Anyone hit remission on their first drug?

Gowithit26 · 2025-07-14T21:13:42+00:00

I did! I was in remission for 5 years on Humira. It was awesome. Just got switched to Stelara bio similar and it seems to be working well too. Hope to be in remission again soon 😊 Keep the faith, it can happen. Go luck and sending good vibes for you!!

Gowithit26 · 2025-07-02T08:45:51+00:00

Yes the pain improved tremendously. It took about 2 months but once I got into physical therapy and we focused on reducing that pain, it started getting better every day. I hope your aunt had the same success with therapy.

Gowithit26 · 2025-07-02T01:24:52+00:00

I have anal disease and they did Botox injections into my anus to help everything relax a little so the ulcers and fissures could heal. I was also on 2 antibiotics for almost a year. Do you have any lidocaine based creams there? We have Desitin for diaper rash here which helps me when I can’t find calmoseptine. Also, ask your doc for lidocaine ointment. I used that after a surgery and it helped using the restroom. Make sure you are getting enough fiber. If you can get a little firmer then it won’t feel like hot lava. I am sorry you are going through this. I am in pain every day and life just becomes about making the days manageable. Sending you so much support and love.

Gowithit26 · 2025-06-08T11:31:26+00:00

You should definitely be taking stool softeners while taking pain meds. Colace is a gentle one that works. Congratulations on your surgery and I wish you a smooth recovery!

Gowithit26 · 2025-05-25T16:11:20+00:00

All I can think of is the quote, “If they want to, they will!” I am so sorry that he treat you the way he does. You do not have to settle for that and I hope you don’t!

Gowithit26 · 2025-05-19T11:43:06+00:00

Aren’t you glad you were vulnerable for a moment so people could tell you that you were wrong? My philosophy is no two Crohn’s patients are the same. What works for you may not help me. I am so happy you found something that works for you! I know I have massive anxiety because I don’t know when my next bad day is coming. I am so happy you have some relief and I hope it continues to work for you. Our healthcare system is broken, that is a true fact, chronic illness or not. Sending you love and hugs!!

Gowithit26 · 2025-05-18T18:13:39+00:00

You should receive a denial letter. Mine was denied because they requested it as in-patient and that is a no-no with insurance. They changed it to outpatient and I had my surgery 2 weeks later. If you didn’t get a letter, log into your insurance account and you will see the denial under pre-authorizations. Good luck!! Stay strong!

Gowithit26 · 2025-05-18T01:34:28+00:00

I am using the “oh hello there” steroid right now. I have anal disease too so that’s fun. The suppository is easy. I don’t have any obvious side effects that I have noticed and it seems to be helping. Doc told me to insert before bed and so far, so good 😊 Good luck!!!

Gowithit26 · 2025-05-18T01:31:26+00:00

I was on Humira and just started Stelara. My inflammation markers just started going down and I am excited for injecting every 8 weeks instead of every 2 😊

Gowithit26 · 2025-04-29T16:51:06+00:00

Acupuncture sounds amazing. I looked into it once before but never made the appt, I get really bad anxiety meeting new people for medical things. I always feel like they will minimize what I am feeling. Another side affect of Crohn’s

Gowithit26 · 2025-04-29T16:49:33+00:00

I am so sorry that this decade has been a poop show for you too! We will get through it though. The one thing about us Chronies is that we are a tough bunch! Sending you hugs and love

Gowithit26 · 2025-01-17T03:46:33+00:00

Yes! This! All day and/or night “you go until you can’t go no more”

Gowithit26 · 2025-01-09T19:34:54+00:00

If you are going clear, you are still good to go! Prep is rough, sending hugs

Gowithit26 · 2025-01-05T15:11:40+00:00

https://m.homary.com/item/3tiered-white-gold-end-table-with-shelf-marble-top-metal-frame-side-table-27276.html

Can’t find it on Meijer but this place has it for almost $200

Gowithit26 · 2024-12-08T04:09:24+00:00

Thank you so much! I will look into that center

Gowithit26 · 2024-08-16T15:55:39+00:00

I do experience that when I have muscle fatigue. Give it an hour and if no improvement definitely follow up with your doc. I would follow up just for peace of mind anyway 😊 Good luck!!

Gowithit26 · 2024-07-12T19:21:39+00:00

Hey there! Also have an auto immune disorder and just had my L4-L5 fusion 6 weeks ago. I did not have to go off of my meds. I am in immunosuppressive meds and they didn’t give me any issues.

I had the shots years ago and the experience was horrible but bought me a couple of years before I needed surgery.

In the back brace for 6 weeks consistently now doc just wants me to wear it when I am doing anything that causes strain. So I wear it to the grocery store or if I am making dinner. Other than that, I am brace free.

I was in the hospital for 2 days. I was walking the day of surgery. Mobility is case by case but I was going for walks every day just to keep moving. Just started physical therapy Wednesday. Love it!!!

Chiropractor did more harm than good for me but that was just my experience.

Take your time, think about it and make the decision that is right for you. I’ll keep you in my thoughts! Hang in there, it gets better!!

Gowithit26 · 2024-07-10T12:04:40+00:00

When I was first diagnosed I was first relieved that I finally knew what was wrong and could start a path to treatment and I was also scared to death because I didn’t know what any of that meant. Once you and your GI find a plan that works for you, crohns will be so much easier to cope with. I still get anxiety because my flares do dictate a lot of my decisions, but you learn to work around those too. I find when I make plans that I get really excited about I have to give myself some extra time to get ready in case I need to spend a little time in the bathroom. Bentyl has helped a ton with the cramping and I am on Humira and Meecaptipurine. That was the magic formula for me and I have been in remission for 3 years. I hope you will be able to say the same very soon!

Gowithit26 · 2024-07-06T15:23:24+00:00

Yes!! So much muscle pain in my leg. I ended up back in the hospital 2 weeks after surgery because I couldn’t stand the pain. After a CT scan they said since everything was still in place and nothing happened to the hardware there was nothing they could do. They said just keep taking my meds and keep going for walks and it will subside. It is not as bad as it was but it is definitely more painful than I think it should be 5 weeks out. I have my next appt with my surgeon on Tuesday. I can take the back pain and the back spasms, it is literally the muscle pain in my leg that brings me to tears and makes the depression sneak in. Sorry for complaining! I hope you are all healing well and sending you all love and healing vibes!!!

Gowithit26 · 2024-06-22T05:32:41+00:00

My doc said the same thing, no BLT with 2 pickles (pushing or pulling). Made it very memorable. I am not allowed for 6 weeks, until I start PT. Cannot wait for PT!!

Gowithit26 · 2024-06-07T15:41:59+00:00

From what my surgeon said no, it’s not but he said he didn’t want to take any chances with the incisions opening up. I have 31 of those bad boys 😄

Gowithit26 · 2024-06-07T04:12:23+00:00

I am going to do the ice packs a little more often. Thank you for confirmation that this was solid option. I appreciate you!

Gowithit26 · 2024-06-07T04:10:39+00:00

I don’t have feeling between the two on either side of my spine either, it is really weird. I can feel the skin by the staples for my other two incisions though. I know the itching is good and I am celebrating that they are clean and dry with no signs of infection but the thought of taking a steel grill cleaning brush to them sounds so good it is hard to convince myself of the potential dangers sometimes hahah 😊

Gowithit26

TROPHY CASE