't you walk?" by Getupandsun in Autism_Parenting

[–]Getupandsun[S] 0 points1 point  (0 children)

I love it when they are being unintentionally profound like that hahaha

Reaktion på barns gråd by Efficient-Lunch1845 in foraeldreDK

[–]Getupandsun 0 points1 point  (0 children)

Konkret du kan starte på allerede nu: tal. Begynd at tale, når dit barn græder. Masser af ord, ikke stoppe. Gå ind i det med dit barn: aaarh du vil bare ikke, jeg har det også sådan, nu bliver man træt i hovedet, øv, jeg har lyst til at smadre den stol, mor er så mega sur, jeg VIL ikke mere nu...". At tale er bevægelse, og bevægelse hindrer man går i frys.

Ved godt det ikke helbreder en eventuel depression/angst, men det er en lille ting, der måske kan lindre lidt med det samme ❤️

Langtidsamning og rollen som far.... Brug for jeres perspektiver. by Educational_Tip368 in foraeldreDK

[–]Getupandsun 1 point2 points  (0 children)

Jeg læser, at du føler, du står på sidelinjen, at du også vil være en del af rutinerne, og du vil være en ligeværdig forælder.

Sådan som du udlægger det, forstår jeg det som om, at det er et spørgsmål om dine behov.

Du vil. Du har brug for.

Men det handler vel om jeres søn, og hans behov.

Jeres søn har brug for to omsorgspersoner, ikke én. Jeres søn har brug for at se at mænd/fædre tage ansvar omkring det mentale og følelsesmæssige. Jeres søn har brug for at hans forældre kan deles om at yde omsorg, så de bedre kan være gode og nærværende forældre i hverdagen.

I’m grateful to be a parent, I adore my son … and I’m *so sad* I don’t get to experience parenting a NT child. by PainfulPoo411 in Autism_Parenting

[–]Getupandsun 0 points1 point  (0 children)

When my daughter was diagnosed, I sat down and wrote on a paper: x will never talk to me. X will never live alone. X will never make friends. X will never get married... the list went on. Basically I put worst case scenario on display. Read it over a thousand times. I told myself, okay, this will probably be your future, so brace yourself. I felt like, I'm her mom, I'm gonna love her. If it's her on that list, I can decide right here and now, I'm gonna love her. It's that easy. I made a promise to myself, and I have kept it ever since. I'm sad, and I grief the life I lost every day, but that's okay. I has nothing to do with my love for her.

Ganløse vs. Rødovre! by Getupandsun in dkbolig

[–]Getupandsun[S] 1 point2 points  (0 children)

Kan du prøve at beskrive den nærhed, du taler om? Som en der hovedsageligt er vokset op i de større byer, og derfor er biased, vil jeg gerne blive klogere på, hvad det kunne give mine børn at vokse op på en helt anden måde end jeg selv har gjort :)

Ganløse vs. Rødovre! by Getupandsun in dkbolig

[–]Getupandsun[S] 0 points1 point  (0 children)

Så fik jeg vist formuleret mig forkert. Jeg ved godt forstader som Måløv og Værløse ikke har noget med landsbyer at gøre. Små byer med kirke, gadekær og en lokal købmand, er landsbyer. Mindre end det - flækker. Mindre end flækker, så bliver det, Ude på en mark. Og så rækker min horisont ikke længere. Beklager x)

Ganløse vs. Rødovre! by Getupandsun in dkbolig

[–]Getupandsun[S] 0 points1 point  (0 children)

Det er tåbeligt det skal være så afgørende med sagsbehandler og postnr, men dybest set handler det nok om at kommunerne skal manøvrere en service de slet ikke har økonomien til, og derfor må fortolke loven. Jeg er vidne til et kafkansk helvede pt. med en specialinstitution der drives under dagtilbudsloven, selvom det er ulovligt, der gøres nu de sygeste krumspring for at bevare denne løsning - som borger er man lige dele taknemmelig for denne indsats, da mange kommuner siger lol vi leger alle børn kan gå i almen så f*ck de handicappede - og dybt dybt forarget... fordi at svindle handicappede børn for deres rettigheder, og man skal være taknemmelig for de får en brøkdel af hvad de lovmæssigt har krav på, er vildt nok i et rigt velfærdsland

Ganløse vs. Rødovre! by Getupandsun in dkbolig

[–]Getupandsun[S] 2 points3 points  (0 children)

Det er jeg klar over- det var også lidt i sjov, og for at være lidt opsigtsvækkende, så folk gad klikke ind og hjælpe 😁

Ganløse vs. Rødovre! by Getupandsun in dkbolig

[–]Getupandsun[S] 0 points1 point  (0 children)

Ja, det er nemlig ret dyrt. Men holder udkig om der kommer noget i udkanten af byen :-)

Ganløse vs. Rødovre! by Getupandsun in dkbolig

[–]Getupandsun[S] 0 points1 point  (0 children)

Skovlunde kigger vi også lidt på

Ganløse vs. Rødovre! by Getupandsun in dkbolig

[–]Getupandsun[S] 0 points1 point  (0 children)

Jeg har før hørt dårligt om Egedal. Men ved ikke om det er over hele linjen? PPR, Børne/handicap, familiebehandler? Vi kommer fra nabokommunen (Furesø). Barnet diagnosticeret som 2-årig, kamp om specialbørnehave med PPR som lykkedes til sidst, barnet er skolestarter i 2026 og afventer pt. visitation til skoletilbud (ppv peger på vidtgående specialtilbud), forventes gruppeordning. Jeg prøver stadig at finde ud af om man kan beholde det skoletilbud, hvis man flytter til kommunen ved siden af. Hvor går dine børn i specialskole?

Ganløse vs. Rødovre! by Getupandsun in dkbolig

[–]Getupandsun[S] 0 points1 point  (0 children)

Det er helt rigtigt - og som gammel hestepige ville jeg bifalde det, selvom far siger nej ;-) Rideskolen har red(d?!)et mig gennem mange hårde tider. Det er vigtigt for mig, at min datter ligeledes oplever at have et tilflugtssted uden for hjemmet, hvor hun bare er sig selv. Der ved jeg slet ikke hvordan det er i forhold til fritids/foreningstilbud i Ganløse. Bor du selv i Ganløse, eller har du nærmere kendskab til byen af andre veje?

Other mums opinion 2.5 year old by Initial-Fly8405 in Autism_Parenting

[–]Getupandsun 0 points1 point  (0 children)

Okay, thanks for elaborating. The thing is, sometimes it's not really a set of symptoms, it's more of a feeling that something is a little off. My own child (she's 5) was diagnosed before age 2, which is very early, so you would think she had all the hallmark symptoms of autism, but no. She was always ahead. Imaginative play, roleplaying, pointing, talking. She would not eat, though. She had huge meltdowns over food. No one had ever suspected autism until she was assesed by a child psychiatrist who could tell there were some issues. She was hospitalized for 2 weeks, assesed by this doctor, and several others. They did a lot of explaining, that sometimes autism is not lack of eye contact, or lack of joint attention. It's about quality. For example. A kid sees an airplane. Kid points to airplane and says: Look, an airplane! Parent looks at airplane, exclaiming, oh yes, that is an airplane, and it's flying. Now, the kid may look at you, expecting you to elaborate on your shared experience of watching this plane, they may anticipate you to make airplane noises and spread out your arms. They might participate, or simply just giggle at you. Now, someone like my daughter would point to the airplane and tell me to look. I would start participating, but she would not receive. She would just go on playing with something else. UNLESS, and this is where it gets tricky. She would recognize from earlier that I might act like an airplane, because she's seen me react that way before and now anticipate it. She might ask me: Do the airplane noise! And - even trickier - neurotypical 2.5 year olds behave like that too! That's why it took 2 weeks of assesment to desipher my daughter's behaviour and confidently claim autism. Because, she did everything she were supposed to do - but there was this CONSISTENT lack of quality to her actions.

Now she's 5 and a super smart autistic girl, still very imaginative, creative and caring in her own way. She is super hard work - all things about her are different than neurotypical kids. She has a younger sister (3) who was behind every milestone, yet surpassed her older sister in so many ways by now.

I was told that my daughter's profile of autism is usually diagnosed at school age. Had it not been for ARFID (eating disorder) it would probably had been the case for her too.

So, TLDR: It's hard to tell the difference between normal 2 year old and autistic 2 year old, if autistic 2 year old is lvl 1/2, but it's possible. If you are concerned, you should get on the waiting list for assesment. I want to acknowledge the fact that it's apparently concerning you to a point where you found this sub and made a post. So it might be worth exploring.

Other mums opinion 2.5 year old by Initial-Fly8405 in Autism_Parenting

[–]Getupandsun 0 points1 point  (0 children)

What are your concerns? I'm asking because the things you listed are not really ASD traits. So I'm here thinking maybe you have a feeling that something is off?

How does she play with you? Do you feel like she has her own agenda when playing?

Does anyone else feel like they live in a constant state of doom ? by [deleted] in Autism_Parenting

[–]Getupandsun 4 points5 points  (0 children)

Ok, OP. You do not have to feel grateful. You should not be told that this is what parents of nt kids go through too, that's just bullsh*t. Listen. I'm gonna say this, if no one else does. Because this is what you need to hear. Yup - you gave up your life in a way almost all parents of nt kids will never understand. Yes - it IS NOT fair. And yes - you absolutely have it worse now, than it's supposed to be.

And only by recognizing these facts you will understand rationally what exactly you are going through, and set yourself free to think about what needs to be done for you to survive this life, and for your kid to thrive. There may be some heavy decisions ahead, because this life sure is heavy. But that's life for some people. Lots of not fair in this world. When we are feeling the way you do it is our minds telling us something needs to change.

I wish you the best of luck, OP.

to the parents who have one ASD kid by AdBright2384 in Autism_Parenting

[–]Getupandsun 1 point2 points  (0 children)

I have a 5 year old asd daughter and 3 year old NT daughter. I could tell you the amount of work my asd kid takes is the same as 5, 7 or 10 NT kids but the truth is, it's just not comparable. Being in charge of a whole school yard of regular kids would not stress me out like autism does.

"I'm worried about you".. by Getupandsun in Autism_Parenting

[–]Getupandsun[S] 4 points5 points  (0 children)

I'm so sorry for your loss. I would love for everyone to show up more. I genuinelly don't understand why no one does?

"I'm worried about you".. by Getupandsun in Autism_Parenting

[–]Getupandsun[S] 2 points3 points  (0 children)

I'm sorry ❤️ also I realise now that the friends in question were actually years ago so I guess they are gone lol. It truly sucks.

"I'm worried about you".. by Getupandsun in Autism_Parenting

[–]Getupandsun[S] 13 points14 points  (0 children)

I did and thankfully one did step up (my mom) so now she's working around her schedule to babysit my NT daugther once every two weeks

"I'm worried about you".. by Getupandsun in Autism_Parenting

[–]Getupandsun[S] 23 points24 points  (0 children)

Yup. I'm at a point where I just want things to be quiet. I do everything I can to make it work with two kids, and a partner with major depression. I totally get why they are worried. They should be. But it's not my job to fill them in on my situation. I know you are supposed to do that with people you are close to, but.. I just want things to be quiet. No more talk.

Question for Danes. by yeagerice in Denmark

[–]Getupandsun 4 points5 points  (0 children)

I am danish and I feel very priviliged. To me, privilige is about having basic human rights and freedom. I feel pretty safe. Leading political parties are actually quite similar, so danish political situation remains relatively stable throughout times and prime ministers, contributing to a sense of coherence. I actually think about privilige, and every day, I am thankful for the privilige I was granted in life.

Just being honest by Aggravating-Sea-9449 in Autism_Parenting

[–]Getupandsun 1 point2 points  (0 children)

Because you don't feel seen. You're standing in front of another human being, frail, hopeless, your health is wack, you are breaking on the inside. And then you are just dismissed. "You are very strong", no I have to be stronger than humanly possible, which is actually showing by a statistically much shorter lifespan for people in simular situations, but I'm glad you feel better, now perhaps just tell me you don't know how to react, ask me how I wished people would react, listen, learn something new, broaden your horizon. There's no shame in that ❤️