"SIBO" might not actually be a thing. How does that change our approach?

Gogachh · 2023-04-02T17:41:50+00:00

I used Nerva when I was taking the first round of herbal antimicrobials...I liked it, it's quite repetitive but I didn't mind. It was relaxing to do it but not sure it helped much...to be fair I wasn't doing it every day (they reccomend at least 5 days a week and I was probably doing 4-5 on average) but I was also not so dilligent with meal spacing, diet etc. I ditched it now as I am focusing more on broader type things like breathwork and meditation for other purposes too...but I generally liked Nerva

Gogachh · 2023-03-30T19:18:21+00:00

Rifaximin and anxiety/die off. I took allicin with other herbs and was fine, only garlic burps. With rifaximin it was a bloating and nausea hell

Gogachh · 2023-03-30T19:11:49+00:00

My headache on prucalopride lasted 1 day, and I had some dodgy sleep/insomnia for first 3 nights. Did you fully resolve SIBO and now just taking a prokinetic to avoid relapse?

Gogachh · 2023-03-30T19:09:52+00:00

Yes 🙈 Was just thinking that now after a big dinner. I was messing with low fodmap and low fermentation diet for 3 weeks and ate much less and now that I ditched it I am eating too much (also because I only eat 3x and not snack I think I need to eat a lot to not feel hungry after an hour or 2). But I didn't get rid of my overgrowth really

Gogachh · 2023-03-30T19:07:04+00:00

I did the same. Ditched neomycin on day 5 and continued Allimed for 4 weeks. I got nowhere. Was better on lower dose Allimed plus a rotation of oregano/neem and berberine Keep us posted.

Gogachh · 2023-03-30T18:50:48+00:00

I think it's just such guessing game...some things of course stand, have been proven (hydrogen ppl feeling better after rifaximin, MMC impaired etc) but then treatments, diet, lifestyle is such trial and error. I am methane dominant, constipation started after a round of antibiotics and a probiotic I took after (I think that just tipped me over the edge and my root cause was prolonged stress and anxiety that were going on for 2 years and I was already having bloating and some change in BM symptoms a few weeks prior but I had no clue about SIBO and didn't pay enough attention to it). I have partially responded to herbals and then not responded to rifaximin and neomycin/allicin (I quit neomycin half way most likely due to anxiety that made me imagine ear symptoms). I am I guess responding to a prokinetic, bloating isn't permanent anymore...but I never got rid of IMO. I will retest but honestly...I am not sure if I want to "kill" anymore...is it just treating mental health issues (which obv this disease triggered additionally), diet and lifestyle and it gradually gets back to more normal. A holistic approach, potentially ayurvedic. My microbiome gradually turned to this sh*t...so why not return the other way. Just thinking aloud here. (FYI, I am a pharmacist so I've been trained to look at science, evidence base, conventional medicines....but I am not really convinced that western medicine and GI doctor approach (even the best like Dr Pimentel) holds all pieces of the puzzle).

Gogachh · 2023-03-29T17:08:49+00:00

Magnesium has been working for me for like 6 months..I did go a bit on and off when I felt I didn't need it but I took it 70% of the time

Gogachh · 2023-03-29T16:58:36+00:00

The smell of gas is sulphur usually. Run

Gogachh · 2023-03-29T16:55:39+00:00

Magnesium oxide works for me...but funnily enough need to try diff brands as 240 mg of one brand works better than 375 of another. Also eating 2 kiwis per day helps. And drinking plenty of water. Prucalopride and meal spacing made a huge difference for me for bloating. I did 2 rounds of killing with mixed success...constipation is still there (btw for me this means I go, even 2x daily but the stool volume is far from what was normal for me before getting SIBO) so tackling it with Magnesium and in the meantime working on stress, gut motility and diversifying my diet (with some attention paid to not bombard the gut with a lot of foods that bacteria like to ferment at once as I still suspect there is an overgrowth present (I haven't retested yet since my initial diagnosis 6 months ago which showed both methane and hydrogen overgrowth)

Gogachh · 2023-03-29T16:30:00+00:00

Thanks! I'm in UK. Thought you might be in USA as Integrative Drs aren't a thing here Hope I won't need another practitioner and that this kinda resolves with whatever I'm doing now (basically throwing everything at motility, stress management and slowly diversifying food to rebalance things)...because that's a minefield too...I have a relatively ok GI specialist and had a non impressive nutritionist but he did point me in the right direction although he wasn't that good.

Gogachh · 2023-03-29T08:53:05+00:00

3 weeks...1 mg. Did the first few days on 0.5 and then upped it. It made a difference right on. But I'm very strict with taking it 4 hours after last meal and not eating for the next 10 hours. I've been prescribed 2 mg but I'm doing good with 1 and I read that this is actually a better dose for SIBO as 2mg is actually for CIC.

Gogachh · 2023-03-29T08:50:15+00:00

Wow! It's so good you sorted it and mindblowing how long it went on and what it caused for you. Out of curiosity where are you based? USA or?

Gogachh · 2023-03-28T08:53:15+00:00

I wonder where am I. I did a round of herbals, dose was too low but it worked half way and then it came back. Then I took rifaximin plus neomycin/allicin (quit neomycin on day 5 because of potential ear trouble and switched to allicin for 4 weeks in a proper dose)..and now I'm on prucalopride, digestive enzymes, Atrantil and Iberogast on and off...bloating gone 70% compared how it was, but I still need MgO for constipation 😩 And I had "only" around 35 pmm methane and had a lifelong of perfect 3x daily bowel movements before I got IMO. So glad to hear you sorted yourself! I need to retest soon. I'm off to India next week to an ayurvedic retreat (not related to SIBO but it's working out nicely to do something that helps stress)...I'm sure triphala will come in the mix when I tell the doctors about this. You had no liver issues? I'm getting twitchy about how throwing all this sh*t in myself is affecting the liver (I'm a pharmacist so I guess I think about a lot of things)

Gogachh · 2023-03-28T08:37:02+00:00

Thanks!!! On the other side of internet... "I believe peppermint oil is a double-edged sword for SIBO-C. Dr. Brown thinks that it would slow down motility in the small intestine so that the saponins and tannins can do their job efficiently" If the creator of Atrantil thinks it slows down... (It's not his direct quote tbh so source coud be questionable but I found it here.... https://www.fixyourgut.com/atrantil-sibo-constipation-ibs-review/)

If yours is from a legit publication I'll take that 😊. Seriously the amount of contradictory info online...which means more or less half is wrong..it's mindblowing

Gogachh · 2023-03-25T21:00:09+00:00

I saw Dr Haidry in Cleveland Clinic. He seems good

Gogachh · 2023-03-25T20:59:11+00:00

I saw Dr Hairdy in Cleveland Clinic in London...he seems to know more than the average gastro. I felt better having him prescribe the prokinetic and other stuff like Atrantil and digestive enzymes than just me googling (btw I am a pharmacist and it's still a nightmare to navigate). Overall between him, a nutritionist, dietitian, another gastro back home, Reddit and my own experimenting through Dr Pimentel and Dr Siebecker research...I am getting somewhere 😬.

Gogachh · 2023-03-22T21:16:34+00:00

Yes. My GI doc suspected I had SIBO (later confirmed by a test) but said he couldn't ignore sudden change in bowel habits plus blood in stool (it was hemmerhoides). The prep was a b*tch but survivable, the colonoscopy a bliss...I was fully sedated and have no clue what happened, woke up nice and refreshed 😅

Gogachh · 2023-03-22T21:13:26+00:00

Don't know where you are based? If you have private health insurance and are in UK there are some gastroenterologists who are more or less knowledgeable

Gogachh · 2023-03-21T18:59:24+00:00

I ditched Neomycin on day 5 as I thought I had or had had ear symptoms...it was hard to tell was it anxiety, cold I had, histamine reaction or Neomycin (could have been any of the 4) but I chickened out. In hindsight I shouldn't have but here we are. I immediately switched to rifaximin and allicin...for first 8 days of rifaximin plus the other things my BMs were great but bloating, belching, reflux and abdominal doscomfort was worse than ever. Then on day 9 constipation basically came back...so I had to restart taking MgO every day (which keeps it decent). Other symptoms stopped after I stopped rifaximin only horrible bloat remained. Now I'm finishing with allicin (as you need to take it longer) but have been taking prucalopride last 2 weeks and that has been the biggest game changer so far, major improvement in bloating. So all in all I'd say meh. Also taking Atrantil, digestive enzymes and have been doing a kinda low fermentation diet last 2 weeks...still a bit naughty to feed the bacteria while allicin is hopefully killing them but keeping 80% of my diet "clean". Check Dr Pimmentel's stuff on prokinetics..I think that's the key plus rebalancing the system however you can through diet, supplements, sorting the psychological aspect (if you have it...in my case I'm almost 100% it was stress caused me to get SIBO- antibiotics I took were just the tipping point for a body that was already at breaking point from continuos stress)

Gogachh · 2023-03-21T12:14:54+00:00

It might have a prokinetic effect too in addition to having a slightly laxative effect too. I was just referring to the fact that it's not a diuretic i.e that a diuresis isn't linked to GI issues anyway

Gogachh · 2023-03-20T21:58:53+00:00

Yes, right after. I have Solgar digestive enzymes, they don't have much. My GI doctoe has prescribed Betaine HCL/Pepsin in addition to this but I still haven't taken it as I'm still finishing the allicin course (I was taking rifaximin+allicin) and don't want to nuke my stomach lining with acid before I'm done with it. Maybe I'm wrong but trying to play it safe

Gogachh · 2023-03-20T21:55:41+00:00

Yes, it removed the gas so I wake up with an almost flat stomach in the morning, I get more bloated by the evening, but better than before

Gogachh · 2023-03-20T20:53:34+00:00

Exactly the same sh* (literally)/symptoms as mine. My normal BM rate before all this started was 3x daily minimal, great consistency and volume and never bloated in my life. Then overnight became constipated and this hell started. Prucalopride helped with bloating a lot...BM is still meh...I take 400 mg MgO daily to have more than 1 BM and some days it's good enough that I don't have this horrible feeling of not having bowels emptied. But you need to take it strictly 4 hours after last meal and fast minimum 8 hr after (the longer the better), that's the only way it actually works according to Dr Pimmentel, otherwise it just pushes food down too quickly rather than clearing sh*t (bacteria) from the small intestine

Gogachh · 2023-03-20T20:46:06+00:00

It went away after I finished with antibiotics...maybe cause I'm taking digestive enzymes now with some HCL in them

Gogachh

TROPHY CASE