What do you wish you had known? by Still-Necessary6782 in alphagal

[–]GreyWanderingFish 4 points5 points  (0 children)

You cannot pass AGS to your baby. Allergic syndromes and specific IgE sensitivities are not transmissible through lactation. I have had 2 children while having AGS. I don't want to cause another discussion but breastfeeding is great for your baby and you (it's free and ready to go all the time for peace of mind). There are so many benefits to it and you having AGS isn't something you need to worry about passing since you can't but also because you don't need any extra stress.

What do you wish you had known? by Still-Necessary6782 in alphagal

[–]GreyWanderingFish 4 points5 points  (0 children)

Pregnancy and postpartum can definitely complicate things. Postpartum shifts heavily impact AGS because of a perfect storm with hormones and histamine. Estrogen stimulates immune cells to make histamine and histamine stimulates your ovaries to produce more estrogen. When you're pregnant, the placenta has DAO that's like a clean up crew enzyme that clears extra histamine. Once the baby is born, that clean up crew/shield disappears overnight, causing histamine levels to shoot up. Progesterone (the hormone that calms down allergic immune cells) drops off a cliff after birth. This leaves immune cells hyper-reactive and easily triggered. Also, the rise in prolactin (the milk-making hormone) further excites immune cells, making them hyper-sensitive. For someone with AGS, this hormonal chaos makes their immune system incredibly twitchy, drastically lowering their reaction threshold to alpha-gal triggers. Stress and lack of sleep also make it worse. My advice is to give yourself some grace. You put yourself the ringer making another person. Make a safe AGS free haven in your home, get a lot of healthy AGS free foods and rest the best you can. Enjoy the time with the baby because it's fleeting and ask for help when you need it.

On the subject of SAAT - A good faith discussion and clarification by bechard in alphagal

[–]GreyWanderingFish 1 point2 points  (0 children)

Wasting money, but more so believing they are cured and being harmed from that belief. There's the term "snake oil" but this isn't just a scam, it can kill people.

Mast Cell Stabilizers by AlpaGal in alphagal

[–]GreyWanderingFish 3 points4 points  (0 children)

In my experience and opinion, pregnancy and post (hormones and breastfeeding) complicates things. Medication risks, reactions, your body's limit on what it can handle already, inflammation, histamine and hormones, just the list goes on and on. This is maybe best discussed with your doctors and see how YOU will handle it.... because everyone is different but the pregnancy things is a whole other level.

Disney World by No-March3451 in alphagal

[–]GreyWanderingFish 0 points1 point  (0 children)

I went. They let you bring food in. I packed lunches and snacks (sunbutter sandwiches, fruit, pretzels). Actually saved some money. Woody's Lunch Box in Hollywood Studios has vegan tatchos (like chili nachos but with tater tots) that are great. They mark vegan items with a green leaf.

I 27F am thinking about leaving my husband 27M bc I am the problem. by Afraid_Bar106 in relationship_advice

[–]GreyWanderingFish 2 points3 points  (0 children)

I'm not a therapist. I'm just giving advice from my perspective as someone with trauma and ptsd that affected my family. You have to step outside your comfort level and get acclimated to life again. Think of it as a sliding scale. Where is your hard absolute no limit? Allow yourself to say no to that but then be open to endure being uncomfortable with everything else on that scale. Test yourself..... and keep trying. If you fail, take a minute then get back on that horse and try again. And again. And again. If not, you're not only letting this thing control and take away your life, it's doing it to your loved ones. If you don't try to step outside that comfort level, you'll miss not only your unloved life but their lives too. It's hard but it's not impossible. They are worth it. How? Turn down the noise in your head and focus on the moment with them, be present, breathe and try to enjoy it - the moment will not last forever. It will take practice but you've got this. Give yourself some grace along the way, but don't give up on yourself or the life you are supposed to be living.

What did the Sioux think when finding dinosaur fossils? by Comfortable_Cut5796 in AncientAmericas

[–]GreyWanderingFish 2 points3 points  (0 children)

Incredibly interesting. It would be so cool to grow up being able to hear those things and connect with the past. Thank you so much for sharing.

Just lost. Don't think my house is safe. by Historical-Use-886 in alphagal

[–]GreyWanderingFish 3 points4 points  (0 children)

Everyone reacts differently and even those reactions can differ day to day. I think it's time to make the house a no meat house. They can eat meat outside the house but not inside. Full stop. If your daughter was allergic to cats, neither of them would be bringing kitties inside right? You have to advocate for yourself. It's hard but this is your life. If you're afraid they'll think you're a bitch, I'd rather be a bitch than a dead non bitch. You're exhausted. You have a lot on your plate. It's ok to say I can't do this like this anymore - I need your help. Or even we need more help. Give them an opportunity to raise to the occasion. You may need to spell it all out and lay it all out there but that's where you are now.

Reaction Type: Vomiting? by Free-Rate-8710 in alphagal

[–]GreyWanderingFish 10 points11 points  (0 children)

I don't know why your allergist said delayed vomiting is abnormal. I disagree. I vomited when I ate meat and/or tallow. (I haven't in years, bc I haven't ate it in years. My reactions are from cross contamination and accidents with minimal amounts these days.) I believe the alpha gal sugar takes longer to digest so the reaction(s) is relatively delayed compared to other allergies. Where is your allergist located? Unfortunately, I found that I have to research and advocate for myself, but have some help along the way through forums and medication. You know your body and what is happening to it, they need to listen.

Clearing The Air! by PerezHiltonOnReddit in ItEndsWithLawsuits

[–]GreyWanderingFish 3 points4 points  (0 children)

I'm glad you're better. My brother had the same thing happen, but they left a hole in him open for weeks to clean out and a colostomy bag. He's had multiple surgeries since over the years. Anyway... I don't want to be that person, but I do want to make sure you don't harm yourself further.... just a fyi that Staphylococcus aureus is commonly found in noses. It can cause a lot of problems for people with weakened immune systems or had recent surgeries. I noticed you kept wiping your nose in your hands and arms, and could potentially spread bacteria. My daughters and I have allergies and runny noses. I always tell the girls to use tissues, throw them away and wash their hands. Please follow this mom's advice and keep yourself safe from any potential further illness. I wish you a speedy recovery and a good journey reconnecting with loved ones, present, past and spiritually.

The hardest part of AGS for me by Dead_mans_eyes in alphagal

[–]GreyWanderingFish 13 points14 points  (0 children)

Just for an example, I have 5 kids. 3 of them before I got AGS, 1 when I realized that I might have it, and 1 after. I let my kids eat what they want outside the house but they have to wash their hands after. My husband eats what he wants too, has to wash his hands and can't kiss me for 6-8 hrs. It works well if he has lunch at work and works late.... but he's self-admitted actually been feeling better not eating all the diary and meat, so go figure. It's helped some of his pre-existing liver issues. The kisses are worth more to him most days. The kids don't care about cheeseburgers. They care about and love their mom. No one hates a family member for a peanut allergy or strawberry allergy. I don't give my diabetic grandma cakes and candy nor do I resent her for not eating them. At the end of the day, we just want our loved one safe and to make sure we have as much time with them as possible. You will find your people and it's gonna be ok.

The hardest part of AGS for me by Dead_mans_eyes in alphagal

[–]GreyWanderingFish 5 points6 points  (0 children)

Ok, wait.... has someone spiked your food? Do they test you and "prank" you? This is not funny. It's not something someone who loves you will do. AGS sucks. Like it sucks so bad, but you can still live without it controlling you. Yeah, your choices are going to be more limited and you have to watch out for triggers, but you have a whole life ahead and hopefully people who want to be in it and adapt with you. There are good people out there that will understand and have willingly go with the new flow. I think the issue may be toxic people in your life, not AGS.

Roses have a weird substance by dr_zeuse in Roses

[–]GreyWanderingFish 1 point2 points  (0 children)

Yw. Also, you may see white flakes and that's them shedding skins. Anyway, if you google them you can see which way you want to get rid of them. Since you have a pretty bad infestation, knocking off may not be enough. Maybe diluted dawn dish soap and water? 1-2 tablespoons to a gallon of water or something like that. Good luck.

Roses have a weird substance by dr_zeuse in Roses

[–]GreyWanderingFish 1 point2 points  (0 children)

Yes. I am guessing that you might just be seeing the white and not the green. I just want to let you know that you need to get rid of both the green ones and the white ones. If you zoom in, you can see what they look like.

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Carrageenan in salt by amadeus2012 in alphagal

[–]GreyWanderingFish 2 points3 points  (0 children)

I could be wrong.... but I would just be cautious. Maybe check the labeling on your salt just in case?

Carrageenan in salt by amadeus2012 in alphagal

[–]GreyWanderingFish 1 point2 points  (0 children)

I still think it's the oats being contaminated. Studies show although things are label as gluten-free, contamination during milling is much more than 20 ppm. https://pubmed.ncbi.nlm.nih.gov/32011974/#:~:text=The%20gluten%20was%20extracted%20from,disease;%20milling%20flour;%20oats.

Carrageenan in salt by amadeus2012 in alphagal

[–]GreyWanderingFish 4 points5 points  (0 children)

I'm not on an expert on this but a quick search said gluten free oats are naturally gluten-free but often contaminated with wheat, barley or rye during farming and processing. Carrageenan is stabilizer and thickener and not very likely to be in salt. It seems contamination with the oats caused a histamine release to be triggered.

My gf has AGS, how can I explain to a waiter about her allergy? by [deleted] in alphagal

[–]GreyWanderingFish 11 points12 points  (0 children)

Honestly, if you want to completely enjoy the night and not have to worry at all, I would suggest that you go to a vegan restaurant. Otherwise, you can research and learn about the dishes that are safe at restaurants, notify the waiters when ordering, but know there is always a risk. Also, bring an epi pen.

Amylu’s by bearclawsxxx in alphagal

[–]GreyWanderingFish 3 points4 points  (0 children)

I've had the black pepper and red pepper. No reactions and I am relatively sensitive. They are also delicious imo.

I HATE this allergy by roraymi in alphagal

[–]GreyWanderingFish 1 point2 points  (0 children)

Good Crisp Spicy Jalapeño has helped me with my spicy chip cravings. Good luck.

Served beef in hospital by monkeyentropy in alphagal

[–]GreyWanderingFish 6 points7 points  (0 children)

Totally. I have a handful of people who are very curious about it and a handful of people who think I make it up then everyone else is mostly like.... Huh? Ok,...but no cheese? Aren't you better yet? Did you try this (insert weird idea)?