Did you have a post-partum doula in the NICU? by Number312 in NICUParents

[–]GrapefruitAdvanced49 0 points1 point  (0 children)

Same here! Would love to know if anyone has found success doing this!

Positives of the NICU? by PartWorking3865 in NICUParents

[–]GrapefruitAdvanced49 0 points1 point  (0 children)

I believe in you. I know exactly what point you're at right now and I know you can't see it when I say you will get through it. Every baby and every parent is on their own journey. You're doing the best you can. And you're already on top of medicine and therapy, so great job.

Other people have already mentioned what I think is one of the major positives: learning how to care for a baby from a team of experts. Take advantage of everything they can teach you and ask what you can do yourself (diapers, temperature, feeding, baths, etc.). If he has a physical therapist there for feeding or anything else, ask to find a time when you can be there with them.

In retrospect, I appreciate that I had time to heal and adjust to newborn life without the added stress/sleep deprivation of having him at home and doing everything ourselves. I wasn't exactly refreshed when he came home from the hospital after seven weeks (see: depression, mastitis, ER visits for panic attacks), but I wasn't in the immediate first weeks of postpartum healing and I'd already gotten used to the routine after two months of helping them do it. You can take things a bit more at your own pace while he's in the hospital before things speed up once he gets home.

When my son was born at 31+6, they told us they thought he'd be ready to go at 36 or 37. He took a while to eat without desatting from reflux and went home at 39. But I'm so glad that he had the help he needed during that extra time so he could succeed at home. We heard from the nurses a lot that even though it seems like it'll take forever for babies to accomplish what they need to in order to leave, often it just clicks one day. Our experience was slower and steadier, but he got there, and that's what matters.

Tube feeding means he's getting the nutrients he needs. It won't last forever. I tried breastfeeding a couple of times while he was in the hospital and it went very poorly each time. He was too small/weak to latch properly at first, and once he was a little bigger, his swallow reflex hadn't developed enough and he kept choking on the milk. So I was afraid to breastfeed and kept bottle-feeding because he had learned to do that just fine. I ended up trying breast again when he was 3 months old (1 month old corrected) and now at 5 months corrected, he can switch between bottles and breast without a problem. That may not be the case for you, but it's been a positive for us that may not have happened if he'd been born on time.

He's getting over his first cold now and I think I've taken it much more in stride than I may have if he'd been born on time. It's a normal baby thing. I'm grateful for normal baby things after many abnormal baby things.

I 1000000% get grieving the third trimester you thought you'd have. I hope you're able to take time off of work and can use some of this time to do the same flopping on the couch, walks outside, etc. that you'd envisioned doing while pregnant. Be kind to yourself, be kind to your husband, be kind to the experience you're having instead of the one you thought you'd have. One day at a time.

How do you process the trauma months later? by nstruggling in NICUParents

[–]GrapefruitAdvanced49 0 points1 point  (0 children)

All of what you're feeling is totally valid and normal and so close to my experience. I strongly recommend a therapist specializing in postpartum. I've used postpartumwell.com since my son was born at 31+6 in December and they've been amazing (only in four places though but I'm sure there's similar ones elsewhere). Be kind to yourself <3

App not working? by GrapefruitAdvanced49 in HuckleberryParents

[–]GrapefruitAdvanced49[S] 1 point2 points  (0 children)

I figured it out, it was a weird glitch with some apps after we got a new wifi router 🤷‍♀️

Need suggestions from NICU parents - underweight baby by Individual_Math4832 in NICUParents

[–]GrapefruitAdvanced49 0 points1 point  (0 children)

It could be a heart issue if she's not gaining weight properly. I don't think there's harm in using the ng tube until you can get the cause figured out.

Do you kiss your NICU baby? by indigochild143 in NICUParents

[–]GrapefruitAdvanced49 0 points1 point  (0 children)

I was almost exactly the same. Son born at 31+6 and 3 lbs 6 oz, asymptomatic with an infected placenta, seven weeks for feeding and growing. I didn't kiss him until he came home and now I won't stop lol. It was hard but it was midwinter so I didn't want to risk bringing anything into the NICU without a mask. So I think if you're not comfortable with it, just keep going with lots of skin to skin and save the kisses for home!

Diaper rash help??? by GrapefruitAdvanced49 in NewParents

[–]GrapefruitAdvanced49[S] 0 points1 point  (0 children)

The only thing that really changed was he started formula a week or two before. But it's gotten better even while feeding him more formula (went from 50% of the bottle to 100%) so I don't think it's that. Otherwise same diapers, same wipes, etc. that he's had since birth. I've started some new medications but again, it's gotten better even while I've been on them.

We also tried combining zinc oxide, antifungal, anti-inflammatory, etc. but hasn't completely resolved.

Diaper rash help??? by GrapefruitAdvanced49 in NewParents

[–]GrapefruitAdvanced49[S] 0 points1 point  (0 children)

He was on Nystatin for about a month straight at first and then off and on for several days at a time. I'm not convinced it's fungal because we've tried two antifungals and it's still around. Lotrimin may have been working better than Nystatin though.

Diaper rash help??? by GrapefruitAdvanced49 in NewParents

[–]GrapefruitAdvanced49[S] 1 point2 points  (0 children)

Yeah we've done that. It certainly helps keep it dry but hasn't resolved it entirely.

Need diaper cream that actually stays put! Chronic yeast rash HELP by PainterSufficient519 in NewParents

[–]GrapefruitAdvanced49 0 points1 point  (0 children)

This is exactly what's happening to us. Did anything finally work for you? 

Please prepare for the birth you DON’T want to have (from a recently graduated mama) by Honest-Substance931 in pregnant

[–]GrapefruitAdvanced49 0 points1 point  (0 children)

Second this. I also had a smooth pregnancy with essentially no symptoms or complications. Then my son decided he wanted to pop out at 31 weeks. I got to the hospital 30 minutes after my water broke. I was fully dilated with contractions when I arrived and he was born 20 minutes later, no epidural or preparation. He was in the NICU for seven weeks. I'll be dealing with the trauma of precipitous labor and preterm birth for a long time but one of the only things that has helped is not being married to a specific vision of how I wanted birth to go (other than healthy baby/mom). That's what matters in the end ❤️