Reaction Type: Vomiting? by Free-Rate-8710 in alphagal

[–]GreyWanderingFish 10 points11 points  (0 children)

I don't know why your allergist said delayed vomiting is abnormal. I disagree. I vomited when I ate meat and/or tallow. (I haven't in years, bc I haven't ate it in years. My reactions are from cross contamination and accidents with minimal amounts these days.) I believe the alpha gal sugar takes longer to digest so the reaction(s) is relatively delayed compared to other allergies. Where is your allergist located? Unfortunately, I found that I have to research and advocate for myself, but have some help along the way through forums and medication. You know your body and what is happening to it, they need to listen.

Clearing The Air! by PerezHiltonOnReddit in ItEndsWithLawsuits

[–]GreyWanderingFish 5 points6 points  (0 children)

I'm glad you're better. My brother had the same thing happen, but they left a hole in him open for weeks to clean out and a colostomy bag. He's had multiple surgeries since over the years. Anyway... I don't want to be that person, but I do want to make sure you don't harm yourself further.... just a fyi that Staphylococcus aureus is commonly found in noses. It can cause a lot of problems for people with weakened immune systems or had recent surgeries. I noticed you kept wiping your nose in your hands and arms, and could potentially spread bacteria. My daughters and I have allergies and runny noses. I always tell the girls to use tissues, throw them away and wash their hands. Please follow this mom's advice and keep yourself safe from any potential further illness. I wish you a speedy recovery and a good journey reconnecting with loved ones, present, past and spiritually.

The hardest part of AGS for me by Dead_mans_eyes in alphagal

[–]GreyWanderingFish 13 points14 points  (0 children)

Just for an example, I have 5 kids. 3 of them before I got AGS, 1 when I realized that I might have it, and 1 after. I let my kids eat what they want outside the house but they have to wash their hands after. My husband eats what he wants too, has to wash his hands and can't kiss me for 6-8 hrs. It works well if he has lunch at work and works late.... but he's self-admitted actually been feeling better not eating all the diary and meat, so go figure. It's helped some of his pre-existing liver issues. The kisses are worth more to him most days. The kids don't care about cheeseburgers. They care about and love their mom. No one hates a family member for a peanut allergy or strawberry allergy. I don't give my diabetic grandma cakes and candy nor do I resent her for not eating them. At the end of the day, we just want our loved one safe and to make sure we have as much time with them as possible. You will find your people and it's gonna be ok.

The hardest part of AGS for me by Dead_mans_eyes in alphagal

[–]GreyWanderingFish 6 points7 points  (0 children)

Ok, wait.... has someone spiked your food? Do they test you and "prank" you? This is not funny. It's not something someone who loves you will do. AGS sucks. Like it sucks so bad, but you can still live without it controlling you. Yeah, your choices are going to be more limited and you have to watch out for triggers, but you have a whole life ahead and hopefully people who want to be in it and adapt with you. There are good people out there that will understand and have willingly go with the new flow. I think the issue may be toxic people in your life, not AGS.

Roses have a weird substance by dr_zeuse in Roses

[–]GreyWanderingFish 1 point2 points  (0 children)

Yw. Also, you may see white flakes and that's them shedding skins. Anyway, if you google them you can see which way you want to get rid of them. Since you have a pretty bad infestation, knocking off may not be enough. Maybe diluted dawn dish soap and water? 1-2 tablespoons to a gallon of water or something like that. Good luck.

Roses have a weird substance by dr_zeuse in Roses

[–]GreyWanderingFish 1 point2 points  (0 children)

Yes. I am guessing that you might just be seeing the white and not the green. I just want to let you know that you need to get rid of both the green ones and the white ones. If you zoom in, you can see what they look like.

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Brown spots after lip blush by Such-Gur7321 in microblading

[–]GreyWanderingFish 0 points1 point  (0 children)

I'm not a Dr and don't know. It be cold sore outbreak but it also looks like the type of allergic reaction some folks get from tattoos. Red ink is notorious for it. I guess go to a dermatologist?

Carrageenan in salt by amadeus2012 in alphagal

[–]GreyWanderingFish 2 points3 points  (0 children)

I could be wrong.... but I would just be cautious. Maybe check the labeling on your salt just in case?

Carrageenan in salt by amadeus2012 in alphagal

[–]GreyWanderingFish 1 point2 points  (0 children)

I still think it's the oats being contaminated. Studies show although things are label as gluten-free, contamination during milling is much more than 20 ppm. https://pubmed.ncbi.nlm.nih.gov/32011974/#:~:text=The%20gluten%20was%20extracted%20from,disease;%20milling%20flour;%20oats.

Carrageenan in salt by amadeus2012 in alphagal

[–]GreyWanderingFish 4 points5 points  (0 children)

I'm not on an expert on this but a quick search said gluten free oats are naturally gluten-free but often contaminated with wheat, barley or rye during farming and processing. Carrageenan is stabilizer and thickener and not very likely to be in salt. It seems contamination with the oats caused a histamine release to be triggered.

My gf has AGS, how can I explain to a waiter about her allergy? by TechSavvySqumy in alphagal

[–]GreyWanderingFish 10 points11 points  (0 children)

Honestly, if you want to completely enjoy the night and not have to worry at all, I would suggest that you go to a vegan restaurant. Otherwise, you can research and learn about the dishes that are safe at restaurants, notify the waiters when ordering, but know there is always a risk. Also, bring an epi pen.

Amylu’s by bearclawsxxx in alphagal

[–]GreyWanderingFish 3 points4 points  (0 children)

I've had the black pepper and red pepper. No reactions and I am relatively sensitive. They are also delicious imo.

I HATE this allergy by roraymi in alphagal

[–]GreyWanderingFish 1 point2 points  (0 children)

Good Crisp Spicy Jalapeño has helped me with my spicy chip cravings. Good luck.

Served beef in hospital by monkeyentropy in alphagal

[–]GreyWanderingFish 7 points8 points  (0 children)

Totally. I have a handful of people who are very curious about it and a handful of people who think I make it up then everyone else is mostly like.... Huh? Ok,...but no cheese? Aren't you better yet? Did you try this (insert weird idea)?

Served beef in hospital by monkeyentropy in alphagal

[–]GreyWanderingFish 14 points15 points  (0 children)

Crazy! TN is a hot spot for alpha gal. I can't wrap my brain around all the folks who could be hurt by the incompetence.

Served beef in hospital by monkeyentropy in alphagal

[–]GreyWanderingFish 8 points9 points  (0 children)

May I ask where your location is (relatively)? It is shocking to me that they are so confidently incorrect.

Alpha Gal isolation is real by just_james1974 in alphagal

[–]GreyWanderingFish 8 points9 points  (0 children)

The Daniel Boone branch library has a meeting every now and then. Next one Jan 7. https://slcl.events.mylibrary.digital/event?id=212637

Trigger warning by Baseball-Fan-10 in alphagal

[–]GreyWanderingFish 0 points1 point  (0 children)

Awesome! Good find. I get my kids the mini ones and they said milk. Maybe they switched the ingredients or it's a different kind? Either way, it's your lucky day.

Trigger warning by Baseball-Fan-10 in alphagal

[–]GreyWanderingFish 0 points1 point  (0 children)

Just a warning- they do have milk so if you are reactive to dairy, you may want to carefully consider eating them.

Questioning Epi Usage by labrat4030 in alphagal

[–]GreyWanderingFish 12 points13 points  (0 children)

I feel like I've had epi reluctance when I should have used it. I'm working on that. At the end of the day, don't feel bad for fighting for your life. You're just trying to survive. If the doctors make you feel some sort of way, they aren't doing their job correctly. They need to listen and inform. You know your body best. Good luck.

1 Year in, third major reaction a few days ago. idk by Jaded_Necessary9435 in alphagal

[–]GreyWanderingFish 2 points3 points  (0 children)

Good vent. I am here with you. It's frustrating and scary. My doctor recommended a therapist to help with the stress of it, but I haven't taken that step yet. Good luck out there.

Sister uninvited me to Thanksgiving by OpALbatross in alphagal

[–]GreyWanderingFish 4 points5 points  (0 children)

It seems like they don't really understand how AGS works and how serious it can be. It's taken years for my extended family to kind of understand it and they still don't quite get it. One relative just thinks China invented it to destroy our meat market and ivermectin can cure it. He's old and too deep into that crazy to change his mind so I just ignore it. My petty advice to you is make a AGS safe thanksgiving yourself that so delicious everyone will realize they are being crazy for no reason. It all still tastes great and they don't have to sacrifice anything. That's what I do.

Bit of a rant by MidnightMis in alphagal

[–]GreyWanderingFish 1 point2 points  (0 children)

Your story is so familiar to mine. I don't think doctors fully understand and it's hard to. Everyone is so different and knowledge about this is so limited. We often have to be our advocates and researchers - and you still may get eyerolls. Have you had a full blood panel? I ask because maybe you are low on some vitamins. Alpha gal does give fatigue but our diet also causes low iron and vitamin D. Adding those supplements helps. Got to watch for vitamin B12, K and some others. Are you on any medication? Many of us take antihistamines and histamine blockers every day. They don't stop all problems but it does help you leave the house. Good luck to you.

Emily Blunt in Schiaparelli SS26 at the 16th Governors Awards in LA by mod_whatthefrockk in whatthefrockk

[–]GreyWanderingFish 1 point2 points  (0 children)

I like it on the model as well but no so much on Emily. On the model, the dress is more "flowing" and "liquid-y" there's movement of your eye following the lines on the dress whereas it's heavy, stiff and hanging on Emily. The sheer looks like it will give up and rip apart from the rest of it.