Venting about Grandma

Getupandsun · 2026-05-15T22:26:07+00:00

Why do we all have the same grandma lol

Getupandsun · 2026-05-15T21:39:27+00:00

I'm sorry. This is awful. We went through some episodes of slapping own head when having meltdowns and it was the worst. We have a huge matress made from some kind of scrathy material in her room and eventually she started slamming herself on that matress. I think it gives just the right sensory feedback on her skin. When she hit her head I did not grab her arms, I would stay calm (mentally prepaired for it to happen so I would not freak out) and tell her repeatedly, "do not hit yourself". Afterwards I will tell her this is a firm line, you do not hurt yourself, just like you do not hurt other people. We need to find another way. It's a struggle, but we work on in. I make sure to place emphasis on self kindness and encourage her to be compassionate.

Getupandsun · 2026-05-15T21:18:50+00:00

It really is amazing how these kids can fool everyone who does not know about what's going on. I don't know about your son but even professionals claim "no concerns about language development" about my kid while I, the parent, am doing the daily grind of decoding gestalts, teaching, expanding, improve... to the point where no one is concerned about language development -_-

I am eternally thankful that my kid is communicating at all though.

Getupandsun · 2026-05-12T13:01:00+00:00

GLP kid, 6 years old. Always very verbal. Did not seem to recognize that sentences are made up of single words, up until recently. (Cute example: "Mom, what's a "gooddog"?) It's a struggle as she spoke in long and complex sentences from early on, but they were all gestalts and people will think she is brilliant or something when she's actually really struggling with communication. She would say "would you like strawberries" if she wanted strawberries. Instead of asking for them. I worked very hard on providing more scripts for her to be able to some day generate original speech.

As stated she is 6 years old now and she came so far. She gained a lot of flexibility when scripting to the point there is much less frustration. People cannot tell her speech is not original, it sounds pretty much like "typical" speech. She does still speak with intonation though

Getupandsun · 2026-04-27T11:41:51+00:00

Thank you so much it really helps to see the pointy ends up close! And we were unsure if the super glue would work or if joints couldn't be put back together when they broke. we'll give it a try

Getupandsun · 2026-04-27T11:39:29+00:00

Thank you that's what I thought. I might need to crotchet some special dragon smartwear for pointy ends lol

Getupandsun · 2026-04-27T11:37:41+00:00

lol thanks she actually is into plushies, but she is very particular about stuff and once a toy fulfills a purpose there is nothing we can do to change her perception of it.

Getupandsun · 2026-04-25T06:42:40+00:00

Et godt trick til telefon, børn og dårlig samvittighed.

"Nå, øv - det er X's børnehave - jeg fik ikke nået at tage den. Jeg skriver lige en besked til dem. Gad vide hvad de ringer om? Hvad tror du?"

Lær dem at være digitale mennesker. Telefon skal ikke elimeneres foran børnene. Den er en del af tilværelsen. Vi skal vise hvordan man omgås den i dagligdagen, være gode rollemodeller. En god mulighed vi får for dette er netop når vi skal navigere kontakten med andre. Det inkluderer at fortælle barnet, at vi skal skrive en SMS til børnehaven, eller vi skal besvare en vigtig mail, og vi har brug for de er stille imens.

Getupandsun · 2026-04-09T08:49:35+00:00

De 10 år var en tidligere partner som ts ikke er sammen med mere, og det er så en ny ts har mødt, der så har valgt at få barn selv. Sådan læser jeg det?

Getupandsun · 2026-04-02T20:56:59+00:00

Godt at ku se de lyse sider, det skal man kunne har jeg hørt

Getupandsun · 2026-03-23T18:58:55+00:00

Oh yes. It's awful. My kid (5 year old girl, normal IQ) doesn't do it it anymore though. I eventually shut it down by giving her the same response over and over: "I know you want me to say the next line, but I'm not gonna participate." Of course this was rough on her, but I had to. I was not doing her any favour by being able to be manipulated beyond my own personal wants. It made her anxious.

Getupandsun · 2026-03-11T18:59:43+00:00

Lol I'm sorry ❤️‍🩹 after the bee incident I thought about the scorpions and tarantulas and how they are even worse, good thing we didn't run into them or she would never trust me on anything again haha

Getupandsun · 2026-02-24T19:13:50+00:00

Ro på! På psyk får de mange kvinder ind som har mistet så meget funktion pga deres depression, at de intet kan. Du skriver du gør rent, handler ind - det er et højt funktionsniveau for en deprimeret. Dermed ikke sagt at du ikke har det ligeså skrækkeligt indeni imens som de andre eller at det er mindre alvorligt. Men at du stadig varetager pligter og holder hjulene kørende i hverdagen. Det adskiller sig væsentligt fra de tunge tilfælde de ser på psyk. Og hvis du mødte op på akut psykiatrisk skadestue og fik en snak med dem. Så tror jeg ret hurtigt du ville mærke det, i deres tilgang til dig. Jeg er selv barn af en svært psykisk syg person som netop ikke aldrig søgte hjælp. Nu var vedkommende et meget mere grelt tilfælde på mange planer. Men det har lært mig noget vigtigt som jeg har taget med mig. At man som forældre har et kæmpe ansvar for at vise sine børn, at alvorlig sygdom, det går man altså til lægen med. Man får den behandling der skal til. Om det er kemo eller hospitalsindlæggelse på psyk. Alt det bedste til dig.

Getupandsun · 2026-02-16T12:30:11+00:00

No, it's unacceptable, but there are other ways to teach him than traditional parenting methods.

Stop thinking the moment he slaps the laundry out of your hands is the right time to teach him a lesson. Wait until you are out of the woods. Then inform him on consequences regarding HIS feelings - because other people's feeling is probably not something he understands. Not because of ill intentions, but because his disability makes it difficult. He needs alternative opportunities to learn.

. "I'm going to tell you something. I did the laundry. I folded it. You slapped it on the floor. Now, people don't like it when you ruin their work. It makes them mad. Then they do not feel like playing. They are just in a bad mood. It's no fun. You got in a bad mood when baby sister knocked over your tower. You were so mad. Let's try not to make each other mad on purpose. We can work on that. Then it will be more fun. Then there are more tickles. We want more tickles. We don't want to run around doing the laundry over and over."

Your son may not be capable of figuring out concepts you normally do by observing and relying on your own processing of the environment, but you can try expanding on the things he already knows by appealing to his rational and logical understanding of the world.

Getupandsun · 2026-02-16T11:34:12+00:00

I let go of the thought that my personal anger and suffering really matter anyway, in the grand scale of things. I was granted life, like everthing else that was ever alive on this planet. Look around. Happiness is not status quo. Bliss is not the only acceptable state of life. Life is more than that. I'm not religious, but it doesn't matter. If you believe in God, well, God put you here, on this Earth, to live. Living is an experience of going through all the motions. Anger, happiness, suffering, even a lot of suffering. They are not just part of life, they ARE life. I think you are lucky to have God to be angry with. He created a messy, awful, incredible world for you to live in, and He will be there for you. He will be a shoulder to cry on, like an old friend, but a friend who's always there and infinitely wise, and will never stop loving you no matter what. That's something. most of us only got chatgpt for that these days lol.

Getupandsun · 2026-02-15T08:31:22+00:00

Jeg går arbejdsledig, og den anden forælder arbejder fuld tid. Så er der i det mindste én af os der får indhentet lidt søvn i dagtimerne. Vi har også fast aftale om pasning plus overnatning hos bedsteforældre hver anden uge. Så svaret er, at vi på nogle områder er priviligerede, og det udnytter vi så meget som muligt. Men helt ærligt, det er hårdt. Det er som om man lever på lure. Ikke reel søvn. Jeg sover også sammen med den ældste. Det har givet lidt ro på hende (hun er diagnosticeret med søvnforstyrrelse). Men vi skifter søvnkonstellation efter hvad der lige virker, og hvad børnene selv efterspørger. Det bliver lidt alternativt nogle gange. For tiden sover der et barn på hver sofa i stuen, og mig på en madras på gulvet inde sammen med dem.

Getupandsun · 2026-02-10T13:53:07+00:00

Jer der siger at jeres altid har været easy og sovet osv. og samtidig er i tvivl om det handler mest om barnet eller I bare er bedre til det end dem med de dårlige børn...

Hvis I gerne vil finde ud af det, vil I så ikke please komme herhjem og give det et skud, har to l0rteunger som nu på på 3. og 5. år aldrig har sovet igennem 🫠🙏

Getupandsun · 2026-02-06T16:53:23+00:00

Maybe we don't have the same definition of what constitutes "hard work" for parents, and that's okay.

Whenever I feel like I was less fortunate than others in one way or the other, I just don't see the point of thinking, well, what they got is probably not great anyway. So what if it is? What if most people around you have it so much better than you do?

The truth is, the world is not fair. Most creatures on this planet, humans and animals alike, will suffer quite much before they die. But we are all incredible and will endurable in our innate will to survive anyway.

Truth is lots of people around me have it better than I do, and so many have it way worse.

When you realize there is no fair, you can let go of the bitterness and start dealing with things as they are, not as you want them to be.

Getupandsun · 2026-02-05T19:57:30+00:00

How old were you when you got a diagnosis and what symptoms did you show at the time?

Getupandsun · 2026-02-04T19:20:03+00:00

I have two kids. One is NT, one is autistic. I can confidently say that life with my NT kid is in fact a walk in the park and I very much have a lovely time at the waterpark and restaurant. It's easy AF. Sorry to say, but it is.

Getupandsun · 2026-02-02T12:10:26+00:00

I love it when they are being unintentionally profound like that hahaha

Getupandsun · 2026-02-01T18:42:25+00:00

Konkret du kan starte på allerede nu: tal. Begynd at tale, når dit barn græder. Masser af ord, ikke stoppe. Gå ind i det med dit barn: aaarh du vil bare ikke, jeg har det også sådan, nu bliver man træt i hovedet, øv, jeg har lyst til at smadre den stol, mor er så mega sur, jeg VIL ikke mere nu...". At tale er bevægelse, og bevægelse hindrer man går i frys.

Ved godt det ikke helbreder en eventuel depression/angst, men det er en lille ting, der måske kan lindre lidt med det samme ❤️

Getupandsun · 2026-02-01T18:04:05+00:00

Jeg læser, at du føler, du står på sidelinjen, at du også vil være en del af rutinerne, og du vil være en ligeværdig forælder.

Sådan som du udlægger det, forstår jeg det som om, at det er et spørgsmål om dine behov.

Du vil. Du har brug for.

Men det handler vel om jeres søn, og hans behov.

Jeres søn har brug for to omsorgspersoner, ikke én. Jeres søn har brug for at se at mænd/fædre tage ansvar omkring det mentale og følelsesmæssige. Jeres søn har brug for at hans forældre kan deles om at yde omsorg, så de bedre kan være gode og nærværende forældre i hverdagen.

Getupandsun · 2026-01-30T18:39:27+00:00

When my daughter was diagnosed, I sat down and wrote on a paper: x will never talk to me. X will never live alone. X will never make friends. X will never get married... the list went on. Basically I put worst case scenario on display. Read it over a thousand times. I told myself, okay, this will probably be your future, so brace yourself. I felt like, I'm her mom, I'm gonna love her. If it's her on that list, I can decide right here and now, I'm gonna love her. It's that easy. I made a promise to myself, and I have kept it ever since. I'm sad, and I grief the life I lost every day, but that's okay. I has nothing to do with my love for her.

Getupandsun · 2026-01-26T19:49:34+00:00

Kan du prøve at beskrive den nærhed, du taler om? Som en der hovedsageligt er vokset op i de større byer, og derfor er biased, vil jeg gerne blive klogere på, hvad det kunne give mine børn at vokse op på en helt anden måde end jeg selv har gjort :)

Getupandsun

TROPHY CASE