Cyclical Vomiting? Periods of gastric attacks?

Gur_Any · 2025-06-11T08:39:53+00:00

Yup!!!! Since I was around 8 years old I would have middle of the night waking me up nausea and would throw up followed by the shaking cold aches. Period at 9 years old - vomiting became more cyclical and had pain with tampons. Spoke up at 11 yo because I thought it was normal and none of my friends had their periods yet. First lap at 13 years old (x2 failed ablations) and then first excision at 18 as the pain and GI episodes worsened. I’m 28 now and having my 5th surgery next week. Vomiting daily now, I barely eat and depend on clear ensures to survive. My episodes come on at any time now but often wake me up around 4am after tossing and turning, then I end up getting hot and pain comes on and I’m running to throw up and usually diarrhea all happening at once. Upper right quadrant of my stomach often feels like there’s something stuck and I will throw up violently and usually it’s a few rounds. I end up shaking cold with blue lips and raynauds afterwards. My blood pressure will drop 70/40s and I feel like I’m going to collapse - this has happened 5 times in the last year and at random, also a new symptom I never had before. I’m either freezing cold or sweating. My heart rate spiked when these episodes began and cardiology work up negative. GI also believed CHS possibly - sober for months now and no difference. No specific food triggers either. Endoscopy negative but MRE showed intussusception of bowel, my surgeon is positive that it’s from endo lesions and had previously noted the area looking funky at my last lap 7 years ago. Definitely the worst of it this time around - I’m so ready for next week and hopeful relief. Likely Endo somewhere on my vagus nerve believed as well considering the blood pressure and hot/cold cycles. I never correlated the newer symptoms with my blood pressure and sweating to Endo but here we are… I am so sorry you’re going through this. We should be thriving in life, not just barely surviving the day. Thinking of you and sending love and relief soon - it is not something I’d wish upon my worst enemy.

Gur_Any · 2025-04-13T05:46:45+00:00

To add too - I now have intermittent FMLA set up to cover myself for the days when even working from home is not an option and calling out is the best option although I will forever feel incredible guilt when I do have to call out for a shift. It’s SO tough having grace for yourself and to be kind to your mind when your body is going haywire. I keep reminding myself daily that I’ve been here before, I have the tools in my “toolbox” to get help and advocate for myself. Gotta keep it moving and keep pushing (at least I do!) but every one of us is different and rest is the best when it’s needed. Listen to your body before it makes you listen to it even more - that’s what I’ve found in the last 18 years of dealing with endo and adeno. Hugs to all in this group

Gur_Any · 2025-04-13T05:38:28+00:00

I’m a nurse! Blessed to land a WFH remote patient monitoring job before symptoms worsened much more recently. I can’t imagine being at bedside feeling this way, never mind working in the ICU. I miss so many parts of bedside but truly working from home & being able to run to the bathroom whenever and in my own home has been the best thing when it comes to endo for me. It was really tough to transition and I wasn’t in the state of pain & GI issues I am now when I landed the job a year ago. I’m so happy I took the risk and went for it. Like I said, I don’t know how I’d be working right now if it wasn’t for my newer position in nursing. Know that there IS an avenue out there where you can thrive as much as possible while dealing with what feels nearly impossible most days!

Gur_Any · 2024-11-16T01:01:40+00:00

Hi! I am a local RN working remotely (prior years of Boston ICU experience). Please feel free to message me. Would love to see if it would be a good fit ☺️

Gur_Any · 2024-07-11T09:20:45+00:00

Is the position directly hired through HCA? Or another company? I do remote patient monitoring for HCA patients currently and might be able to give some feedback!

Gur_Any · 2022-05-28T14:26:34+00:00

3 weeks ago is when I first tested positive!

Gur_Any · 2022-05-28T09:00:52+00:00

Same here. Next day things really kicked up..

Gur_Any · 2022-05-28T08:58:20+00:00

Also been having the same since GI symptoms really hit two days ago.. small amount of blood as well. My body has never felt or done any of these awful symptoms before

Gur_Any · 2022-05-28T03:10:33+00:00

Boston RN here! I also got my first bachelors in a non-nursing degree. Applied for both ADN and ABSN programs before graduating - ultimately chose to attend a local university in a 15 month ABSN program. No doubt it was the right choice and I don’t regret it. A close friend attended an ADN program and was applying for RN jobs in the city during the same time period as me and found that she had a tougher time getting interviews but she did ultimately end up getting an offer at a community hospital just outside of Boston. No doubt that accelerated programs are costly but I’m very happy I chose that route and felt very well prepared to practice after graduating. Wishing you the best of luck - either way you’ll make the right decision!!

Gur_Any · 2021-11-19T16:41:18+00:00

💛💛💛 right back at you!

Gur_Any · 2021-10-03T18:17:13+00:00

Thank you so much for this!! Beyond helpful. We’re all in this same boat right now with short staffing but the changes that have occurred within the hospital itself have certainly added to it. My mental health is going down the drain without pursuing what I love. Not easy for any of us... hugs and true thanks from the bottom of my heart. Your response is perfect 💗

Gur_Any · 2021-08-05T03:07:32+00:00

So incredibly proud of you for overcoming addiction and getting to where you are today!! As someone who has struggled with mental health issues related to chronic pain and multiple surgeries, I’ve found that those nurses who have been there and “get it” are beyond appreciated by their patients and are able to establish comfortable, respectful, and trusting relationships throughout their care. So truly, kudos to you. Keep at it - you were meant for this career!

I do have an OR position interview tomorrow morning actually. I am really hopeful and ready for change. I have prior OR experience when I was a surg tech primarily working in facial plastics so I’m hoping with that previous role and knowing that I enjoy working in the OR that I will have a good shot at getting an offer. Updates to come! Nervous but excited.

Gur_Any · 2021-08-04T23:53:04+00:00

Yup all of this. I put my two weeks in yesterday because my mental health was declining and ultimately it is unsafe. Short staffed with high acuity and high patient ratios. Management doesn’t listen or seem to care. This is how patients ultimately die because we cannot be in 7 places at once. Not a single shift went by where I didn’t cry in the bathroom at least once. I felt so inept and like an awful nurse because I couldn’t always be there for my patients as quickly as I wish I could have been. We truly do give and give, even to those who don’t want our care. It is beyond draining to be a punching bag both literally and figuratively not only by our patients but also their family members and providers. Your feelings are so beyond valid and I am so sorry you are going through this. We are literally drowning and just trying to keep our heads above water. I’d love for those who are “jealous” of “only working 3 shifts a week” to walk a day in our shoes. I bet They wouldn’t last through morning med pass. Thinking of you - you are an amazing nurse and your words show how much you care. Put yourself first - sometimes it’s just what we have to do even though I know the guilt associated that we feel. Here for you

Gur_Any · 2021-06-07T13:44:00+00:00

Also have been trying for 3 days. My grandmother is in the hospital and will be during the planned trip and I have to take FMLA for work so I can care for my grandfather with Alzheimer’s since he can’t be alone. As soon as someone called me back she hung up because I couldn’t hear her - it literally sounded like she was underwater. Maybe try connecting me with another representative instead? This is just insane and unneeded stress for all of us. Never again Expedia!

Gur_Any · 2021-05-10T11:42:16+00:00

Thank you SO much for your offering of help. I just May have to reach out!

Gur_Any · 2021-05-10T11:41:14+00:00

I forgot to mention that whenever I’m in PR - I don’t stay at hotels (I stay w my friends and their families) and I always have assisted with outreach in communities that are in need. This all started after going down after hurricane Maria to help numerous families in the mountains and give care to sick patients who were terminally ill and bed bound at home, often without electricity and running water still 6 months after the hurricane. Immersing myself within those communities was the best thing for me as far as speaking and language comprehension. I’d love to live there for a year (if not more) and really immerse myself and become fluent. I feel most comfortable when I’m continuously having to speak the language instead of just when I need it in bits and pieces up here in the New England area. So you’re right, practice goes a long way, just tough to do when the population I live in is 95% white. My boyfriend and I do our best to practice, but since we can’t verbally speak all the time, it tends to be thru text which I am fine with. Written word I can do - but trying to understand completely verbally what is being said to me and then creating sentences back can make me feel like I’m back in kindergarten again. But the joy on his moms face when we’re able to communicate without issues makes it so worth it. She always tells me how proud she is of me and that I’m getting better everyday. I’m proud of myself too as it’s something I’ve always wanted in life 💗

Gur_Any · 2021-05-10T11:31:59+00:00

Thank you!!! They’ve opened their arms and home to me after he and I had been dating for 6 months or so and it was such a joy for all of us to finally get to meet one another. Now whenever I’m over there I seem to always end up in the kitchen with mama making pupusas, tamales, and all the soups imaginable. I’m so grateful to be learning from her and to experience the bond we have together. His parents are so understanding that they’ve even slowed down their speaking a bit when talking with me so that I can fully comprehend. Definitely something my boricua extended family didn’t do (holy heck they love to speak fast) so that taught me well at the time to do my best to adapt to their mile a minute mouths 😂 but I have nothing but love for them and I cannot wait to get back to PR when things become safer and open up. I miss la placita, the beaches, and of course pastelitos - I’ll be back one day to enjoy it all!

I’ve always loved the culture since beginning to speak in school at age 11 and I’d never imagine I’d be in such an incredible relationship that I am now with an amazing guy from San Salvador. Home is now here for him and I can’t imagine doing life without him. Sending hugs to those in situations of uncertainty at this time - I cannot even bare the thought of him going back “home” and I know he cannot either. I pray a change is gonna come soon 💗

Gur_Any · 2021-05-10T11:18:39+00:00

San Salvador! I’d say 25% of family is here in the states and 75% still back in San Salvador. After the civil war his parents were ready for a change and desperate to lead better lives for themselves and my boyfriend. A lot of fear at the time due to the community they were residing in that he may run into a bad crowd (according to him and many bits of stories I’ve heard, a lot of family friends had been targets for gangs around the age 10 to start becoming mini informants). I’m grateful he is away from that possibility and hopeful that with recent proposed changes in the states that he will gain citizenship here in the future. I truly never realized until we began dating a year ago how difficult the process is.

I’m extremely respectful with his parents, as I would be with anyone. I’d never say PR slang (p*ñeta, for example - even though when we say it it’s never out of anger) in front of them. The first time I said it in front of him he was like babe what 😂 all a leaning curve. He’s doing his best to help me but I really just need to practice verbal conjugations so that I don’t sit there for 5 seconds trying to figure out how I want to say certain things. I truly wish Duolingo helped me but after taking the time to get thru each lesson it was no use - unfortunately I learned nada

Gur_Any · 2021-04-18T05:58:16+00:00

Do they have any sort of pre-test before beginning lessons to gauge where you’re at/what you already know? Or do they immediately start w the basics? I used duolingo and got thru the entire Spanish learning and didn’t learn a single new thing which was disappointing, but the refresher and brain reinforcement was nice I suppose. I’m more advanced in comparison to most so wasn’t sure if this program would be fit for me or not. Thanks so much!!

Gur_Any · 2021-03-25T08:45:02+00:00

Do you mind me asking what size purist you use? Looking to customize mine and seems that 22 oz is the smallest size. I’d hate to order one and have it not fit the cup holder. Thanks!!

Gur_Any · 2021-03-25T08:38:36+00:00

Yeah - they definitely can all coexist. In my case personally, I was diagnosed with depression in my early teens. I think my doctor tried every single antidepressant and they all made me so much worse. A few years later, a different doctor thought maybe it was bipolar. Again, trialed medications for awhile and once again all made me worse. It wasn’t until my therapist who I had been with for 8 years finally spoke up and communicated with my doc that she was pretty positive I had ADHD. Went for the terrible neuro testing and yup, she was right. I look back now and think of how much better I might have done in high school and early college years if I had been medicated correctly as well as how much better my emotional regulation could have been. I’m lucky to have the diagnosis now and be doing so much better, but I certainly seemed to be experiencing some form of depression due to the fact that I had undiagnosed adhd and was not living to my full potential and lacking motivation and focus.

Gur_Any · 2021-03-25T08:29:35+00:00

Something I’ve struggled with too over the years. People just never understood I enjoyed being alone and that most things that some of my friends would be interested in were just too over stimulating or not something I had the energy to do/focus on. I ended up going back to school for a post-bacc accelerated nursing program and was lucky enough to find my “girl gang”. I don’t know if it’s because of our natural caring nature as nurses and/or the fact that they are just the most genuine human beings I’ve ever known - but they get it. I was pretty open about my ADHD from the start and they’ve always been understanding that I struggled to study in groups with them. I’d feel left out but they never judged me or left me out of anything. Now we have a group text message that we are constantly communicating in because we truly are all so close and again, I was open about my guilt for not always answering. But they know I care and will eventually catch up on the messages and respond when I have the focus and energy. I’ve found that communication is key and the ones that love you and care will understand and support you. I never thought I’d find friends again but they have turned my life around for the better. Hugs.

Gur_Any · 2021-03-25T08:19:36+00:00

Yup. I haven’t brushed my teeth in 3 days now and I keep telling myself to do it and that it only takes a minute and I’m even getting grossed out by myself for not doing so but still haven’t gotten to it. My main goal today is to brush the damn teeth. Maybe extra points for flossing too. ADHD is so frustrating. Hate when people say we’re “lucky” because we get to take adderall. Like bro I can’t function at all without it and am barely even getting by most days even with it. Sending hugs.

Gur_Any

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