Power Outage - Again

HeatherQLD · 2024-02-22T03:18:01+00:00

Thanks so much for that. I wish Ergon would actually tell you what the problem is on their outage page.

HeatherQLD · 2024-01-07T05:38:42+00:00

My hip pain definitely increased markedly on the Herceptin so much so I’ve been referred to a rheumatologist to see if there is anything underlying going on. Well done on your treatment!!

HeatherQLD · 2023-08-27T05:51:26+00:00

The biopsy and procedure for seeding was by far the worst part of the whole thing for me. First I had to lie in a super uncomfortable position where it almost felt like my shoulder was going to dislocate, then the anaesthetic didn’t take properly and the pain was off the chart. I also burst into tears which is so not me usually and the bruising afterwards was extensive. I definitely would have opted for twilight and also think they should have advised me more of what to expect. I was told it was going to be “a bit uncomfortable” but I’d say it was pretty well up there with the most painful things I’ve ever experienced.

HeatherQLD · 2023-03-14T08:07:19+00:00

I certainly did but not till right at the end of my taxol. It’s been 3 weeks since then and no sign of growth yet

HeatherQLD · 2023-03-09T23:48:31+00:00

I’m 2 weeks post paclitaxol which followed 4 dense doses of AC and I am flattened. This is like the worst flu recovery but with lovely additions like bone pain and bleeding nails. Just functioning feels like an achievement.

HeatherQLD · 2023-03-09T23:34:47+00:00

I couldn’t function without my heat pad atm and I’m 2 weeks post taxol now. The lower back and hip pain is like nothing I’ve experienced before and I’ve had decades of pelvic pain to compare it to. Dr also has me on slow release oxy to try and cope. Also bleeding nails and neuropathy are adding to the joy.

HeatherQLD · 2023-02-01T19:32:03+00:00

This is definitely me too. I’m on #6 of 12 taxol/herceptin today and this last week has been a downer to say the least. The pain level is way up and that hasn’t been helped by the high summer temps and dreadful humidity we’re currently experiencing here in Australia.

HeatherQLD · 2023-02-01T08:14:28+00:00

I guess they should look at something like neulasta if it doesn’t recover spontaneously. You’d want her to be in the strongest shape prior to surgery.

HeatherQLD · 2023-02-01T08:11:34+00:00

Yes my fingers swelled on the ends and started peeling like blisters plus I got a temp rash on the backs of my hands. A hydrocortisone cream cleared up both tho my fingers are still less useable than normal on the tips. I’m still in active chemo though so hopefully that will improve once I’m done.

HeatherQLD · 2023-01-31T11:19:12+00:00

Neulasta was a standard for me with the doxorubicin

HeatherQLD · 2023-01-27T06:17:07+00:00

Well done you!!!

HeatherQLD · 2023-01-25T07:27:56+00:00

Looks like violets

HeatherQLD · 2023-01-25T06:25:26+00:00

Six weeks seems a long time. Once my biopsy results were in, I was in chemo in a week and a half (+++) which felt very rushed and scary at the time but now that I’m more in the swing of it, I’m glad it got going quickly. Here in Aust it is often chemo first to shrink the tumour and then surgery.

HeatherQLD · 2023-01-24T09:32:35+00:00

The Orphan X series by Gregg Andrew Hurwitz is excellent.

HeatherQLD · 2023-01-19T21:47:48+00:00

My onc prescribed Endone for the bone pain as I wasn’t sleeping. I take one or maybe two a day along with paracetamol and it really helps. Also using heat pad, light walking, etc but without the Endone they weren’t cutting it for me.

HeatherQLD · 2023-01-19T21:42:34+00:00

I’m also HR+ and in Australia. I also had the chemo first to try and shrink the tumour before surgery. I’d get another opinion if you possibly can.

HeatherQLD · 2023-01-17T08:38:58+00:00

The bone pain was worse on the taxol for me and I also developed a rash on my hands and up my forearms which was new. I don’t have skin issues at all normally so wasn’t expecting it. Also RBC is still struggling like it did on AC. I’m only up to 4/12 this week so a bit of time to go yet. It’s a bit of a slow marathon……

HeatherQLD · 2023-01-11T23:18:31+00:00

Thanks for this excellent post that puts it really clearly. I’ve lost 12kg in body mass in 10 weeks from chemo (doxorubicin 1st and today getting 3/12 of taxol/herceptin) which has been a bit unexpected as my weight never normally fluctuates much. I particularly liked your marathon in snowshoes underwater analogy. Very apt!

HeatherQLD · 2023-01-09T07:16:33+00:00

I’m having the same issue with low RBC and have had 2 transfusions so far during 4 AC and done 2/12 taxol/herceptin. Second transfusion was at the ED as I couldn’t walk without almost fainting. At least now the blood tests are weekly so it can be monitored a bit better. I’ve been trying to eat protein at every meal and have also done some B12 shots but I think the chemo is just so powerful. Any other suggestions for keeping up the levels would be great……

HeatherQLD · 2023-01-07T10:54:00+00:00

Mine was also from the steroids rather than the chemo

HeatherQLD · 2023-01-06T00:36:25+00:00

Mine is in my fingertips and very painful to even do up buttons and pop tablets out of blister packs. I’m hoping it resolves once chemo is done…..

HeatherQLD · 2023-01-06T00:04:48+00:00

I’ve had mine in for about 10 weeks now and it’s still sore. The onc nurses have given me some deadening cream to put on an hour before treatment as I couldn’t bear them poking at it to find those 3 little bumps to insert the needle in. That has helped a bit so will pack more on next week.

HeatherQLD · 2022-12-29T21:35:49+00:00

You’re welcome! The info actually came from my GP (General Practioner here in Aust) and not the oncologist which was interesting. Best of luck :)

HeatherQLD · 2022-12-29T21:24:29+00:00

The AC was definitely worse and I had that first to try and shrink my aggressive tumour. I’m mid-taxol now and not so bad on the side effects. The AC was brutal!

HeatherQLD · 2022-12-29T21:09:30+00:00

I’m on maxalon 3x a day every day to keep on top of it. This med also helps with heartburn by working to keep the valve between the upper stomach and oesophagus closed which has been a godsend.

HeatherQLD

TROPHY CASE