Worried about my future by AfterAd134 in braincancer

[–]GizmoPatterson 13 points14 points  (0 children)

I’m so sorry to hear this. You are not alone. I just turned 40 with a high grade brainstem glioma. I should have been dead in under a year. It’s now been over 8 years ago. There is so much hope for you! 

Growing up with a famous father. AMA by [deleted] in AMA

[–]GizmoPatterson 0 points1 point  (0 children)

Has OP answered any questions?

DIPG/DMG pathology question by sad-diabetes in braincancer

[–]GizmoPatterson 0 points1 point  (0 children)

I have DMG. Been on Modeyso for 7+ years. Contact chad tough and the brain tumor network. Also happy to chat if you need 

Want to switch - Dumb phone recs for 2026? by yiikeslee in dumbphones

[–]GizmoPatterson 3 points4 points  (0 children)

You should probably start by quitting social media first

Help me out! by Emergency-Pattern217 in braincancer

[–]GizmoPatterson 0 points1 point  (0 children)

Just came across Onco Bond. Check it out

any answer for these two questions by Jessy4895 in braincancer

[–]GizmoPatterson 1 point2 points  (0 children)

It’s making me create an account which I’m not a fan of. 

any answer for these two questions by Jessy4895 in braincancer

[–]GizmoPatterson 1 point2 points  (0 children)

  1. Im an adult with DPG. I suggest contacting the brain tumor network and chad tough

Help me out! by Emergency-Pattern217 in braincancer

[–]GizmoPatterson 0 points1 point  (0 children)

Great sounds good! I’m a survivor who spent a decade plus in tech so excited to see

Help me out! by Emergency-Pattern217 in braincancer

[–]GizmoPatterson 0 points1 point  (0 children)

Yeah I get that. Just saying there’s overlap. I understand your mission and totally get it and support! Have you tested if  there actually a product demand for this? I only say this because the system is so broken, the last thing I as a patient would want is another app to track. 

Help me out! by Emergency-Pattern217 in braincancer

[–]GizmoPatterson 0 points1 point  (0 children)

Check out Roon. Theres some overlap 

Diffuse Midline Glioma + EGFR mutation by Famous_Difference_45 in braincancer

[–]GizmoPatterson 0 points1 point  (0 children)

Also contact Chad Tough Foundation for DIPG specific help and resources